Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Anal Cancer

Implanted neurostimulator for incontinence, anyone?
I recently saw the colo-rectal surgeon about my worsening anal isues - pain and bowel & unrinary incontinence. He says I now have scar tissue in my anal parts and my inner sphincter is weakened. If this continues, he wants me to consider having a neurostimulatior implanted. It will keep the muscles toned. He gave me…
Can I work through it?
Well I guess my "team" has gone into action mode. I just got the diagnosis & plan on Tuesday. Today offices are calling to confirm my appts - ct scan, radiologist consult. Surprise, surprise! They must know about my tendency to procrastinate. What do you all think about working during the chemo/radiation? I'll be having…
Scanxiety - please help!
Hi everyone, So my mum has a sigmoidoscopy booked for 11 days time and she has an MRI in about 3/4 weeks which will take place 8 months after she finished her chemoradiotherapy. The main issue is that basically in her oncologist's letter which declared she was 3 months NED back in January, it said she would have another…
Recurrance in lung / treatment update
Hi everyone, hope all are able to find moments of peace, laughter and healing along this road! In January I was dx with a recurrance of anal cancer in my lung. The mass was large but surgically removed by the removal of my left lower lobe. (I was initially dx a little over 4yrs ago with Stage3b anal cancer followed by a dx…
Day3
So today is day3. I feel like I just got run over. Had a bit of rectal bleeding last night that completely freaked me out. Then today slight nausea - seems to be getting worse - headache & fatigue. I guess I didn't expect it this quickly. xokb
scared I had reoccurance
I have been having pain in my shoulder blade and ribs and breathing had become more labored. When I googled my symptoms, lung cancer was one of the causes of my symptoms. I called one of my oncologist and asked if I could get a chest xray or move my CT scan up (scheduled for August). His nurse called back and said he wants…
Finished treatment 9 days post anal cancer treatment
Hi there, Just like many others, I've been going through decussion board after discussion board making sure I'm doing the things that so many of you have recommended. Thank you for this site. It's my go to when I have questions. I'm 44 years old and I was diagnosed at the end of February this year. I started my treatment…
Gastroenterologist
Has anyone seen a gastroenterologist? I am new here, but from what I'm reading and learning about my own lack of knowledge of myself, I was wondering is a GI specialist would be a good consult. I am just finishing up radiation -- only have 5 treatments left. Took a 3 week break from radiation because of burns, then low…
Thigh muscle problems
I finished by radiation and chemo treatment in Sept. 2014. It's kinda hard to explain but my thigh muscles feel tight and I cannot cross my legs. Has anyone else experienced this problem?
Urgent
Hi guys, has anybody had any "thickening" or "scar tissue" after 6 months post treatment. How can you tell it isn't the lesion, they said it felt soft surely a lesion would be harder and surely it wouldn't have come back so soon anyway, was only stage 1. The onc thinks it's just scar tissue but the nurse apparently used…
Staging
Hi guys, Just out of interest, does anyone know how long it takes an anal cancer lesion to progress from stage 1 to 2, stage 2 to 3a, stage 3a to 3b and stage 3b to 4? Are we talking weeks, months or even years? I only ask out of curiosity really, as back last year when my mum was diagnosed they said it was a "slow…
New kid
Hi all, Just started reading here and wanted to share. I have stage 4 diagnosis January 2014. First dx was July 2010. The last couple of weeks I've spent looking up info about clinical trials and financial assistance. I've been through four different chemo drugs and now showing slight increases in lung and lymph node…
Short question
Hi all, My mum's dialating has led to blisters which she's now really upset about as she thinks it's vulvar cancer, due to previously having 3 white spots there, which were checked by the doctor and confirmed as OK. She used some kind of cream on the blisters and that has apparently removed the top layer of skin, which…
headaches
Hi gang: Has anyone experienced more headaches or migraines during treatment? Seems to be a yucky problem for me right now. xokb
Help !!! What do I do next?
My father has an Cancer policy to help offset the cost of him having cancer. I faxed the claim form to Cancer Center in hopes that his doctor would sign the policy stating my dad did have cancer. I called and spoke to the receptionist and she stated that the office had received the form and would get signature. About two…
Targeted Therapy
