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targeted chemo for gbm grade 4
Hi everyone, Does anyone out there has had any experience with targeted chemo?? Could you possibly give me some more info about this?? My husband might be considered for this "new" (?) therapy. thank all of you and wishing you a good day, never give up hope and faith, in life, in miracles, Hetty
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21 days of Temodar
Looking for info and side effects of Temodar for 21day cycle
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Astrocytoma III but acting like a IV.
Saw our son's chemo doc for the first time last week. He's starting Tamovar and radiation tomorrow. The doc said that the pathology report said it was a grade III astrocytoma but acting like a IV. Should have asked what she meant by that but didn't want to in front of our son as I know it can't be good. Has anyone had a…
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House cleaning
In case there are people out there that do not know what kind of services are available to chemo patients. There is free cleaning service for patient going through chemo, it's called Cleaning for a Reason. It is available for any type of cancer and is available in almost every state. Just look them up online and fill out…
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the story of my life: Panormitis
My husband is nearly 46 years old and was diagnosed with gbm grade 4 in april 2010. We have two daughters of 17 and 15 years old. My husband is Greek, I am Dutch and we lived on a small Greek Island ( me nearly 30 years) where there is no medical care, no airport, nothing. We were in hospital in Athens, where they said it…
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statistics of a glioma blastima multiforma
Statistics What can I say??? Statistically my husband was given just a couple more weeks of life. This was at the end of April 2010. Statistically, the side effects of chemo brain surgery/radiation/chemo are many. Statistically, the patient will get depressive. Statistically this.... statistically that.....!! But are we,…
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GBM grade IV and Keppra
In October 2006 I had a brain seizure and passed out. After a series of medical tests I was told I had a brain tumor. Within days I had brain surgery. The pathology report indicated that I had a malignant grade IV glioblastoma multiforme. (I asked for a second opinion – and it mirrored the first analysis.) A week after the…
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radiation treatments are over now what?
Feel more scared now. My sisters radiation treatments are over and now Im feeling more overweld than before. Is this normal? Im afraid of the first MRI to come. She had to stop temador a week early because of low platlet counts. Now if the dont come up by next week they will make her hold off on the avastin. Good God the…
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child of a parent with brain cancer?
Well, my mom was diagnosed with Glioblastoma about 10 months ago and I have been struggling. It has been very hard on me, and on top of that she lost her job because of it. I have been searching for a support group to try to find people, around my own age, who can relate to what I have been feeling. I have not really had…
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help! need answers :)
My sibling has a brain tumor (anaplastic astrocytoma...grade 3) he got whole brain radiation (it is not operable) and so radiation is not an option again. temodar by mouth was not working so he is now on a chemo cocktail through an IV once every 2 weeks for 6 weeks. my question is how long can someone live on chemo? can he…
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Brain stem glioma
Hello I am 33 years old and was diagnosed with inoperable brain stem glioma.I am on my 3rd week of radiation therapy and will be on chemo starting next week. I have lost all my hair already and have not been feeling well at all.I have been week and nasueaus each day i had to stop working and everytone is telling me to quit…
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Diet recommendations for managing nausea?
Hi there, I've been a following discussions for a long time now and this is my first time contributing. I sincerely appreciate how open and helpful each of you are to one another. I hope that I can provide some contribution and reciprocate the love that I've witnessed. My mother was diagnosed with GBM in Sep 2010. She has…
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RIP SEVE BALLESTEROS!
One of th most Golf legends ever! RIP.
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Emotional Effects of Brain Tumors
Hey - Has any body had any long lasting negative emotional effects from brain surgery, radiation, having cancer, etc?
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Is it normal for them to be impatient short tempered and mean
My Father has become mean very impatient and short tempered is this something that should be expected and is it gonna get worse. I am trying to be supportive but am finding it harder with this new attitude.
