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Linda News~
Feel it proper to let everyone know that Linda is having a rough time. Saw a posting yesterday and felt anyone who doesn't peek on the Ovarian part of site, might want to read what she posted -- She's such a fighter, always willing to show a positive side to anything. Keep her in our prayers as she requsted~ Hugs, Jan…
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Has anyone had to have alot of blood
Hi again everyone!!! I an back out of the hospital.BUT the doctor called this morning and said my CBC level showed that I needed 2 units of blood. The doc nor I know why or where the blood is going. This is the 5th unit of blood that I've had to have since my hysterectomy on October 11th and no visible signs of blood loss…
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Clinical Trials -- Any Participants Here?
Has anyone participated in a clinical trial for recurrent uterine cancer?
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Moving up a new post on 'functional profiling' posted on the LONG long long 'UPSC' post that loads s
The original UPSC super-long thread is so lengthy that it takes FOREVER to load. And although I think it is EXTREMELY valuable for anyone newly-diagnosed with UPSC to read, new posts can get lost in that crazy-long thread. S000000, I am 'moving up' a recent post there to this new thread. Daisy366 posted such an interesting…
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11-11-11
I get notices about Qigong workshops in Orlando, FL and this just came through. I did sign up for webcast to be held 9:30pm EST on 11/11/11. For those interested here is some info. Sacred Qi Practice beyond words: 11-11-11 For the first time in Supreme Science Qigong history... We'll be hosting the first OUTDOOR STANDING…
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Finally got a copy of path report
My endo cancer is StageIIIc Grade II whatever this means, the "resident" said it was a part of my chart and needed to stay intact. This just happened to come in a day with alot of other bull**** well finally they had the chaplain come into the unit (the hospital has a unit for gyn-oncology)anyway, she came in and we talked…
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Update on sad CT and pet
First Dx July 2010, Tx hyst etc, chemo Oct 2011 Recurrence, bad CT 7 months after end of Chemo. Tumor . Oct 24 surgery Just got home to from surgery in Mt Sinai, NY were my doc did resection of colon and totally removed tumor. Pathology should be in in a few days. Hydrooxycode great pain killer! I'm a bit loopy but happy…
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Linda, Please write
Dearest Linda: I hardly ever write on the Board, but I read almost everything and you have become a part of my life. I want to follow your journey wherever it takes you. Off course, I am extremely saddened about your latest test results. I cannot begin to imagine how your loving family and most of all your grand daughter…
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Halloween....
I'm seriously considering going to work bald on Monday. Does anyone have any ideas for costumes. I thought about a crazy eight ball but that could be a little messy and I want to keep it simple. Since I have a doctor's appointment and CT scan today, I considered temporarily "borrowing" a hospital gown and going as a cancer…
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Treatment for recurrence in lynph nodes - what to expect?
Now that I am having chemo once again for a recurrence I would really like to hear from those sisters who have been there before me. It is the same drugs - carbo/taxol in the same cycle. My first bout was not too bad at all until the 3rd cycle when I blacked out on day 4, hit my face on the edge of the sink and then was…
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anyone think they had uti/bladder infection and it wasn't???
i read in some long prior posts that some women have had symptoms of uti, but urine test turned out negative. no one seemed to know exactly why this happened: some possible reasons cited were effects of chemo or radiation, lack of estrogen, or scar tissue in the urethra. has anyone had more recent examples of uti sensation…
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Standardized supplements
There was some talk on one of the threads about the unreliability of supplements. Someone mentioned that sawdust was found in a supplement. When looking for a supplement if you look for the word Standardized extract or standardized, this is what that means: Standardized extracts are guaranteed to contain a specific…
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ASTRO: Brain Metastases Common in Ovarian Cancer
[This was requested by california artist to also be posted in the uterine board] Brain metastases commonly develop among patients with ovarian cancer, and do so rapidly in those with advanced disease, a retrospective review found. In a study of 78 women with ovarian cancer who developed one or more brain metastases, 50%…
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Daughter having uterine ablation
My daughter, age 39, has almost constant bleeding or spotting throughout the month, bleeding after intercourse, and heavy bleeding and cramping when she has her period. She also has cramping throughout the month. She was going to have a hysterectomy, but was advised and agreed to an ablation instead. Lots of things…
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Bad CT results today; Megace recommended next (plus complementaries). Uncertain and scared.
