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Getting 2nd opinions from other oncologists outside of your health care plan
I really like that we can all help each other out by asking our oncologists for opinions on questions others raise on this forum. I've thought it might be worth paying for an oncologist who specializes in uterine cancer to get a 2nd opinion from (there are no gyn cancer oncologists where I'm being treated). If I did that,…
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Update on reoccurrence of UPSC
I haven't posted in a long time, but wanted to let everyone know that for now I am NED. I hesitate to get to excited as it seems my Dr. thinks it will show itself again. Just as a reminder of my story I had it first in 2006 and it returned in early 09 in my lungs. I got the same round of Taxol/carbolatium that I got in 06…
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port placement
I am trying to decide whether I should have my port placement done in the jugular or subclavian. Also I have heard a longer catheter is preferred, as well as a power injection port. Any thoughts? Much appreciated.
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Anyone survival of endometruim adencorima
Hi, Please help me regarding this type of cancer. Please write stage, grade and ca125 after surgery and before surgery. Thanks Kumar
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Bowel issues
Hi, I am new to this group- just found it yesterday. I wish I had found it months ago as there is lots of good advice. I have stage 4B uterine cancer. Had a complete hysterectomy in December after 8 chemo rounds that did nothing to shrink the cancer. Complications ensued after the surgery and the cancer has grown to at…
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does any one out there on doxil get sores
hey does any one out there get sores ? im on doxil and im getting these sores like pimples . i know doxil affects the skin but this is the first finding of sores.
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Switching from Cisplatin to Carbo/Taxol
Hello Ladies... Now that my Radiation is wrapping up (Praise the Lord and may my bowels come back to normal), my next Chemo protocol will likely be Carbo/Taxol. Can anyone share their experience of switching from one to another? Any differences in the reaction? Also, is one stronger than another?? I like to know what I am…
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Has anyone opted to not take chemo for their Uterine cancer?
Wife has stage 4 b , and says No Chemo. What can I expect ? Thanks
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Dancing with NED for the first time!
I saw my oncologist today and got great news! My barium CT scan showed no evidence of disease. I am so thankful that prayers have been answered!!! Oncologist recommended that I see a colon surgeon for colonoscopy as there is a link between uterine cancer and colon cancer. I am 54 yrs old and had a colonoscopy when I turned…
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Cure Magazine
Thank you, Mary Ann for the hedzup about this magazine. I did not know it existed. Just looking at the website I have already found two articles that I'm glad to read and am looking forward to receiving the magazine itself. One artile has to do with learning the language of cancer, treatments, etc. and the other with how…
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Can anyone see my new photo with my cheap $44 new internet-purchased wig?
I never know if I've gotten the photo change right and then days later I see that I actually did get it to upload. I just wanted to share a photo I took of my new super-cheap $39 ($44 with shipping) wig I bought online. It was one of those spontaneous purchases that I immediately regretted, a wig on clearance. But it came…
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Feeling incredibly sad :(
My mom was diagnosed with USPC a couple weeks ago and is undergoing a radical hysterectomy this Monday at UCSF. I just feel so incredibly sad and overwhelmed at the whole thing. She is only 58 and I can not imagine my life without her. I try to be strong around her but I just cant help but cry. The long road ahead is just…
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finished chemo, not sure about doing radiation.....
I have Stage 3C Grade 4, clear cell uteran cancer. My oncologists say I have a 50% chance of survival of 2 yrs. Obviously, I dont want to be that statistic, however, if my time is short, my quality of life is a large consideration. I made it through chemo. I have alot of pain, fatique & a host of other symptons that they…
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Hello everyone - My wife was just diagnosed - UPSC
Hello. I understand that most users of this specific board is female, so please allow me to post until my wife is able. My wife of 30 years, Betty, went into the hospital this morning because an ultrasound found some masses on her ovaries. She has been feeling abdomen pain for about a month and went to our Dr in…
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After Surgery & Healing - Intercourse
I had my radiation treatments prior to surgery -worked well, killed all but one teeny cell. after two months of healing, dr OKd intimacy again. However, experience bleeding, pain, uncomfortably not fun. Is this normal? Anyone else have similar experiences?
