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New DX,
Just diagnosed, waiting for insurance approval and referral to gynecology oncologist. Initial gynecologist carefully phrased the dx, just saying it may be early (From biopsy). I am 60 and never stopped having bleeding, so no way of knowing how long symptoms, as I also have numerous other health issues. I had a colon…
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Update
Hello All! Happy Mother's Day too! I have spent the morning with all 4 of my children and my grandbaby girl....What a wonderful blessing! I'm working on it, but I still can't shake the feeling deep in my soul that my time is limited. I found an awesome new Gyn Onc, and he finished my last 2 chemo's this past Thursday, May…
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Stage IV Mastasized to Lungs-Newly Diaganosed - Help
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Friday the 13th
It has been going on since Friday the 13th. I had a CT scan, then a PET scan because they found a growth on my pancreas. This was there a long time ago. However in the past three years it has doubled in volume. This is a lymph node. I was diagnosed with non hotchkins lymphoma in 2011. This is too much to absorb. Now, the…
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I'm home from surgery
Hello All! Surgery is completed and I am home! Thanks Laura for letting me know everyone was asking about me. So here is a brief (hopefully) story of what came about As many of you know, I have been dealing with pain daily for a year and a half now and getting no answers. I have been taking motrin daily for that long. I…
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Newbies: There is always hope.
This new thread is being added as a request from EZLivin. Of course, no one wants to join this board but sometimes we have to. I am an almost 5 year cancer survivor. Feb., 2013, I had been spotting or bleeding for over 2 months. I thought this was normal because I was 51 at the time and thought maybe I was going through…
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Stage IV Mastasized to Lungs-Newly Diaganosed
Hi Everyone, I am brand new to this board. I was diagnosed in 2015 with Endometrial Carcinoma FIGO II,G2, treated with TAH-BSO. On April 26 I was given my results and am now FIGO Stage IV since it has mastasized to my right upper lung lobe. I have been told by my Radiation Oncologist I will be receiving 5 consecutive…
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Biopsy results
My biopsy sample was not a good one, but there was no sign of cancer. There was adipose tissue in it, so he perforated my uterus but he said that's no big deal. I do not need to do anything else at this time, just go back for another u/s if I have any further bleeding six months or more from now. I really kept at him with…
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Endometrial Cancer stage 4
Hello everyone, I am fairly new to this forum, and I just want to tell you all how extremely brave and amazing each and everyone of you is! Thank you all for showing so much support to one another and sharing your stories and experiences! Today, I would like to share mine... Last month, my older sister was diagnosed with…
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Patient/Financial Assistance Programs for Chemo/Radiation
Hello all. I am new here. My mother was diagnosed with Uterine cancer, specifically Serous Carcinoma. I will be my mom’s main/only caregiver/support throughout this process. In addition to the feelings of fear, sadness, etc. associated with the disease and the treatments. I am also worried about the ability to pay for and…
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Cheese Update
Hi Ladies: Got some good news today. Apparently the Megace is continuing to hold my metastatic tumors at bay according to my CT scan today. And the incredibly painful renal stent has solved my kidney problem. My surgeon really thinks the kidney problem is a result of the radiation so I’m going to expedite my appointment…
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Latest Update
Hello my friends! A lot has been going on so I wanted to post a quick update. I've been having bad lower back pain for the last month or so. I thought it was my usual sciatica. I was wrong. This week I saw my radiation onc about CyberKnife for the new mets, but he said no. The mass is too large (now 14 cm) to be Knifed AND…
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Shout out to Kathy/Kaleena
I seem to recall that one of our long-time posters/survivors, Kathy aka Kaleena, was to undergo surgery last week sometime. Just want to send along best wishes to her and her family as she takes a time out to care for herself, as she does so many of us with her thoughtful and informative posts. Best wishes, Kathy. Oldbeauty
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Can depression be an early sign of cancer?
This series is my new obsession. https://www.nytimes.com/2018/01/18/magazine/it-looked-like-a-familiar-case-of-depression-but-could-it-be-something-else.html Do you remember being depressed prior to getting your diagnosis?
