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Remedy for chemo fatigue
I have had 18 chemo treatments now. About a month ago someone emailed me a link for chemo fatigue. I began taking 1000 mg. of Ginsing a day. AMAZING improvement in my level of energy!
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My News
Hi everybody Just passing on my good news! Having now finished 7 rounds of carboplatin/taxol and 2 surgeries in the last 6 months my oncologist last week told me I am in remission. I am over the moon! My CA125 down to a normal 21 so very happy with that. Off to Italy and the UK in two weeks and will spend 5 weeks…
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New to the Network
Hi, I'm new to the network and would like to get to know others who have pritoneal cancer. There is so little information out there that I think talking to others with the same disease will help us all understand the good and the bad.
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CAT scan results not good need info
My husband had colon cancer that spread to his peritoneal HIPEC survey in January 2012 today is our first time back to start chemo but they did scan prior to chemo which show microscopic cancer on outside of liver and lymph nodes Very scared can he still beat this? He has always responded to chemo very well and they want…
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First time posting
Hello Everyone, I ran across this site the other night while sitting in the ER with my Mother. She was diagnosed with Non Small Cell Carcinoma Of Mullerian Origin on March 9, 2012. At her first appt with the Oncologist on March 15, we were told that it was very unusual because she did not have any masses on her ovaries or…
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Some updates
We spoke to Oncologist and find out that wife is diagnosed with Ovarion Cancer Stage IIIC, not PPC, as considered before. Ruby is back home now after three surgeries and hopefully will start with 6 rounds of Chemo.
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Low Grade anyone?
I have been diagnosed with stage 4 low grade PPC. Have had 6 chemo treatments with Carbo/Taxol. I am wondering if anyone else out there has the same diagnosis.
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Time to start chemo
Does any one knows how long is wait time to start chemo after debulking surgery? My wife had surgery on June 12th and we are getting appointment for Aug 13th. We are not sure if its too late to start chemo.
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Tina?
Hi Tina, How are you doing? Mum is probably in or about the same phase as you and I am thinking of you as my mums treatment goes along. If you have time, please send a note. /sophie
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update on mum
Hi all, Well this thing really is like a roller coaster! As you may know, mum is not having any more chemo and we are taking each day as it comes, we desperatly want her to feel better now she is off the chemo but it is not how we expected things to be, mum is on anti sickness meds and Morphine patches, she has just…
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Allergic reaction
On Thursday I had an allergic reaction to my Carboplatin. It began with itchiness on my hands and feet which spread to my trunk. Then I had this strange tighness in my chest and my breathing began to feel strange. I pressed the alarm button and the nurses gave me an oxygen mask. I think I panicked a bit and my breathing…
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surgery to remove blockage done
Hi all! At last, after a few times at the emergency and after months of vomiting and pain, mum´s got her blockage removed from her intestines... yay! How difficult could it be? But at last. And while they were "in there" they cleaned up as much as they could and she also got her pain kill pump installed as epidural…
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Changing screen name
Hi all... I just wanted to say that I've changed my screen name to Patsie D. I initially called myself wanttogetwellsoon and was quite happy with that at the time though I did get a message from one of us gently asking me to change it. It's started to get me down so I've bitten the bullet and used the name I feel most…
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Pain in Stomach - CT scanned shows large grey area in the omentum - having biopsy
I was reading everything about the omentum & am very scared right now. I have a biopsy next week to find out what's going on. Could the gray area really be cancer - my surgeon said it could be anything - even inflamation. Any ideas? THe pain in my stomach is weird, it only hurts if pressured it applied on that area. But I…
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Low Grade anyone?
I have been diagnosed with stage 4 low grade PPC. Have had 6 chemo treatments with Carbo/Taxol. I am wondering if anyone else out there has the same diagnosis.
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Abdominal pain anyone else?