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grade 3 anaplastic astrocytoma.....spread throughout my brain
I was diagnosed with level III anaplastic astrocytoma this past July (2010). In 2007 I had some really mild "zone out" type activity. It only happened a couple of times and then went away. When I mentioned it to the doc he said, "If it comes back we have to look into it". 3 years later, in April of 2010 they came back. It…
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ommay resevoir causing violent sickness
HI just wondering if anyone has experienced a voilent reaction when the chemo is put through the ommay resevoir. The docs. have tried so many anti-sickness now and all fail the only one that works is one that puts me to sleep, but even at that I can wake up with in 2hrs and still want to vomit. I end up asleep for about 14…
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Brain cancer cure
Hello Anyone tried hemp oil to cure their cancer as stated in these videos: http://www.youtube.com/watch?v=99Wwlv3ejCI http://www.youtube.com/watch?v=dSXhwP5QjUQ&NR=1 a lot of research on THC suggests cure. Thank you. Kishi
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Leg Pain...any suggestions?
Hi! I was diagnosed with Medullablastoma in October of 2010 and I am currently going thru treatment. I am 26 years old. I have done 30 sessions of radiation and have completed 2 of the 6 rounds of chemotherapy. I have been trying to deal with severe leg pain for the past 3 months. They think it is neuropathy, but cannot…
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GBM grade 4
I am a 34 year old woman who was diagnosed with GBM 4 in March. Apparently I have the tumor in a few places. They got the big one. I am currently undergoing radiation and chemo. I was fine the first 4 hours after my first radiation appt (2 weeks ago) and then.... I dont know what happened. I didnt remember anybodys name…
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aphasia
Last September, my mother began to show symptoms of aphasia. It was from this that the doctors discovered that she had brain cancer, which was later found to be GBM 4. The aphasia first manifested itself in loss of vocabulary and saying the wrong words sometimes. But it has gotten worse, to the point that she seems to be…
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son
My son Brian had brain cancer in 1983.Oct it was determined he had stage 4,he lived 6 weeks,he had a treah no talking on his part.You must ask your family member questions if they cant talk to raise their hand or leg ,for instance he was acting like he was in pain.I said Brian if your in pain lift up your left hand,he did…
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Husband and Myself Have Cancer
This past summer my husband and myself were diagnosed with cancer. I was diagnosed with breast cancer in July. I had a mastectomy and 10 lymph nodes removed. The tumor was almost 7 cm and 7 nodes were cancerous. I am stage 3a. Two months after my surgery, my husband was diagnosed with a brain tumor. He has GBM4. For a few…
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AT/RT
My 1yr old daughter has recently been diagnosed with a rare brain tumor. She had the tumor removed but now we're looking for further treatment for her as we don't want to see her going through chemo. If anyone has any information on alternative medicine please, please write back.
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GBM Grade 4
My Fiance has recently been diagnosed with a grade 4 GBM, he has had 60 - 80% surgically removed and will start Chemo and Radiotherapy next week. Looking into the condition, there seems to be a mixture of stories in respect of survival. Has anyone had this condition for quite some time?
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Avastin with or without CPT-11/Camptosar/Irinotecan and MSKCC?
Hi everyone, I am new here, and writing in regards to my mother who is a non-small cell lung cancer survivor (currently 53 yrs old) of 7 1/2 years, who, unfortunately, is battling with metastasized brain cancer at this point. She was first diagnosed with 2 mets in Feb 2006, and went through a round of WBR, and a long…
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More whole brain experiences wanted
Hi everybody, my 72 year old father has thyroid ca that has mets'd to his brain. He had a single lesion in an inoperable location. We got several opinions and went with the general consensus to do whole brain (15 over 3 weeks) than SRS. It appears that the tumor was 'killed' but he is having horrible side effecgts from the…
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Problem of No Taste
Hi Everyone - My husband, Jerry had 12 hour brain surgery where they got ALL the tumor. However, due to it being Cancer and some stray cells he underwent 33 radiation treatments. Now he is in the recovery period after all the radiation and his biggest problem right now is NO TASTE and NAUSEA. He has 3 different meds to…
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DCA
Hi again everyone, I stumbled upon this online and wondering what you guys think - http://www.thedcasite.com/dca_how_it_works.html http://www.medicorcancer.com/dca-therapy.html There's not talked about this DCA therapy, although it sounds promising.
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GBM IV with new growth at 15 months
Hello My dad was diagnosed in Dec. 2009 and followed what seems to be the standard protocol; surgery, radiation and temodar. Things had been going well until this week. His MRI shows signs of new growth. So I am wondering what this means. The doc's just keep telling us that the original diagnosis still remains (12- 18…