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frequency of rectal exams after radiation
I am starting to wonder about my radiation oncologist, but wanted to hear from others. My radiation ended in early December, and since then I've had various scans and a biopsy all of which showed no cancer. I am now seeing a colorectal surgeon about reversing my colostomy, and she has done two physical exams of my vagina…
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First PET scan after treatment completion
Got the word this morning that my "PET scan was normal"! I'm excited and thrilled with this news and know that I have a long road ahead of me, but this is the way to start. Thank you everyone for your support and encouragement. Judy
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One year after biopsy
I was diagnosed with stage II analysis cancer went through treatmenta but one year after I can feel pain if I squeeze my sphincter muscle I wonder does anyone else feel this I am wondering if it is from the biopsy
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I'm a little confused...
I got a phone call from my surgeon's office and the receptionist said she wanted to book a phone consult for me for May 5th. My surgeon is on a 2 week vacation and that would be his first day back but I'm confused about the length of time between surgery and getting results. I don't technically have a family doctor.…
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Second Annual Anal Cancer Educational Forum- San Francisco
Below is information I received rgarding the second annual anal cancer forum to be held in San Francisco California. I thought I would share it with everyone in case anyone is interested. ==================================================================================================================== My name is…
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new tumor and back in limbo
Hope everyone is doing well, I have been off the board for a while, just everday craziness but back to say hello and update my unfortunate new development. Went to my colo-rectal surgeon this past week for a routine 6 wk checkup (last biopsy in the OR was done early Feb and deemed carcinoma insitu) I knew going in and told…
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Finally diagnosed
Hi! Am new to this board. Diagnosed about 6 weeks ago, had major symptoms since November, but looking back probably all summer. A GYN actually felt the tumor in December and decided what he felt that was "hard as a rock" was constipation, didn't even do a rectal, and ordered a D&C and ablation as I was having…
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First Infusion Tuesday
Tuesday I have my first infusion of Human Blood Plasma Immunoglobulin g. I have CVID which increases my chances of getting gastric cancer by 50%. Compare that to smoking increasing lung cancer risk by 15% to 30%. The problem is, while the infusions have been proven to help a patient prevent infections, there is not much…
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Fatigue ... Sandy... Others about 2 1/2 years post tx
Is any one else STILL battling fatigue? I'm 2 1/2 years post tx. I make myself go full days but sooo fatigued. Not tired, that's different... Anyone have suggestions?
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leg swelling after radiation
Need some advice. I just got done with chemo and radiation. Im not sure if I am starting to get lymphoedema or water retention. I have been done for 4 wks now and even had visit with chemo doctor. He said it look like it gone but I havent even had a scan yet. I been exercise and went back to work. All of sudden I have…
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Damnit! the anxiety is kicking in...
Tomorrow I find out the results from my surgery. I find out if the wide local excision got clear margins and I find out what the other "4 areas of concern" are that the surgeon also removed. My emotions have been up and down while waiting for all of this to happen but now the anxiety is kicking in full force. That feeling…
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Nodules in groin
I can feel a small nodule in my high groin. Can anyone else feel this?
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Keeping a wound clean
Yesterday morning one of the area on my anal margin that had been stitched up, busted open. It's a large area and deep and when I have a bm, it gets in there. I called my surgeon's office and she said I could come in and see him. I figured he'd give it a good clean and maybe stitch it up again but he didn't even look at…
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This time of the year 3 years ago...
I was sitting in the oncology chemo room waiting to be hooked up to the pump for the first time. As I was sitting there, my eyes tearing up, I wondered if this was really happening to me. It seemed so surreal... Fast forward to the present - I survived and am almost 3 years post treatment. Scans, labs and checkups have…
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I'm not sure how to react
I went in for my surgery to remove some growths and pigmented areas on my anal margin on Friday. Just before I was wheeled in to surgery, I had to sign the standard form they give you and at the top in big bold letters, it said "excision of carcinoma" something about seeing it in writing made it real to me. I started to…
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First day done & dusted
So far so good! Taking this day at a time & trying to be prepared at the same time. Radiotherapist advised me to use aqueous cream or aloe vera. Told me with aloe vera I could apply in the morning but no need to remove it prior to radiotherapy. I'm on prophylactic antibiotics too for the duration of my treatment. I slept…
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Thank you for all the support!
