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Fosomax or other Meds / Osteoporosis
Before starting my treatments last February by OB did my first bone density test. Showed some thinnng at head of my hips. Wanted this test to have starting point before treatment, knowing chemo/radiation (pelvic) can be rough on our bones. Being a smaller stature person puts me at higher risk for osteo. Since January, been…
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Tong Ren Therapy - anyone with knowledge??
Has anyone heard of this??? Any info is appreciated. I just read a book about it. It sounds VERY STRANGE however the author, a practitioner, is spot on in all he says about inflammation, info about PET scans, etc. that we have talked about here. Essentially the theory is that health problems are caused by blockages. He…
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alternative vs. western medicine
Since this seems to be a hot topic, Does anyone know if there's any research that compares results of alternative versus western medicine for treatment of aggressive cancers?
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Working during chemo & radiation
How many of you ladies were able to work during chemo & radiation? Next week I am starting round 1 of Taxol & carboplatin. I have the option to work at home, but am wondering if I will even be able to accomplish that. Thanks.
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doctors' prognosis
Ladies, I've been pondering this for the last few days - thinking of the posts from Cathy and Linda. You know, my gut tells me that some docs tell us what we want to hear (or maybe what they want to believe/hear!!) and others tell it like it is. I remember what my first doc told me out upsc - "it's incurable but manageable…
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Lets Roll out Endometruim adenocarcoinoma stage and grade
Hello all,lets do roll out our cancer stage and grade and year of digoinse only this cancer.My mom has free of tumour from cervix, tubes, nodes, omentum, wash but how tumour tissue foundon sigmond colon it make her stage 3c grade 1.Please write how much myometruim invasion in your case.my mom have 20% and ca125 was 117
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concerns
As some of you already know, My wife was diagnosed with stage 4 b Uterine cancer a few months ago, she had complete hysterectomy, and she elected to not have treatment. Lately she has been coughing, had stomach pains, said her hips hurt and headaches.she says the pain in her side is like apendix pain, but she lost that a…
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Ixempra
My mom has her first second-line chemo today. They opted against the Cisplatin and are instead using Ixempra. Insurance denied the Avastin and they are appealing that, meanwhile she will get just the Ixempra. It's a new family of drug which has been used for taxane-resistant breast cancer. There have been some clinical…
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solution of rediation therapy on uterus
there was a operation on uterus cancer 8 years back. the cancer was removed from my body. later doctor give me rediation therapy. now there is infection inside my belly. first the two side of my belly was hard.but now the back and front side of my belly is infected. doctors are telling that it is not cancer but inside my…
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Update on My Mom
First I have to say how inspired I am by all of your stories. These boards are maintaining my sanity through all of this. Last I posted my mother (Stage 3 UPSC with recurrence) was recovering from debulking surgery for her first recurrence. (Recurrence 9 months after completing hysterectomy, radiation and chemo) She had a…
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Aches & Pains 7 mos after treatments
A yr ago having gone thru total hysterectomy, 6 rounds of chemo, 33 pelvic radiation, which ended August 1, '09. All tests -- blood, CAT-scans have been great thusfar. Noticing more and more achy muscles, especially after a nice walk or workout. Having a pain on/off in my right buttox which my chiropractor thinks is in…
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Nurses assessment of chemo induced peripheral neuropathy
March 9, 2010 (Atlanta, Georgia) — Nurses consider their assessment of chemotherapy-induced peripheral neuropathy (CIPN) to be essential in oncology nursing, but 75% rate their CIPN assessment skills as only fair to poor, according to a new study. Madelaine Binner, DNP, CRNP, a nurse practitioner with the Johns Hopkins…
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GOING FOR CAT SCAN TOMORROW
I am going for my first post treatment CAT Scan and blood work tomorrow at U. T. M. D. Anderson Cancer Center in Houston. Won't know the results until the following Monday. So far I feel great. A little tired after the chemo, otherwise feel fine. Taxol/carbol last one was Feb 22. My CA 125 has been in the 10's for the past…
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Has anyone experienced lymphedema?
Just wondering if any of you have/are suffering from lymphedema? For the past few days I have been having some pretty significant swelling in one of my legs. I was under the impression if you were going to get lymphedema that it would be soon after surgery and radiation. I had surgery 9/08 and finished radaition 12/08. I…
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Side Affects from Taxol & Carboplatin
Diagnosed with uterine cancer Feb '09, been away from chemo/radiation for 8 months and having some minor pain, mainly in the one buttox (sacroilliac per my chiropractor), and general tightness in most joints. Radiation was to the pelvic area and have "challenged" bowels, when eating much roughage, urgency to hit the…
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Shot(s) to in increase white blood count
During chemo, how many times per week do you get a shot - 5 days or only one?
