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What words of support would you offer?
Hi friends, As I explained before, my dad who is 62 years old just learned on December 1st that he has Stage II Esophageal Cancer. He had an Esophagectomy on Dec 14th, and then another surgery the following day due to internal leakage. He is still in the hospital recovering (and it's Jan.2/12). He seems very down lately.…
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Pain relief?
Hi all As many of you know, my husband, is stg iv with mets to the lungs and is now palliative care only, he is really suffering from pain in his bones legs and hips, cannot seem to get comfy, also sometimes his legs seem to not support him and down he goes, we call his legs gammy now cause they just aren't working…
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Happy New Year !?!
Hi all, Just wanted to take a moment to wish you all a happy new year. I know many of us are not up for celebrations this year, what a devastating month it's been around here. I am so sad for all of you, and for myself as well. I don't feel up to celebrating this evening, but I do look forward to a year of healing and…
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I just can't believe this is happening----
This has not been a good news week for us. My husband, Larry, Stage IV EC, after 7 rounds of chemo, minimal side effects, and improving scans had a PET and CT on Tuesday. Today we got the results. If our oncologist had only ordered a CT scan, the results would have been considered good and all stable. However, the PET…
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Found this article. they say they found the cure for cancer not sure how true it is
Found this article. Not completly sure how true is it. But I think everyone needs to know when there is a new information on how to cure cancer. http://www.sott.net/articles/show/228583-Scientists-cure-cancer-but-no-one-takes-notice Nicolle
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Surgery Was A Success-We're Back Home
I feel like I just ran a marathon or climbed Mount Everest. Last 4 months have been brutal for my mom and tiring for me but it paid off! Surgery was successful and now we're back home. I prayed and prayed (and asked members of this group to pray) and my prayers have been answered. Mom had surgery two weeks ago and except…
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blog started on our experience with EC
Hey all, Just wanted to let you know that I started a blog about our experience with EC. Writing has always been an outlet for me, so I thought I'd share the link with you. http://cancerhaiku.blogspot.com/ Blessings, Cora
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Update on Chemosmoker
Michelle posted the following on facebook and asked that it be shared with everyone here. Apparently the internet access and the CSN site are challenging these days for them. I know it has been for me as well. Often I can't get on and the pages take forever to load. Please keep them in your prayers and thoughts. Love to…
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DX 11/7/2011 and......STILL NO TREATMENT PLAN - Case considered a 'Wild Card'
Hello everyone, I’m sorry I haven’t posted in a while. I’m sure you all know, doctors more doctors, holidays, running around and tending to a 3 year old. Yeah so pretty much the gray hairs are just popping in every day. My father was diagnosed on November 7, 2011 with Adenocarcinoma. He is 74 years old. He has gone through…
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burping and belching
My husband is 4 months post MIE. He has terrible burping and belching after meals. He has no difficulty with swallowing. Has not needed dialation. Wondered if anyone else is having or has experienced this. It does not cause him pain, but embarrasses him and he really doesn't want to go out to eat or anything because of it.…
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Don't know what to say...my Bill was taken from me suddenly...
My sweet Bill was taken from me suddenly very early Saturday morning...not the cancer, but a freak accident as a result of his esophagectomy. We had taken vendors to dinner Friday night and had a great meal. Apparently Bill must've eaten too much, as he aspirated about 3:00 in the morning. He was able to tell me what was…
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New Year-New Hopes
To all my old friends and new ones. I just wanted to say "Happy New Year" to all, although I know many of you are not feeling like it's a happy new year. I had just lost my husband around this time last new year so I know exactly how some of you are feeling. I hope the new year brings new hope to alot of you hearing…
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My Beloved Don is Gone
Hello Friends, It is with a heavy heart that I tell you all that I buried my wonderful husband Don Yesterday. It has been a long, difficult journey the last few weeks. Watching him die a little every day was killing me. Now I know he is with the Lord and has no more pain. I hate this terrible Cancer. Please keep me in your…
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Michael Daniels / Hopper52
Dearest friends, We wanted to share with you the news of Dad's passing. He died last Wednesday, at home, surrounded by family. He died in peace, and we believe he was pain free. It was three months to the day since his first surgery at Moffitt, where we learned the cancer had metastasized. He had showed signs of liver…
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Ray, Jr.
