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how often do you see your radiologist post treatment ?
I had my post treatment visit with my radiologist this past Fri (last treatment 6/24) I am scheduled to see her again in October but after that she is moving her pracice which took me by suprise. We hugged when I left and told her I'll look foward to seeing her in Oct but was so in shock about the move which will be right…
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Does anyone drink alcohol since after their treatment?
Hi Everyone! I was Barb5454 but my account got messed up and now I have a different user name. Anyway, I'm 1 1/2 years post treatment and cancer free. Sometimes I like a beer or even a glass of rum and coke. Is this wrong? I read on the American Cancer website that alcohol and cause colon cancer. I quit eating meat so I'm…
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how do you know if cancer is spread to lymph nodes?
Hi, I've posted here before that I have a perianal squamous cell carcinoma in situ as diagnosed recently by biopsy, Today my doctor said I have a T1 cancer with no spread to anywhere else as shown on my mri and ct scan. He never mentioned nodes though, I'm wondering how a doctor knows if it's in the nodes? Does the scan…
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Back on the sex wagon 4 years later....
Thank you God I have a pseudo name... My hubby died when I was 10 weeks pregnant with my son who is now 8. I was diagnosed with cancer when my son was 8 weeks old and finding a new 'friend' was not on my radar dealing with a newborn baby and a life-changing medical condition. I have not dated anyone for the last 4 years as…
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lungs showing activity again
hello all again! i truly appreciate all your responces when i ask a questions. well i got my cat scan results and the dr says its still all good. i should be happy right ? well im not , in fact im kinda scared. this is my 4th cat scan since i finished treatment. on my first one i had fluffy looking nodules everywhere,…
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CT results
Had CT yesterday. everything looks good! Like many of us here, I was sooooo worried it came back which usually the really bad worrying starts a week before scan. Had my CT at 1:30, met with oncologist at 2 for results. Doctor has scheduled next CT scan for a year from now. WOW, kinda great, kinda scary. I was diagnosed…
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Using new dilators
Just wanted to share some informatiom from my pelvic floor therapist. She suggested that I try Tantus silicone dilators. I have found them to be very comfortable. Be well.
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10 days in the hospital
Finally home and feeling better. I finished treatment June 24th, the next 2 days were prom and graduation and quite rough to handle but I made it through. The radiation burns continued to become increasingly worse, I went to see the radiologist for a scheduled skin check at which point she sent me to be admitted for wound…
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Still haven't healed from radiation after 18 months
It's been a while since I've been to this site, and I'm sorry. I finished treatment in Oct. 2012 and so far, so good as far as recurrence. I stayed in touch for a while after treatment trying to give a little back, but got out of touch. I want to rejoin this group of people who I consider family. As in the past, I'm having…
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Anal itching - internal
Hello friends ... It's been awhile! question for all of you around or beyond 3.5 years post treatment with standard combined chemo/radiation. Do you still experience anal itching? What are your long-term "anal" issues that you deal with? Thanks ... Coming up on CT scan and full follow up .... Worried as usual! Any personal…
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Finding the right radiation oncologist
Hi, my name is Sophie and my mom was just diagnosed with anal cancer (located in the anal verge). Tumor is 3 cm. We meet with the colorectal surgeon to discuss her options. Her surgeon tells us that a combination of radiation/chemo is the first line of treatment for this type of cancer. I wanted to ask if this is correct?…
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Side Effects after treat
Hi Everyone, Well, I'm 1 1/2 years post treatment and I'm happy to say I'm still cancer free. However, I am starting to get lovely (side effects and I'm being sarcastic) from having cancer and the treatment. My joints in my hands and feet have been really painful and I was just diagnosed having rheumatoid arthritis.…
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Scar tissue
Has anyone had a biopsy of what was believed to be scar tissue after treatment? If so, did it really turn out to be scar tissue?
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5 year aniversary
Hello, Just wanted to say I celebrated my 5 year aniversary of the completion of my anal cancer tx on 6-30. I like to share this because I know I wanted to see long term survivors as it always gave me hope. Lori
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CT chest showed a subplueral density 6mm in right lower lobe lung scared.
