-
Barium prep for CT (sdvice sought)
Ladies, Tomorrow morning I need to drink some barium prep prior to CT. I have never drank barium before. I have vomited while drinking CT prep in apple juice which had some medicine in it to protect my kidneys-I think it was Mucomist which is actually a pulmonary drug used "off label". I am concerned about the effects on…
-
My health insurance just renewed: up 30% to $181/month! But at least it was renewed!!!
My cancer treatment in late 2008 & all of 2009 cost my insurance company just under $300,000. I have private insurance because I own my own business, a Health Savings Account with Assurant Health. I have a $7,500 deductible that must be paid in full each year before they pay the first dime. I've paid that deductible 3…
-
New 'March 2009' ENCOURAGING research on UPSC
I don't know what gets me in the 'research mode', but I just had to spend the time this morning to try and answer my questions about how 'curable' UPSC really is. I came across some new research that I found very encouraging and want to share (I am Stage 3-C, and this is for Stage 2 UPSC, but I still felt personally…
-
Trust Your Intuition
My life changed in a moment, as many lives have, with one statement, "You have cancer." It was a twisted road just getting to the diagnosis. I can't help but wonder how many people are out there, undiagnosed, simply because they accept what their doctors tell them without question. My journey began with a simple…
-
Check up today
(Dx 2006 1C UPSC.Went through the standard treatments.) 6 month Oncologist visit today. Scan was NED and CA-125 was 8. Will not have to go back for 6 months and was given the option of not scanning again unless I notice changes that I want to have checked. Will continue the paps every three months and the CA-125 every 3…
-
My Port has Slipped
I had my CA 125 and PET scan, nothing perfect, nothing horrible. Just the watch and wait. But I still turn into nervous Nellie when I go. Here I am at 58 like a little girl with stage fright. I want someone to hold my hand. I need extra deoderant and Pino Griegio (OK, OK, I am drinking green tea and eating tumeric). But…
-
Cox II Inhibitors and cancer
I read about a study that was going to be done on serous cancer and COX II which they believe kills cancer cells. Celebrex is a COX II drug. They had to cancel the study because someone said the doses of celebrex they were going to use was too high. Drat! After all I've read I wonder if it's worth it to try celebrex 200…
-
How ia debbi?
Hi Debbi, Hows your check up is going on what is ur ca125 last time. Please encourage all of us. Kumar
-
external radiation simulation
Monday i go for my external radiation simulation. Can you please share what this entails, besides a CT without barium. I'm to get 5 weeks external then 3 internal. I think they said that the internal setup would be closer to that time. And when do i need the dilator? I also want to thank all of you who write regularly.…
-
Currys
Hello Ladies. Hope we all have celebrated new year .Please eat curries in your diet.It can kill cancer cell. Is anyone trying ginger tea.......or garlic Thanks Kumar
-
Seeking Second Opinion
Hi, New to all of this. Was diagnosed with Uterine Cancer in Oct. Had Radical Hysterectory on 11/16/09 & still experiencing some pelvic pain, bladder discomfort and nausea. Saw Surgeon/Oncologist last Tues. Pathology report showed Adenocarcinoma of endometrium, endometroid type with focal squamous metaplasia,…
-
chatrooms??
Has anyone successfully accessed the chatroom link? I have never gotten anything - I contacted the webmaster/mistress once and they said it was being repaired, but I still don't get anything. Help!!
-
question about radiation
I had surgery end of october, had a full hyster and the massive growth I had was also removed. have endometrial stage 3. The doctor said I will need three chemo treatments than radiation and than 3 more chemo. I just did my 2nd chemo. The problem or question I am having is this the radiation, it was originally to be…
-
Endometrial Biopsy
Just joined your group - maybe a little prematurely. Had an edometrial biopsy yesterday and am obviously quite anxious. My last period was October 2009 and then started bleeding about three weeks ago and is more than spotting.....Am curious to know what took others to the doctor - especially if it was bleeding, how long…
-
I would like to suggest that everyone fill out their profile page!
Just saying... it helps to know the type and stage of your initial diagnosis, what treatment you have had, etc. That way, when you talk of your experiences, we can just click on your screen name to see all that information. Thanks!
