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To Hellie C
Hellie: I love your new photo! It looks like you had a fantastic holiday! My best to you. Kathy
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cutting edge research on immunotherapy
I was visiting Israel with my husband who is an Israeli last week. I just finished the first cycle of clinical trial treatment for my recurrence, and used 10 day break till the next cycle begins to have a little holiday. We were visiting friends and relatives here. One of them was a good friend who is a physician at an…
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EGFR Positive UPSC and Clear Cell Patients
Hi I am Pat. I was diagnosed with UPSC in Feb., 2011. I had found this wonderful discussion board before my surgery and recieved excellent advice. I had my original tumor from surgery sent in for a tumor assay/profiling to be done. I was staged as a stage 1B (on the old FIGO chart). My doctor gave me a promising prognosis…
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CA125 38
Hi everyone, Has anyone had a spike in their CA125 to 38 and had a clean PET scan before? Is it possible that the spike is from something other than the cancer considering how close it is to the normal range? or has anyone had a general spike of 15 points and it been ok? Thank you in advance for your responses Tali
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LINDA WHAT'S THE LATEST ON TESTS RESULTS
Hope you are doing very well. Continue being a wonderful member of this board. I read some stuff the other day that was just so silly. You are great, informative and super smart. May our Great God grant you even more wisdom to continue your journey with grace and dignity. Enjoy your family and may God bless them also to be…
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Joliet Women's Cancer Support - Joliet IL - December meeting cancelled
Support group held the last Wednesday of each month at 7pm. Held at Joliet Oncology-Hematology Associates (JOHA)2614 W Jefferson St, Joliet IL Just behind the Babe's Hotdogs Visit Joliet Womens Cancer Support on FaceBook to let us know that you're coming!
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Stage IV uterine cancer
Hello, I was wondering if anyone has been treated w/avastin for stage iv uterine cancer and how it worked for you? I was diagnosed w/stage iv uterine cancer in 4/10 at age 48 with mets to bone, lungs and lymph nodes. I've been on taxol/carbo., doxil, megase and then taxol alone. I've recently developed a toxicity to my…
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Cat Scan Results-Bad News?
My mom had unterine cancer 6 years ago. She was treated sucessfully and gets tested regularly ever since. On a recent checkup the Dr suggest that she do a Cat Scan for precautionary reasons because she hasn't had one in a while. Today she got a call from the docs office asking her to make an appointment for next mon to…
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CHEMO *** RADIATION ***CHEMO
I'm currently receiving my third round of chemo (three day treatments) and have tolerated it very well, but after this round I will be getting at least 25 rounds of radiation which will push my next chemo until late December at the earliest and more likely January. Apparently I will have to wait three weeks after this…
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The Cancer Project
Check out www.cancerproject.org After reading an article in our local newspaper I signed up for "Food for Life" cooking classes sponsored by the Cancer Project. I had heard of this program several months ago on TV but this group had no local programs then, but happily now they do. There is the website with recipes and…
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Fevers
Hello, I've had fairly high fevers for the last two months. Some of them have been attributed to a problem I was having with my kidney and two UT infections. I've been on antibiotics for three weeks, which cleared up the infections but has still left me with fevers. My oncologist is now attributing them to the…
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NCCN Guidelines pdf
http://www.nccn.org/professionals/physician_gls/PDF/uterine.pdf
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Mother's CT Scan revealed cancer...any pre-treatment suggestions?
My mother has a family history of cancer of the female parts on both her mother's and father's side. Her CT Scan reveals cancer in her uterus, cervix, lungs, liver and blood vessels, but they haven't done a biopsy to pinpoint exactly what kind of cancer it is, though I have a feeling it will be uterine. She will see an…
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Need to share this - CT scan results
Well ladies, on October 4th I had a CT scan done. I was really nervous about this CT scan since my last scan was November of 2010 and I was to have another scan done in June. So it was almost 11 months. But as some of you know, I changed insurance companies and my new company wont accept my doctor in network or approve PET…
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Some thoughts on our purpose
I have been thinking about some of the recent postings and have decided that maybe I have lost sight of what this Board is all about. I had thought it was an avenue to offer support and encouragement to other women dealing with uterine cancer, to share new ideas about treatment options, to learn about cutting edge research…
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claudia--a couple questions.....
hi claudia, i. too, sometimes forget who i've said what to, or where i've read what. i do remember now, however, that you said after your surgery two nodes became enlarged (almost exactly the size as mine), but stopped growing once you started your tumeric/ginger/green tea, etc., routine, which is what i'm hoping will…
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To Linda P.
