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What do you do with the script for the wig?
Okay, perhaps this is a really stupid question...BUT I don't know the answer and am not ashamed to admit it :) At my last chemo appt, the doctor gave me a script for a wig. What do I do with it? Do I bring it to a salon, wig store??? All your wisdom is appreciated... Laurie
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First Chemo Treatment Tomorrow
My wife is having her first Chemo treatment tomorrow. We don't know yet what they are giving her but as I review the postings and review the study article referenced in another posting it appears all, or most, UPSC patients are getting basically the same group of drugs. Her oncologist told us he was going to treat her…
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Nervous--1st of 2 gyn-onc appts this week
Today I go to get my official diagnosis and to find out when my hyst. will be scheduled. Thank-you ladies for all of the encouraging postings on this site. After reading several who said don't let the doctor office put you off for the first appt. I called them and my ob/gyn everyday asking is there any other paperwork or…
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Got My D & C Results Back Today
Hi to all you wonderful ladies out there especially the ones that responded to my posts. as you know I have been through a rather bad time for the last several months with rounds of tests. Ihe D & Cwas the scariest. I got the results today after I had called and called worrying the secretary today. Actually doctor got on…
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Concert to benefit gynecologic cancer awareness
I'd like to invite everyone in the San Francisco area to a benefit concert this Sunday, March 14th at 10:00PM. The band, No Evidence of Disease (N.E.D.) is comprised of 6 gynecologic oncologists and will be playing a live concert to benefit gynecologic cancer awareness. The concert is free, and all donations will go…
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waiting, wondering and searching
Hello everyone. I have an endometrial biopsie scheduled for Friday and am wondering if what I have been experiencing is familiar to any of you. I had my last period 14 months ago after years of perimenopause. Irregular and heavy bleeding. I was thrilled to have gone over a year with no period! I had hot flashes, chin hairs…
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Stem Cell Transplants and Platinum Resistance
Dear Sisters, I feel like my blog discouraged some of you because I relapsed as a 1C with negative nodes but positive washings. My cancer may have been platinum resistant. So yours most likely is not. So don't give up on hope. Just wondering, has any one ever heard of stem cell transplants for our type of cancer? I know…
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Soy products
I love pasta and have found some more carb friendly soy noodles that I was thinking about trying. I know there is a lot of controversy in with cancer and soy products. I am just wondering if any of you have any input. What have your doctors said about eating soy products? I don't seen my doctor again until next month, but…
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Peritoneal Recurrance Has anyone had intraperitoneal heated chemotherapy?
I was Stage 1C with positive washings. 42 lymph nodes negative. CA 125 was 16 after surgery (we never got presurgical CA125) During Carbo/taxol six cycles it went down to 5.4. After completing treatment it went up to 7, 8, 9, down to 7 again, then 15 and then 62. PET scan showed early carcinatomasis of the peritoneum. I am…
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DOUG & BETTY: Thinking about you. Everything okay?
You were on my mind tonight. I feel we may have collectively overwhelmed you. Betty has been on my mind (and in my prayers). If you two want to contact me off-board, I will post my email address; just ask. I hope you are both at home now and that Betty is feeling stronger every day. (((Big hugs)))
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Results of Testing
Hi, I had a D & C 9 days ago and have not received pathology results back yet. I called the office and they said it is sent away anad it takes awhile to come back Nurse said that if there was anything dramatic on pathology they would usually have called the office right away. Can anyone out there remember how long it took…
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Mom's Treatment Schedule
Hi There, Wanted to share what my mom's treatment schedule will be for stage 3C UPSC. We met with her Medical Oncologist today- who is AMAZING! Sat with us for like an hour and answered ALL of our questions and really educated us on UPSC and the chemo that he'll be using. He believes in treating the whole body so alongside…
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How soon after?
Hello Ladies :) I will get Round 2 of Chemo on Monday. This time around I will be getting the Carbo/Taxol instead of the Cisplatin (as I have completed Radiation)... Since I did not lose my hair with the Cisplatin and I know I will with the Carbo/Taxol, what is the timeframe you all have started losing your hair. I have…
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Haven't posted in a while
It's been a while since I have posted. My mom was diagnosed a year ago with uterine cancer that is inoperable. She is 78. She could not handle the carboplatnin because it wiped out her platelets . They attempted to do radiation but that lowered her platelets also. For the past six months she has been receiving low dose…
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I am being hopeful=newbie
Hi, my name is Belva . and I possibly may be a new member. I have been having hip and back pain for 4 months now constantly. At first I went to my primary doctor who diagnosed me with arthritis after taking Xrays and when medicine didn't help I went to gynocologist and he did a transvaginal ultrasound and said everything…
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worried about pain
I have a question. Has anyone here ever had uterine cancer that has metastisized to the bone especially pelvic area?
