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Brain Cancer

Pleomorphic Xanthoasytrocytoma (aka PXA)
Hi again, I cannot believe I have not had any posts on (Pleomorphic Xanthoasytrocytoma) PXA tumors, but on the other had it is a "rare" type. Please if you know of anyone dealing with or had dealt with this type of tumor please reply. Thank you, Sunshine123
Astrocytoma glioma
I have had 2 unsuccessful resecssions and had been on temadar and have done 32 tomo radiation treatments..Its just hard no one gets it and tumor still there..Talking out loud is new to me. I am 45 and have been dealing with this a little over a year now.
Please help me
My son Dino is diagnosed with brain tumor called germinoma, before few months. He went through radiation and now is 1 and 1/2 months after he finished radiation but no improve shows. He is much worse than he start radiation. Is somebody can help me with, to explain me or tell me when I can expect any better. After 3 weeks…
thanksssssssssssssssssssssssssssssssssssssss
i want to thank all the peoples who condolences in my little daughter Farida the seven years old
MY LITTLE dughter is deaddddddddddddddddddddddddddddddddddddd
MY LITTLE GIRL FARIDA IS DEAD EVRY BADY SHES DEAD
Neurologist's Recommendation - Thin Cuts through the Meckel's Cave
My Neurologist is recommending that I get thin cuts through the Meckel's cave, using the 3 Tesla machine to see if there is any evidence of a vascular loop. I have alredy been diagnosed with a Meningioma, but there has been no change in this for the last six months. I was in such shock when I visited the Neuro last week…
Anaplastic Oligodendroglioma lll
My husband was diagnosed in Nov 2007 with an Astrocytoma II at the age of 25. We had a biopsy done to make this discovery and then decided to watch the tumor over time instead of doing surgery for a complete removal. His tumor then changed in August 2010 to a Anaplastic Oligodendroglioma III and was required to be removed.…
Daughter diagnosed with AA III
On August 23 my daughter was dx with AA 3 in San Antonio, Tx. We were at first told tumor was benign and shortly after biopsy we were told it was indeed malignant. Her only symptoms have been double vision in her left eye. That was the main reason why we initially took her to eye specialist. We are now at MD Anderson in…
astrocytoma stage III (just found out)
we just found out my husband has astrocytoma stage III. he has already had brain surgery to remove some, got the chemo waffers and will start the 6 week radiation in another week. we were given a life expectancy of 10 to 11 months. we have two children 11 and 7 and i am looking for advise on how to get over the bad and…
Thoughts on the book 'Anticancer, A new way of life' by David Servan-Schreiber
Hi, I have a brain tumor (diffuse astrocytoma/gliomatosis cerebri) and have (almost) finished reading the book "Anticancer, A new way of life." Getting this diagnosis and beginning treatment has been at times chaotic and confusing, sometimes surprisingly joyous, but definitely tumultuous. I found that this book touched on…
cancer treatment center of america
anyone have experience with these hospitals
BRAIN STEM glioma FAST HELP PLEASSSSSSSSSSSSSSSSSSSSSSSSS
my little girl was diagnosed with a brain stem tumor in 8/2009 shes completed 6 weeks of radiation . and now she look like die any bady can tell me what can i dooooooo plzzzzzzzzzzzzzzzzzzzz
glioblastoma IV...standard therapy...trials...or omeopatic?!
dears, my name is Luca Angelucci and im writing from italy,Rome exactly. recently,a GBM has been found in my mother's brain.. too big and vascolarized to make a surgery.. after 2 weeks under control in a hospital, she was sent home, waiting to start the therapy without the possibility to have a surgery or a biopsy before.…
Temodar causing alot of problems...any other better treatments?
my 65 year old mother had brain surgery in december 2009 to remove a tumor in her frontal lobe..they could only remove 68% because of where it was...to risky to remove all of it....then in jan 2010 she was diagnosed with GBM grade 4....she did 6 weeks of radiation and 42 days of low dose temodar...she did well except for…
Avastin
Hi folks, It has been a while since my last visit to this site. My wife was diagnosed with Anaplastic Astrocytoma Grade 3 in 2006 - surgery, radiation and temodar. Surgery again in July 2009 followed by Temodar again. Since then she has only been getting worse. She now has a new tumor that is inoperable (too deep) and has…
GBM-low hemoglobin & very high ferritin..inoperable-temodar-radiation-dvt-coumadin....now ?
