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Prostate Cancer

Stage IV journey begins...
My cancer is back. I had a PSA done in January of this year…. 8.1…it had been a 0.34 six months before. Doctors could not believe that the result was that high after such a short time. It is an aggressive monster that eventually went to 9.4 in July. PET scan showed 8 bone lesions with 1 large one on my spine. No organ or…
It's back!
Diagnosed 6 years ago, many samples Gleason 8 or 9, seminal vesicle involvement. Classified as high risk of course. Was told by several docs that even if I had surgery I would still need the full barrage of radiation treatments also. I chose IMRT and 2 years of ADT and skipped the surgery. Now 6 years later, PSA slowly…
Fighting Back: How To Tune Up Our Attitude And Outlook
I am a Stage 4 prostate cancer survivor, Gleason Score 9, with the BRCA 1 Gene. I've had surgery, chemo, and radiation. Also…3 PSMA PET scans. What helps me plow through this battle is a focused and determined outlook. If you would like a few tips on how to stay mentally strong as you confront these challenges, please send…
Prostrate cancer PSA
I am a 60 year old man that has had his prostrate removed Sept 2021. I had a PSA of 36 with a Gleason score of 6. Stage 2 because of the high PSA but also BPH I had been on active surv since 2013 PSA of 2 . In 2013 I had my first biopsy were one needle out of 12 cores showed Gleason score 6 on 5 % on the needle but spend 3…
Side effects
So, I’m 22 months out from prostate removal and 5 months out from 35 prostate bed radiation treatments Received my 2nd and last lupron shot a month ago 1 - Haven’t had an erection since December of 2023. I guess I can kiss that goodbye 🧐 2 - Only issue I still have from the prostate removal is some minimal leakage during…
question about diet
so I just had an old friend of mine who got his first PSA test at 61 and he got bad news. psa was 13 gleason score 9 4+5 good news still contained prostate so he elected to have surgery and of course, the first PSA test was above the minimum so they did radiation and now he's on hormone treatments, but he has a question…
11 month post RARP
Just had what is considered my one year visit post surgery by my Dr. PSA still undetectable at 0.014 which is where it has been since my surgery a year ago. We are now moving to six months appointments vs 3 months and if still undetectable in a year will go to annual PSA testing and visit. Still slightly incontinent. Had…
Decision time on Surgery & Radiation, all test done
Thanks again for all the help in these past few weeks, my PSMA Pet Scan Results have arrived. At this point (waiting on Decipher Test) I am done with testing. At this point I am leaning towards SBRT & Hormones for 6 months. I meet with my urologist tomorrow and then Radiologist, Oncologist on Thursday and Friday to hear…
Treatment Center Options - High Rish Aggressive Prostate Cancer
Hello - my BIL (61) had his first PSA done a couple of months ago with a 7.1 result. MRI and biopsies showed Gleason 9 with PNI and swollen pelvic lymph node. PSMA CT scheduled for next week. Urologic oncologist said very bad cancer. Can anyone recommend a treatment center that may be better than your standard local…
2nd Lupron shot
I’m 6 months out from last radiation treatment and in 6th month of first lupron shot Still Getting 6-12 hot flashes daily and a few chills a week. Lost at least 10% of my muscle mass and my joints and tendons are always sore I see my urologist in 2 days. Have had 3 blood draws since April. All PSA’s less than detectable…
Decision on moving forward
Hi! I am a 60yr old gentleman with Prostate Cancer and I have questions on how to move forward with my treatments. Initially I was diagnosed with prostate cancer PSA at 79.7 back in Jan 2024 and have done a biopsy as well as a petscan and they also found out that I had a kidney stone a size of 3mm, which has since been…
PSA Results
Well, just got my PSA results. .05ng/ml. I am 7.5 years post RALP. Generally speaking, I guess that means I am disease free and still in remission. Early birthday present as far as I am concerned. Smile, I am.
Prostate Cancer after Biopsy-want to do HoLep
Hi. So last year I got diagnosed with Prostate Cancer 11 cores negative, 1 with 5%. My PSA has held steady at 4.9 for several months. My new urologist is suggesting a HoLep to shrink prostate so I can pee easier. However, I had an MRI and he'd like to do an MRI first. If the cancer as grown, his idea is to remove it and…
Incredible pain 8 weeks after brachytherapy
Hello - I am a 79 year old male who got diagnosed with prostate cancer in August of 2018. My scores were Gleason 6, Grade group 1. PSA was 6.78. In December 2024 MRI showed a slight increase in lesion on one side. Subsequent biopsy showed Gleason 7 (3+4) Group 2 in two cores and all others remained Gleason 6 Group 1. PSA…
NEW PSA SCORE; WENT FROM OVER 400+ DOWN TO 0.88 IN LESS THAN 1 YEAR!
