Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Brain Cancer

feeling helpless and feeling my marriage is falling apart
My husband was diagnosed 10 years ago with an astrocytoma stage 4. they couldnt operate because of where it was. they radiated and he has been in remission up until 2 months ago. He had surgery 3 weeks ago and what a struggle that has been. He is not the same man that he used to be. He is so bitter and angry and directs it…
acoustic neuroma
i was recently diagnosed with an acoustic neuroma, I have no hearing loss or tinittus, no facial paralysis, only slight vertigo. my tumor is 1.8 cm long, so not large yet, but it's touching the brain stem already. What are the risks connected with the tumor touching the brain stem? Does anyone know what the chances are of…
Adult w/ ependymoma
I was diagnosed at age 51 with a brain tumor in 2019 and had it removed in October of 2022. It never really gave me any major problems until about 12 months before surgery. I began having minor dizzy spells and double vision, only when I looked left. My surgeon removed all of it. I had 6 weeks of radiation. My issues now…
Burning out my support system
After undergoing chemo and radiation in October of last year, my monthly chemo cycles go for another year through Nov '23. (Grade II Inoperable Brain Stem Astrocytoma.) I have good days and bad days, and feel as if I am burning out my support system (friends and husband) on my bad days. I know this is a "new normal". I…
Astrocytoma Grade III-Survivor
If any one needs help please let me know, I went through brain cancer and have lived. My calling is to help others survive also. Jose
Radiation Recovery
On 9/8/22 I was diagnosed with low-grade glioma of the brainstem. I underwent surgery on 8/23. Resection was not possible. I completed 6-weeks of radiation treatment on November 11. I am seeking to understand what recovery looks like. I am still quite sick. Mornings are typically best, but by 1:00 pm I am 'sick'. It's…
Grade 3 papillary tumor of the pineal region
Hello, I’m new here. this is my first post so I will tell my story, I’m 27 and was diagnosed with a brain tumor in November 2022. In December I had a partial resection because of where the tumors are the doctor couldn’t safely remove because the main artery in my brain that Carrie’s blood to the brain is wrapped around the…
Glioblastoma Patient in Need of Temozolodine
Hi everyone, my father (96 years old) was diagnosed with Glioblastoma about three weeks ago. They cannot remove the tumors so the only option is radiation and chemo (Temozolodine/ temodal), which we are would slow the growth and increase survival. Aside from the physical and psychological pain that this has caused our…
Lightening Sickness and Brain Tumor Survival Story
I want to share part of my brain tumor survival story. I've always gotten sick with lightening, then a few years ago I got blasted with really strong electromagnetic fields while working on a grounding mat and received brain tumors; I have gotten concussions when I was a child, damaging my brain. Since then I started…
glioblastoma treatment
What was your treatment and what do you know of the side effects , results, experience patient or caregiver. please state patient age as I want to research this for my 75 yo mother.
WHOLE BRAIN RADIATION
Doctors are recommending whole brain radiation. Has anyone had a good outcome from whole brain radiation? Thanks for any feedback. Rocky
Hello
New here. My Dad died 2 weeks ago. Aged 94. Took 8 weeks off of work to care for him. Beautiful and hard times. I found him passed and got my Mom when he died. Dysfunctional family. I gave his care my heart and soul and still can’t find time to grieve. How do I settle down. I only just got home after being on the east…
Brain cancer(Glioblastoma grade 4)
My mother was diagnosed with a brain tumor in June. Two days after her diagnoses she had brain surgery. They removed it in pieces. It was the size of the bottom of a 32oz. cup. They didn't get it all. She came out of sugery well. She does have some side effects of the tumor. Her memory and thought process isn't the same.…
Anaplastic ependymoma
I have a brother who had anaplastic ependymoma He underwent an operation to remove the tumor and received radiation treatment, then the tumor receded again, received radiological treatment, and took six doses of chemotherapy. This month, tumors appeared in the x-rays, and he had no other operations or chemotherapy, so…
Astrocytoma Grade 2
I was recently biopsied and diagnosed with an astrocytoma grade 2 tumor. With the exception of the symptoms that led me to my Doctor I've only dealt with the side effects of being on Decadron and more harshly of trying to be OFF Decadron. My first set of Doctors said there is no cure and to enjoy the 3 to 5 year expectancy…
CURE
New method eradicates deadly brain tumors by 'starving' them of energy source Go to Science Daily for article.
Brain Cancer from Mets Breast Cancer
