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is it really gone?
Hi all, My mom just went today to her colorectal surgeon who orginially diagnosed her (since the first idiot 3 months before misdiagnosed her). We walked into the office he said what are you doing here already? She told him, his office called her to book the appointment 3 weeks ago. He said he didn't think it was long…
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Aren't I Special?!
A couple of weeks ago when I developed a lump in the middle of my calf, which the ultrasound showed was deeply embedded in the muscle, of course I panicked. Don't worry said my oncologist, anal cancer never metastasizes to the extremities, it must just be a cyst or something. My radiation oncologist, two nurses and even…
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Question
hi there, so this Friday it will be three weeks post treatment. The bowel movements are less painful so I can tolerate them better. I'm getting better everyday. But...yesterday and today it seems all I want to do is go #2. Two days ago I went 5 times. they were pretty normal and no gas or diahrreah and when I go it seems…
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General pains and paranoia
Hi guys, Just wondering if you guys also experienced random pains post-treatment? My mum is now 6 months out and she still complains of: throbbing pain where she had her tumour, mucous, a bone pain in that area which we believe is pressure pain from initially the tumour and now the inflammation or scar tissue. She also has…
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A little help please?
Hi guys, I need a little help with something please.... We went to see the onc today and he's scheduled in my mum's next MRI which will be approx 6 months after the first one, which showed NED. The problem: Back last year when mum was first having her exploratory investigations (and was subsequently diagnosed with T1NOMO)…
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Newly diagnosed but I have no real information
I was relieved to have found this forum. Thank you! I don't have any real information about what is going on in reference to my diagnosis which was 'officially received' April 9 of this year. Here is how the story goes. I had a colonoscopy on March 26, 2015. I had no plans of having one but in order to diagnose some upper…
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Nervous
I had stage 3b and was treated with the standard protocol almost 2 years ago. My last CT scan was 5 weeks ago and everything looked good. I just found an enlarged lymph node just above my collar bone on the left side. I have no other signs or symptoms of any illness or infection. The node is only about the size of a pea…
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results of 3 month ct scan
Hi everyone, I see there are quite a few new people on the board. I was stage 3b when diagnosed in 2011. I was too ill to take as much chemo as was called for and so they cut back my dose. I had a spot on my lung and have been on this board about that ad nauseum for the last year, particularly when it suddenly "waxed." I…
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Has anyone gone deaf from cisplatin
For those who took Cisplatin, what were the worst side effects you had. My cancer has now spread to my lungs, even after I had an APR which had only a 50% chance of working. Now the oncologist wants to put me on Cisplatin but was told early on in my treatment how bad the side effects will be, losing my hearing, shutting…
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Pializ
Pializ - If I remember correctly, you have some tests/appointments in this week. I'll be thinking of you and sending positivie energy across the ocean to you. Thoughts, prayers & well wishes, Tracey
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Hi everybody
Hey everyone, this is a quick message from my mum..... Dear all, Thank you for all of the help you have given me and my son. It is so good to be recovering. Whilst I am feeling better, I still find that I have so many questions in my head. I am 5 and a half months post tx, the painful bm's are getting better slowly, but at…
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Scanxiety
CT scan tomorrow. It's been 6 months since the last one and 15 months since treatment ended. Of course, I am going back and forth between thinking everything will be fine and all the other options. There are many of you going through difficult times, I am sending positive thoughts to all of you. I'll keep you posted. Judy
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Recurrance treatment update......
Hi all, I have not posted as often as usual lately but wanted to let you all know I am doing fairly well. After being diagnosed in January with a recurrance (4 yrs post protocall treatment for Stage 3b anal ca) in my lung (3.5cm yikes!), I had my left lower lobe removed, margins were clean, and I am now half way through my…
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normal?
Hi all, Just talked to my mom from Florida she said while she is feeling a little better, her anal area and inner cheeks are still raw? Her thighs and "other" area has healed. Is it normal for her a month out to still be raw?
