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Uterine/Endometrial Cancer

UPSC, Avastin insurance coverage/denial
My mother lost her first-round appeal w/Independence Blue Cross today. They will only give Avastin as a single-agent, and the doc wants to give it with Taxol. The initial denial was a one-page "not medically necessary." We made our case for medical necessity in the appeal. The appeal was denied and the new denial is…
HE4 As Prognostic Marker In Endometrial Cancer
The 17th International European Society of Gynaecological Oncology (ESGO) meeting runs from September 11 through the 14th in Milan, Italy. One interesting topic to be presented is the use of HE4 as a prognostic market in endometrial cancer. The abstract for this presentation is pasted below. I will follow up with any…
Pap tests after surgery
Help me understand this. For the 1-2 years my gyn-onc has not done any pap tests. I has TAH 3 years ago and got paps for about a year after. When he stopped doing them I inquired. He said it's not necessary "because there's nothing to test". I discussed this with my PCP recently and she agreed. My understanding is that…
B12 and Folic Acid
Does anyone, who is a vegetarian or vegan, take B12 and Folic Acid? My doctor recommended me both, because he said I am anemic. I guess the chemo hurt me up a little. I am currently taking 500mcg of B12 and 1 mg of Folic Acid. I am also taking a multivitamin that supposedly has 100% of B12 daily intake as well as Folic…
Ca 125 rising already
My CA 125 went from 43.7 to 84.4. It has been 8 weeks since my last chemo. I was disappointed that it was that high already. When I finished my first round of chemo my CA 125 started to rise irght away, but it was more slowly. I will continue to be in observation. I will have repeat lab and a CAT scan in October. We are…
The Lymph System, Nodes, etc. and their role in helping manage cancer
Here is a link which does a decent job explaining the lymph system and how it works. It is presented mostly for those with issues with lymphedema but the how's and why's are useful in general. The info on direction of flow I found particularly helpful. I had posted this in the thread with Claudia's post on how cancer…
Karen How are you?
Karen, How are you and i have not seen any post from long times? When was your last check up and when is new one due? What Test they are doing for follow up. I am correct your last chemo was dec 2008. and God will give you NED next 35 yrs I wish you best of luck Kumar
BIBG1120 in trials
BIBG1120 in trials for relapsed overian cancer, but at the bottom of this report it says it's being looked at for other cancers as well, including endometrial cancer. Has anyone ever heard of this? BIBF1120 as Maintenance Therapy in Relapsed Ovarian Cancer Shows Potential Improvement in Progression Free Survival in a Phase…
NED is filming a documentary
Check it out: http://www.dancingwithned.com/ Has anyone ever heard them or under the care of one of them? Can't wait for the documentary. I wonder when/where/how it will be aired. It might be on their official website where one of them is talking about how breast cancer has the ribbon, but we have the band! Enjoy. Suzanne
New Diagnosis
I am 38 years old. I have no children. I just found out I have adenocarcinoma level 1 in my uterus. I will see my oncologist Monday for the first time. I am worried about losing time at work. I am a third grade teacher. What questions should I ask?
Has anyone heard about the new trials for cancer in canada using the small pox virus
I was listening to public radio (they were talking with a Canadian Doctor) and they are using some cancer patients in a trial run to see if the small pox virus (we got as children)will kill cancer cells. They said if I understood it right that cancer cells invade good cells and kill of the good cells ability to fight off…
Join Research Project for MMMT (carcinosarcoma)
To all of us who were diagnosed with MMMT (now more commonly known as carcinosarcoma of the uterus or ovary): I just came across a web site called "123 and me Sarcoma Community" whose purpose is to forge further research into this rare form of cancer in hope of getting faster, better treatment and genetic insights into its…
East Coast Ladies - are you all OK following Irene?
Just wanted to check that all you ladies on the East Coast are doing OK following hurricane Irene. Have been watching the news in the UK and it looked pretty frightening. Although perhaps not quite as bad in New York as first thought? You are all probably without power etc at the moment, but as you all get back online it…
Newbie here...Chemo Question
Hi Everyone… On July 2nd, after a biopsy of a large tumor (11x8x7.5 cm) in my uterus I was wrongly diagnosed with Leiomyosarcomas. Four days later I had surgery removing my uterus, ovaries and cervix. No lymph nodes were removed because my doctor did not think it was necessary at the time and I had the impression that it…
Finished day one of chemo...Sort of
Had my first chemo treatment today…finally. I’m getting Ifosfamide three days in a row and Taxol on the first day only. Today was suppose to be my Taxol day but within three minutes of starting the IV, my lips went numb, my chest felt tight and I had half the hospital staff in my room. In the end, stopping the pump and…