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Enlarged Lymph Nodes 9 years post treatment
Hello all.... I haven't been here for a long time. After Linda passed it was hard to come here. I find myself here after learning last week that I have enlarged external iliac and inguinal lymph nodes. I finished treatment in June 2009 for UPSC. I having been having hip pain for about a year. Did some PT that gave me…
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Un-diagnosed but worried about symptoms & US results
Hope it is ok I am posting here as I am undiagnosed. I am having a bit of anxiety as I am concerned I have cancer. I have been having symptoms for over a month+ (well since Sept. if you call tachycardia a symptom, but pelvic symptoms since Feb consistently.) I just had a pelivic ultrasound and have been referred to a…
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derMaus Update from the Stage IV Club
I got my PET scan results today and, while not catastrophic, they certainly weren't what I was hoping for. Last year I developed mets to the retroperitoneal lymph nodes which were diminished, but not eliminated, by external radiation. In January I had had 5 rounds CyberKnife stereotactic radiation which seemed to have…
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New, Stage 3, lymph nodes positive, treatment in process
Hi - new to this forum. I was diagnosed with Stage 1 uterine cancer. Had the hysterectomy and results showed lymph node invovlement and cancer was stage 3 (90% through uterine wall). Have started radiation and chemo. It is kicking my butt. Scared, focused on keeping a positive attitude and struggling. Looking for info on…
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How long did it take for diagnosis?
I am waiting to be formally diagnosed (with something). I have had a CT scan which found a mass in my uterus, an ultra sound which I haven't been told exactly what it stated, an attempted endometrial biopsy (which MD couldn't get into the cavity. She stated it might of colapsed onto itself, but to follow protocol she…
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Very good news
I went to my MMMT Uterine Cancer Dr. on Monday and they said I didn't have to see them for 6 months. I stopped chemo in Oct. of 2014 so I feel very positive. I am still taking shots and chemo pills for my breast cancer but I feel OK most of the time.
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Stage 2, oops, no, Stage 4
I was diagnosed with Grade 1, Stage 2 endometrioid adenocarcinoma following a total hysterectomy and lymphadenectomy two months ago today. My tubes, ovaries, and lymph nodes were negative for cancer. LVSI was suspected but not confirmed. After asking repeatedly for a CT scan, I finally had one a couple of weeks ago and it…
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Stump cancer
Has anyone been diagnosed with Stump cancer? They are biopsy in my uterus for that
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I’m a little terrified.
Hello there - New here! I’m a 28 y/o, no kids. However, I was diagnosed (via transvaginal ultrasound) with two medium sized fibroids. Alongside an abnormal friend (mass) in which they wish to do a hysteroscopy, D&C, and a biopsy on the little guy. My surgery date is set for May 16th. And I am a little terrified. Not…
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Had my biopsy
I had my biopsy on Tuesday, it was not a pleasant experience, but it is done. The anesthesiologist would not do a conscious sedation, he said it was too risky for me so I had to choose either general anesthesia or spinal block. I chose general, mostly to get over my fear of it. Turns out I would have had to have it in the…
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Cancer and work
Well since i couldnt get both of my cancer spots talen care of at the same time I decided to tell my boss and take a few days off for my second spot. I let her know that this skin cancer is not a big deal like my last situation ( uterine cancer). Any ways i ended up telling one other coworker about the cancer. Told her…
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First Chemo Treatment Experience
Hi Ladies, I wished I had better news about my first chemo treatment I experienced today. My plan is Carbo and Taxol x6. I was to get Taxol before Carbo, and I got lots of benadryl which gave me some muscle pain in my IV arm, I don't have a port. The nurse gave me a warm compress and it felt better but also the benadryl…
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Foundation One-Innsurance Denial
So I just found out that Aetna denied the cost ($5,000) of my Foundation One testing. I intend to appeal just to jerk them around and actually may take it to the state department of insurance. Has anyone filed an appeal and can share any documentation you have found to substantiate that this has pretty much become standard…
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EC grade 2 stage IIIc just diagnosed
On Feb 20 I had my hysterectomy davinci style, they used the dye to map the sentinel nodes. only the left side mapped, they only took the sentinel node on that side. took all they could find on the right. So the pathology report says the sentinal node has cancer and 3 of the other side although it is micro cells and the…
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Was diagnosed on Friday the 13th
I had a CT scan Yesterday. I was told it was high grade but not too sure what it means. I am seeing my oncologist for the first time next Monday. I am lucky to be in Australia where the treatment will be free. I can see there is a new vocabulary that I will learn as I go along. I was told that they will operate very soon,…
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Stage 2 endometrioid, "suspicious" for LVSI
Hello, everyone - My total hysterectomy was 5 weeks ago via DaVinci and I'm feeling great. Path report came back as Stage 2 with 99% (!) myometrial invasion, 2cm tumor in cervix, lymph nodes negative, but "foci suspicious for LVSI." My doctor puts me in the high-intermediate risk range for recurrance. I know from reading…