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Uterine/Endometrial Cancer

What has been your experience with hair loss?
I am on day 13 after my first taxol/carbo chemo and I have not lost any of my hair yet. All I have noticed so far is that my underarm hair growth has slowed down, and I have slight soreness in specific areas of my head. What has your experience with hair loss been? When did it occur, was it fast/gradual, etc? Thanks!
VAIN or wide excision
Anyone here that has had a VAIN or wide excision for small lesion on vaginal wall? Not sure will need as we are waiting until July to do the biopsy as too soon after rads and hoping it will be benign. But, would like to know all I can before going in to find out if needed. Thanks all!
A bit paranoid, maybe
So, surgery is 2 weeks from today. CT scan got rescheduled for the 4th. Second surgeon is changed, now it’s a gastroentolgy surgeon with specialty in cancer and research, along with gyn onc, this is all good. Shortly before I saw the gyn onc first time, I began having worse back pain, pain around the ribs, but didn’t…
Port Removed today - initially inserted in Nov. 2016
Hi Ladies: Just an update on my cancer port. I had it removed today in a short procedure at my hospital (Crozer) in Delaware County, PA. The procedure lasted about 15 minutes to a half an hour. It ws medically glued in from the removal of the port. My blood level has remained normal since May of 2017, but my oncologist…
New study endometrial cancer and heart disease risk
When compared with matched controls, endometrial cancer survivors were 47% more likely to develop hypertension, diseases of the arteries, arterioles, and capillaries; diseases of the veins and lymphatics; and diseases of the heart between 1 year and 5 years after cancer diagnosis, reported Mia Hashibe, PhD, of the Huntsman…
Foliculitis?
Hi, ladies - Three days after my second cycle of taxol/carbo I developed an itchy, awful-looking rash over my entire skull. My hair is largely gone and the rash is both in places where it's totally gone and in places where there's a little left. It looks like the worst case of acne you've ever seen, with pustules and red…
New chemo study - immunotherapy & breast cancer
http://www.tampabay.com/many-breast-cancer-patients-can-skip-chemo-big-study-finds-ap_business9f30770a3a3d42538cd3f14672cd6529 I just saw this article on using less chemo and more targeted therapy to treat breast cancer. Hopefully, it will apply to uterine cancer at some point. I sure hope so!! Love, Eldri
Slightly elevated CA 125
Yup. Happened to me this time after months of it going down sharply. To be fair, it went up only six points ... 11 to 17. But I now know the panic so many ovarian and endometrial ladies feel when they see this. And I know it's usually watch and wait. It turned out I had a very-slightly-inflamed appendix in the last CT…
Stranding
Well, I got my first CT scan after the surgery. Good news ... the main organs seem either stable or fine. That's actually great news. My appendix is very slightly inflamed, but there is no evidence of anything concerning other than the inflamation, and other things can cause this that aren't cancer-related. That will be a…
Update on my Mom 4 Months After Completion of Frontline Treatment
Hi guys, Wanted to give you an update on my mom's current situation. So it's been four months since she completed all her frontline treatment. She finally got her CT scans back today and the lab results are: IMPRESSION: 1. Interval development of a small amount of ascites fluid in the posterior inferior pelvis since the…
Just in wait zone
first, i want to thank all, esp ‘it happened to me “ for the exc advice, particularly not getting ahead of things. I‘ve seen the Gyn Onc, had thorough exams, more tests, and more to go. The biopsy put cancer at grade 1, but gyn onc said “let’s hope it is”. I have a lot of pelvic pain and pressure, they noted a tumor they…
Incontinence after treatment.
I am 3 months out from my last treatment and all of a sudden I’m having urine issues. I never had a problem before. I don’t know what triggered this but it is so very distressin. Has anyone had this issue after treatment?
Post Menopausal Bleeding, 2 month wait for GYN referral
Hi all, I have been >10 years without a period due to Mirena IUD. After it was removed more than a year ago, she ran hormone levels that showed I was firmly post menopausal. In early March, I had a heavy "period". I told my primary care doctor this on Monday. She said that postmenopausal bleeding can be a symptom of…
Vaginal Atrophy or something worse? Advice needed.
Hi ladies, I had endometrial cancer which was diagnosed in Dec. 2010. I had a complete hysterectomy in Feb. 2011. I was fortunate that it was caught early and after surgery, I didn't require any follow-up treatments other than seeing my Gynecologic Oncolgist twice a year for a pelvic exam and a vault smear. What brings me…
thick green vaginal discharge
Seven months post radiation, two weeks post 5th chemo, I developed a thick, yellow/green, mucousy discharge, no odor, very gross. Saw three docs, three tests, no pathogens. Had a PET, all negative. So what is it? They all say its the treatments, but cannot say how long it will last, what to do, or whats in it. Anyone else…
