Long-time Ned since recurrence

konkats33
konkats33 Member Posts: 1 *

hello everyone! I was diagnosed almost 6 years ago at 16yo with retroperitonial liposarcoma. Since then I have had surgeries , radiation and chemos for my recurrences. Luckily I have been responding to chemo from the start and I have been Ned for one year and then for another two. This disease seems chronic and creates ambiguity about the future . Is there anyone that has this (or other sarcoma) going on for many years ? Do recurrences ever get better or stop ? I’m afraid I’m not going to have a normal life span but I’m decided to do everything I can towards my goal. Thank you