Hi all, Mum is having severe abdominal pain. Morphine and Oxynorm not working very well, just enough to get through. Med says her intestines has stopped working and not because og cancer cells blocking it but from not eating much and having her bag on her tummy has made her tummy inactive and now not working and with pain…
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Hi all
Mum has been very poorly after her 2nd Gemzar/Carbo, understandably the docs think it is the chemo and they could well be right but she had exactly the same problems at the end of last year and she was not on chemo then, has anyone heard of Spontaneous bacterial peritonitis? It seems it is something you can get within the…
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CA125
My CA125 has always been normal but I have advanced lowgrade PPC. Does anyone else have this? I find it very scary that my disease is so difficult to monitor.
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Omentum cancer diagnosis
Hi there, I have been diagnosed with omentum cancer. My oncologist stated that surgery is not an option, but I am wondering a couple of things that perhaps one of you might kindly take the time to answer... 1. Is Omentum and Peritoneal cancer the same thing? 2. Is it terminal? My DR. stated treatment would be chemo therapy…
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Ileocecal Valve Syndrome
I had appendix cancer in 2007. I had a debulking surgery that included a right hemicolectomy. Last year, I started having horrible constipation alternating with out of control diarrhea. after much testing, I found a gastro dr who told me what the problem was. When they removed part of my colon, they removed the ileocecal…
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Ileocecal Valve Syndrome
I had appendix cancer in 2007. I had a debulking surgery that included a right hemicolectomy. Last year, I started having horrible constipation alternating with out of control diarrhea. after much testing, I found a gastro dr who told me what the problem was. When they removed part of my colon, they removed the ileocecal…
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Ileocecal Valve Syndrome
I had appendix cancer in 2007. I had a debulking surgery that included a right hemicolectomy. Last year, I started having horrible constipation alternating with out of control diarrhea. after much testing, I found a gastro dr who told me what the problem was. When they removed part of my colon, they removed the ileocecal…
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Ileocecal Valve Syndrome
I had appendix cancer in 2007. I had a debulking surgery that included a right hemicolectomy. Last year, I started having horrible constipation alternating with out of control diarrhea. after much testing, I found a gastro dr who told me what the problem was. When they removed part of my colon, they removed the ileocecal…
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Hipec treatment (hot chemo)
Hello all! I am wondering if anyone knows if this tx is good for PPC or has had this tx.... Thanks to anyone who can share.
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Update
Hi all, Sorry I have been away for a bit but thought I would update on my progress. Having had my 6th round of chemo (carbo/taxol) a month ago my oncologist said he wanted me to have one more so I had that last Wednesday. I guess it is good insurance! I did find the last 3 rounds much harder to take but all worth it now it…
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My Peritoneal Cancer Diagnosis Journey
Hello all, I haven't posted in a while and I have not updated the various list. I have been blogging about my Peritoneal Cancer Diagnosis Journey. I call it a Journey because that is what it has been. I was diagnosed in 2/10, had my debaulking surgery late 2/10 and have been doing what I need to do to be here... Below is a…
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Bleed
Mum had a bleed last night, thankfully she was still in the hospice ( she was supposed to be going home next week ) It was quite a large bleed so obviously mum was very distressed by it, she has been given a sedation and they have stopped her blood thinners, they are also giving her something to try and stop it happening…
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Night Sweats
I am having real problems with night time sweats. It is something I used to have when I was first diagnosed. At the time my oncologist said it was the "activity of the cancer" causing the heat. It soon went as the chemo began working. However, it is back. My numbers are up to 1,600 ish and I know my cancer is growing. I…
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Back checkng in!
Well everyone i was on last week and kept trying to log in and it kept saying i wasn't using the right password/username. I was skeptical. So i filled out again and have been waiting to be accepted and here i tried today, and look, I am on here! Is there a difference between csnbeta? Well, Easter has passed. Yippee! Things…
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Problems with constipation
Hi, sorry I've been AWOL but I have just come out of hospital. It appears that my cancer has continued to grow and I have an increased thickening throughout my peritoneum. Everything inside of my abdominal cavity appears to be squashed and this is causing me extreme discomfort and pain. I have chronic constipation that I…