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27 y/o with endometrial cancer -help
I was recently diagnosed with papillary adenocarcinoma - probable endometroid type. I am 27 and I do not have kids yet. I have not yet spoken to an oncologist about this diagnoses and what It means. All I know is that this cancer is treated with a hysterectomy and I am crushed by the idea of not being able to have children…
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Rount Three Of The Match
Email I sent out to my close friends and relatives as an update. I won't post for a while due to the intense schedule I will have next couple of months. I will chime in when I have useful information to share that might be helpful to other women. Good luck to us all.…
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September
I just learned that September is Gynecologic Cancer Awareness month. I haven't seen anything on TV, haven't seen everyone and his/her brother wearing teal or peach ribbons, haven't heard nor seen a peep about it. I was at the market this afternoon and there was that stupid wine display with the pink ribbon, tho! I am very…
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Please! Anyone w/uterine papillary serous carcinoma w/recurrence in liver? or recurrence in other o
Pauline is one of my oldest and dearest friends. Two years ago, Pauline was diagnosed with uterine cancer and underwent a hysterectomy. She also received both radiation and chemo-therapies. She has now been diagnosed with breast cancer and also has spots on her liver. We do not know if the liver spots are due to the breast…
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Special questions for a "second opinion"?
Dear all, Tomorrow morning I have my appointment with another gyn-onc at a completely different cancer center. I'm realizing now (belatedly) that I need to formulate some questions to ask--and I could use your help. I think I want to know his basic approach to treatment & to working with patients, first. One of my biggest…
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Moving on
Ironically, it's now happy hour in NYC. I'm going out for a nice glass of Merlot, and I wish I could take a bunch of you with me. Much love to all. Jill
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Any breast/underarm pain ?
Thought I would see if anyone had experienced breast/underarm pain. I am 4 months out from chemo (shrank tumors 30% but not gone)-both 1st and 2nd recurrences came up between months 4-5 out.I had gallbadder out about 5 weeks ago and asked surgeon at follow up if this could be scar tissue- he does not think so and I am…
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Ginger, Beta-Carotene, and Anti-Fungals
Thanks, Jill, for starting to gather all the pertinent information on foods' anti-cancer properties. A huge job, but invaluable to us! Having read through the responses to her first posting on ginger, would like to add the following: I'm a firm believer in the efficacy of ginger. Years ago, a very annoying tremor in my…
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Genetic Counseling/Testing
Has anyone here had genetic counseling or testing? I am scheduled to start this in a couple of weeks and find it appalling how little I know about my ancestors' health. I guess it is typical because back then, people were very secretive. A cousin of mine who is our family's genealogist has been helping me - he knows how to…
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CA 125 up from 21 to 41
Went for my 1 year 3 month. check up at MD Anderson. CA 125 is up from a steady 21 to 41. Doctor was concerned. Asked me what I wanted to do. Wait and do another CA 125 or have a CT scan to rule out any problems. It has been a year since my last CT scan. Pelvic exam was negative. I opted for the CT scan on May 17. To make…
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Nutrition Website
About a couple of months ago, someone posted a website where one can search food and find nutritional info about it, as well as if the food is inflammatory or no. I saved the website in my favorites, but my husband just rebuilt my computer, and I lost all my favorites!!!!! Does anyone remmebers the website?
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For those who are interested: link to acid/alkaline food chart
This is the chart I use. You'll need to cut and paste the link into your browser. http://www.acidalkalinediet.com/Alkaline-Foods-Chart.htm?utm_campaign=email1-foodchart&utm_medium=email&utm_source=alkaline-dieth
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Ok. What is the take on using Truvia and/or Stevia?
