Starting Immunotherapy and Chemo Tomorrow
Adding Immunotherapy first line since my tumor is microsatellite instability high. Chemo is carboplatin plus paclitaxel. May the force be with me!
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I hope it goes ok for you. May the force be with you!
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Teresa
I hope your first day of treatment goes well. Since you'll be having immunotherapy as well as carboplatin/paclitaxel, be sure to write down any side effects you have during the next few days and call your doctor if anything severe occurs.
I was glad I had a written record of my post-treatment side effects so that I could tell the doctor what happened and when. I found that my memory got fuzzy at times after treatment.
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Thank you for the advice! So happy to be on my way to being cured.
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Good luck to you. Treatment is a daunting thing to contemplate, very scary at first, but as we like to say "doable". My docs requested a daily diary of symptoms, especially after the 1st infusion, because it served a twofold purpose. It told them of my exact issues, when they started, if and when they finished, and then I was able to also use it as a guideline of what to expect at the next infusion. It gave me more information about exactly what to expect which lessened my anxiety. Also it allowed them to see my progression through chemo compared to others on the same drugs. Let us know how you are doing.
xxoo
Denise
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Keep us updated, and may you live long and prosper!
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Thank you! I will let you know.
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Two treatments so far and so far so good. Third is next Tuesday (half done, Yay!).
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Teresa,
Great news! Sounds like you are doing well. Glad to hear it.
Denise
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Teresa,
Happy to hear that you're tolerating the treatments well. My oncology nurse told me that the symptoms I had initially were generally the ones I'd have the through the rest of the treatments. I know that wasn't true for others here, but for me it was. It helped to know what to expect and prepare for each chemo cycle.
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Hey Teresa! I've been working over on the Oregon Coast, so am a little "behind" the news, but I wanted to check in and give you a "cheer" for getting through it all!
Best wishes---
Deb2
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So exciting! Immunotherapy as front line therapy--wow! This is the future. What drug (s) specifically?
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Thanks. I wonder if I'm not a candidate since my microsatellite instability is stable. :-( CMB, I saw you have Lynch. I thought I would, since I've had many colon polyps. I do not. It's interesting to me that Lynch is not very tied to MMMT.
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I'm sorry I'm not qualified to answer who is and who is not a candidate for immunotherapy. All I can tell you is why I was a candidate. MSI-High, High Tumor Mutational Burden and Lynch Syndrome were the reasons my doctor gave me for adding Keytruda.
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Keytruda with Lenvima is just now being used for non-MSI (Microsatellite Instability) High, so no worries. Good luck! You are "lucky" though to have MSI-High and High Tumor Mutational Burden, because that makes the insurance fights easier and faster. Lynch, not so much--sorry--but I bet you are very glad to know that info so it can direct your the frequency of you screenings, including your colonoscopies. My tumor, MMMT/GCS (yours too? Not sure), is typically low mutational burden, which gives us fewer targets. I'm just so glad for you that you're getting more than Carbo Taxol and radiation and frontline too!! Pioneer! Best wishes!!!!
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