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Guess who's on a CHEMO BREAK!! me! me! ME!
I just got back from my appointment with my gynecologic-oncologist, and he is recommending that I take a break from chemo now!! MY CA-125 dropped from 47.2 3 weeks ago to 42.5 from my labs taken Thursday. Although that is not within the normal CA-125 range of <35 range, or anywhere close to my lowest CA-125 of 11 following…
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HNPCC Lynch Syndrome
Hi, I originally came onto ACS as I was recently diagnosed with colon cancer in June. I'm writing to see if anyone here as Lynch Syndrome? Thank you, Christine
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Going to MD Anderson for Second Opinion Norma 2
Dear Norma, I am going to MD Anderson for a second opinion. I have an appt the end of March. go to surgery this week for biopsy of the peritoneum. Please don't get discouraged reading my blogs; my cancer may have been platinum resistant. I don't feel like going to another place and am so tired of surgery, chemo, and…
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DVT and Pulmonary Embolism (clots)
I have seen no postings on the danger of blood clots during chemo and after a uterine cancer diagnosis. I have had two bouts of leg clots and pulmonary embolisms. I would not have had the second bout and second hospital visit if my doctor and I had been aware that coumadin (warfarin) often does not prevent clots in those…
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Re:jjmb12 when logged in
Hi Linda, thanks for the reply- I have written this as a separate discussion as I didn't want to hijack Songflower's very important thread. I know how to look up profiles, it just you can't actually see a list of posts by that person. For example hystersisters - you look up stats and you see this Total Posts * Total Posts:…
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Clinical Trials
Has anyone here participated in clinical trials? I am specifically interested in Ixabepilone.
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Confirmed that mom does have UPSC
My mother does have UPSC with a first recurrence. I'm glad at least to have found this place where people are going through the same thing. Please can you tell me who here is or has undergone second-line chemo after a recurrence? Linda, I know you are about to start.
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1st of 2 oncologist opinions on what to do with clear PET & rising CA-125 after 1st recurrance
I could hardly wait to get back and post the fascinating appointment I just had with my chemo oncologist. My talk with my chemo-onc was as exciting and confusing as the surprise clear CT/PET scan results I got last week. But I left my appointment with new hope and am anxious to share that hope with the rest of you. (Just a…
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First Chemo went really well
Hi All, My first Chemo with Taxol/CarboPlasin went well. Start to finish it was 6 1/2 hours, good thing I took lots of Video, snacks, blanket, and my Ladybug plush bug to stroke. My husband stayed the whole time, it's no wonder I love him so much. I drank 6 bottles of water, had to get up to pee a lot but I think it helped…
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targeted radition "tomotherapy" for USPC recurrence
I have had "fun" month since learning of recuurence less than 6 months after end of my sandwich treatment (Carboplatin/Taxol Chemo at beginning and end sandwiched with 30 internal radiation treatments and 3 brachytherapy).Had just started to feel like better (except for the everpresent diarrhea - thank goodness for…
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My Mom - Disappointing News
I just heard from my mom after her CT scan results and consult with the chemo dr. The dr. said she is not strong enough for chemo. It's a month post-op and the oncologist said chemo was her best chance, so we're disappointed that we can't go after it right away. They are going to try an estrogen inhibitor for now. There is…
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Mom's Pathology Report
Hi There, We got my mom's pathology report today and wanted to share the results with you. Would be great to hear some thoughts and compare notes. So here goes: FIGO Grade 3 Serous Adenocarcinoma Stage 3C Myometrial invasion at 80% Tumor size 8cm in uterus and 3.1cm in cervix, ovaries and f. tubes were clear Lymph Nodes:…
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serous carcinoma vs serous adenocarcinoma
Hi There, Would really appreacite some input. We just got back from the Oncologist and received the pathology report. Is there a difference between serous carcinoma and serous adenocarcinoma? I can't seem to find any info on it... Thank you! Amanda
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Freaking Out...
Hi...I'm not sure where to begin, so I guess I should go to the beginning. I've been post menopausal for a little over two years. Several months ago I had an episode of spotting that lasted a couple of days. I really paid little attention to it as it was very, very light. I only noticed it when I wiped after using the…