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Questions from children...?
I recently had some kids at my son's daycare ask me "What's that? What happened?" ...Pointing of course to my scar.... I said I had surgery.... but the kids are usually no older than 5 years old... Has anyone had to explain to kids before... When adults ask... I just say "I had surgery" Thinking... that an adult... they're…
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Just had surgery...recovery a lot worse than I expected
Hi, everyone. I had a total thyroidectomy this last Thursday. Stayed overnight in the hospital, now home. I guess with all my research, I thought that I'd have this simple surgery, rest for a few days and be back to my normal life. Well, it's been 3 days now. I'm still in bed, achy all over. Want to be out of bed, but it's…
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Throgen shots
I'm getting ready to take Throgen shots to have a whole body scan. Should I be aware of any side effects?
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Tired all the time
I was just wondering if anyone else was having the problem of always being tired? I was diagnosed in Oct 08 with pappilary thyroid cancer. Since then I've had a total thyroidectomy, RAI, 2 body scans and told the cancer is gone and no signs of any thyroid cells. 11 months out and I'm still tired. I have gotten back to work…
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insurance will NOT pay for thyrogen, can't AFFORD to pay. WHAT DO I DO, NOW!!!!!!!!!!!
AFTER MY THYROID WAS REMOVED AND SEVERAL LYMPH GLANDS. IODINE TREATMENT THREE TIMES. DOCTOR IS PUSHING THYROGEN AND THE INSURANCE WON'T PAY FOR IT. WHERE CAN I GO FOR HELP WITH THIS MEDICATION TO GET WHAT I NEED. ALSO I CAN'T STAND COMING OFF MY SYNTHOID. SYNTHOID HELPS BUT I STILL HAVE CHRONIC FATIGUE. PLEASE ANYONE WITH…
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Question about last WBS. Cancer cells indicated in Breast and Sinus cavity.......
Hello I recently went through my 2nd body scan and RAI treatment last March. I had a few questions that maybe someone could give advice on I am sort of concerned yet the doctors are not.... I am 29 years old. I was diagnosed with Follicular Thyroid cancer at 27 the mass was a little bigger than a golf ball. I also had…
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what is our "color"?
My aunt called me today and asked what color ribbon is for thyroid cancer? I keep finding different answers... a tri-color (pink, teal, blue/purple), light blue, purple... I think she is planning on making some ribbons for our family to wear so i'd like to get it right :)
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Problems after I131 treatment
I had a total thyroidectomy in Dec. 2006 which showed follicular variant papillary carcinoma. I underwent the I131 treatement in March of 2007 and had massive problems with my parotid gland while I was still in the hospital and it has kept getting worse for the past 2 1/2 years. I was finally cancer free in Jan of this…
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Total Thyroidectomy, Trying to decide on Treatments?
I have been fighting an "issue" of some kind for two years that I can identify with. I had two surgeons and two different endocrinologist tell me that according to my 3 biopsy's I didn't have much to worry about in terms of cancer. I elected in July to have a total thyroidectomy and low and behold, pathology revieled…
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rise in my thyroglobulin has me worried I need advice
I had my initial surgery in 1996 subtotal thyroidectomy for suspicious follicular ademoma, with no treatment or meds after. in 2006 I found another lump, FNA discovered papillary carcinoma follicular variant.So off to surgery I went to remove the rest of my thyroid. the post op scan showed star pattern in the thyroid bed…
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treatments
my love developed herhtle cell carcinoma with focus on anaplastic.we started treament at moffitt in fl. but found the treatment severly lacking and found our radiologist and support staff lying about the cancer.we changed to md anderson in fl. the cancer started in the throid with total thyroidectomy and 6 weeks radiation.…
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Question about taking cytomel twice a day prior to RAI
I just completed my 2nd surgery less than a week ago. My first was not originally for cancer-it was for Hashimoto's. It was a partial lobectomy in April. This surgery was a total neck dissection and removing the rest of the thyroid. I was put on generic Cytomel to prepare for RAI. I was instructed to sleep sitting up to…
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Question about taking cytomel twice a day prior to RAI
I just completed my 2nd surgery less than a week ago. My first was not originally for cancer-it was for Hashimoto's. It was a partial lobectomy in April. This surgery was a total neck dissection and removing the rest of the thyroid. I was put on generic Cytomel to prepare for RAI. I was instructed to sleep sitting up to…
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After 2 negative biopsies, full path says cancer... now what?!
Hi all - newbie here! I discovered a lump in my neck the first week of May and was diagnosed with a large nodule that was "almost certainly benign" but was pressing on my carotid, trachea and esophagus so surgery was scheduled for a lobectomy. The fine needle biopsy done before surgery came back negative and then the…
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cytome/ pappilary thyoid cancer
cytome/ pappilary thyoid cancer I am 2 weeks out from a total thyroidectomy and lymph node dissection (18 lymph nodes removed and 16 were cancerous.) Has anyone else had that many lymph nodes involved? Also, I would like some input on distant metastasis, If it is common etc, I am very concerned about that. I have been…
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I know this may sound stupid... but it's very important to me...
