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Esophageal Cancer

**1st post** MIE at UCSF vs. UC Irvine w/ Dr. Nguyen with MediCal?
Hi all, Been reading and learning tons of info here thelast couple months. What a fantastic group. My mom was diagnosed at the end of July and finished treatment at UCSF on Oct. 6th. Initial staging is adenocarcinoma- t3n1m0, stage 3 She went through 5 once/ week chemo- cisplatin and taxol + 23 daily radiation treatments.…
Finally in treatment
Well, Monday I met with the surgeon who would install the portacath, and a very sweet young lady she is. Dr. Catherine Straub. She was going to do the surgery next week, but I pushed, and so she found she could do it on Tuesday. We headed back to the Hospital (an 80 mile drive) to be there by noon, of course no food after…
Heeran.. thinking about your mom
Hi Heeran, your mom has been in my thoughts and prayers.. her surgery... I hope all is going well. Sal
Don's Failing
Don is failing very fast. They tell me it will probably be before the weekend. We are keeping him as pain free as we can. Hospice people are awesome. Lots of family are with me. Even his 97 year old mother. This is really hard for her. Keep us in your prayers. Reba
What does it feel like?
I would like to know what it feels like to swallow. Mom says on a scale of 1 to 10 her pain when swallowing is 12. I asked what it felt like and she said she could not explain it. Can someone try to describe what it feels like so that I'll have some sort of clue? She takes a bite of food and swallows. Then has to drink two…
HNC SuperThread
With talk about "magic mouthwash", etc... HNC Superthread --Jerry
Ambien + Hydromorphone ???
I was not able to talk to the doc when the Hydro was Rx'd, so I thought I'd ask here and double-check come Monday. Would it be ok for mom to take her Hydromorphone 4mg along with her 10mg Ambien at bedtime? I wasn't sure, so I only gave her Ambien last night. I got up at 2 a.m. and she's sleeping soundly. It's now 3:30…
Curious to know if anyone has heard from Jimbo? Hope he is ok
Thinking about you Jimbo Cora
Clincal Trial - Cetuixmab
Hello -- My dad (58 years old) was recently diagnosed with esophageal cancer. T3N1. So far we've had a EUS, cat scan and PET scan and are waiting on the PET scan results to confirm that the cancer is localized in this area. We were offered participation in a phase III clinical trial that adds Cetuximab with the…
Mom diagnosed in June passed in September
I visited this site in July of this year. In everything I read on here I realised all the fancy words and descriptions would not help me. What did help me was the honesty. I appreciate those of you who were honest when I asked what should I expect with a Stage IV diagnosis. I tried so hard to have hope and faith that she…
"Happy Holidays" to old and new members
Hi to all: I just got on this forum and read about the man who died of this horrible cancer at age 37 with two young children. My heart is broken-this cancer is such a beast that tears lives apart. I lost my husband, age 56, a year ago and it still boggles my mind as to how these people are diagnosed with stage four right…
Acid Reflux Treatment
While speaking with my oncologist I mentioned that I was concerned that nobody has discussed a change in treatment that I receive to deal with my acid reflux. I have been using previcid for about six years and obviously it did not work or I would not have cancer. I was never advised that acid reflux could cause cancer and…
sham81(incase you missed my mail ..posting a new one) and see latest in my reply to William
December 16, 2011 - 8:57am Hi Shammi, William, Paul My Hi Shammi, William, Paul My Dad's getting his first chemo tomorrow and I wont be there ...will be going there on the 27th Dec.., William, I know what you told me but as I am here(China) its really difficult for them to listen to me.Since they said its advance stage…
New Stage 3 Caregiver..Correction Stage IVb
I recently joined this site looking for others who have been effected by EC. I have read alot of the blogs and it is a comfort to finally be able to find answers to some of the things I have wondered about. My bf was diagnosed July 2011 just after his 51st birthday. No one in my family ever had cancer so I have to admit I…
What a week
Monday we went to a different hospital (MDA has a 4 week wait to get an EUS done)for what we thought was going to be just a preop visit before the EUS and ended up being whisked off to the ER as the EKG indicated a heart attack. Spent 8 hours in the ER before being admitted. Spent 2 nights there. The cardiologist says Bill…
Need help with spreading word about EC