Lost days after treatment...
Hello you wonderful, helpful women, I finished radiation in February and mistakenly thought I’d be done. All I had to do was get stronger which I thought would of course happen. Well I feel like I have a sorta good day then a bad day. I never have a completely good day. Today was an awful day. I felt generally I’ll all…
NeuEve and other non hormonal vaginal lubes
Found this product NeuEve on Amazon, reviews too good to be true, "restores" vagina from atrophy, improves sex, etc. No chems or hormones, but some ingredients are undisclosed. Wrote the company, they will not give details. Has anyone found a safe and effective lube for general discomfort, burning, pain, etc? I use cocnut…
Metformin Information
Hello everyone - this is my first post, but I am no newbie to this board. I've followed for several months, every since I found it. Here's my history, from what I hope I posted to my personal space. I'm posting because I am experiencing a recurrence (UPSC) and metastases to my liver. I also was fortunate enough to have a…
Chemo Combination and RT Effectiveness (Roll Call for All)
Hi, I just wanted to start a thread (I'm not sure there is already one) where people who have or had been diagnosed with any stage of Uterine Cancer can list the chemo combination treatments and other treatments they've gone through and how effective it is/was. A good format would be: 1) Type of Uterine Cancer 2) Stage,…
recurrence after 1 year - new thread
I was asked to start a new thread as my Any UPSC Who had Observation is getting quite long. In a nutshell - 12/13/16 biopsy UPSC; hysterectomy 1/25/17; was a stage 1A ;did 3 rounds carpo/toxol; 5 brachy; blood clots but finally felt done 12/13/17! Alas. 2/13/18 ( I am just now seeing all these 13's) , during pelvic exam at…
Waiting for Biopsy
Hello, I've been reading your amazing posts and wondering if I should even post since I am just waiting for a biopsy, but here goes. I'm 44 and pre-menopausal. I have 2 children. I've been bleeding and cramping for the last 28 days. It is weird because it isn't heavy bleeding, but constant and mucusy. I've been on birth…
Metformin Info.
I had a follow-up at my GYN/onc.'s office on Monday. I didn't get to see the doctor but was seen by his nurse practitioner. I had decided to ask what the minimum dose of Metformin should be to help prevent a recurrence of my uterine cancer, as I'm only on 500 mg. a day and have read that some people on here are taking a…
Mona Lisa Touch laser
My radiation oncologist's office has 'MonaLisa touch' laser for vaginal restoration; not something I would normally notice but, given how thinned out everything has become post-treatment, it caught my eye. I did a search of the entire ACS website and didn't find anyone who'd used it so am posting here. Below is a comment…
Kidney or UTI
i finished radiation last week. Started showing signs of UTI two weeks ago. Treated with antibiotics for a week. Symptoms worsen. Given second urinalysis and another week of antibiotics. I reviewed the results of my urinalysis and am concerned that this isn’t just a UTI. The test showed protein, glucose and blood in my…
external rads and returning to normal diet
OK, it has now been 5 weeks since my last of 25 external rads. I was taking 4-6 Imodium a day for about 4 weeks in the last 2 weeks of rads and then for the next 2 weeks. I began a probiotic 3 weeks ago and it has helped and now I may go 3 days w/o Imodium but then something happens. I have had such a bland diet for so…
Need to hear from you ladies re path report
Drat it all...just was on my way to feeling 100% - had my 6 month check and just got the news - cancer was founf on the vaginal wall. Next step is a full body scan w/contrast to see what else might be lurking. I will be 78 in April. I am not sure I want to fight the cancer with treatments that are going to make me sick and…
New DX,
Just diagnosed, waiting for insurance approval and referral to gynecology oncologist. Initial gynecologist carefully phrased the dx, just saying it may be early (From biopsy). I am 60 and never stopped having bleeding, so no way of knowing how long symptoms, as I also have numerous other health issues. I had a colon…
Update
Hello All! Happy Mother's Day too! I have spent the morning with all 4 of my children and my grandbaby girl....What a wonderful blessing! I'm working on it, but I still can't shake the feeling deep in my soul that my time is limited. I found an awesome new Gyn Onc, and he finished my last 2 chemo's this past Thursday, May…
Stage IV Mastasized to Lungs-Newly Diaganosed - Help
Friday the 13th
It has been going on since Friday the 13th. I had a CT scan, then a PET scan because they found a growth on my pancreas. This was there a long time ago. However in the past three years it has doubled in volume. This is a lymph node. I was diagnosed with non hotchkins lymphoma in 2011. This is too much to absorb. Now, the…

Uterine/Endometrial Cancer

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