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GOING FOR CAT SCAN TOMORROW
I am going for my first post treatment CAT Scan and blood work tomorrow at U. T. M. D. Anderson Cancer Center in Houston. Won't know the results until the following Monday. So far I feel great. A little tired after the chemo, otherwise feel fine. Taxol/carbol last one was Feb 22. My CA 125 has been in the 10's for the past…
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Has anyone experienced lymphedema?
Just wondering if any of you have/are suffering from lymphedema? For the past few days I have been having some pretty significant swelling in one of my legs. I was under the impression if you were going to get lymphedema that it would be soon after surgery and radiation. I had surgery 9/08 and finished radaition 12/08. I…
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Side Affects from Taxol & Carboplatin
Diagnosed with uterine cancer Feb '09, been away from chemo/radiation for 8 months and having some minor pain, mainly in the one buttox (sacroilliac per my chiropractor), and general tightness in most joints. Radiation was to the pelvic area and have "challenged" bowels, when eating much roughage, urgency to hit the…
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Shot(s) to in increase white blood count
During chemo, how many times per week do you get a shot - 5 days or only one?
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PET Scan
Anyone having problems with insurance paying for PET scans? My sisters last two were deemed medically unneccassary or experimently. Yet both found reacurrance of uterine cancer.
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Betty update - moving over to Ovarian page
Hi everyone. We probably should be over on the ovarian page since while Betty was diagnosed with Uterine and Ovarian cancer, the uterus was removed, so technically she only has ovarian cancer left and the chemo is treating that cancer specifically. Anyway, I just want to tell everyone here about the move and thank them for…
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Cisplatin and Ifosfomide
Does anyone have experience with this drug combination? My mom just finished her first round of 4 days of chemo. She starts around two in a couple of weeks. Just wondering if anyone out there has had this combination of treatment. thanks, leslie
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What do you do with the script for the wig?
Okay, perhaps this is a really stupid question...BUT I don't know the answer and am not ashamed to admit it :) At my last chemo appt, the doctor gave me a script for a wig. What do I do with it? Do I bring it to a salon, wig store??? All your wisdom is appreciated... Laurie
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First Chemo Treatment Tomorrow
My wife is having her first Chemo treatment tomorrow. We don't know yet what they are giving her but as I review the postings and review the study article referenced in another posting it appears all, or most, UPSC patients are getting basically the same group of drugs. Her oncologist told us he was going to treat her…
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Nervous--1st of 2 gyn-onc appts this week
Today I go to get my official diagnosis and to find out when my hyst. will be scheduled. Thank-you ladies for all of the encouraging postings on this site. After reading several who said don't let the doctor office put you off for the first appt. I called them and my ob/gyn everyday asking is there any other paperwork or…
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Got My D & C Results Back Today
Hi to all you wonderful ladies out there especially the ones that responded to my posts. as you know I have been through a rather bad time for the last several months with rounds of tests. Ihe D & Cwas the scariest. I got the results today after I had called and called worrying the secretary today. Actually doctor got on…
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Concert to benefit gynecologic cancer awareness
I'd like to invite everyone in the San Francisco area to a benefit concert this Sunday, March 14th at 10:00PM. The band, No Evidence of Disease (N.E.D.) is comprised of 6 gynecologic oncologists and will be playing a live concert to benefit gynecologic cancer awareness. The concert is free, and all donations will go…
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waiting, wondering and searching
Hello everyone. I have an endometrial biopsie scheduled for Friday and am wondering if what I have been experiencing is familiar to any of you. I had my last period 14 months ago after years of perimenopause. Irregular and heavy bleeding. I was thrilled to have gone over a year with no period! I had hot flashes, chin hairs…
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Stem Cell Transplants and Platinum Resistance
Dear Sisters, I feel like my blog discouraged some of you because I relapsed as a 1C with negative nodes but positive washings. My cancer may have been platinum resistant. So yours most likely is not. So don't give up on hope. Just wondering, has any one ever heard of stem cell transplants for our type of cancer? I know…
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Soy products
I love pasta and have found some more carb friendly soy noodles that I was thinking about trying. I know there is a lot of controversy in with cancer and soy products. I am just wondering if any of you have any input. What have your doctors said about eating soy products? I don't seen my doctor again until next month, but…
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Peritoneal Recurrance Has anyone had intraperitoneal heated chemotherapy?
