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looking for some info..
Hello, I just had a friend diagnosed with Peritoneal Carcinomatosis... Looking for some information on this type of cancer. Thank you! rose
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The number I was waiting for.
Just now getting my next-to-last taxol & carboplatin. I was just told that my CA125 marker is 79. Finally broke 100! And a far cry from when I was diagnosed in July with a CA125 score of 2,738. The bonus was my dear sweet PA said I look wonderful. I know she meant it sincerely--if I say so myself, I am looking well these…
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Good news!
(Let me try this again!) I may be taking my last carbo treatment for this round. It is for a first recurrance that did not respond to Doxil. I have been on chemo since March! I get it in the hospital overnite as I am allergic to it and they desensitize me. The Dr. may want to give me a couple more treatments to give it a…
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Confused - CA125 increased after debulking
First, I'd like to say how much help this group has already been and thank you! My Mom, a young 71, was diagnosed with peritoneal cancer last month (Nov. 2012). Her CA125 was 5,338 November 24, 2012. The doctor first suspected ovarian cancer, but after surgery to remove as much of the cancer has possible, he said the…
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Confused - CA125 increased after debulking
First, I'd like to say how much help this group has already been and thank you! My Mom, a young 71, was diagnosed with peritoneal cancer last month (Nov. 2012). Her CA125 was 5,338 November 24, 2012. The doctor first suspected ovarian cancer, but after surgery to remove as much of the cancer has possible, he said the…
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Confused - CA125 increased after debulking
First, I'd like to say how much help this group has already been and thank you! My Mom, a young 71, was diagnosed with peritoneal cancer last month (Nov. 2012). Her CA125 was 5,338 November 24, 2012. The doctor first suspected ovarian cancer, but after surgery to remove as much of the cancer has possible, he said the…
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My Doxil (Caelyx) Results
Hi All I saw my Oncologist yesterday having completed 3 rounds of this chemo. I was to have had Round 4 today but as my CA125 jumped up from 322 to 425 over this last month it is now off for me. I am quietly relieved as side effects were so awful! Burning hands and feet which blistered terribly and required me to visit my…
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secondary peritoneal cancer
Hi, just sending new so far on my husband Ian, he had his last of 8 cycles of chemo today, for colon mets in peritoneum. Next step is ct on 13th and then results on 19th. He has done so well so far, the ascites has not returned while on the chemo, we are hoping that this will be it, and chemo finished for good!! Oh well…
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opting out of debulking
Hi Everybody, three months ago, my mom, 74 yrs old, went into the ER with bloating and was diagnsed with PPC. I feel like my life suddenly stopped as the doctor was giving us the news and now I live in some kind of cruel existance, parallel to everyone else. To date, we completed 3 rounds of chemo after which she got…
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ASCITES
Just a quck post about my ascities experience. After being told that my CT showed a good result my tummy began to grow.I thought I was imagining it and put it down to me putting on weight. But no, it was hard and me sides were bulging. Saw my oncologist and it was confirmed that I had ascites and I was admitted as an…
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Etopocide
Has anyone been on this chemo? I have just started it in tablet form. I would like to know: ~ How sucessful it is? ~ What the nside effects are? ~ Do you loose your hair? Tina xxx
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Wondering how to always WANT to keep going?
See ladies, my mom is now checking in on this website so i wish u would take her under ur wings as much as possibe. She probably reads everything and than writes nothing. Anyway, she is MARYTESS. Thats her and my daughters name put together. Anyway, she is getting the doxil. After the second one, she went in for the third…
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Stage IV Primary Peritoneal
I would just like some feedback on what some you other ladies might be going through at this point. My cancer is now in the liver and possibly the lungs. We are trying new chemo drugs, but the last 3 have failed. I am really having a hard time keeping the faith right now.
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None
I'm sorry if you had a wasted click. I removed this message.
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Protocel
My mom has stage 3C ppc. She had surgery a few months ago..started chemo..had to stop and is now starting again this week. I had initially heard of Protocel when I started researching alternative treatments. I know many are opposed to the alternative route, but I was wondering if anyone has tried this or knows anyone who…
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New Photo
As you can see I did upload a new photo - current. The previous one was taken last Christmas after my first carbo/taxol. My new look!! JulieL
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Good News Story
I want to share this with other PPC survivors! Yesterday for the first time I met someone else who has PPC (face to face I mean, not online!) and she is a 7 year survivor!!! She has had many treatments and for the last year has been clear and no treatment necessary. She looks wonderful and was inspirational to me! I am…
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A new info source?