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PET Scan
Anyone having problems with insurance paying for PET scans? My sisters last two were deemed medically unneccassary or experimently. Yet both found reacurrance of uterine cancer.
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Betty update - moving over to Ovarian page
Hi everyone. We probably should be over on the ovarian page since while Betty was diagnosed with Uterine and Ovarian cancer, the uterus was removed, so technically she only has ovarian cancer left and the chemo is treating that cancer specifically. Anyway, I just want to tell everyone here about the move and thank them for…
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Cisplatin and Ifosfomide
Does anyone have experience with this drug combination? My mom just finished her first round of 4 days of chemo. She starts around two in a couple of weeks. Just wondering if anyone out there has had this combination of treatment. thanks, leslie
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What do you do with the script for the wig?
Okay, perhaps this is a really stupid question...BUT I don't know the answer and am not ashamed to admit it :) At my last chemo appt, the doctor gave me a script for a wig. What do I do with it? Do I bring it to a salon, wig store??? All your wisdom is appreciated... Laurie
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First Chemo Treatment Tomorrow
My wife is having her first Chemo treatment tomorrow. We don't know yet what they are giving her but as I review the postings and review the study article referenced in another posting it appears all, or most, UPSC patients are getting basically the same group of drugs. Her oncologist told us he was going to treat her…
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Nervous--1st of 2 gyn-onc appts this week
Today I go to get my official diagnosis and to find out when my hyst. will be scheduled. Thank-you ladies for all of the encouraging postings on this site. After reading several who said don't let the doctor office put you off for the first appt. I called them and my ob/gyn everyday asking is there any other paperwork or…
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Got My D & C Results Back Today
Hi to all you wonderful ladies out there especially the ones that responded to my posts. as you know I have been through a rather bad time for the last several months with rounds of tests. Ihe D & Cwas the scariest. I got the results today after I had called and called worrying the secretary today. Actually doctor got on…
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Concert to benefit gynecologic cancer awareness
I'd like to invite everyone in the San Francisco area to a benefit concert this Sunday, March 14th at 10:00PM. The band, No Evidence of Disease (N.E.D.) is comprised of 6 gynecologic oncologists and will be playing a live concert to benefit gynecologic cancer awareness. The concert is free, and all donations will go…
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waiting, wondering and searching
Hello everyone. I have an endometrial biopsie scheduled for Friday and am wondering if what I have been experiencing is familiar to any of you. I had my last period 14 months ago after years of perimenopause. Irregular and heavy bleeding. I was thrilled to have gone over a year with no period! I had hot flashes, chin hairs…
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Stem Cell Transplants and Platinum Resistance
Dear Sisters, I feel like my blog discouraged some of you because I relapsed as a 1C with negative nodes but positive washings. My cancer may have been platinum resistant. So yours most likely is not. So don't give up on hope. Just wondering, has any one ever heard of stem cell transplants for our type of cancer? I know…
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Soy products
I love pasta and have found some more carb friendly soy noodles that I was thinking about trying. I know there is a lot of controversy in with cancer and soy products. I am just wondering if any of you have any input. What have your doctors said about eating soy products? I don't seen my doctor again until next month, but…
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Peritoneal Recurrance Has anyone had intraperitoneal heated chemotherapy?
I was Stage 1C with positive washings. 42 lymph nodes negative. CA 125 was 16 after surgery (we never got presurgical CA125) During Carbo/taxol six cycles it went down to 5.4. After completing treatment it went up to 7, 8, 9, down to 7 again, then 15 and then 62. PET scan showed early carcinatomasis of the peritoneum. I am…
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DOUG & BETTY: Thinking about you. Everything okay?
You were on my mind tonight. I feel we may have collectively overwhelmed you. Betty has been on my mind (and in my prayers). If you two want to contact me off-board, I will post my email address; just ask. I hope you are both at home now and that Betty is feeling stronger every day. (((Big hugs)))
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Results of Testing
Hi, I had a D & C 9 days ago and have not received pathology results back yet. I called the office and they said it is sent away anad it takes awhile to come back Nurse said that if there was anything dramatic on pathology they would usually have called the office right away. Can anyone out there remember how long it took…