I'm going to be working on a Christmas letter this weekend. It will be going to some that have not heard about Larry's EC. I want to include a "public service message" about the increase in EC, correlation with gastric reflux, symptoms, etc. Is there a nice concise statement I can use? Angie
Christopher Hitchens dies from EC
http://www.vanityfair.com/online/daily/2011/12/In-Memoriam-Christopher-Hitchens-19492011
More positive news...
Hi Everyone, Dad had his endoscopy yesterday and they found that the pyloric valve needed another shot of Botox, but the blockage was gone. He is now able to begin soft foods for a couple of days then whatever. (Although he is goign to be very cautious.) There apparently are no signs to watch for to see if the valve is not…
New here hello everyone ..need advice
Hi We just found out that my Dad age 70 has esophageal cancer but not sure about the stage yet ..we think it might be stage 3.. for now they have not told us about the stage yet but my cousin's husband who is a doctor(from sydney) thinks its T3N2M0...its a nightmare for me and as an only child it's really hard. I've beeen…
Adube - Where are you? How are things?
It's been quite a while since I've seen Adube post. Just wondering how things are going for her dad? If you're still out there, please give us an update! We care, kiddo. Hope things are good for you and the family during this holiday season. Love & Hugs, Terry
Dr. Brant Oelschlager
William, guess this one is for you... I've done some research on Dr. Oelschlager, and it seems like I'm in really good hands. "Dr. Oelschlager is the Director for the Surgical Specialties "Center for Esophageal & Gastric Surgery" as well as the University of Washington's "Center for Videoendoscopic Surgery". He is the…
Heeran's mother's surgery tomorrow, Dec 15.
Heeran, Thinking about you the past couple of days. Is your mother's surgery still on for tomorrow? I know she is so scared. We will pray for her, her doctors, and family for the long day ahead. Linda
More about ECAN
I was looking for an organization to donate to on behalf of EC research and awareness. Well, tonight I talked with Mindy Mordecai who is the President and CEO of ECAN. Her husband Monte died from EC. We talked for a long time and I am very impressed with her dedication and the goals set for the org. She has many irons in…
New here. Going for first visit in one hour
I've had difficulty swallowing white bread for 1 month now with no other symptoms until recent 2-3 days. Acid reflux and no appetite. I am so scared and hope that you will wish me luck with my first GI visit today. I hope to God it's nothing serious and I hope I won't be a steady reader/poster here. Thanks in advance to…
Not long now
Don is getting weaker every day. I now have to give him 60mg of morphine every 8 hrs and a pill for anxiety as needed. He has been in bed all day today and not eating anything. I am just praying that God will take him home and out of this suffering. I know that it is in HIS time, but it is very hard to see him suffer.…
Phoenix Support Group
I was asked to post this for anyone who may live around Phoenix http://www.esophagealcancersupportphoenix.com/ Cora
Fluid hydration and blood tranfusion during chemo and radiation post surgery
My father is currently going through 5 weeks of 5fu .5 continous infusion and 5 day a week radiation post MIE. He is on week 2. For those of you who had the surgery and post chemo-radiation How did you manage to get enough fluids in with the decreased stomach size? This week he also saw a decrease in his red blood cells…
Dec 13,2010 my dad went to Jesus. What a year since....
Dear EC Friends, There are all new names, but a still a few of might remember me. My dad, Rich Anderson, was dx with ECIV July 13,10 and died Dec 13,10 after the 5 month roller coaster from Hell. William, Sally, Sherri, and so many others were of great support. Thank you. I've tried to check in on the boards, but knew I…
Has anyone read the China Study?
A friend of mine sent me the China Study by T. Colin Campbell. Havent finished it yet, but was wondering if anyone with EC or any other cancer got results from a raw plant food diet. My husband is stage IV, he is able to eat almost anything now. He hasn't used his feeding tube in two months.His first CT-Scan after four…
Freida & Bill
Hope this finds you and Bill doing ok @ MD Anderson. You must be super busy with all of the tests. Just wanted to let you know we are thinking about you both and hoping some of your questions are getting answered. Hugs, Judy

Esophageal Cancer

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