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So f'ing close
I am so f'ing close to 5 years. Seriously, weeks. 2 weeks ago went to colorectal spec, yep definitely an anal tumor. I had one (mailignant) removed with clear margins in 2 surgeries 5 years ago. So a week ago I underwent a colonoscopy...2 (tubular)polyps-benign-and the tumor(cancerous). The polyps were removed in the…
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Anal cancer now Melanoma
In 2012 I was diagnosed with anal cancer and was overwhelmd with the support and help I received from people on this site. I wasn't able to complete the chemo treatment due to a bad reaction but did finish the radiation. All my check ups since then have been clear.Last week I had a biopsy done on a mole on my leg and have…
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Immunotherapy clinical trial for metastatic or recurrent HPV anal cancer.
"T Cell Receptor Immunotherapy Targeting HPV-16 E6 for HPV-Associated Cancers", NIH Warren Grant Magnuson Clinical Center, Bethesda, Maryland. http://www.cancer.gov/clinicaltrials/search/view?cdrid=766103&version=Patient&protocolsearchid=8032352
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pads
have any of you found a brand of pads that are long enough to cover the whole radiated area, but especially the butt if so, please note the brand and the model I keep buying pads that are really not sufficient
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Been gone for a while; just checking in.
Hello all. I haven't been on here for 18+ months or so, and I actually don't know what I did to my phone to bring up the site, but I figure things happen for a reason so I re-registered as there was no way I remembered my password. LOL! First off for the newbies, I am almost a six year survivor. I started tx 4/13/09; two…
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Stupid Question
Has anyone heard of anal cancer metastasizing to the muscles? I have stage iv with mets to liver and I now have an egg sized lump at the back of my calf, right on the muscle. I'm going for an ultrasound tomorrow and my onc says he doesn't think its cancer, but then I've heard that one before...
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UCSF 2nd Opinion
I went for a 2nd opinion yesterday to the GI Oncology Dept - not the Anal Cancer Clinic, I'm not sure why, except that the Anal clinic has a 4 month wait for a new consult. The doctor I saw told me pretty much what my own oncologist has told me and, very disappointingly, only pointed to the standard treatment for…
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PBS Special - Cancer the Emperor of all Maladies
There is a PBS documentary on this week called: Cancer - the Emperor of all Maladies. I think it is 3 parts, maybe four. I am watching the 2nd one now. It traces the history of cancer. So far I am amazed of how far we have come and appreciative of the many trail blazers, doctors, scientists, and philanthropists. On the…
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after treatment
Hi all! I just wanted to start off by thanking all of you for the support through this whole ordeal! i truly feel this site kept my sanity and enabled me to.be the the rock my mom needed. When i talk with family and friends about this site i try to explain to them how i am more of a true story, real life person for advice…
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Mona Lisa Touch
This popped up on my facebook today. There is a hospital local to me that is offering this treatment. It is not covered by insurance and I think it costs $1500.00. Has any one else heard of this? Tried it? I am very interested. I have a blood clotting disorder and can't take hormones.…
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pleural base nodule
Has anyone had a pleural base nodule on lung that Met from squamous cell anal cancer? I think the pleural base means on the lining of lung area???? I Have one on the lower lobe of left lung and oncologist is just watching it and said he didn't thinik it was anything. Thanks for any thoughts and experiences. tory
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Anyone had an APR after reoccurrence
anyone?
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am I getting the correct treatment???
I've posted here before about the removal of a perianal squamous cell carcinoma in situ which I had done last August. It was between 1 and 2 cm in size. That's over with and went well thank goodness. My doctor- a colorectal surgeon- wanted to do a procedure called 'anal mapping' which meant taking 20 or so random biopsies…
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Post radiation/Chemo side effects
Hello everyone. My husband finished chemo and radiation treatments for T2N0M0 anal cancer August 2014. About 2 months after, he began having strange symptoms. Rash to his entire body,with edema to his lower extremities and his radiated pelvic and anal areas. And he had a wound, which was from his tumor, how we discovered…
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weekend retreat for survivors
If anyone is interested I just obtained some great info on a weekend retreat for survivors and caregivers. The retreat is called "Stowe Weekend of Hope" it is being held in Stowe Vermont the weekend of May 1st 2015. It is an annual event and rooms are donated by area hotels A $50.00 deposit is needed to secure a spot (they…
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constantly oozing feces
I went from constipation to this situation. Does anyone have any input about what I am going through? Thanks