Hello all, just checking in and for those of you following my brother's condition as of today he is doing ok. He did have a bad week last week in a lot of pain but he got through it. He was to have Pet done Friday but insurance would not pay for it. I guess it is a costly test. Well, Kathy (his wife) called around and the…
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needing some support ...
Just found out the cancer has spread to lymph node in lung...i will find out more when i talk with jr. myself update, talked with jr just now he is so down and in shock right now. He has lesions in both lungs, lymph node in abdomen has grown. I'm just feeling shaky and sick right now...please pray
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Tribute to my dear beloved dad Parviz Ghajar
All, My beloved father, Parviz Ghajar, passed away on March 27 2011 after his courageous battle with EC Stage IV for almost a year. Needless to say that last few months has been extremely difficult for my family specially for mom and during holidays. You see, my parents were married for over 55 years and there were truly…
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New guy here, whats it all mean?
Greetings all, I've been lurking around off and on for a couple years. I'm going to try to be more involved as I get further away from my surgery date (July 7, 2009 in USC, Dr. Tom DeMeester). I've noticed at the end of most posts there is a code, which I assume tells your diagnosis date etc..., But I can't quite figure it…
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Mom update
I haven't posted about mom in a long while, so here's a quickie. She has 4 more rad sessions to complete her 28. Today is a chemo bag refill and dressing change and I'm hoping it's the last one. The Onc nurse said the doc Rx'd one more month of chemo! I hope not. The Rads doc said he will "evaluate" and determine if more…
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Mom's photo worked!
I tried and tried to upload her newest photo and nothing worked. Now, suddenly, it works! Cool.
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Best wishes and love to you all
I leave you with the lyrics from the Moody Blues "New Horizons". You have been so wonderful, this whole board, and I wish nothing but love in your lives. Onward I go to 2012 while looking back at 2011. New Horizons Lyrics Well I've had dreams enough for one And I've got love enough for three I have my hopes to comfort me I…
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My mom had a stroke
I am so sorry I have not been on to share some of your ups and some of your downs and to try and help. On Dec 13th My mom had a severe stroke. She is completely paralized on the left side. No improvement at all so far so they moved her from the hospital to a nursing home. I just hate her being there and am very sad now.I…
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Twin Cities/MN people
I am just going to throw this out for some discussion. Would anyone in the Twin Cities, MN, or neighboring areas be interested in meeting up for coffee, lunch or maybe dinner somehwere? The purpose would be to meet each other in person, share stories, tips, and to just have a good time and celebrate life. I know there are…
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My mom had a stroke
I am so sorry I have not been on to share some of your ups and some of your downs and to try and help. On Dec 13th My mom had a severe stroke. She is completely paralized on the left side. No improvement at all so far so they moved her from the hospital to a nursing home. I just hate her being there and am very sad now.I…
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Happy Holidays! I love and miss you all! --Lu
I have been avoiding visiting the board for a few months. I don’t have the stamina that the rest of you have for posting regularly, and also for confronting the heartbreak . But I think of you all the time. I am enjoying my second Christmas since diagnosis (stage IV) surrounded by immediate and extended family, and I feel…
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HELL OF A WEEK
I just learned on Tuesday that I have cancer. Really has crushed me for the holidays. Don't know if this is my last one and the unknown is really scary to me and my wife. Thanks for listening. Bill
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does peripheral neuropathy get better?
Best wishes to you all. My father in law with stage iv is trying to figure out how aggressive to be with his Chemo regimen. Aside from fatigue, he hates the chemo related pain and sensitivity that's now mainly in his hands. I believe the cisplatin class of Chemo is to blame for that. I hear these symptoms often don't…
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Update on Don Reed (the harley dude)
Just a quick note to all of you. First, Merry Christmas and a Happy, Healthier New Year to each of you. On Friday (Dec. 23) Don had a Bard Powerport put in (a nurse friend of ours told us that was a pretty nice Christmas present and we think so too!). It was not what we expected - it is much better! It is placed under the…
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Medical Bills
There were questions asked on who has to pay? If you live in a community property state you are responsible for a deceased spouse debts and medical bills. If you don't..his/her money goes to the survivor depending on how the will is written. You are not responsible for their debts or medical bills UNLESS you signed as a…
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Vitamin C...
What do you guys know about massive infusions of Vitamin C. A good friend of mine has brain cancer, and was given 9 months to live, of course, this WAS 3 years ago. His folks told me today that he's been taking massive doses of Vitamin C (8000mg) and his cancer is doing some shrinking instead of spreading. Worth looking…