Trials and alternates for UPSC

ValT
ValT Member Posts: 6
in Uterine/Endometrial Cancer #1
So there is a genetic trial for Ovarian cancer going on at Penn. But what other things are happening for UPSC? What are you doing? We want to launch a trial for UPSC and related. No one seems to be paying attention to us? Any action on that front? Lets mobilize now! Reply here if you agree. There are new and good models out there. Please let me know your experiences and where they have been held. Bless you all!

Comments

  • daisy366
    daisy366 Member Posts: 1,458 Member
    #2
    tells us about you
    I did not see any profile about you. Who are you and what is your connection iwth UPSC?
  • ValT
    ValT Member Posts: 6
    #3
    daisy366 said:

    tells us about you
    I did not see any profile about you. Who are you and what is your connection iwth UPSC?

    Sorry--just filled out the profile. My sister-in-law was diagnosed in 2007. Because she has wanted to avoid toxic chemo, we have been active in seeking out other things. She had two surgeries, radiation, carboplatinum w/o taxol, doxil (which worked for awhile)and is now on Gemzar. She's been seen at Stanford and MD Anderson. I haven't found alot of people on these boards talking about trials. But I've noticed some biomarker based trials with biologic therapies going on and would love to know if anyone has looked into them. She is also working with a researcher in Houston to use drugs that enhance the uptake of chemos.
  • daisy366
    daisy366 Member Posts: 1,458 Member
    #4
    ValT said:

    Sorry--just filled out the profile. My sister-in-law was diagnosed in 2007. Because she has wanted to avoid toxic chemo, we have been active in seeking out other things. She had two surgeries, radiation, carboplatinum w/o taxol, doxil (which worked for awhile)and is now on Gemzar. She's been seen at Stanford and MD Anderson. I haven't found alot of people on these boards talking about trials. But I've noticed some biomarker based trials with biologic therapies going on and would love to know if anyone has looked into them. She is also working with a researcher in Houston to use drugs that enhance the uptake of chemos.

    Val
    I agree that UPSC needs more research. We talked about that here awhile back. My doctor is not generally fond of trials. I have inquired with him a couple of times. I'm not going to be much help to you.

    I hope your sister responds to Gemzar.

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