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2 Monrhs Since Colostomy and APR Surgery
Hello all, It has been a little over two months since I had my colostomy and Abdominoperineal Resection (took out my anus and zipped me up) Surgery. Recovery has had a few hiccups, but nothing major as it turns out. Sitting is still pretty uncomfortable, but I am assured that will get better each week and eventually won't…
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For the benefit of those criticized into silence
I've debated with myself for a while whether or not to post something on this topic. The reason I haven't until now is because I didn't really care enough to bother. Not for myself. But I've had two members contact me privately to say that they share my feelings, but feel --like I have--that this forum isn't very tolerant…
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Recent scan results.....
Hi all, so today I met with my doctor to go over my recent scan results. (For those who don't know me, I was initially dx and treated 4 1/2 yrs ago with stage 3b anal cancer treated with chemo/rad and surgery for a colostomy. 1 yr later dx with a rare breast cancer treated with a double mastectomy and daily med related to…
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22 and scarred
hi everyone! well i was trying to get some advice from yall. i am hyprthyriod and i have constipated for about the last 6 years. not going for two days but going once the thrid and not going vary much. when i did go it felt like labor. it still does well for the past week and on going its been horible. i have found bloody…
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Male issues post treatment
This is my first post and I want to start by saying Thank you to all of you that share on this site. It has helped me make sense of what was going on with me post treatment and I know that I am not as alone as I was feeling. I am a 52 year old male 8 months past treatment. I had two rounds of 5FU and Mitomycin along with…
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You've Got to be Kidding Me
I certainly was not in the mood to hop on this website this morning and find a new post titled "Do You Want to Sell Your Kidney." I am going to flag it and have it deleted by the admins, however, I wanted to make sure that other posters here could see the crap that sometimes appears on this board. I have copied and pasted…
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Reality finally hit me
I first want to say I have been on here off and on lurking around, reading posts and on occasion maybe post something of concern. I have tried to ignore and deny the fact I even had cancer. I have been trying for 2 years ( I am 2 years post treamtent) to go back to "my normal" way of living before I had cancer. When I was…
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Having a problem
Hello friends, I don't post much any more but was a frequent poster a few years ago. I've run into a problem and am hoping you have some suggestions. For info, I had chemo and radiation back in 2008. Have been having off and on problems with the runs since then, mostly off except for one year where it was very bad. Just…
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"Virotherapy" for malignant melanoma.
Folks, I'm telling you, we've all had cancer too soon! Here's another new treatment, this time for malignant melanoma. They are using herpes virus as a base for a med to treat MM. How about a viral med to treat a viral cancer? "Virotherapy: skin cancer successfully treated with herpes-based drug" -…
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Looking For Input
Hi everyone, I'm sure these posts get annoying but I'm worried and am waiting to see the doctor again. I'm a 27 year old male, overweight but loosing weight due to a change in lifestyle and diet. I've lost over 50lbs in the past year or so. Anyway, about a month and a half ago I started having some pain that I thought were…
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Implanted neurostimulator for incontinence, anyone?
I recently saw the colo-rectal surgeon about my worsening anal isues - pain and bowel & unrinary incontinence. He says I now have scar tissue in my anal parts and my inner sphincter is weakened. If this continues, he wants me to consider having a neurostimulatior implanted. It will keep the muscles toned. He gave me…
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Can I work through it?
Well I guess my "team" has gone into action mode. I just got the diagnosis & plan on Tuesday. Today offices are calling to confirm my appts - ct scan, radiologist consult. Surprise, surprise! They must know about my tendency to procrastinate. What do you all think about working during the chemo/radiation? I'll be having…
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Scanxiety - please help!
