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Just joined this forum

Lin from OH
Lin from OH CSN Member Posts: 4
in Peritoneal Cancer #1

Hi!  I just joined this board and am thrilled to have found it.  I've had peritoniel cancer for just a little over a year and it's still a little frightening to me, but have already found reassurance here.  THANKS for your many, many posts.

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Comments

  • ace3434
    ace3434 CSN Member Posts: 2
    #2
    Hi

    Hi I am glad that you have found reassurance from this site.  I lost my wife back in November 2012 from pertioneal cancer.  She was stage 4.  The chemo worked for the Summer bringing her CA-125 down to very low levels.  However by October the cancer returned full blast.  Why they stopped the chemo I do not yet know.  Even though her levels were low she had a small tumor on her liver, then after two months of not being on the chemo her liver was covered in tumors.   Make sure you ask your doctor if a maintance plan is better for this type of cancer.  I still have to talk to the doctor and see why they did not have her on a maintance plan since she was stage 4.  I am glad you are fighting and keeping a positive attitude.  My wife was the same way.  You have made it much farther in your fight than my wife.  Keep reading about it and constantly talk to your doctor.  I wish you the best of luck.

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  • Lin from OH
    Lin from OH CSN Member Posts: 4
    #3
    ace3434 said:

    Hi

    Hi I am glad that you have found reassurance from this site.  I lost my wife back in November 2012 from pertioneal cancer.  She was stage 4.  The chemo worked for the Summer bringing her CA-125 down to very low levels.  However by October the cancer returned full blast.  Why they stopped the chemo I do not yet know.  Even though her levels were low she had a small tumor on her liver, then after two months of not being on the chemo her liver was covered in tumors.   Make sure you ask your doctor if a maintance plan is better for this type of cancer.  I still have to talk to the doctor and see why they did not have her on a maintance plan since she was stage 4.  I am glad you are fighting and keeping a positive attitude.  My wife was the same way.  You have made it much farther in your fight than my wife.  Keep reading about it and constantly talk to your doctor.  I wish you the best of luck.

    ace3434, Thanks for the

    ace3434, Thanks for the advice about a maintance plan.  I had 6 chemo rounds last fall, a debulking surgery, a drug trial this spring (which was short-lived; didn't work at all) and have currently completed 1 round of 6 chemo treatments.

     

    I welcome all advice from peeps here!

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  • lulu1010
    lulu1010 CSN Member Posts: 367
    #4
    Lin from OH said:

    ace3434, Thanks for the

    ace3434, Thanks for the advice about a maintance plan.  I had 6 chemo rounds last fall, a debulking surgery, a drug trial this spring (which was short-lived; didn't work at all) and have currently completed 1 round of 6 chemo treatments.

     

    I welcome all advice from peeps here!

    welcome Lin

     I am a Lin from Ohio also. I live near Cleveland. Dx in 2010 with PPC stage 3c. I had 4 Carbo and then surgery and followed with 6 Carbo/Taxol. Tried a vaccine trial during my first remission which lasted 9 months and then was put on Doxil. After about 5 months it stopped working and was put on Carbo again. I am also BRCA positive. Have been in remission about 3 months now and really enjoying it..Glad you found this site...Hope all goes well for you!

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