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Update on Chemosmoker
Michelle posted the following on facebook and asked that it be shared with everyone here. Apparently the internet access and the CSN site are challenging these days for them. I know it has been for me as well. Often I can't get on and the pages take forever to load. Please keep them in your prayers and thoughts. Love to…
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DX 11/7/2011 and......STILL NO TREATMENT PLAN - Case considered a 'Wild Card'
Hello everyone, I’m sorry I haven’t posted in a while. I’m sure you all know, doctors more doctors, holidays, running around and tending to a 3 year old. Yeah so pretty much the gray hairs are just popping in every day. My father was diagnosed on November 7, 2011 with Adenocarcinoma. He is 74 years old. He has gone through…
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burping and belching
My husband is 4 months post MIE. He has terrible burping and belching after meals. He has no difficulty with swallowing. Has not needed dialation. Wondered if anyone else is having or has experienced this. It does not cause him pain, but embarrasses him and he really doesn't want to go out to eat or anything because of it.…
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Don't know what to say...my Bill was taken from me suddenly...
My sweet Bill was taken from me suddenly very early Saturday morning...not the cancer, but a freak accident as a result of his esophagectomy. We had taken vendors to dinner Friday night and had a great meal. Apparently Bill must've eaten too much, as he aspirated about 3:00 in the morning. He was able to tell me what was…
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New Year-New Hopes
To all my old friends and new ones. I just wanted to say "Happy New Year" to all, although I know many of you are not feeling like it's a happy new year. I had just lost my husband around this time last new year so I know exactly how some of you are feeling. I hope the new year brings new hope to alot of you hearing…
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My Beloved Don is Gone
Hello Friends, It is with a heavy heart that I tell you all that I buried my wonderful husband Don Yesterday. It has been a long, difficult journey the last few weeks. Watching him die a little every day was killing me. Now I know he is with the Lord and has no more pain. I hate this terrible Cancer. Please keep me in your…
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Michael Daniels / Hopper52
Dearest friends, We wanted to share with you the news of Dad's passing. He died last Wednesday, at home, surrounded by family. He died in peace, and we believe he was pain free. It was three months to the day since his first surgery at Moffitt, where we learned the cancer had metastasized. He had showed signs of liver…
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Ray, Jr.
Hello all, just checking in and for those of you following my brother's condition as of today he is doing ok. He did have a bad week last week in a lot of pain but he got through it. He was to have Pet done Friday but insurance would not pay for it. I guess it is a costly test. Well, Kathy (his wife) called around and the…
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needing some support ...
Just found out the cancer has spread to lymph node in lung...i will find out more when i talk with jr. myself update, talked with jr just now he is so down and in shock right now. He has lesions in both lungs, lymph node in abdomen has grown. I'm just feeling shaky and sick right now...please pray
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Tribute to my dear beloved dad Parviz Ghajar
All, My beloved father, Parviz Ghajar, passed away on March 27 2011 after his courageous battle with EC Stage IV for almost a year. Needless to say that last few months has been extremely difficult for my family specially for mom and during holidays. You see, my parents were married for over 55 years and there were truly…
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New guy here, whats it all mean?
Greetings all, I've been lurking around off and on for a couple years. I'm going to try to be more involved as I get further away from my surgery date (July 7, 2009 in USC, Dr. Tom DeMeester). I've noticed at the end of most posts there is a code, which I assume tells your diagnosis date etc..., But I can't quite figure it…
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Mom update
I haven't posted about mom in a long while, so here's a quickie. She has 4 more rad sessions to complete her 28. Today is a chemo bag refill and dressing change and I'm hoping it's the last one. The Onc nurse said the doc Rx'd one more month of chemo! I hope not. The Rads doc said he will "evaluate" and determine if more…
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Mom's photo worked!
I tried and tried to upload her newest photo and nothing worked. Now, suddenly, it works! Cool.
