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anyone else with roving pains a year after hysterectomy and 6 months post chemo?
i'm not clear re: how to start a new thread, but i may have already done so with a previous post. if so, i apologize for being redundant. i did get one response to my query, and am wondering if anyone else has or had pains that come and go in the pelvic/abdominal regions and elsewhere, and feel like they've been bruised…
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REALLY NEEDING INFO..PLEASE!
I have uterine papillary serous carcinoma..still need uterus and cervix removed..onco could only take ovaries, tubes, a lymph node..all cancerous. He had told my family if he has to guess its stage 4. I wonder if he doesnt know because he couldnt take uterus and cervix out yet? He wants me to have 3 rounds of carbo/taxol…
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What are your thoughts?
Hello everybody. My mom had her 2 year post surgery follow up. Her Ca125 is 23.5, remains between 20-24 for the whole last year, I think this is the new baseline. The truth is that it was never so high, pre surgery was 54. Her gyn onc found everything normal when examined her. We are waiting on the PAP results. She is…
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Exercise
Many times I read here:"I`m exercising 1 hour a day" and I just wondering, what are you counting for exercise. I`m starting day with this http://www.youtube.com/user/mrjerichosunfire#p/u/28/OZCBdJgxxc8 Better see than talk about that. It is some push-ups, core exercise and squads and my client (because I`m doing that in…
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Radiation & fatigue
I am 59 years old. I started spotting in June of 2008 and the doctors did an ultrasound and said I has a fibroid and they never checked any further. I was diagnosed February 22 after a biopsy with Uterine Cancer. I had a total Hysterectomy on March 10. They diagnosed me with 2 kinds of Cancer the most important one being…
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CT and Bone Scan
I'm set to have a CT and bone scan on Thursday. Has anyone had a bone scan? Uck!! It's going to take most of the day... Hugs, Marge
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Likely UPSC recurrence - lymph nodes light up on PET
Hi ladies, I'm bummed. It has been a stressful month. Got the word from the doc today regarding PET done last week. He is recommending surgical removal of left subclavian lymph node. Rest of PET scan was negative!!! I cried when he told me the CA 125 was up at my last checkup begining of April- thinking the worst of…
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If you get CT Scan and/or PET/CT scans, do you really need a mammogram?
Hi, this just occurred to me. I am scheduled for a PET/CT Scan at the end of May. I have had a CT Scan in July of 2009 and PET/CT Scan in July of 2009 and PET/CT Scan in October of 2009 and now this one coming in May. I am due for my annual mammogram. I was thinking that do I really need this? What are your thoughts. Kathy
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First Scan after Chemo
My first scan after completion of Chemo shows a ca125 of 12 what does that mean? Is that really good? When I was leaving the doctor's office I asked her what to tell my friends when they asked about the ct scan and she said to tell them that I am in remission. Please help me to understand what the 125 is and if the 12 is a…
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what warrants a new doc??
Has anyone jumped ship from your doc??? What warrants this? I have been thinking about this after I had appointments rescheduled, got no response to many phone calls concerning my test results, and road blocks by staff when I attempted to make an appointment. I'm finding the practice slow to respond and patient-insensitive…
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A step backwords ?
ok so i wanted to come on today and talk but i dont want to over do it on the message bords and have u think im nutts lol. today i felt sick all day long i went to target because every one says go out and walk but every time i do i come home even more sicker today i throw up all over the place i felt so weak. i lay in bed…
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Kudos to LINDA
Linda Just want to thank you for all your excellent research and positive notes. I don't know how you have the time and energy for all you do for this board. It is very much appreciated!! And I love the wig...a new you! Good luck with your new challenge. I know you will do well. Best, Kathy
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Back from cruise
The transatlantic cruise was wonderful. We had calm seas and only one morning of drizzle out of the 19 days. The temperatures were in the 40 -50's, so we dressed in layers. I had plenty of energy for all the travel, but am having a hard time with the jet lag since we returned back to Florida. We had five nights where we…
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New staging guidelines and 6 month check NED!