I am on the EC forum because of my mom's resent diagnosis, but my SIL has been diagnosed with brain cancer from her ongoing battle with breast cancer, so I find myself on this forum too. Two spots on the brain (eye and ear areas) that are too dangerous to operate on. She will be undergoing whole brain radiation treatment…
A life of Brain Tumors
Both my twin brother and I are childhood brain tumor (pineal germinoma) survivors. He was diagnosed at the age of 7 and I was diagnosed with the same tumor 5 years later at the age of 12. Fortunately both were successfully removed via surgery, chemotherapy, and radiation although we both still deal with effects now as…
Great Update 10 years later anaplastic astrocytoma
When my sister was diagnosed in 2011 with an anaplastic astrocytoma, I must have read every single piece of scientific article and testimony from people surviving, ane surviving well. I am a little early, but my sister has been doing great. It has been 10 years since both surgeries, chemo, radiation. She is right now…
Secondary Cancer resulting from Brain Radiation
Hey all, I’m new to the group. My husband was diagnosed 6 years ago with an Anaplastic Oligodendroglioma. He had surgery, radiation and PC chemo - he’s been stable since. This past May, he discovered a small bump along his incision line and about a month later, after a biopsy, he was diagnosed with a radiation-induced…
Husband wiTh metatastic melanoma is in brain and I, the caregiver, have become an angry person
In September, 2016, two and a half years after we were married, my husband was diagnosed with metatastic melanoma (15 tumors in his brain) and two in his lung. Two months later (December 2016) I was diagnosed with breast cancer. Since I am his care taker, I chose a double mastectomy Before we got a 2nd opinion as to his…
Gliosarcoma - Please Comment with your experiences
Hello to everyone! On February 19, 2010, my dad was diagnosed with Gliosarcoma. At first the doctors said it was Glioblastoma, but now they are saying it is Gliosarcoma. He had a crainomoty on March 24th. Most of the tumor was removed, and 8 wafers were placed in the cavity where the tumor was. He was to begin his…
Anaplastic astrocytoma grade 3 wild type
I'm looking for some hope. My husband was diagnosed with an Anaplastic Astrocytoma grade 3 wild-type. He is 59 but very healthy. The doctor said he has the heart and arteries of a teenager. His presented with a few instances of olfactory hallucinations then a grand mal seizure back in late Feburary. He had an open biopsy…
astrocytoma anaplastic 3 wild type looking for hope
Dear all, my mon has a AA3 wild type . Doctors said that wild type is the most aggressive form of AA3 with short survival time. I am looking for long term survivors to find hope! Thanks a lot
Non operable grade 4 glioblastomas throughout the brain
New here. Dont really know where to start. My 45 yr old completely healthy husband was diagnosed 2 months ago with a more rare, extensive grade 4 glioblastomas. He started every day higher dose radiation 2 weeks ago. 4 weeks left to go. Then they want to start chemo 4 weeks later. There are many tumors with no option of…
Just diagnosed with Meningioma
Ya i got hit today with the news. I am devastated. I dont even know what to think about it all yet. I knew something was wrong because when i moved my head around a lot with some speed or force I felt like I had a headache, or if i bent over.. Sometimes it was hard for me to focus on seeing words.. and some ringing in my…
11 Years Post Brain Cancer STILL having Heat Intolerance problems (concerned as Summer approaches)
I am an 11 yr Medulloblastoma Brain Cancer Survivor and I was just wondering if anyone else feels the way I do in the hot summer months. Whenever it's 80 degrees out, I feel like it's 90, and when it's 90 I feel like it's 100 etc. I also get very lightheaded and disoriented with sometimes neuropathy. I've tried everything…
adult medullablastoma
We have just recently found out that my husband has medullablastoma of which he just went through surgery to remove the brain tumor from his cerebellum. I know this is rare in adults and am interested if there is anyone who has gone through this type of brain cancer? Any contact would be great.
Anaplastic Astrocytoma Grade 3 Survivor
Hello all, my name is Thomas and I am an AA3 survivor and just recently found this site and have chosen to post my story for encouragement and inspiration to others that have been diagnosed with this or other cancers. I will give you a brief history so you can somewhat see WHO I am. I was born December 29, 1970, this is…
Astrocytoma Grade 3 survivor
Hello! I am a 17 year (almost) Astrocytoma Grade 3 survivor. Diagnosed in 1997 at the age of 26. Tumor removed on Halloween! Chemo and radiation. Tumor completely removed it seems. I have been a 100% until recent seziures side effects in 2008 due to scar tissue in the surgrey area. If anyone needs more detail about my…

Brain Cancer

Discussion List

Discussion Boards