My Mom keeps hitting these road bumps & now she has had her HGB drop since starting on coumadin on 7/22 b/c of a DVT. She started her Temodar & radiation July 13 & b/c of platelets dropping they put Temodar on hold 8/9 resumed for 1 week. On 8/16 when they saw how much her HGB & RBC’s were dropping they held the Temodar…
Malignant Melanoma Now in Brain and Liver
Hello and thanks for reading.. If you're reading my message than maybe like me..you have a loved one who is ill or is sick yourself..i'm sorry for your pain and I hope you or your member heals as fast and painless as possible... Dr's found Melanoma on the back of my mom's left arm about 7 years ago..it was removed and…
I have not read the entire article but thought I would share.
http://virtualtrials.com/williams.cfm http://www.phoenixnewtimes.com/2010-08-05/news/til-death-do-us-part-they-got-married-then-everything-changed/1/
need to help my little brother.....
My thirty year old brother just had a malignant tumor removed five days ago. Preliminary results point to medulla blastoma. I feel utterly helpless, everything on the net insinuates nothing but doom and gloom. What can I do to support him and my my mother physically and emotionally. What can we expect? Any positive stories…
AA3 Recovery
HI, I just want to share that my 18 year old daughter is doing really well. She was diagnosed with AA3 when she was 16, Feb. 2009. She had surgery to remove the tumor, followed by radiation treatments and oral chemo. She had oral chemo for a year, every 6 weeks. She has had MRI's every three months for 17 months, and all…
Glioblastoma
As i am so blessed this week to celebrate another birthday with my mom i thought i should post her story to give encouragement. When she was first diagnosed i really held onto encouraging stories for hope. On 9/11/08 she had surgery on the right side of her brain to remove the tumor at the University of Pittsburgh…
glioblastoma stage 4
hi. my husband was diagnosed with a brain tumor in jan. of 2010. he has been through the radiation and chemo. he also had surgery which removed most of it. now my dr. is talking about treatment with avistan. i just wanted to find out if this works and if so for how long. i do know everyone is different ,but just want to…
Hand tremor - anyone had success treating with physical therapy or other approach?
Hi All, I am new to this with recently-treated diffuse astrocytoma (radiation, temodar). I have developed a tremor in my left hand which has made typing and other tasks difficult. I understand this is a fairly common symptom. Has anyone had success controlling it? Looking for ideas. Steve
Fast recovery from AA3--Miracle or Mistake?
Ladies and gentlemen I could really use your expert advice. I want so much to believe this is real but it seems so bizarre I'm afraid to fully embrace it. In March 2009 my kid sister was diagnosed with Anaplastic Astrocytoma 3. They surgically removed a tumor that was an inch in diameter. There was still an inoperable…
dystonia
has anyone experienced dystonia from full head radiation?
Please help my dad!PLEASE!
First,thank you for your coming.My dad was diagnosed with Glioblastoma last month.We are very sad to hear that,because I can't believe it.My dad is a police.He is always very healthy,but now... I begin to search anything about this at internet,but i find that nobody know the reason of this disease. At chinese,doctor are…
FB style? site for brain tumor patients and survivors
The abta told me about their new Connections site. It should be great once I figure out what I'm doing! Thought I'd post this here in case I'm not the last to know! http://hope.abta.org/site/UserLogin?NEXTURL=http://connections.abta.org/editor/app/admin/tptdashboard.aspx
Primary medulloblastoma in children
a colleague of mine just found out their child has primary medulloblastoma, does anyone have information about studies done using either chemotherapy and or radiothion therapy. please help
Any suggestion to combat Fatigue and how to keep yourself preoccupy during recovery process
Hello everyone, I was diagnosed with a brain tumor recently and since underwent 2 surgeries for removal. I did well after surgeries but what I'm struggling with is fatigue and mental breakdown. Since I'm a very social person, I'm used to being around people all the time. Going through recovery, I find it mentally draining…
PTL-Post Transplant Lymphomas - in the brain
my husband (40 years young) was told he has 2 PTLs one on the left hemisphere and one on the brain stem. 4 years ago he had a kidney transplant. we are at the end of chemo (just this week) and in 3 weeks he will have another MRI. The previous MRIs showed no growth but also no shrinkage. We have an awesome medical…

Brain Cancer

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