At 46 I was diagnosed with UPSC stage 1B grade 3 in May 2009. I completed 6 rounds of brachy therapy in Oct 2009 which followed 4 chemo sessions of carbo/taxol. I really feel great!!! Very little side effects to complain about, usual hair loss (regrowth is about 2 inches now),and some foot pain/numbness (which has almost…
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FDA approves NEW drug for prostate cancer
I know we don't have this cancer but anything that is found helpful in one cancer can be beneficial to others. Did any of you hear this on news this morning? If not, I've attached a link as yes they do open doors for this type of process for other cancers. We need to see more highlights in news on uterine as we see on…
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New Book
I listened to a radio program in Minneapolis 107.1 FM on Sunday, April 25th around 2:30 pm and they were interviewing an author of a new book called "FLOW" by Allison Stein (sp?). It is about the feminine care hygiene and pharmceutical industry (tampons, hormones, etc.) One of the things discussed was how there was so…
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new research: supports having para-aortic lymph nodes removed for biopsies in high-grade endometrial
Survival Effect of Para-aortic Lymphadenectomy in Endometrial Cancer (SEPAL study): A Retrospective Cohort Analysis Lancet. 2010 Apr 3;375(9721):1165-1172, Y Todo, H Kato, M Kaneuchi, H Watari, M Takeda, N Sakuragi ABSTRACT The results of this large retrospective analysis conducted in 2 Japanese centers suggest…
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elevated CA-125 AFTER surgery
My Ca-125 was 97 before surgery; had complete hysterectomy with normal ovaries and tubes as well as cervix. Am Stage 3a, Grade 2-3 with a pre chemo CA-125 of 142. Have my Dr appt on Wed. Was curious if anyone knows why the elevation. Also had an alkaline phosphotase elevation. Thanks for your thoughts, in adavnce!
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Hysterectomy Question about after care
Ok so i have a few Questions about after care while at home im wondering if any ones cut from there Hysterectomy ever scabed over mine is and it is hurting also has any ones ever broken open and bleed mine is doing this and some not alot green stuff is coming out also where my JPS bag ( blood bag ) was there is a whole and…
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Vaginal biopsy post treatment
Ladies, I am going to have my 3 month check up tomorrow with my first pelvic exam since chemo and radiation and will have a routine vaginal wall biopsy. Since I have had radiation I am apprehensive about the amount of pain involved in biopsy procedure. Can any of you care to share what I might experience? I am wondering if…
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First NED report
Got the results on Friday of my first post treatment scans. Bone scan was clean. CT scan showed cysts on some abdominal lymph nodes, but the mass was not dense; otherwise, a clean report. PAP smear came back negative. Next ONC/GYN visit in July. Now I'm educating family and friends of the meaning of NED! Got the sewing…
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Finally some good news
My wife had her CT scan yesterday and went in to day to see the Dr for her report. Great news, he said the cancer has stopped, lymp nodes have shrunk,it appears to be in complete remission. Obviously we are excited, But she has not had a single treatment. Dr says now might be the time to start chemo casue her body is doing…
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REDDIE!!! So great to see you posting again! I MISSED you!
It was so funny to see your post on the long long UPSC thread! Just yesterday I was thinking about you and was going to post to see if any of the others had heard from you or anything about you. & then you post,...must've read my mind! So glad to hear that you are still doing good. We missed you here, honey, but are always…
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Herceptin
I am curious to know if anyone with Uterine Serous Carcinoma has ever tried Herceptin? It was brought up in one of our appointments with our onc and in doing further research, I found several articles that talk about using it with much success for UPSC. One article was even titled "HER2/neu overexpression: has the…
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update on blood clots
Well, thank you all for thinking of me and my newest issues. So I had the ct scan again on Friday, waited for a call to tell me what to do, didn't hear anything all night, went to bed, got up on Saturday morning and put a call in to find out what was going on. I received a call and was told I had to go into the hospital…
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Update on my Hysterctomy and a Question
on April 16th i had the full Hysterctomy to remove the cancner they said that my tumor was very very BIG. they also ended up having to remove my Appendix as well. this was very painful sugery to have for me. i hated when they pushed me to walk next day i was so out of it the day of im still in alot of pain my scar broke up…
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Blood clots
Well it's always something, I got the results from my recent Ct Scan which was on Tues. the 20th of April. I was told o.k. I have good news and bad news. Good news is that lung nodules are not growing and some seem to look like they are shrinking. The bad news is we seem to think there is a blood clot in the chest area. I…
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NED!!!
It doesn't seem possible coming from a diagnosis of Stage IIIC Figo Grade 2, but I got a nod from my Onc/Gyn doc that I am in remission. (My diagnosis, and treatments are posted in my bio) He said I don't have to come back for 3 months unless I exhibit symptoms like vaginal bleeding and the like. I am thrilled and at the…
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New research on the rare BONE METS as a site of endometrial cancer recurrence:
(I post this stuff because it is brand-new research; and I think it's important that we capture all the data we can find, and archive it here so that it is available if any of us ever need it): Clinicopathologic Features of Bone Metastases and Outcomes in Patients With Primary Endometrial Cancer Gynecol Oncol. 2010 May…
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2nd round taxol/carboplatin
This Thursday I am having my second round of taxol/carboplatin. The first round wasn't too bad, the anti-emetics held off the nausea/vomiting, but the fatigue and body aches & pains were pretty bad. I am told that each successive chemo round will "be worse." Can anybody share their experience with me? Did you get new side…