I was Stage 1C with positive washings. 42 lymph nodes negative. CA 125 was 16 after surgery (we never got presurgical CA125) During Carbo/taxol six cycles it went down to 5.4. After completing treatment it went up to 7, 8, 9, down to 7 again, then 15 and then 62. PET scan showed early carcinatomasis of the peritoneum. I am…
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DOUG & BETTY: Thinking about you. Everything okay?
You were on my mind tonight. I feel we may have collectively overwhelmed you. Betty has been on my mind (and in my prayers). If you two want to contact me off-board, I will post my email address; just ask. I hope you are both at home now and that Betty is feeling stronger every day. (((Big hugs)))
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Results of Testing
Hi, I had a D & C 9 days ago and have not received pathology results back yet. I called the office and they said it is sent away anad it takes awhile to come back Nurse said that if there was anything dramatic on pathology they would usually have called the office right away. Can anyone out there remember how long it took…
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Mom's Treatment Schedule
Hi There, Wanted to share what my mom's treatment schedule will be for stage 3C UPSC. We met with her Medical Oncologist today- who is AMAZING! Sat with us for like an hour and answered ALL of our questions and really educated us on UPSC and the chemo that he'll be using. He believes in treating the whole body so alongside…
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How soon after?
Hello Ladies :) I will get Round 2 of Chemo on Monday. This time around I will be getting the Carbo/Taxol instead of the Cisplatin (as I have completed Radiation)... Since I did not lose my hair with the Cisplatin and I know I will with the Carbo/Taxol, what is the timeframe you all have started losing your hair. I have…
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Haven't posted in a while
It's been a while since I have posted. My mom was diagnosed a year ago with uterine cancer that is inoperable. She is 78. She could not handle the carboplatnin because it wiped out her platelets . They attempted to do radiation but that lowered her platelets also. For the past six months she has been receiving low dose…
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I am being hopeful=newbie
Hi, my name is Belva . and I possibly may be a new member. I have been having hip and back pain for 4 months now constantly. At first I went to my primary doctor who diagnosed me with arthritis after taking Xrays and when medicine didn't help I went to gynocologist and he did a transvaginal ultrasound and said everything…
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worried about pain
I have a question. Has anyone here ever had uterine cancer that has metastisized to the bone especially pelvic area?
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Guess who's on a CHEMO BREAK!! me! me! ME!
I just got back from my appointment with my gynecologic-oncologist, and he is recommending that I take a break from chemo now!! MY CA-125 dropped from 47.2 3 weeks ago to 42.5 from my labs taken Thursday. Although that is not within the normal CA-125 range of <35 range, or anywhere close to my lowest CA-125 of 11 following…
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HNPCC Lynch Syndrome
Hi, I originally came onto ACS as I was recently diagnosed with colon cancer in June. I'm writing to see if anyone here as Lynch Syndrome? Thank you, Christine
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Going to MD Anderson for Second Opinion Norma 2
Dear Norma, I am going to MD Anderson for a second opinion. I have an appt the end of March. go to surgery this week for biopsy of the peritoneum. Please don't get discouraged reading my blogs; my cancer may have been platinum resistant. I don't feel like going to another place and am so tired of surgery, chemo, and…
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DVT and Pulmonary Embolism (clots)
I have seen no postings on the danger of blood clots during chemo and after a uterine cancer diagnosis. I have had two bouts of leg clots and pulmonary embolisms. I would not have had the second bout and second hospital visit if my doctor and I had been aware that coumadin (warfarin) often does not prevent clots in those…
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Re:jjmb12 when logged in
Hi Linda, thanks for the reply- I have written this as a separate discussion as I didn't want to hijack Songflower's very important thread. I know how to look up profiles, it just you can't actually see a list of posts by that person. For example hystersisters - you look up stats and you see this Total Posts * Total Posts:…
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Clinical Trials
Has anyone here participated in clinical trials? I am specifically interested in Ixabepilone.
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Confirmed that mom does have UPSC
My mother does have UPSC with a first recurrence. I'm glad at least to have found this place where people are going through the same thing. Please can you tell me who here is or has undergone second-line chemo after a recurrence? Linda, I know you are about to start.