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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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Path report on husband’s new tumor and adrenal gland: Miracles do happen.
I posted about the 4 cm ish small bowel tumor they found when my husband went for his 4 year follow up scans for his chromophobe kidney cancer diagnosis. The tumor appeared out of nowhere and was not on his CT scan from 9 months ago. We were told to expect ladenocarcinoma or another cancer, metastatic disease was less…
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Chromophobe RCC
This is my first post, although I have gained a lot of useful info from everyone else's posts over the past few months. I have my 2nd scan (6 months post-op) scheduled for next Monday. My first scan was clear, and for that I am very thankful. I pray the same will be true with the next one. My question is this - does anyone…
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My Story
Hi All, I've been occationally looking at this forum for the past two years, and I thought it was time to share my story for the benefit of others. I'll be succinct. I'm male, 55yrs, and have been physically active all my life. So, for the record: * 2012: Pee'd blood, kidney pain. Went to clinic, thought to be kidney…
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Pathology Report
Got a call from my surgeon today. He said it was chromophobe RCC. I looked that up and it's apparently a rare form of RCC, diagnosed in only 5% of cases. What's strange is that it seems to be hereditary, but neither of my parents, nor any of my four grandparents had (to my knowledge) kidney cancer. Of course, since the…
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New to this platform
Hi All my name is Anthony of 48 years old. I was diagnosed with stage 3 clear cell carcinoma in December 2024. I had a radical nephrectomy in January 2025 and am currently under Immunotherapy treatment every 6 weeks (9 treatments in total). I also have a suspicious nodule in my right thyroid and other "benign" nodules in…
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Has anyone had a chromophobic kidney tumor?
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There are several types of KIDNEY cancers and several types of kidney cancer cells. What kind do yo
There are several types of kidney cancer: * Renal cell carcinoma * Urothelial carcinoma (also called transitional cell carcinoma) <---- what my husband had * Sarcoma * Wilms tumor * Lymphoma Types of kidney cancer cells: * Clear cell * Papillary <---- what my husband had * Sarcomatoid features * Angiomyolipoma *…
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Update
Well. I reported all clear in June but things change in the blink of an eye. On a completely unrelated scan, an enlarged lymph node was discovered. Not the results we were hoping for from my biopsy: Kidney cancer cells (diagnosis and surgery 9 years ago) have resurfaced. I had a CT scan of pelvis/abdomen tomorrow and a…
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I want to quit treatments
I am struggling! I am teetering on if I should quit my treatments and get the only kidney I have removed and go on dialysis. The treatments seem to be killing me faster than the cancer. I can’t eat because my mouth is very sore. I have no appetite and when I do have an urge to eat, I’m in pain. I struggle with getting…
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Radical Nephrectomy in Oct 2024 - Unsure of Next Steps
Hello, first off, let me start out by saying that I am grateful for this community and the courage you all display. I am hoping for some guidance on my cancer journey to better help me advocate for myself. In October 2024, I went to the emergency room after a month of seeing small traces of urine in my blood. I was…
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4 Years NED
Had my 4 year follow up in June. Wanted to check in because it has been a minute. I was stage 1a and grade 1 clear cell RCC. My tumor was also partially cystic which I have been reading can be predictor for recurrence. Mine is unlikely to return. I like to post so hopefully if people are looking for info and have the same…
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Lower Heart Rate Than Before Surgery
Did anybody experience a lower heart rate after surgery than before it? I am one week post robotic partial nephrectomy and my heart rate is about 15 beats slower than before across the board so my resting heart rate was at low 70 now it’s in the low 60. My sleeping heart rate is a low 50s dipping into the high 40s (was in…
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Started to research kidney transplant
Today I took a huge step in calling the hospitals that do kidney transplants that are within my insurance network. There were only 2. My oncologist is not on board with me looking into a transplant. They aren’t sure yet (it’s been a year) if the nodules on my lung are cancerous. They are too small to biopsy without…
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2016
Hi all my "Class of 2016" siblings. I hope you are all doing well. Tomorrow I have ultrasound, then I check in Tuesady with my surgeon/oncologist/urologist. Not anticipating any issues , but I'll be glad to get through the other side. Take care ~
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Right renal cystic lesion 3.2cm
Hello 48m I was wondering if anyone had any information about my CT w/contrast or US report I have an appointment set with urologist in 20 days, long wait and very worried. US -2 complex cysts, the larger in mid region is 2.8x2.0x3.2 in 2019 it was 1.5x1.1x1.1, margins are irregular. Internal septations noted. No dominate…
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Kidney Cancer returned in my spine