I know this may sound stupid... but I have severe issues with needles. I'm okay for blood draws and IV's but nothing else... The 'biopsy' they did to diagnose me was done during surgery for this reason. Instead of doing a typical needle biopsy... they did a 'freeze scan' (I believe that's what they called it) and took a…
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Anyone else really tired all the time?
I just can't seem to feel rested.
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Is there neglect of the doctors part?
I had went for a routine doctors visit in 2007. This is went my doctor noticed a lump in neck. I visited the ENT clinic. At this time they noticed I had a cyst. They did a biosy and drained the cyst. The cyst reappearred again a few months later. They did another biosy and drainage. Both biosies came back negative and I…
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FVPTC - RAI or not?
Hi, everyone. I am 29 and diagnosed with FVPTC (follicular variant papillary) in June. I had a total thyroidectomy on the table when the biopsy results came back (I had another nodule in the other side that was also FVPTC). Now I have recurrent growth in the thyroid bed and one lymph node although my nodes came back clean…
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Just need to talk....
I'm 22 and single mom of a 2 year old. was diagnosed Oct. 2008 and had 2 surgeries and RAI treatment done by Feb 2009.... my biggest fear in Feb..... that I would have to spend my son's birthday in seclusion away from him while I sat alone and radioactive. it's now June 2009... 8 months since I was diagnosed.... I've…
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Introduction and Summary
I'm new here but not new to follicular cancer of the thyroid. Mine was found in late 2005, 14 months after a spontaneous fracture of a rib. FNA was done guided by CT, and the pathology report found the rib mass was follicular Ca of the thyroid. The CT done at the time included the lower portion of my neck and the…
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That annoying scar and the sun?
My scar is smack dab in the front of my neck right above my collar bone and I have not once bothered to cover it up because to me it's just plain annoying... however... I am now getting sunburn on top of sunburn.... and I'm not quite sure if there's anything I can do about it.... especially with it now becoming summer....…
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Worried...could use some hlep please!
Hi all, Im new to this site and I wont go into my whole story as its long and very complicated!!! But Im about to have my third round of RAI and I have now been off my medication for 2 1/2 week and other than cold i dont feel like i have the past three times i was off it. In the past i was practically passed out constantly…
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Just had 2nd surgery and feeling really depressed
I had a left lobectomy May 7 for a tennis ball mass that indicated through the frozen section folicular stage 1. I just had the rest of my thyroid removed with neck resection June 11. I feel sick and very depressed, especially when thinking about radiation and the upcoming low iodine diet. I hope I feel better in the next…
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Feeling low
I had my thyroid removed a 7 months ago and I can't seem to feel right. I feel low and I am gaining weight, and I try to lose it and I do, and then I eat everything I shouldn't and gain again. I feel sad I had cancer and then I feel like who am I to be complaining? It is curable, I am fine, but I don't feel fine and I…
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Now what????
So after getting my body scan something came up in the liver.. had a CT scan and last Friday I got the results.. they were not clear but I have 2 lesions in the liver, 4cm in size... the doctor said it can not be cancer because Thyroid Cancer if it moves it goes to my lungs and my lungs are ok... someone related to this? I…
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I Just Had A Yearly Follow Up Ultrasound & 2 Of My Nodules Grew
I just posted about this in my topic question, Does My Thyroid FNA Sound Worrisome Some Hurthle Cells found. I just had a year follow up ultrasound of my 3 small thyroid nodules that were found by accident on an ultrasound I asked for in October 2006. 2 of them grew about 2mm bigger and even though the University of Penn…
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Finally some thyroid treatment
I've been dealing with my colon cancer for the last year or so, I've been biopsied and surgery is scheduled for june 30th. I have two large tumors in my left lobe. My surgeon wanted to remove the whole thing and give me irradiated iodine. I really don't want to take a pill for the rest of my now hopefully long life. So I…
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Metastisized Thyroid Cancer
In 1998, I was diagnosed with both papillary and follicular thyroid cancer after a lump was discovered on my neck. My thyroid gland was removed and I was given the follow-up I131 treatment to kill off the remaining tissue. In May 2004, it was discovered that my thyroid cancer had metasticised to the lungs. My thyroglobulin…
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Support group on Yahoo
Just so you all know, there is a great group on Yahoo that has 5,000+ members and is very active. I get very fast responses to my questions there, as everyone is a survivor or related to a survivor. I like being involved in multiple discussion forums, as it helps me cope. Here is the link in case some here haven't heard of…