Anal cancer in 2010 that met to liver in 2012. Been ned since resection, but last CT chest scan last week showed a subplueral density in right lower lobe of lung. My oncologist doesn't seem to be worried, but he thought my spot on liver wasn't anything either until 3 months later with biopsy that showed it metastised to…
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Mum just diagnosed
Hi everyone, My names kc Im from queensland australia! Happy to have found an amazing support group I have been ligering in the background for the last week just reading all the old posts and decided after mums onc app today to finally sign up and introduce myself! After a magnitude of tests my 64yo mum has just been…
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How do you cope with impending death of best friend's cancer?
Good Morning, My best friend has been battling Anal Cancer for about 8 months now. He has already been through several rounds of Chemo as well as a surgery to remove the tumor that started this whole thing. The problem now is that that the surgery is done, the Cancer has seemed to spread. I visited him in the hospital…
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5 year anniversary
i made it to 5 years post tx !!!!!! do not have real 5 year exam until july 28....... just wanted yall to know...... sephie
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how many of you had colonoscopy miss ur cancer?
Hi Everyone, Was just curious as to how many of you had colonoscopys that completely missed your tumor altogether? Mums was missed completely even though her notes clearly stated there was a ridge at the anal verge however surgeon preforming colonoscopy didnt see nor feel anything also included in the notes that she had a…
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New Clinical Trial at MSK for Residual or Recurrent Anal Cancer
At Memorial Sloan Kettering, we are currently using HDR brachytherapy to treat selected patients with low-lying rectal cancers who have other medical comorbidities and/or have refused an APR. Additionally, since surgical resection is the salvage therapy for persistent or recurrent anal cancer after definitive…
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Discomfort around Port site
Has anyone experienced discomfort near their port site many months after it was removed? I had mine removed last August and within the past month or two I've been having discomfort (not pain), no lumps, just an odd feeling that seems to move around on side where the port was. Sometimes the feeling is above my breast,…
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Want to share encouraging news
I have been through radiation and chemotherapy. I was diagnosed IIIb because it had spread to 2 lymph nodes, but right around the tumor, and extension through the septum into the vagina. The GYN oncologist indicated the tumor was "huge." The colorectal surgeon said it was large, but wouldn't commit as to whether it could…
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early symptoms anal cancer?
Hello my anal skin is awful looking like an open sore just growing. I have had a doctor tell me hemmorroids but that doesn't explain the skin slipping off. Has anyone else had these symptoms? Thanks, D
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beginning symptoms...
I truly appreciate you all telling your stories for others to learn by. I'm curious to know if any women who have been diagnosed here experienced a sensation to have a bm every time they went to urinate. (Not sure if question was graphic enough to warrant a "slightly graphic" tag, sorry) Also, I have hemorroids. With 6…
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Tonsil related cancer
I read that sometimes if you have cervical cancer you can also get upper throat cancer related to the tonsils. My PET showed some activity on one tonsil but the doctors did not seem concerned about it. Has this happened to anyone else?
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Home after chemo and radiation
I went to Seattle for my treatment because medical resources are limited on Kauai. While I was there I met Terry, Aunt of Liz, who told me about this forum. Liz was a lifesaver, helping me to view this disease differently and giving me lots of practical advice. I finished treatment on June 13th and my burns are finally…
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Anal cancer not cured with chemotherapy and radiation. Desperate to find alternative to colostomy
Thank you for taking the time to read our story. My husband is 51-years old and was diagnosed in November with anal cancer stage IIIA. There was cancer in one lymph node. He underwent about 35 radiation treatments and chemotherapy 24/7 for two weeks of 5-FU and Mitomycin. Follow-up scan post-treatment demonstrates no…
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Osteoporosis
Am post 10 months and am told that I now have osteoporosis. Wondering how many of you are now in this situation and what did you choose to do. I understand the treatment is the new disease.
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rémission
Hello tout le monde. Je suis une survivante du cancer anal. Je suis à deux ans après mes traitements et malgré de nombreuses complications aujourd'hui ça va mieux. En résumé diagnostic T2N+ . Traitement 36 séances radiothérapie et 6 cures de chimio 5fu et MMC. Le traitement s'est bien passé à part la fatigue, peu de…