I'm 56 now and had kidney cancer in 2008 and got my right kidney removed. In August 2024, I was diagnosed with stage 4 renal cancer that attached itself to my spine. The cancer was pushing on the bone and my spine was close to fracturing. I had 8 hour surgery to get screws and rods inserted to stabilize my spine. I was too…
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Terms, sizes
Husband 73..survived prostate cancer 10 years ago. In March on vacation he was urinating blood. Went to urgent care ruled out kidney stone. Contacted urologist back home, had ct scan with and without contrast, ultrasound . Findings were nodule on adrenal gland 0.9 cm exhibiting and absolute washout of 39.7%. Along the…
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RCC in my remaining kidney
12 years ago I lost my left kidney. There have been a few scares along the way but now I have RCC in my right kidney. Partial nephrectomy scheduled for next week. Tumor is in the middle of my kidney and doc says there is a chance this laparoscopic robotic procure turns to an open one and 25% chance things go sideways and I…
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Looking for information
My MRI shows. heterogeneous complex cyst versus mass 3.8 X 5.6 cm in size. I’m a person that likes to hits things head on and make the best out of them. I have to wait for a few days until I get the CT scan. Be honest with me … what is the likely hood this is cancerous. Thank you Craig
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Checking back in -
Hi Everyone - I wrote that initial June 15 post after good followups from my kidney doc. Then I disappeared and went to ground because… on a completely unrelated scan, something "of concern" showed up in a lymph node behind my sternum. I have a clinic appointment July 31 back in Iowa and a biopsy on August 01. It's been a…
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Happy
Cancer has touched my life in many ways. In 1980, I lost my mother to ovarian cancer when she was just 28 years old. Her death left a profound impact on me, and I’ve carried her memory with me throughout my life. This year, cancer struck closer to home than I ever imagined—this time, within my own body. On October 2, 2024,…
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Seeking long term Survivors of Stage IV Wilms
I have read a lot of success stories about Wilms Tumor where the tumor was diagnosed at early staging (I or II), but what about successs stories of Stage IV Wilms? I've met some Stage V survivors, but have learned that each tumor is staged separately in Wilms V and oncologists consider Stage IV to have worse outcomes. My 4…
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New here...and qite scared..
I am a 36yr old male, in early Nov 2010 I had an abdominal CT done that showed a 13mm mass on my right kidney, there is also a 4mm mass in the same kidney, after a follow up ultrasound the radiology report stated “TREAT AS RENAL CELL CARCINOMA UNTIL PROVEN OTHERWISE”, upon seeing my urologist (I have Kaiser Permanente…
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HLRCC or type 2 papillary??
Hi, I’m new and looking to see if there is anyone else with HLRCC or type 2 papillary kidney cancer on this forum. It’s rare and difficult to find research, information, or others to connect with for advice so I thought I’d give this a try. I had surgery 3.5 years ago to remove tumor, kidney, adrenal gland, and part of…
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Weight loss from recovery ?
Hi, another question on how much weight might I lose during recovery from cancerous kidney removal ? I am 5' 11" only 140, (I lost 35 lbs this year due to a previous fissure surgery ) and am concermed about losing weight during my recovery. I am not underweight but am very close. Thanks again all, really appreciate all of…
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2 weeks ... feeling dizzy
Just curious, been two weeks as of today since my surgery and I've been feeling extremely dizzy at times when I stand up.wonder if this is normal.other than that I'm feeling good. Have my follow up tomorrow I can ask the doc but has any one else felt this way after there surgery?
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Buckle up, it’s gonna be a bumpy ride…
Had a CT scan a week ago to check out my appendix after a colonoscopy, and the radiologist found that I have a “complex multi septate cystic mass with thickened septations and mural nodularity measuring 9 cm x 6.5 cm exophytic to the mid left kidney.” It’s def Bosniak III, potentially IV. My family has a propensity towards…
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My husband was diagnosed with Wilms Cancer, it usually occurs in children, does anyone else have Wil
My husband of 38yrs old was diagnosed w/ Wilms cancer, it is usually found in kids and not in adults... does anyone else have this? He will be starting Chemotherapy next week, hopefully...
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SWOLLEN FEET AND ANKLES
Quite uncomfortable. Had the robotic kidney removal and a 7.1 cm cancerous tumor last Wed. YAY! Seem to have somewhat control over urination now when I am up. Still have to roll out of bed 3 or4 times a night. That is a pain. Am on the best "good for your kidney diet" I could put together. Water is my main drink and about…
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Partial robotic nephrectomy in two days
Hi everyone, In two days, I’m scheduled for a partial robotic nephrectomy to remove a 3cm mass that my doctors are confident is cancer. I’ve come to terms with the diagnosis, and until recently, I felt relatively at peace about the surgery. But over the past few days, my anxiety has really crept in—especially about…