Signs of Life

LuckyKYGuy

Nearly 16 weeks since RARP and last night out of nowhere there was “a sign of life” as far as the ED is concerned. How or why I don’t know but suddenly had the closest thing to an erection since before surgery and there was pretty good sensation with it. Taking this as a good sign.

Incontinence is greatly improving and down to one pad a day, occasionally 2.

Pretty pleased and excited. Just wanted to share for those not as far along in their journey

Coma54

I am excited for you. I am 5 weeks out on RP and look forward to that day. Thank you!

LuckyKYGuy

https://csn.cancer.org/discussion/comment/1720890#Comment_1720890

You’ll get there. I was getting really discouraged around the 12 week mark but I’ve seen significant improvement weekly since then! Keep doing the Kegels!

Clevelandguy

Hi,

Important to keep the blood flowing in that area for healing purposes. Viagra,pumps,manual stimulation with your partner, ect………..

Dave 3+4

rick2026

https://csn.cancer.org/discussion/comment/1720892#Comment_1720892

hello , how are you today ?
I’m waiting on a pet scan with possible radiation to follow at loma Linda in ca. my psa went from 0.05 - 0. 12 in 6 months .All these stories are scary , seems no two are the same?
I don’t trust the radiation to do anything but make me worse? I still have some ED I try self stimulation sometimes it works and sometimes it doesn’t. I don’t get full directions, but I have the sensation of a climax. I still have some dribbling and drips no gushes I sleep naked at night no problem. Just when I cough or sneeze or if I heavy, I’ll get a couple but I’m not doing as bad as some on this I’m trying to find people who went through what I went through at my time.? I’m 66. I was an actress surveillance for about 12 years. My PSA was seven my Gleason score was seven so they did the robotic surgery in 2024 September. My incontinence have been a roller coaster ride of seemingly care to back to dribbling to lotta leaks at night, but I never wet my pants or the bed. I slept naked last night again no problem, but I I should mention prior to my surgery. I had a P scan and it revealed spread of the cancer outside of the prostate so when they removed it, there are some lingering. How would they know their cancer if the cancer never left the prostate capsule ? I feel removing the prostate by Surgical has caused me to be in the situation? Anybody please reply I’m new here I’m reading and it’s giving me anxiety and depression. Just like everyone else. I’m so sorry my dear friends. God bless

rick2026

https://csn.cancer.org/discussion/comment/1725936#Comment_1725936

correction to my previous entry about 20 minutes ago, I should’ve proofread,

there was “no spread or detectable cancer” in the PSMA scan prior to robotic surgery.
They said that was really good news I would like to converse with others who went to Loma Linda University in California to have radiation done please respond anyone thank you

rick2026

https://csn.cancer.org/discussion/328982/signs-of-life

hello that’s a great post . I had the similiar circumstances post surgery but haven’t returned to full on normalcy regarding erections . I have not had sex with my wife in five years as we both have issues that detour just that. My psa 16 months post robotic is 0.12. Now They want to give me radiation and hormone therapy. At a crossroad of indecisiveness, despite all the medical advice, I’m turning two blogs and stories, but I come to find out no two people are the same.
I’m 66 in two weeks, suffering with mental issues over this a lot of depression and anxiety. So please enlighten me doing what is your PSA numbers? Please keep up on your urology / psa blood work, stay vigilant. But I’m glad so far you have a good story to tell.

ALDARR777

Rick I'm Ron I've Survived my Metastasized CANCER for 21 years Brother Keep that FAITH brother do your PROGRAM what ever it may be but GOD combined with Science will bring you OUT.Dont obsess on your situation,I know it's hard NOT too but Cancer thrives on Negative Emotions!!! And Refined White Sugar!! Live LIFE do your PROGRAM and Keep an Eagle eye on your Onchologist make sure they are addressing what are YOUR concerns don't let Them run your life ok? Remember 21 years survivor here ok and you would never know I even have 'Cancer if I didn't tell you I'm 6'2" and 218 # at 69 years old brother God bless you and Jesus DOES save he saves me everyday for the last 21 years Brother he'll do it again for YOU too and I'm a sinner like anyone else I ain't nobody special ok but I needed to give you moral and spiritual strength tonight Jesus saves brother and Science does TOO

Marlon

Rick, if you are not already, see a therapist for some mental health counseling. They deal with this situation all the time. I know it's not a comfort, but it sounds like you are doing better than many of us.

rick2026

oh yes, I am. Medicated for stress, anxiety, panic, and depression long before my prostate cancer spiked. I was an active surveillance for nearly 13 years before my PSA reached seven and my Gleason score reached seven and it was time for robotic instead of proton being which I’m still kicking myself in the butt over and over for. But yes, I’ve tapped into the mental health combined with praying. I realize we all have to die someway someday that’s inevitable. The males in my family don’t have longevity at all heart disease, and cancer. I’ve never smoked cigarettes or been a heavy drinker or abuse. Anything in my life I’ve always been rather healthy and able to enjoy sports and athletics so I think that works with me moving forward. I’m a little bit overweight at 188 I should only be about 170 for my height 5’9”. And I feel the weight. I know I’m not obese, but it’s good to attack cancer with good mentality, good eating and exercise and prayers. So here am I able to say a small piece of cherry pie with coffee boy don’t I feel like a schmuck? Haha

anyways I’m taking your advice Sound, sir. Thank you for responding to my post I’m very new here in. I’m glad you’re still here monitoring post and responding. Thanks again. Rick

rick2026

https://csn.cancer.org/discussion/comment/1725974#Comment_1725974

God has always been with me, sometimes I was just to blind to see. But yes , my life is in gods hands. He’s saved me before many times and to me those were miracles in my life. His is great life is great . I hope you are well? I’m still seeking info on radiation side effects during and post ,i just can’t ease my mind of that.

JackWest

I had my 1st sleep erection (it woke me up) that was a normal part of my previous male biology. It was now so welcome. I am 5 years out of prostate cancer radiation treatment. So happy here!