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Best wishes and love to you all
I leave you with the lyrics from the Moody Blues "New Horizons". You have been so wonderful, this whole board, and I wish nothing but love in your lives. Onward I go to 2012 while looking back at 2011. New Horizons Lyrics Well I've had dreams enough for one And I've got love enough for three I have my hopes to comfort me I…
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My mom had a stroke
I am so sorry I have not been on to share some of your ups and some of your downs and to try and help. On Dec 13th My mom had a severe stroke. She is completely paralized on the left side. No improvement at all so far so they moved her from the hospital to a nursing home. I just hate her being there and am very sad now.I…
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Twin Cities/MN people
I am just going to throw this out for some discussion. Would anyone in the Twin Cities, MN, or neighboring areas be interested in meeting up for coffee, lunch or maybe dinner somehwere? The purpose would be to meet each other in person, share stories, tips, and to just have a good time and celebrate life. I know there are…
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My mom had a stroke
I am so sorry I have not been on to share some of your ups and some of your downs and to try and help. On Dec 13th My mom had a severe stroke. She is completely paralized on the left side. No improvement at all so far so they moved her from the hospital to a nursing home. I just hate her being there and am very sad now.I…
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Happy Holidays! I love and miss you all! --Lu
I have been avoiding visiting the board for a few months. I don’t have the stamina that the rest of you have for posting regularly, and also for confronting the heartbreak . But I think of you all the time. I am enjoying my second Christmas since diagnosis (stage IV) surrounded by immediate and extended family, and I feel…
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HELL OF A WEEK
I just learned on Tuesday that I have cancer. Really has crushed me for the holidays. Don't know if this is my last one and the unknown is really scary to me and my wife. Thanks for listening. Bill
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does peripheral neuropathy get better?
Best wishes to you all. My father in law with stage iv is trying to figure out how aggressive to be with his Chemo regimen. Aside from fatigue, he hates the chemo related pain and sensitivity that's now mainly in his hands. I believe the cisplatin class of Chemo is to blame for that. I hear these symptoms often don't…
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Update on Don Reed (the harley dude)
Just a quick note to all of you. First, Merry Christmas and a Happy, Healthier New Year to each of you. On Friday (Dec. 23) Don had a Bard Powerport put in (a nurse friend of ours told us that was a pretty nice Christmas present and we think so too!). It was not what we expected - it is much better! It is placed under the…
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Medical Bills
There were questions asked on who has to pay? If you live in a community property state you are responsible for a deceased spouse debts and medical bills. If you don't..his/her money goes to the survivor depending on how the will is written. You are not responsible for their debts or medical bills UNLESS you signed as a…
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Vitamin C...
What do you guys know about massive infusions of Vitamin C. A good friend of mine has brain cancer, and was given 9 months to live, of course, this WAS 3 years ago. His folks told me today that he's been taking massive doses of Vitamin C (8000mg) and his cancer is doing some shrinking instead of spreading. Worth looking…
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Chemotherapy how long after the side effects wear off?
Hi My Dad has chemo for 3 days (originally was suppose to take for 2days but the doctor thought it will be too much for him so he took it in 3 days). He is still very tired and fatigue after 4 days. Can anyone tell me when the after effects will wear off and he is more to his normal self? I realize it depends from person…
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Merry Christmas to ME
I am very excited.... I went to have my labs done today, meet with my oncologist and have my treatment. To be honest, I have been a little in a snit over having it today and the Nulasta shot in the morning( they aren't working Sat. had to move the shot back a day. I don't like change) anyway, when Dr. G came thru the door…
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Merry Christmas from Australia
To all my new friends I wish you love and peace in this coming season. Brian and I have already had our main Christmas dinner with our children and darling granddaughter. It was a very emotional but fabulous time. Rather than have the elephant in the room I took the opportunity to thank each person personally for their…
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great diet discussion
Hi All, I just wanted to repost this thread for new people ( which includes me) as there is such a great discussion here on diet. Merry Christmas, Happy Holidays, Cora http://csn.cancer.org/node/202943
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Can you Switch Clinical Trials?
Has anyone switched from one clinical trial to another -- perhaps at a different cancer center? It looks like that can be done -- although most commonly I see the second clinical trial is for "second line" chemo regimens -- less aggressive chemo with fewer side effects and lower expectations for disease response. My father…
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cherish
Hope this finds each of you in good spirits and minimal pain. Also want everybody to be safe and cherish each minute with your loved ones. Happy holidays and wishing for a better year. Barbara
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Thinking of all of you
Hi, Just wanted to say I was reading this forum this morning and very saddened to see that some of you have lost your loved ones recently to this horrible beast of a cancer. I, too, lost my dear husband, age 56, a year ago September 15, 2010. It has been a little over a year ago but especially holidays, such as Christmas,…