-
cancer has spread to the liver
I have been a lurker on the boards since January when I was diagnosed with Endometrial Cancer. After the Hysterectomy the pathology revealed that the cancer had spread to a pelvic lymph node. So I was to get radiation - but before I started the radiation oncologist had me get a PET scan (which insurance has since denied)…
-
Help, need to learn more about my Uterine Cancer 1C,
Hi everyone i am a 66 year old women and live in Niceveille Florida. i have a hard time explaning what i need any way i will use a bullet format. -30th June 2009, had a D&C, i had some spotting so i went and checked it out. Lab report was a bit suspicious, my doctor recomend a hysterectomy. -13 July 2009, had my…
-
Dr appt toorrow due to spotting blood
It's been 3 months since my surgery and last night I had some spotting with blood. First thing this morning I called my gyn/onc for an appoitment. I go tomorrow morning at 10:45. My question is can this be caused by anything else? I do get UTI's but I don't think that I have one. What happened is my and my husband had sex…
-
Endometrial CA Advocacy Group Forming
Hi All: I recently received a copy of the latest Gynecologic Cancer Foundation's Newsletter in the mail. It includes information about the newly-formed Endometrial Cancer Advocacy Group, and states that this initiative marks the first time that there has been a national endometrial cancer (EC) group whose purpose is to…
-
Endometrial Advocacy Group
Good morning! I am returning from California; I went to the Rose Parade, saw my daughters, and celebrated New Year's in sunny California. My first trip after treatment; and I did it! I am getting home and sorting email. I called Marsh Wilson at 301-332-0117 (mwilson@the gcf.org). She is interested in feed back from us and…
-
Time for a good laugh
http://www.youtube.com/watch?v=bzvUyu3zOmE
-
HE4 as a Biomarker for Ovarian and Endometrial Cancer Management
I read this today and thought it is significant for us. If any of you will be meeting with your doctors soon, I'd be interested in what they know about this information. If any of you are interested in the complete research article, let me know. Abstract Ovarian and endometrial cancer will be diagnosed in over 63,000 women…
-
Cramping, bloating, nausea
I am almost 2 years out from my total hysterectomy, (endometrial & upsc, stage IB) and it's about a 1-1/2 years since my last chemo treatment (no radiation). For the last 7 weeks, I've been experiencing menstrual-type cramps (I keep feeling like I need to run to the restroom to see if I've started my period, LOL),…
-
Why UPSC patients need to INSIST on tissues assays; (from my new recurrance perspective)
All this research recently posted plays into the research we did way way back into EGFR and how this factor GREATLY changes the prognosis of anyone with UPSC. And yet it is so hard to get the assays done! I pushed for it unsuccessfully after my initial diagnosis, but they just weren't doing that where I go. Now I see that…
-
Had my 5th (11th?) chemo today & REASSURING review of my 'symptoms'.
I came home from my 5th weekly taxol infusion for my recurrance today, and climbed right into bed for 2 hours to sleep off the benedryl they give me as a part of my chemo cocktail. Now the steroids will take over and I will be up all night, so I like to get the sleep ahead of that. Vic and I watched 'Taking Woodstock' when…
-
groin pain
Has anyone had groin pain on both sides after radiation both 25 external and brachy. Doc said probably arthritic pain going into the inguoinal groin area. Scans were negative. Surgery- Davinci one year ago and radiation done May. Nothing else but just wondering. Thanks
-
Here is a positive story for all
I thought I might like to share this story with you which was in our local paper. Dec. 10--When Washington County Common Pleas Judge Mark Mascara was diagnosed with stage four esophageal cancer this summer, he was told he had a 2 percent chance of survival. His family was told he probably wouldn't make it to spring. But…
-
Probably an oldie...
and has probably been posted before, but I love this saying and I am going to tape it to my bathroom mirror just so I will be reminded everyday: Life isn't about waiting for the storm to pass. It's learning how to dance in the rain. Love,love, Cecile
-
burning at the end of urination: recurrence or radiation damage?
My mom has 4 days now that complains of some burning sensation at the end of urination. She does not have frequent urination to suggest infection. I wonder if any of you are aware of this symptom as a sign of recurrence or radiation damage.
-
This drug trial for recurrent ovarian cancer is over.
Since ovarian cancer is a serous and the separate arm of the uterine was determined til the mid eighties, I'm putting the link to information on this trial. It is my understanding that once you have gone through chemo/raditation, you are eligible to take drugs that might not yet have FDA approval for the cancer you have.…