Has anyone had targeted therapy and how did it go? My oncologist has sent off tumor tissue to Foundation One for genetic testing and they are supposed to nail down all the mutations at the molecular level and then they search their database for the chemo drugs that are most likely to be effective (or won't be at all…
is it really gone?
Hi all, My mom just went today to her colorectal surgeon who orginially diagnosed her (since the first idiot 3 months before misdiagnosed her). We walked into the office he said what are you doing here already? She told him, his office called her to book the appointment 3 weeks ago. He said he didn't think it was long…
Aren't I Special?!
A couple of weeks ago when I developed a lump in the middle of my calf, which the ultrasound showed was deeply embedded in the muscle, of course I panicked. Don't worry said my oncologist, anal cancer never metastasizes to the extremities, it must just be a cyst or something. My radiation oncologist, two nurses and even…
Question
hi there, so this Friday it will be three weeks post treatment. The bowel movements are less painful so I can tolerate them better. I'm getting better everyday. But...yesterday and today it seems all I want to do is go #2. Two days ago I went 5 times. they were pretty normal and no gas or diahrreah and when I go it seems…
General pains and paranoia
Hi guys, Just wondering if you guys also experienced random pains post-treatment? My mum is now 6 months out and she still complains of: throbbing pain where she had her tumour, mucous, a bone pain in that area which we believe is pressure pain from initially the tumour and now the inflammation or scar tissue. She also has…
A little help please?
Hi guys, I need a little help with something please.... We went to see the onc today and he's scheduled in my mum's next MRI which will be approx 6 months after the first one, which showed NED. The problem: Back last year when mum was first having her exploratory investigations (and was subsequently diagnosed with T1NOMO)…
Newly diagnosed but I have no real information
I was relieved to have found this forum. Thank you! I don't have any real information about what is going on in reference to my diagnosis which was 'officially received' April 9 of this year. Here is how the story goes. I had a colonoscopy on March 26, 2015. I had no plans of having one but in order to diagnose some upper…
Nervous
I had stage 3b and was treated with the standard protocol almost 2 years ago. My last CT scan was 5 weeks ago and everything looked good. I just found an enlarged lymph node just above my collar bone on the left side. I have no other signs or symptoms of any illness or infection. The node is only about the size of a pea…
results of 3 month ct scan
Hi everyone, I see there are quite a few new people on the board. I was stage 3b when diagnosed in 2011. I was too ill to take as much chemo as was called for and so they cut back my dose. I had a spot on my lung and have been on this board about that ad nauseum for the last year, particularly when it suddenly "waxed." I…
Has anyone gone deaf from cisplatin
For those who took Cisplatin, what were the worst side effects you had. My cancer has now spread to my lungs, even after I had an APR which had only a 50% chance of working. Now the oncologist wants to put me on Cisplatin but was told early on in my treatment how bad the side effects will be, losing my hearing, shutting…
Pializ
Pializ - If I remember correctly, you have some tests/appointments in this week. I'll be thinking of you and sending positivie energy across the ocean to you. Thoughts, prayers & well wishes, Tracey
Hi everybody
Hey everyone, this is a quick message from my mum..... Dear all, Thank you for all of the help you have given me and my son. It is so good to be recovering. Whilst I am feeling better, I still find that I have so many questions in my head. I am 5 and a half months post tx, the painful bm's are getting better slowly, but at…
Scanxiety
CT scan tomorrow. It's been 6 months since the last one and 15 months since treatment ended. Of course, I am going back and forth between thinking everything will be fine and all the other options. There are many of you going through difficult times, I am sending positive thoughts to all of you. I'll keep you posted. Judy
Recurrance treatment update......
Hi all, I have not posted as often as usual lately but wanted to let you all know I am doing fairly well. After being diagnosed in January with a recurrance (4 yrs post protocall treatment for Stage 3b anal ca) in my lung (3.5cm yikes!), I had my left lower lobe removed, margins were clean, and I am now half way through my…
normal?
Hi all, Just talked to my mom from Florida she said while she is feeling a little better, her anal area and inner cheeks are still raw? Her thighs and "other" area has healed. Is it normal for her a month out to still be raw?

Anal Cancer

Discussion List

Discussion Boards