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Anal Cancer

Immunotherapy clinical trial for metastatic or recurrent HPV anal cancer.
"T Cell Receptor Immunotherapy Targeting HPV-16 E6 for HPV-Associated Cancers", NIH Warren Grant Magnuson Clinical Center, Bethesda, Maryland. http://www.cancer.gov/clinicaltrials/search/view?cdrid=766103&version=Patient&protocolsearchid=8032352
pads
have any of you found a brand of pads that are long enough to cover the whole radiated area, but especially the butt if so, please note the brand and the model I keep buying pads that are really not sufficient
Been gone for a while; just checking in.
Hello all. I haven't been on here for 18+ months or so, and I actually don't know what I did to my phone to bring up the site, but I figure things happen for a reason so I re-registered as there was no way I remembered my password. LOL! First off for the newbies, I am almost a six year survivor. I started tx 4/13/09; two…
Stupid Question
Has anyone heard of anal cancer metastasizing to the muscles? I have stage iv with mets to liver and I now have an egg sized lump at the back of my calf, right on the muscle. I'm going for an ultrasound tomorrow and my onc says he doesn't think its cancer, but then I've heard that one before...
UCSF 2nd Opinion
I went for a 2nd opinion yesterday to the GI Oncology Dept - not the Anal Cancer Clinic, I'm not sure why, except that the Anal clinic has a 4 month wait for a new consult. The doctor I saw told me pretty much what my own oncologist has told me and, very disappointingly, only pointed to the standard treatment for…
PBS Special - Cancer the Emperor of all Maladies
There is a PBS documentary on this week called: Cancer - the Emperor of all Maladies. I think it is 3 parts, maybe four. I am watching the 2nd one now. It traces the history of cancer. So far I am amazed of how far we have come and appreciative of the many trail blazers, doctors, scientists, and philanthropists. On the…
after treatment
Hi all! I just wanted to start off by thanking all of you for the support through this whole ordeal! i truly feel this site kept my sanity and enabled me to.be the the rock my mom needed. When i talk with family and friends about this site i try to explain to them how i am more of a true story, real life person for advice…
Mona Lisa Touch
This popped up on my facebook today. There is a hospital local to me that is offering this treatment. It is not covered by insurance and I think it costs $1500.00. Has any one else heard of this? Tried it? I am very interested. I have a blood clotting disorder and can't take hormones.…
pleural base nodule
Has anyone had a pleural base nodule on lung that Met from squamous cell anal cancer? I think the pleural base means on the lining of lung area???? I Have one on the lower lobe of left lung and oncologist is just watching it and said he didn't thinik it was anything. Thanks for any thoughts and experiences. tory
Anyone had an APR after reoccurrence
anyone?
am I getting the correct treatment???
I've posted here before about the removal of a perianal squamous cell carcinoma in situ which I had done last August. It was between 1 and 2 cm in size. That's over with and went well thank goodness. My doctor- a colorectal surgeon- wanted to do a procedure called 'anal mapping' which meant taking 20 or so random biopsies…
Post radiation/Chemo side effects
Hello everyone. My husband finished chemo and radiation treatments for T2N0M0 anal cancer August 2014. About 2 months after, he began having strange symptoms. Rash to his entire body,with edema to his lower extremities and his radiated pelvic and anal areas. And he had a wound, which was from his tumor, how we discovered…
weekend retreat for survivors
If anyone is interested I just obtained some great info on a weekend retreat for survivors and caregivers. The retreat is called "Stowe Weekend of Hope" it is being held in Stowe Vermont the weekend of May 1st 2015. It is an annual event and rooms are donated by area hotels A $50.00 deposit is needed to secure a spot (they…
constantly oozing feces
I went from constipation to this situation. Does anyone have any input about what I am going through? Thanks
5 years along with latest CT.
Hi everyone: March 17 was 5 years since they took a biopsy that stated I have Squamous Cell Anal Cancer. So I survived the 5 years and hoping for many more. Last CT scan on Friday, March 13 showed a new pleural based nodule on the lower lobe of the left lung. Will be seeing the pulmonologist next Friday and Oncologist on…
Cancer newbie--stage IIIA/B
Hey everyone, I've been reading some of your posts for a couple weeks now and had gleaned quite a bit of hope until just recently when my PET scan showed that I have a positive lymph node in my pelvis. Up until that time, I was actually looking forward to getting through the chemo/radiation treatments and getting on with…
Diarreah....