This week I happened across what I thought was a valuable reference: NCCN Guidelines for Patients/Ovarian Cancer. The National Comprehensive Cancer Network is comprised of leading cancer research & clinical hospitals in the US: MD Anderson in Houston, Fred Hutchinson in Seattle, City of Hope in LA, Dana-Farber in Boston,…
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My Doxil (Caelyx) result and extra good news
I have just had my 3rd infusion of Doxil. The side effects during the second round weren't pleasant with bad burning of hands and feet and nasty blisters requiring constant dressing by the nurses - and making life difficult - as well as rashes on my body. However the CA125 came in with a drop of 60 points over the month…
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3 year anniversary
3 years since the doctors told me I had an incurable cancer. 3 years since I was told the average survival rate for my cancer was 8 - 18 months. Ha ha ha I tricked you all - I am still here and feeling really well and free from chemo (at the moment) I am looking forward to another 3 years living and managing my illness. I…
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Time
I was reading about how long people had survived with this and had to do a double check. I'm 20 months since diagnosis .Seems like 5years .Strange how the mind plays tricks. X x
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Hope every other cancer patient has a day as good as mine!
Just had to share my latest news because I'm still elated, hours later, & I think my news shows there's reason for hope. Today my doc told me that the benchmark CA 125 cancer marker is down from 803 a month ago to . . . (drum roll) 173!!! Still a long way from the normal healthy range of 1-30, but what a big improvement…
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Doxil - my first round
Well I have now completed my first round of Doxil (Caelyx in Australia) and had my second treatment today. Having had 3 x CA125 tests increase 21 to 209 to 360 to 459 (the last being 6 days after my first infusion!!!) - 5th to 24th September - I was delighted that my result this week, at the end of the 4 weeks from…
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Is anybody in remission taking Tamoxifen as a maintenance drug?
I was diagnosed in December 2011 with stage 4 primary peritoneal. I had a 5 1/2 hour surgery to remove the disease. They were able to get all but 10%. I have had 9 chemo treatments Carboplatins and Taxol. As of August 2012 I am in remission. My CA 125 test at my 8th chemo was 55 which I started out with them being 1500. I…
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Stage IV cancer. Unknown primary with extensive peritoneal implanting. Should we get TPN?
Hi everyone. I'm new to this forum. My friend was diagnosed with stage 4 cancer in July. They think the primary may be gastric according the the cell block they got from taking cells from her ascites fluid. Her ascites subsided, but she now has a very palpable stomach mass and a malignant bowel obstruction. They think…
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The chemo regime is so tough
Just had my latest CA125 results which are quite pleasing. They have dropped again from 292 - 225. Not alot but it is going in the right direction. I have now had 3 Carboplatin and 3 Cisplatin so I am getting a 4 week chemo break. My body is exhausted. I wake up most mornings with nausea and if I cough then I retch and…
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Diagnosed in May PPC
Hi - I was diag in May with ppc IV and had a major hysteretomy and debulking followed by plurodesis (splg?) on my left lung a wk later, then the right lung was in July. Chemo was started in Aug. I tend to be a nervous and cronic worrier so reading all of your posts has been a big help. Chemo is every 3rd wk. After the 3rd…
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Seizure Disorder and Stage IV Primary Peritoneal Cancer...
Hi, First post, and loaded. My mom, Becky, amazing, vivacious, loves life and retirement... struck down just over a year ago with "unspecified" abdominal cancer. Six rounds of chemo after debulking found her in remission. Two and a half months ago her CA-125 went from 9.6 to over 1600 in less than 3 months and CAT scan…
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Mum not with us anymore
Hi all! Especially you that have been on the list for a while and know about my journey with my mum and her PPC stag IV. Mum passed away last sunday with all her family around her at hospital after an infection and intestines not working anymore probably due to lying in bed for the last month. Mum hade a very brave battle…
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Doxil - my first round
Well I have now completed my first round of Doxil (Caelyx in Australia) and had my second treatment today. Having had 3 x CA125 tests increase 21 to 209 to 360 to 459 (the last being 6 days after my first infusion!!!) - 5th to 24th September - I was delighted that my result this week, at the end of the 4 weeks from…