Unfortunately, I have been told that my discussions here have not been appropriate and have been deleted. For this reason, I must say goodbye to all the friends who I have met here. I can no longer post on a site that does not allow free speech about the costs of health care. For me paying for health care means survival.…
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CSN terms & conditions
Each person agrees to abide by CSN terms & conditions upon registering. It is a violation of these T&C to advise or attempt to influence the views, beliefs, or decisions of other members with regard to their medical care, religion/faith, or politics. Venting about health care costs and sharing one's personal experience is…
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So anxious, uh! Doctor appointment Monday
I am so anxious about Monday's appointment, what can one expect at the one year appointment? I have a few complaints (not sure if they are valid or not), my blood pressure is 102/61, never got back up to normal. I get tired a lot more easily than I used to. I have a constant pressure in the upper right ab area, just under…
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Spot Bleeding
Has any female had spotting? (I believe it's vaginal.) I am 45 years old and have not had a period since right after beginning treatment for AC in Jan. 2013. Last month and this month (about 30 days a part), I have one spot of dark brown blood. (Sorry if it's TMI) Could my periods be returning? My oncologist vaguely…
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planned CSN maintenance
Hi all, Planned maintenance will be done on CSN this morning between 5:00 and 8:00 Eastern Time. There may be one or more outages during this time. We apologize for the inconvenience. Greta
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Immune deficiency
I found out I have CVID (common variable immune deficiency) and believe it could possibly be connected to the cervical cancer and invasive stage III anal cancer. I also have primary as well as secondary Lymphedema and Lung problems (Bronchiechitis). This illness is heriditary, not acquired. I never tested positive for HPV.…
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CT scan: no spread, but ...
So I saw my medical oncologist a month ago, who recommended a CT scan, and THAT said "no evidence of spread". About 2 weeks later, I have a red ring around the radiated area (finished treatment 1/13). THEN I noticed a tiny pinhole in the skin near the anal area when I inspected because of a pain level of about a "2" down…
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Pencil Style Stool
Question out there for survivors. I am 3 years out and have had on and off regular bowl movements. Thanks to supplements, I have had regular bowl movements 1-2 times a day. This past week, I noticed that I went from a bit constipated to a couple of pencil style stools and, of course, I am getting worried. While this just…
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IMHA ..
My new pound puppy, whom I have had for about a month, has been diagnosed with IMHA which is kind of a doggie lukemia. Poor prognosis.. Secondary to ticks. all eight pounds of her. She was soooo matted she could barely potty, 2 pounds of hair and matts removed and at least a hundred ticks. She is so very sweet and most…
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Blood group
Just wondering what blood groups on here. I am AB Rh positive, a small group of the population. It is known to be associated with inflammation, & ad cancer is linked to inflammation, it made me wonder if there was some connection. Ok, I realise it's all so much more complicated than that, but worthy of a ponder. Liz
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Anal Cancer Awareness
Hi Everyone, and "happy spring"!!!! I just googled anal cancer awareness day and hit on some info about No Cancer Left Behind and that anal cancer and colon cancer advocates were joining together to dedicate March 21st to anal cancer awareness!!! My computer is in need of help right now and not letting me post the…
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Follow Up Care
It has been a few months since I have been on the site. I did read the latest posts and am happy to see many still active and, unfortunatley, some new posts with diagnoses. I am now 3 years NED and happy to report! I feel good but also still get anxious when I have any symptoms as all of you do. I have a question about…
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Laz is NED!!!
I just got my PET Scan result and it shows no cancer activity now anywhere, including that seminal vesicle that looked abnormal on the CT. So after almost 10 months os treatment and fear I'm considered NED. I'm very relieved. Thank you so much for all of you. Could not do it without you. Wanna dedicate my happiness to…