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Can you feel it spread?
Hi There, My mom was diagnosed with serous carcinoma. We dont know if its of the ovaries or the uterus yet. She goes into surgery in two weeks so we dont know the stage yet either. I was just wondering if you can feel it spread? So far she says that she feels totally normal- are there any warning signs to look out for?…
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Mom has her follow up appointment this Friday
Just need your prayers!!!
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Dancing With NED
Back from my three month check, one more time NED! Told my Oncologist about our site, think she might take a visit. Hugs, Marge
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Barium prep for CT (sdvice sought)
Ladies, Tomorrow morning I need to drink some barium prep prior to CT. I have never drank barium before. I have vomited while drinking CT prep in apple juice which had some medicine in it to protect my kidneys-I think it was Mucomist which is actually a pulmonary drug used "off label". I am concerned about the effects on…
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My health insurance just renewed: up 30% to $181/month! But at least it was renewed!!!
My cancer treatment in late 2008 & all of 2009 cost my insurance company just under $300,000. I have private insurance because I own my own business, a Health Savings Account with Assurant Health. I have a $7,500 deductible that must be paid in full each year before they pay the first dime. I've paid that deductible 3…
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New 'March 2009' ENCOURAGING research on UPSC
I don't know what gets me in the 'research mode', but I just had to spend the time this morning to try and answer my questions about how 'curable' UPSC really is. I came across some new research that I found very encouraging and want to share (I am Stage 3-C, and this is for Stage 2 UPSC, but I still felt personally…
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Trust Your Intuition
My life changed in a moment, as many lives have, with one statement, "You have cancer." It was a twisted road just getting to the diagnosis. I can't help but wonder how many people are out there, undiagnosed, simply because they accept what their doctors tell them without question. My journey began with a simple…
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Check up today
(Dx 2006 1C UPSC.Went through the standard treatments.) 6 month Oncologist visit today. Scan was NED and CA-125 was 8. Will not have to go back for 6 months and was given the option of not scanning again unless I notice changes that I want to have checked. Will continue the paps every three months and the CA-125 every 3…
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My Port has Slipped
I had my CA 125 and PET scan, nothing perfect, nothing horrible. Just the watch and wait. But I still turn into nervous Nellie when I go. Here I am at 58 like a little girl with stage fright. I want someone to hold my hand. I need extra deoderant and Pino Griegio (OK, OK, I am drinking green tea and eating tumeric). But…
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Cox II Inhibitors and cancer
I read about a study that was going to be done on serous cancer and COX II which they believe kills cancer cells. Celebrex is a COX II drug. They had to cancel the study because someone said the doses of celebrex they were going to use was too high. Drat! After all I've read I wonder if it's worth it to try celebrex 200…
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How ia debbi?
Hi Debbi, Hows your check up is going on what is ur ca125 last time. Please encourage all of us. Kumar
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external radiation simulation
Monday i go for my external radiation simulation. Can you please share what this entails, besides a CT without barium. I'm to get 5 weeks external then 3 internal. I think they said that the internal setup would be closer to that time. And when do i need the dilator? I also want to thank all of you who write regularly.…
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Currys
Hello Ladies. Hope we all have celebrated new year .Please eat curries in your diet.It can kill cancer cell. Is anyone trying ginger tea.......or garlic Thanks Kumar
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Seeking Second Opinion
Hi, New to all of this. Was diagnosed with Uterine Cancer in Oct. Had Radical Hysterectory on 11/16/09 & still experiencing some pelvic pain, bladder discomfort and nausea. Saw Surgeon/Oncologist last Tues. Pathology report showed Adenocarcinoma of endometrium, endometroid type with focal squamous metaplasia,…
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chatrooms??
Has anyone successfully accessed the chatroom link? I have never gotten anything - I contacted the webmaster/mistress once and they said it was being repaired, but I still don't get anything. Help!!