Hi Linda: I believe you were to have a CT scan today. I hope all went well. I know you probably won't get your results for a few days. My best to you. Kathy
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High Potassium
I had blood work a couple of days ago, and my PCP called me today to tell the my Potassium was high. He did not say how high. He recommended me to not eat much of food high in Potassium, which is hard since leafy greens are high in Potassium and I eat lot of it. I have read that chemo can cause this, but also a…
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Celebrating 2 yrs since surgery and staging
Hard to imaging that it has been two years since my surgery and staging. Stage IIIC Grade 2.(details in bio) At the time I did not see my future as being very bright, although determined that come what may I was going to endure. Now 2 yrs later, one grandbaby, new business, numerous days of feeling wonderful, I can say…
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My mother was recently diagnosed with endometrioid adenocarcinoma
My mother, two years shy of fifty, was diagnosed with endometrioid adenocarcinoma (mucinous differentiation, grade 1) on September 26th. Having suffered bouts of abnormal bleeding and pelvic pressure, my mother informed our family physician who promptly ordered a biopsy. This Friday, the seventh of October, my mother will…
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Neuropathy
I finished taxol #6 on time; had somewhat of a reaction but my daughter flew home and cooked three meals a day and poured fluids into me. We watched videos in the afternoon and talked in between naps. One thing I have learned from this cancer is how much I love my family and how much they love me brings tears to my eyes! I…
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Trials and alternates for UPSC
So there is a genetic trial for Ovarian cancer going on at Penn. But what other things are happening for UPSC? What are you doing? We want to launch a trial for UPSC and related. No one seems to be paying attention to us? Any action on that front? Lets mobilize now! Reply here if you agree. There are new and good models…
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odd prickly/slightly stinging sensations in pelvic/abdomen area?
sisters, wish i'd kept track of these sensations, but i've had them before. they come and go. my partner thinks they're nerves regenerating after surgery/chemo, i think they could represent new growths. in any case, wondering if anyone else has experienced them, and if so, when in relation to surgery or chemo? thanx and…
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Bad Sad CT Today
Felt constipation for a week, kinda had PTSD flashback from one year two months ago when Uterine Clear Stage IV Grade III was discovered, no other symptoms besides the constipation. Finished four Carbo/Taxol/ two Carbo-Doxil eight months ago. Changed diet to reflect Servan-Screiber's Anti Cancer book, exercise on treadmill…
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cancer can be sured
https://www.youtube.com/embed/videoseries?list=PL5F6152185D04EBF8
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Mom newly diagnosed with Uterine Cancer
Hi all. My Mother was recently diagnosed with Uterine cancer. I have been reading some posts by you brave ladies and have found your stories so encouraging so Thank You for sharing so much of your personal lives and information. There doesn't seem to be enough out there on this cancer! I will accompany Mom to see an…
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Seeking comfort
I'd like to say how amazing this network is. I am sure that all the support shared is source of optimism for all - as it has been for me in the case of my sister. I'd like to post some details on her case and would be grateful if anyone listening can offer some encouraging words. My sister is 68 years old and was diagnosed…
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Only Child Asks About Single Mother with UPSC
Dear All, I see all the love and encouragement and thought I would take this first step in giving and receiving. I wanted some of your perspective on two things: 1. I am an only child with a single mother. I am in my 30's, she in her 60's. No siblings and my father passed when I was 15. I have no wife, girlfriend or kids.…
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Eating Yogurt
I am having the hardest time gaining weight, because I cannot eat the minimum about of calories or proteins. I saw my nutritionist today, and she told me I needed to eat more protein. I do not eat any red or white meat, dairy or processed sugar. So, that includes yogurt. Does anyone of you eat organic Greek yogurt? My…
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Soooo.....Dumb question number one....HAIR
I've been encouraged to ask questions. even dumb ones, so here we go. I am currently about 16 days past my first round of chemo and my hair is falling out. It seems that most women shave their head when they start losing their hair but I am being bullheaded about it and it has nothing to do with being able to create hair…