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Auto Stem Cell Transplant for MCL
Soon I will have to decide if I want to elect to do an Auto Stem Cell transplant for my Mantle Cell Lymphoma or just Rituxin maintenance. I am interested to hear any stories about your Stem Cell transplant experience and whether or not you would make the same choice. I am also interested in hearing if the ASCT was an…
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Likely.....
Hello friends, old and new.... I was diagnosed with advanced S-3 HL in 2009, and went into complete remission (c.r.) very readily, during or before the end of six months of R-ABVD. It has mostly been worry-free complete remission since, except for a few occurrences of anemia, although some episodes of anemia were serious,…
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Cobalt radiation as toddler for tonsillitis-Late rffects
I am an MD and practiced Pediatric Oncology. I have a story of my own to tell In the late 1940s and the 1950s, infants and children and teens were given Cobalt radiation for tonsillitis, acne, thymus gland, feet-for proper shoe fitting. All benign conditions I was 4 years old when I had Colbalt radiation to “shrink” my…
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does this sound like I might have lymphoma?
Hey everyone, i would like to thank you in advance for your availability and for helping so many people. im an 18 years old white girl and I’m a little concerned since I’ve had a weird lump on my left groin for quite some time. 2 years, if not more. I’ve had one in the right area a couple years ago but it went away, not…
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Worried about Lymphoma
Hi all! I am a first time poster. I have had an enlarged lymph node on the left side at the base of my neck, somewhat more on the collarbone, and some puffiness/a lump on that side at the base of my neck for months, and went to my PCP. I had an ultrasound which showed benign lymph nodes. My doctor called me in an…
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Mantle Cell lymphoma survivors
I am a Mantle Cell Lymphona cancer survivor I! I was diagnosed in 2021 went thru chemo , was unable to do stem cell transplant due to two unsucessfull stem cell extractions and will be starting my maintenance plan soon. Is there anyone that has gone thru this recently?
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Worried About Enlarged Lymph Nodes And Other Symptoms
Hello everyone. I have been worried because I have a few lymph nodes on both sides of my neck that are enlarged. There’s constant pain in my right neck where a 1.9cm right lymph node is located. On the left side I have a 2.2cm lymph node that only hurts when pressed. All other lymph nodes in my neck are enlarged as well…
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Tumor Fevers
Hi my husband has been diagnosed with Diffused Large B-Cell Lymphoma with it also in his spinal fluid as well. He is receiving 2 separate chemotherapy’s every 3 weeks. Last month my husbands WBC were extremely low along with his RBC and platelets. He did get a infection that was treated for over 2 weeks. About a week after…
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Hilar lymphadenopathy
I was in the ER Saturday for what had been diagnosed as cellulitis 2 weeks earlier. I had many tests including a chest X-ray followed by a CT scan that showed bilateral hilar lymphadenopathy. It was suggested I follow up with my oncologist on Monday. He has suggested a PET scan. I was just wondering if anyone has had a…
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Just diagnosed with Mantle Cell
Hope you are reading this new thread Todd and hope you saw Max's reply on the old one. First off I do want to say that with you having no symptoms, you may be put on Wait and Watch. When I first heard about it, I was skeptical but now I totally understand and agree with the reasoning. The thought is that as long as you are…
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Diagnosed with fNHL
Good morning, my 78 year old mother was just diagnosed with Follicular Non-Hodgkins Lymphoma, and she is going to be starting chemo soon. This whole experience has been such a roller coaster for our family. She didn't know she was sick until Labor Day weekend, and after the weekend, I ended up taking her to the Hospital.…
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Duodenum lymphoma
Hello, I am new here and at a loss on how to proceed with helping my mom. She just received a dx of “Lymphoproliferative B cell disorder” with instruction to see oncologist, on a biopsy taken from duodenum mass. The endoscopy and colonoscopy were done to investigate severe lower bleeding episode. In addition to gi episode…
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Pregnancy and Hodgkin Lymphoma resources
Hi All, 35 year old dad of 2. My wife and I found out this week that she has an orange size mass in her chest. The biopsy results showed Hodgkin lymphoma. The kicker is, she is 12 weeks pregnant. We are scared but determined. She is so brave. Is there anybody on this board who has been in this situation, or knows someone…
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Losing my hair
Most of you have gone through this a long time ago, but it is my current reality. In the long run, this will seem less catastrophic but for me this was a reason that I seriously considered delaying or refusing traditional chemo. It may sound vain, but it totally rocked my world off kilter. I was not blessed with beauty or…
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Port Removal
I have been in remission just over one year. My last scans were completely clear and my doctor suggested removal of my Port. To me it feels premature right now. I'm thinking he may just not want to tie up his staff having to flush it every 6 weeks. Although I'm NED, psychologically it does not feel like it's over and the…
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Myelodysplastic syndrome (MDS)
Just wondering if anyone here has been diagnosed with Myelodysplastic Syndrome (MDS) - aka pre leukemia. It can be caused by bone marrow damage inflicted by chemo. My doc thinks I may have it and has scheduled a BMB To find out. All I know is what I found on the web which is pretty grim. How do you deal with the symptoms?…
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R- Bendeka treatment
Hello all, trying to get some feedback on the treatment plan listed. I went through the 1st cycle and it’s need rough. Hospital twice and now I very apprehensive about cycle 2. Very anxious and borderline PTSD. Any advice you can offer would be so appreciated. Svence24
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Severe Reaction to Prednisone...what do people do?