Hi everyone, So my mum has a sigmoidoscopy booked for 11 days time and she has an MRI in about 3/4 weeks which will take place 8 months after she finished her chemoradiotherapy. The main issue is that basically in her oncologist's letter which declared she was 3 months NED back in January, it said she would have another…
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Recurrance in lung / treatment update
Hi everyone, hope all are able to find moments of peace, laughter and healing along this road! In January I was dx with a recurrance of anal cancer in my lung. The mass was large but surgically removed by the removal of my left lower lobe. (I was initially dx a little over 4yrs ago with Stage3b anal cancer followed by a dx…
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Day3
So today is day3. I feel like I just got run over. Had a bit of rectal bleeding last night that completely freaked me out. Then today slight nausea - seems to be getting worse - headache & fatigue. I guess I didn't expect it this quickly. xokb
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scared I had reoccurance
I have been having pain in my shoulder blade and ribs and breathing had become more labored. When I googled my symptoms, lung cancer was one of the causes of my symptoms. I called one of my oncologist and asked if I could get a chest xray or move my CT scan up (scheduled for August). His nurse called back and said he wants…
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Finished treatment 9 days post anal cancer treatment
Hi there, Just like many others, I've been going through decussion board after discussion board making sure I'm doing the things that so many of you have recommended. Thank you for this site. It's my go to when I have questions. I'm 44 years old and I was diagnosed at the end of February this year. I started my treatment…
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Gastroenterologist
Has anyone seen a gastroenterologist? I am new here, but from what I'm reading and learning about my own lack of knowledge of myself, I was wondering is a GI specialist would be a good consult. I am just finishing up radiation -- only have 5 treatments left. Took a 3 week break from radiation because of burns, then low…
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Thigh muscle problems
I finished by radiation and chemo treatment in Sept. 2014. It's kinda hard to explain but my thigh muscles feel tight and I cannot cross my legs. Has anyone else experienced this problem?
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Urgent
Hi guys, has anybody had any "thickening" or "scar tissue" after 6 months post treatment. How can you tell it isn't the lesion, they said it felt soft surely a lesion would be harder and surely it wouldn't have come back so soon anyway, was only stage 1. The onc thinks it's just scar tissue but the nurse apparently used…
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Staging
Hi guys, Just out of interest, does anyone know how long it takes an anal cancer lesion to progress from stage 1 to 2, stage 2 to 3a, stage 3a to 3b and stage 3b to 4? Are we talking weeks, months or even years? I only ask out of curiosity really, as back last year when my mum was diagnosed they said it was a "slow…
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New kid
Hi all, Just started reading here and wanted to share. I have stage 4 diagnosis January 2014. First dx was July 2010. The last couple of weeks I've spent looking up info about clinical trials and financial assistance. I've been through four different chemo drugs and now showing slight increases in lung and lymph node…
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Short question
Hi all, My mum's dialating has led to blisters which she's now really upset about as she thinks it's vulvar cancer, due to previously having 3 white spots there, which were checked by the doctor and confirmed as OK. She used some kind of cream on the blisters and that has apparently removed the top layer of skin, which…
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headaches
Hi gang: Has anyone experienced more headaches or migraines during treatment? Seems to be a yucky problem for me right now. xokb
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Help !!! What do I do next?
My father has an Cancer policy to help offset the cost of him having cancer. I faxed the claim form to Cancer Center in hopes that his doctor would sign the policy stating my dad did have cancer. I called and spoke to the receptionist and she stated that the office had received the form and would get signature. About two…
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Targeted Therapy
Has anyone had targeted therapy and how did it go? My oncologist has sent off tumor tissue to Foundation One for genetic testing and they are supposed to nail down all the mutations at the molecular level and then they search their database for the chemo drugs that are most likely to be effective (or won't be at all…
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is it really gone?
Hi all, My mom just went today to her colorectal surgeon who orginially diagnosed her (since the first idiot 3 months before misdiagnosed her). We walked into the office he said what are you doing here already? She told him, his office called her to book the appointment 3 weeks ago. He said he didn't think it was long…
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Aren't I Special?!
A couple of weeks ago when I developed a lump in the middle of my calf, which the ultrasound showed was deeply embedded in the muscle, of course I panicked. Don't worry said my oncologist, anal cancer never metastasizes to the extremities, it must just be a cyst or something. My radiation oncologist, two nurses and even…
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Question
hi there, so this Friday it will be three weeks post treatment. The bowel movements are less painful so I can tolerate them better. I'm getting better everyday. But...yesterday and today it seems all I want to do is go #2. Two days ago I went 5 times. they were pretty normal and no gas or diahrreah and when I go it seems…
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General pains and paranoia
Hi guys, Just wondering if you guys also experienced random pains post-treatment? My mum is now 6 months out and she still complains of: throbbing pain where she had her tumour, mucous, a bone pain in that area which we believe is pressure pain from initially the tumour and now the inflammation or scar tissue. She also has…