Treatment of uterine cancer
First a little background. I´m from the US and I´m currently living in Peru. My girlfriend is 31 and two and a half years ago she was diagnosed and treated for uterine cancer. She had her uterus and fallopian tubes removed. Her cancer was stage 3. Yesterday, she had an appointment with her gynecologist and her cancer has…
Uterine Cancer that Metastasized to Lungs - Update - What questions should I ask?
After six chemo. treatments my cancer is "dormant." The CT scan at 3 months showed decreased area of cancer; the CT scan at 6 months is essentially unchanged. PEt scan does not pick up "cancer" even in the area where it is visible on the CT scan. While I have some options, both oncologists are recommending that we go for…
Diet and alkaline body – discussion with PCP
I love my PCP – she is a DO and takes lots of time with me. At my physical today I had an interesting discussion about diet and cancer. My question was about keeping the body alkaline. A belief for many here has been that we need to keep the body alkaline with foods that promote this in the body in order to be successful…
Had my 2nd radioembolization yesterday
Feeling pretty miserable and having the dry heaves all night. Today I had to start the regime of something like 20 various pills a day (killer antibiotic horse pills, steroids, antacids, & more. I am so out of it today that Vic had to set up my pill box so I wouldn't mess up the pill schedule. I'm trying to drink water and…
Dangerous Chemicals in Vaginal Lubricants!
Dear Ladies, While I try to make most of my messages to this Board uplifting and affirmative, I am vexed by being sent home after pelvic radiation advised to use any of "the following vaginal lubricants" on my dilator three times a week." These lubicants include AstroGlide and a few others--which ALL, upon investigation,…
Latisse to regrow eyelashes and eyebrows
Have any one heard of Latisse to help regrow eyelashes and eyebrows? I have a friend who is a nurse and works with a plastic surgeon group. She told me one of the doctors just went through chemo and lost all his hair, including eyebrows and eyelashes. The doctor used Latisse to accelarate the growth of hair, and it works.…
CHEMO DURING AN EARTHQUAKE AND A STORY
Dear Friends, I had chemo yesterday (in Virginia) and we were all hooked up in our chairs. A very lovely woman sat next to me and she was very quiet and reading. An earthquake hit. It was strong with the wall wavings and the floor jumping, but only lasted 30 seconds. Still the woman sat quietly next to me. Finally, someone…
Help sleeping
Hi everyone, My mum is having lots of trouble sleeping. It has been an ongoing thing for many years and she takes some anti-depressants to help her sleep. Does anyone have any ideas on how to help in this critical time? She wakes up at around 1pm and can't go back to sleep. I'm sure it is partly due to stress but she runs,…
Lymph Nodes in Groins
After my hysterectomy, I developed lymph nodes in my right groin. I told my onco about it in one of my appointments, and said not to worry about it. It was just fluid from the lymph nodes he took out: total of 58. He also told me not to touch it, but if I wanted do it once a month so I would not go crazy about it. Do you…
FSH Level too High and please advise me
Hello All, Most of people know me here and My mother was diagonesd in may 2009 with endo adenco stage 3 c grade 1. she had finished chemo in sept 2009. she is in remission with grace of god. In april her ca125 was 7. she went yesterday for her exam. Doctors has ordered her FSH test. Is it test for cancer. Her level come…
Endo C @ 21....Now 35 - My story
I was diagnosed with endometrial cancer at age 21 in 1998. I had bleeding issues and my parent was, to say the least, inattentive to my problem and told me it was normal. I bled so much, I was put on 2 weeks bed rest and iron. I took Megace 1200-1600 mg./day and went straight into a pseudomenopause, which I felt nearly…
Is it easy getting a port removed?
I just had my six-month check-up (actually 7 mos) today. All looked good. They did a PAP and I will get a PET Scan and I can get my port removed. I have had it in almost 6 years. I had an appointment for next week to get it out, but I got new insurance so now there is a problem which I am sure we will work out. My question…
other online discussion groups
Ladies, Please share your experience with other places to discuss and find support for cancer? inspire.com and eyes on the prize have been mentioned. Which one/s are your favorite?
Elevated CA125
Diagnosed with stage 1b uterine cancer. Had 6 rounds of chemo and radiation. I had a Pet Scan after treatment in which 2 small nodules were discovered. They did a lung resection and biopsy and they came back as an inflammation. Good news. All the rest was clean. I had my first follow up visit and everything was good except…
How long will fatigue and dizziness go on?
Mum has got uterus cancer stage 3.After 6 weeks of CISPLATIN and 25 radiotherapy cures,she spends all the day either sleeping or lying on the bed.Besides she has got terrible abdomen pain especially after she goes to the toilet. I just wonder if all this is normal and how long will it go on as it is 12 days since she…

Uterine/Endometrial Cancer

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