I know using artificial sweetners are bad, but what about these new sugar products Truvia and Stevia? Does anyone have the take on this with regard to health issues? Kathy
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UPSC: applicable findings from ovarian cancer research
I am new on this board, but I spend a lot of time on the ovarian cancer board on inspire.com since originally I thought I had ovarian cancer, and later because I learned that UPSC behaves very much like ovarian cancer and has similar prognosis and outlook. In fact, other than the fact the primary site of UPSC is uterine,…
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“HE4 As Prognostic Marker In Endometrial Cancer”
Abstract from 17th International European Society of Gynaecological Oncology (ESGO) Meeting, going on right now: “HE4 As Prognostic Marker In Endometrial Cancer” The HE4 (human epididymis protein4) has been shown to have the potential to differentiate between benign endometrial disease and endometrial cancer. The data…
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UPSC, Avastin insurance coverage/denial
My mother lost her first-round appeal w/Independence Blue Cross today. They will only give Avastin as a single-agent, and the doc wants to give it with Taxol. The initial denial was a one-page "not medically necessary." We made our case for medical necessity in the appeal. The appeal was denied and the new denial is…
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HE4 As Prognostic Marker In Endometrial Cancer
The 17th International European Society of Gynaecological Oncology (ESGO) meeting runs from September 11 through the 14th in Milan, Italy. One interesting topic to be presented is the use of HE4 as a prognostic market in endometrial cancer. The abstract for this presentation is pasted below. I will follow up with any…
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Pap tests after surgery
Help me understand this. For the 1-2 years my gyn-onc has not done any pap tests. I has TAH 3 years ago and got paps for about a year after. When he stopped doing them I inquired. He said it's not necessary "because there's nothing to test". I discussed this with my PCP recently and she agreed. My understanding is that…
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B12 and Folic Acid
Does anyone, who is a vegetarian or vegan, take B12 and Folic Acid? My doctor recommended me both, because he said I am anemic. I guess the chemo hurt me up a little. I am currently taking 500mcg of B12 and 1 mg of Folic Acid. I am also taking a multivitamin that supposedly has 100% of B12 daily intake as well as Folic…
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Ca 125 rising already
My CA 125 went from 43.7 to 84.4. It has been 8 weeks since my last chemo. I was disappointed that it was that high already. When I finished my first round of chemo my CA 125 started to rise irght away, but it was more slowly. I will continue to be in observation. I will have repeat lab and a CAT scan in October. We are…
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The Lymph System, Nodes, etc. and their role in helping manage cancer
Here is a link which does a decent job explaining the lymph system and how it works. It is presented mostly for those with issues with lymphedema but the how's and why's are useful in general. The info on direction of flow I found particularly helpful. I had posted this in the thread with Claudia's post on how cancer…
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Karen How are you?
Karen, How are you and i have not seen any post from long times? When was your last check up and when is new one due? What Test they are doing for follow up. I am correct your last chemo was dec 2008. and God will give you NED next 35 yrs I wish you best of luck Kumar
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BIBG1120 in trials
BIBG1120 in trials for relapsed overian cancer, but at the bottom of this report it says it's being looked at for other cancers as well, including endometrial cancer. Has anyone ever heard of this? BIBF1120 as Maintenance Therapy in Relapsed Ovarian Cancer Shows Potential Improvement in Progression Free Survival in a Phase…
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NED is filming a documentary
Check it out: http://www.dancingwithned.com/ Has anyone ever heard them or under the care of one of them? Can't wait for the documentary. I wonder when/where/how it will be aired. It might be on their official website where one of them is talking about how breast cancer has the ribbon, but we have the band! Enjoy. Suzanne
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New Diagnosis
I am 38 years old. I have no children. I just found out I have adenocarcinoma level 1 in my uterus. I will see my oncologist Monday for the first time. I am worried about losing time at work. I am a third grade teacher. What questions should I ask?
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Has anyone heard about the new trials for cancer in canada using the small pox virus
I was listening to public radio (they were talking with a Canadian Doctor) and they are using some cancer patients in a trial run to see if the small pox virus (we got as children)will kill cancer cells. They said if I understood it right that cancer cells invade good cells and kill of the good cells ability to fight off…
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Join Research Project for MMMT (carcinosarcoma)
To all of us who were diagnosed with MMMT (now more commonly known as carcinosarcoma of the uterus or ovary): I just came across a web site called "123 and me Sarcoma Community" whose purpose is to forge further research into this rare form of cancer in hope of getting faster, better treatment and genetic insights into its…
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East Coast Ladies - are you all OK following Irene?
Just wanted to check that all you ladies on the East Coast are doing OK following hurricane Irene. Have been watching the news in the UK and it looked pretty frightening. Although perhaps not quite as bad in New York as first thought? You are all probably without power etc at the moment, but as you all get back online it…
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Newbie here...Chemo Question
Hi Everyone… On July 2nd, after a biopsy of a large tumor (11x8x7.5 cm) in my uterus I was wrongly diagnosed with Leiomyosarcomas. Four days later I had surgery removing my uterus, ovaries and cervix. No lymph nodes were removed because my doctor did not think it was necessary at the time and I had the impression that it…
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Finished day one of chemo...Sort of
Had my first chemo treatment today…finally. I’m getting Ifosfamide three days in a row and Taxol on the first day only. Today was suppose to be my Taxol day but within three minutes of starting the IV, my lips went numb, my chest felt tight and I had half the hospital staff in my room. In the end, stopping the pump and…