I have had diarreah, mucus discharge, bleeding and surprises that soiled my pants. NOTHING seemed to help. My cousin suggested (strongly) that I try a low carb diet. Almost Atkins. I rolled my eyes, then decided to give it a try! It works!!! (At least for me). I was worried about constipation and I haven't had any problems…
mom's home!
Hi all! After 7 days in the hospital my mom is finally home! She still has severe pain when urinating but is not screaming anymore (thank god) now is the waiting game 6 weeks of torture! She is still weak but says she sees small improvements day by day! My question was what is the most common way, or norm round of tests to…
3 days on 3 days off - can't think of a better title!
Hi all, Just a couple of questions. My mum is 4 months, well just over, post treatment. She said to me she has like 3 days (for example) of pain-free BMs and then another 3 days of slightly or sometimes, not slightly, painful BMs. So basically, she's without pain some days and with pain the other days and this alternates…
Loose ends being tied.
Today is my 1 year diagnosis day, though I was ill for months before while brushing it off. What a roller coaster day that was. MEDIPORT - Gone! I insisted that I have an anesthesiologist for the removal and what a huge difference! No pain, diaphoresis, or vaso-vagal effects at all. I still have steri-strips on and the…
good news post colonoscopy
Hi to everyone. Just got home from colonoscopy. Just some rectal irritation. Yeah! Will visit my medical oncologist on Monday to figure out why I am chilled and why the Vitamin d levels keep dropping. Got to get to the bottom of all this. I know we all just want to feel better. Thanks to all of you for your encourgament.…
post radiation side effects
Hi Eveyone. I am 1 1/2 yrs. out post radiation/chemo treatments. I have had compression fractures in my lower back and fractures in my pelvis post radiation treatments. Told I have severe osteoporosis now. I am 57 ys. old and am 5'10; not a typical candidate for this type of osteoporosis. I am having some severe hip joint…
Is there a cure for HPV?
Just wondering. Sure would like to get rid of it. I had no idea I had HPV until the cancer showed up. I am aware that HPV can cause other cancers other than anal or rectal cancers. If there isn't a cure, then I need to find a way to so what I can to avoid anymore. I heard that a vegetarin diet is one of the best ways to…
Low Vitamin D levels and low platelet levels
I am 2 years post treatment and today I had my CT scan to see if I am still cancer free. However, I'm concerned. Prior to my treatment I had blood tests done and my Vitamin D is low so now I'm on meds for that. Also my platelets are low and my Mean Platelet Volume is high. The doctor wants to see the CT scan results before…
Brother recently diagnosed; journey begins with proton radiation therapy & chemo
greetings, my brother is 64 years old, HIV survivor for over 30 years and very lucky to have minimal complications over the years from having HIV. T cell counts over 500 and viral load non-existant, as of Dec 2014, even tho he was having some 'hemmoroid' problems. Anal abscesses prevented delays in diagnosis for anal scc…
STAGE 3A RECTAL DEPOSITS AFTER RADATION
aNY SURVIVORS OUT THERE bEEN TOLD THEY HAD RECTAL CANCER deposits after radiation, in theiir pathology report from APR? My oncologsit said I only had two lymph nodes T3N2M0 and not to worry! Surgeron is saying have poor prognosis due to some malignancy cells after radiation.
Good news Bad news
The good news is I had my second set of scans this past week and met with the oncologist and all good all clear, I am to be scanned again in 6 months. The bad news is I lost a very good friend this week to the evil of cancer. She went to a local hospital in February to have her gall bladder removed (routine so we thought)…
Xeloda--red spots on skin?
I have been taking Xeloda and I have a number of little red blotchy spots in differnt places: arms back of hand, legs, one ankle,etc. They do not hurt or itch . I had a dermatology consult and the Dr thought it was probably from Xeloda , as did my onc. The Xeloda is also making my freckles big and ugly and I think there or…
advice
Hi all, My mon is in her last week do radiation, she is done on monday. She is extremely uncomfortable and burned. Her dr offered her a break but she is done on Monday. Her question is would it be worth it. Her pain is almost unbearable but after today she only has 3 more treatments
My Presentation at the International Anal Neoplasia Society conference
As I had previously posted, I was asked by Justine Almada of the HPV and Anal Cancer Foundation to give a presentation about my cancer journey to the attendees of the International Anal Neoplasia Society conference in Atlanta. And as I promised, I am posting my presentation for everyone to read. It was such a great…

Anal Cancer

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