My father was recently diagnosed with NHL DLBCL and is scheduled to start RCHOP. They have dosed him at 50mg (reducing from 100 mg) of Prednisone. They reduced due to side effects of Prednisone from previous use a few years back. We have a follow up appointment today to talk to doc regarding the 50 mg dosage. He…
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What now
My daddy was diagnosed on Feb 7 2022, has had several complications blood clots, stomach and gi tract bleeds that have left him in icu 3 times, after 5- 21 day rounds of chemo basically 4 months in the hospital and another month stay for several infections at the same time. He has been home for a little over a month now…
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Long-term side effects of cobalt radiation therapy
Calisurvivor asks the following: Where are all the long range side effect survivors of cobalt radiation? I was diagnosed with Hodgkins in the mid 60's in california. after a few cobalt radiation exposures i was clear and here i am now, however, the long range side effects are suddenly all catching up with me. Anyone find a…
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Newbie
Hi everyone! I am a newbie to the group.I was diagnosed Oct 2021 with AITL (Angioimmunoblastic T-Cell Lymphoma) did 6 rounds of chemo and been in remission since Feb 2022. Looking forward to sharing and learning from others :)
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Advice please
This is the first time I have posted so I'll explain a little about myself. My husband has for many years had Chonic Lymphocytic Leukaemia, which was until september of this year in remission. After feeling very unwell and losing a great deal of weight, the hospital finally gave Philip a CT Scan and found he had a very…
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recovery questions
Anyone experiencing loss of smell and taste months after finishing chemo? Its been almost 7mths since my last treatment and no smell or taste back yet..I know everyone is different when it comes to treatment /recovery but just wanna make sure I am not being paranoid. Also itchy scalp..what is anyone using/doing for relief?…
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Minimally prominent lymph nodes a few months ago- now more enlarged?
Hi everyone. I posted here back in April with some questions about my lymph nodes. I had a small visible lump under my right side of my chin at the end of last year that my doctor had an ultrasound done on, and all that came back from it was I had two minimally prominent lymph nodes and they would just watch for changes…
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Hairstylist Recommend
I'm undergoing chemotherapy and have hair loss and scalp psoriasis. Where can I find a salon familiar with these issues? Thanks Depressed
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Insurance Battle
I am in the middle of CAR-T cell therapy for Stage 4 Non-Hodgkins Diffuse Large B Cell Lymphoma. The people at my cancer center got insurance approval from BCBS of Texas to have an EKG, PET Scan Bloodwork and my T cells collected & sent out to KITE to be engineered. The cells are done now & waiting to be sent back to be…
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New member
Hi, just diagnosed in June with stage 3 B cell lymphoma. Have undergone 3 r chop so far but this last one has been different. I have never felt so tired and anxious. I’ve gone thru two kidney transplant and I just worry either the treatment or the cancer will damage my transplant. Is it normal to feel so unbearably tired…
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Bug Bites
I’ve had over the summer bug bites that turn into a blister that takes several days to go away. I’ve read that those diagnosed with Lymphoma/Leukemia are more susceptible to these types of reactions. I’ve had a bite/blister on my left outside ankle for maybe 4 days or so. Before turning into a blister it was very red itchy…
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Toxo and Lymphoma
In the USA about 20% of the population tests positive for latent toxoplasmosis. In Western Europe, where eating raw meat is considered sophisticated, the infection rate jumps to 55%. In eastern Europe and Brazil it is estimated to be 70%-80%. Those folks are beginning to take this parasite quite seriously. It is an…
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Interesting COVID article
https://www.foxnews.com/health/vaccinated-patients-blood-cancers-higher-risk-breakthrough-covid-other-cancers-study