Greetings; It's been a while since I've vistited this site. I originally was diagnosed with metastatic prostate cancer approximately 1 year ago. My original PSA score went up over 400 points. I immediately started cancer treatment at the VA in Southern Calif and also was treated by a Natural Holsitic Practitoner from West…
Enzalutamide, has anyone been on this?
My husband has now been told that he should take Enzlutamide tables. Lots of side effects with it. He has to sign to say that he has given his permission to use this. Has anyone on this discussion board been on this drugs?
Will HBO do the trick?
Hi to all, I have received a message from Hunter inquiring how I am doing. And, yes I am in default with a late update from my last entry in this forum. Well, everything seems to be under control. Since my last post (below) in this forum that I had a series of "encounters" with health issues, particularly due to bladder's…
Have you had Radiation Treatment for Prostate Cancer?
Hello all, male in mid 70s here, Have you had Radiation Treatment for Prostate Cancer? What is your current status? History. Outcomes? What has changed? Are you cancer free? What is your PSA? How is your sex life? Have ED? Are your ejaculations the same or have they changed? The color of your semen changed. How? Any blood…
I have questions... new member
I am 53 and might be dealing with prostate cancer. heres my story. I have had my large intestine removed in 2008 from ulceritive colitis. I kept having microscopic blood in my urine and still do to this day. Also in past had a growth on my kidney that they did a cryoablation on 8 years ago and followed up with MRI for 5…
2nd Lupron shot
So, I got my 2nd 6 month lupron shot and am already feeling the effects My knees are now an issue. I got out of bed last night and almost fell over when left one wanted to give out. Also, my right hamstring is sore Just another thing to know and try to work around Any suggestions on what I can take OTC to counter these…
11 month update
I thought I would provide an update since I have been quiet for a while. (I feel I owe all of you who helped answer my questions earlier) Brief recap ...gleason 3+4 1/5/24...gleason 4+3 at time of surgery 7/11/24...Nerve sparing surgery deemed successful. Continence returned at 2 months. But I ended up having a stricture,…
Anybody familiar with Dr. Dattoli's center in Sarasota, FL ??
Due to PSA rising after RRP in Dec. 2010, I am looking for the best follow-up radiation. Any info will be appreciated. As well as other recommendations. After checking his website, I'm not sure about the advantages of his different tests including "color flow doppler ultrasound" and "DART (Dynamic Adaptive Radio Therapy)".…
Good news source
just an FYI - Some people may not like the source, but I’ve found that the GROK3 app gives me good and reliable answers to my questions about my surgeries and treatments Just saying Have a GREAT weekend 🚜🐝🚜
da Vinci robotic single port surgery using the Trendelenburg position
Are there many prostrate cancer patient treated using this technique? How to you find doctors that can do this? Can anyone share their experience if they were treated like this? Please forgive my rambling (see below) and thanks for listening (reading). Greetings. This is my first post. I was diagnosed with a small (.3 cc)…
opinions and experience? time of day taking Relugolix (Orgovyx)
Hi y'all. I had a heckuva time deciding on treatment, having had several options. I settled on ADT, HDR brachy and photon radiation. If I recall correctly I'll get 65 gray total radiation. and I'll start with ADT - Orgovyx for 6 weeks before radiation starts. I was advised to take the pills any time of day I choose, but be…
Waiting 6 to 7 months for Prostate surgery
Hi friends I am new to this forum. Husband diagnosed with Prostate ca Gleason 7 (3+4) stage II. MRI and PSMA pet scan show it is contained within the prostate. We liven Canada and have a long Queque, so surgery will only 6 to 7 months frm date of diagnosis. Scared to wait so long for surgery. Amy opinions/advice? Has…
Advice
I'm a 65 year old recently diagnosed. My PSA was 5.34 in April and my urologist recommended an MRI. MRI in June showed showed prostate volume 38cc. T2 hypointense lesion involving the the left posteromedial mid gland peripheral zone measures 0.3cm and demonstrates focal restricted diffusion and low ADC with early focal…
Injury recovery time
on evening of July 4th, I misstepped in the dark on front porch steps and took a rumple (no alcohol involved) sprained left ankle (swelled up some) and jammed left big toe (swelled up to foot joint) Had it looked at by doc. Not too concerned 5 weeks later, ankle is better but still swells up if I’m on it a lot and big toe…
My Latest MRI and Back Story
Figured I'd share the journey… Just had my first MRI while on Active Surveillance. My history is had rising PSA in Fall 2021 (from 4 in 2020 to over 5 in 2021), had an MRI then which identified a PIRADS 4 lesion, had a biopsy with 12 samples on a grid and 3 in the lesion. The 12 on a grid were normal, the lesion samples…
Post Treatment Results
Had good news last week. My PSA was less than detectable However, they did another CT scan to look at an anomaly from my first one. Seems there was a dark spot on my third left rib Have Not heard from doctor yet. So, hopefully it wasn’t anything Headed to San Antonio in a few weeks to celebrate my oldest sons 50th 🎉🎉🎉 Hope…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Prostate Cancer

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