By way of background: Dx in Feb 2011 with Stage IIIC2 Endometrial Adenocarcinoma; spread was to pelvic and para-aortic lymph nodes, with some evidence in cervix, too. ER and PR both +3. My CT scan in March, just before starting chemo, showed some enlarged lymph nodes and one small (5mm) lung nodule. At that time, my…
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Newly Diagnosed and newbie to board
I was recently diagnosed with uterine cancer. I have an appt with an oncologist/surgeon next Thursday. I'm told that I will need a total hysterectomy. Can anyone tell me what to expect after surgery. Will I feel any different? It may sound weird, but will I know that my parts are gone? Thank you Sabina57
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Bloating and cramping after hysterectomy
I had a complete hysterectomy. I am 9 months post chemo and just had my blood work done and saw my onc/obgyn and he examined me and said I was doing good. But I get abdominal bloating and cramping that feels just like it did before my period would start pre hystectomy. Does anyone else get this? I had the hysterectomy in…
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Pain before treatment
I have alot of pain in my lower stomache after my hysterectomy (Oct 11). Right after I really didn't have any but now it is getting worse. Right now I am in the hospital. I am on morphine immediate relief 45mg every 2 hrs and Diloted 1mg every 2 hrs and still really getting worse. The resident ordered a CT yesterday eve.…
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Definition from Ultra Sound
I just had a pelvic sonogram for pelvic pain this week and meet with dr. tomorrow. I am 51 and I am on tamoxafen. My report stated heterogeneous echogenicity of the endometrium with endometial thickness. Can anyone tell me what heterogeneous echogenicity of the endometrium means? I want to have an understanding of my…
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Breast cancer question
Hi- I'm posting here because I have a good friend on the breast cancer board and I just don't want to worry her (she's had a recurrence and has enough on her plate). But I need some feedback. I know several here have also had breast cancer, and the rest of you are just plain savvy. So here it goes . . . I finished…
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Liver Lesions
I try not to worry about things that I have no control over, but I’m freaking out a little bit. When I had my first CT scan, the day of my diagnosis back in July, I was told by the radiologist that I had two lesions on my liver. My doctor never mentioned them. The radiologist made it clear that it was she, my doctor, who…
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Tomorrow
Tomorrow is when I see my Oncologist since my hysterectomy on Oct.11 My husband and I were reasured that the surgery should pretty much take care of the cancer and just to relax. The morning after the surgery the surgeon,and ono both said that of course they took many many samples but the looks of everything looked very…
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Severe pain after first Carbo/Taxol infusion?
My mother has had stage IV Uterine Cancer since 2002. She made it this far after a course of hormone therapy drugs that she took for 5 years, and she remained in a "holding pattern" until about 3 months ago. At this point, her oncologist felt he wanted to be more aggressive with the treatment, and scheduled a course of…
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About a healthy diet, it's about balance.
While eliminating meat from your diet once diagnosed with cancer is a very good idea, that step alone is not the whole story. If your reasons are not wholly because you feel eating animals is not right and you are doing it strictly because of the highly acidic nature of the meat itself, you are on the right track. Becoming…
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Question: What type of response did you have to Taxol, if you were one of those who took the trio of
during your chemo treatments. Specifically, have you had a recurrence and if so how long a time between chemo's end and recurrence? If not, how long have you been without signs of recurrence since the end of chemo? THe other category is, if you didn't take them during treatment, did you begin after chemo ended and then the…
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The Mushroom Wars
Am convinced that AHCC (a proprietary blend of Shitake and other mushrooms used in Japanese hospitals to bolster the immune system and minimize the effects of chemo) was one of the supplements that helped me to sail through six rounds of chemo with no side effects other than lost hair. But much recent research touts the…
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5 years NED/upsc
Just wanted to check in to say that I was dx with UPSC on my birthday 5 years ago. Scan was clear yesterday. NED. I was one of the first on this board and am still winning the battle. Never give up. Linda my heart and soul I would trade for a miracle for you. Abundant Blessings Peggy
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So this is how cancer starts
My dear ladies: This site has really helped me a lot in many different ways. But with each negativity, it begins to eat away at the really good stuff that I get from this site. Sort of how cancer works? Yes, I can ignore it, I can decide not to read it, etc. etc., but this site has been a comfort to me. So lets get that…
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My cancer is Stage 3 endometrial cancer
I was diagnosed with uterine cancer on July 25th. October 11th I had my hysterectomy, my husband and I are scarred. I just got the pathology report from the doctor and I have stage 3 endometrial. I am 39 and have no idea what to even ask the doctors at my appt. on Wednesday afternoon. I went to them after I was told I had…
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My mom has Uterine Cancer and I feel im dying myself.....
I am not sure what to do..how to act....anything right now... My mom who is only in her early 60's just told me she either has pre-cancer or actual cancer of her uterus.... I love her so much and this news just blew me away.... She is very overweight...Diabetic and now the doctor says probably uterine cancer. The doc said…