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thyrogen vs going off cytomel
I need help. My doctor has given me a choice. He said that I can go off Cytomel for 2 weeks prior to the scan or go on the thyrogen injections. He said the biggest risk with injections is that they are not sure of the long term effects. What has everyone else done? I had half thyroid removed at the end of March and had to…
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it's "only" thyroid cancer
Don't really know how to respond. I know that the survival rate is good but still feels like a big deal. Surgery wasn't too bad but now awaiting RAI feels crappy.
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teeth extraction prior to radiation treatment
I am a new member of CSN. I had whole tyroidectomy in 1998. and I had recurrence last year, had to go through two major surgeries in the same year. I had been pulled my ten teeth out prior to the radiation treatment two months after the surgeries. Due to the extensive radiation treatment, I lost function of my salivaly…
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I need some advice!!!!!
Hey there, my girlfriend has thyroid cancer and I need to know how to deal with her being hypothyroid. How do I go about relating to her situation and how do I react to her sudden changes in personality and behaviour? I am getting a little frustrated with the way I feel helpless when she does not seem like herself.
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The blues
I had surgery 9/10/03, a total thyroidectomy and partcial neck dissection. I had a high dose of I131 the end of October and so far my thryoglobulin levels have decreased remarkably. I have seen the surgeon twice with another check up for May. I just saw the Endocrinologist around Christmas and everything looks good...or so…
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thyrogen one injection
I was told that I have to go for 2 injections of Thyrogen One since I can not get scanned for my thyroid anymore. My body does not seem to like the dosages of Synthroid I have to be on, it makes me very anxious, heart palputations, sweats, etc(great when I am going out). So, I am taking a lower dose of Synthroid. I was…
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Pregnant and recurrence (help)?
Hi, I'm a newbee here. Really long story, I'll try to keep short. My wife was diagnosed in '99 at 31 of papillary thyca with hurthle cell, extrathyroidal extension and one node metastisis. Total TT and RAI 2x 100&250 because of persistant Tg of 9 to 14. All scans negative (US, CT, PET, WBS, BS, MRI) She was diagnosed with…
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Round #2
Round #2 Well, tomorrow I begin the week long trek to the radiologist for shots, capsule, and body scans. This isn't the theraputic dose, it's to make sure I am cancer free. I'm not nervous at all. I am keeping a positive outlook. My friends are wonderful. They want to come with me tomorrow while I have my first shot in my…
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Good News
It's been 17 months since my Total Thyroidectomy. Last week I had 2 body scans and I am cancer free. Thanks for your support. Thanks Michelle.
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After the RAI treatment
I have completed my RAI treatment and the scan looks good; no sign of cancer any where else. I am now taking Levoxyl (112 mcg) and will have my first blood work at the end of October. My pre-treatment thyroglobulin level was low, so the endo is optimistic. I had some neck pain/tenderness, sore throat after the RAI, but…
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2nd surgery, thanks for all the positive posts
Thank you all for the positive information posted on these boards. It's 3a where I am, and since I can't sleep I've been reading like crazy and feel much more educated. 13 Days ago I had a Lobectomy to remove a nodule that had grown to be over 3 cm. It came back fine, but out of the smaller nodules on the right side- 1 is…
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Hurthle Cell with Blood Vessel Invasion - Anyone Else?
Is there anyone that has had told by the pathologist that blood vessels appear to have been invaded? This happened to me last Thursday. My surgeon told me that I have to wait 3 months before I get my thyrogobulin tested. Is anyone else in the same boat? Originally, I thought the good news was that we caught the Hurthle…
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Nutrition
After RAI my endocrin. seems to be having a very hard time adjusting my Levothyroxine (synthroid) to an accurate level. So now I've been hypothyroid for a little over 2 months.... I'm gaining weight like you wouldn't believe... and I realize I definitely did not have a good diet to begin with... so I know it's not helping…
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choking feeling
Has anyone else experienced severe choking feeling on a regular basis since having a thyroidectomy? It's been seven months since my surgery and the discomfort is awful.
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Too long and stressful.
Im 17 years old, I was diagnosed with papillary thyroid cancer 2 years ago. Since then I've had 2 surgeries, 1 RAI treatment, 1 bioposy and that horrible low iodine diet. The doctors just informed me a couple weeks ago that I have to have surgery again in october, do another treatment and go from there. I feel like this is…
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Thyroglobulin Level Elevated After Thyroidectomy and Radiation
I just talked with the nuke medicine doc. He told me my body scan came back "relatively clean" with a few spots in my neck. He said he was a little concerned because my thyroglobulin levels were high. I had the radiation about a week and a half ago, surgery 6 weeks ago and body scan 3 days ago. What does this mean? Is the…
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vit pill on diet
Has anyone found a vit. pill that is safe to take when you are on the low iodine diet?
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nodules on thyroid goiter?
ok im confused here can someone help me i went to see the speciist because an ultersound showed somthing growing onmy tyroid, the doctor says have a lot of nodules growing and he called it a goter... he says my thyroid is working fne. so well wait 6 months to c if its growing if so a biopsey. there to small to biopsy he…
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Shortness of breath after total thyroidectomy
Had total thyroidectomy on 9/18/09 - prelim diagnosis of pappilary thyroid cancer. Immed. aftr waking up in recovery experienced shortness of breath and feeling of no being able to get a satisfying breath. Stat cxr and ekg done - were normal. came home 2nd day still feeling that way but not quite as bad. Also a lot of…
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Thyroglobulin level elevated...what does this mean?
I am not a cancer survivor, but feel as if I am about to go down that road. I am hoping all of you can help me understand this process as I enter the early stages of trying to find a diagnosis. My primary care physician did an ANA test and it came back positive for an autoimmune deficiency. After visiting a Rheumatologist…
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need a person to help this lady in virginia i posted under ovarvian cancer no one answered -linda or
this is Paula's letter to me...she is 39 single...she went to doc was told she had disease and woke up with complete hysterectomy....i think maybe a language barrier..cause we know we all sign for complete hystewrectomy...she is scared..has no clue where she stands and the doctor is telling her options and telling her to…
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Hurthle Cell Carcinoma Returns
Hi About a year ago I had a 3.2cm Hurthle Cell Carcinoma taken from my right lobe (thyroid), they then went and took out my left lobe which also had changes. I underwent radioactive iodine treatment. My blood results now show that my TSH is elevated at 2.1 and the doctor says it should be .01. I am about to go for a PET…
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Any ear pain associated with Thyroid Surgery?
Hello everyone, I had my second thyroid surgery on 6/23/2009 to remove the total thyroid. From 7/1/2009 to now I have been having pains in the right side of my face. It feels like I have an earache and a toothache at the same time. Does anyone else have the same symtoms? Any suggestions?
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Total Thyroidectomy 7/17/09 - Very Sick
Hi all. I just had a TT last Friday, 7/17/09, and my surgery went okay, although the recovery is really blasting me. Since Saturday of last week when I returned home, I hardly have the energy to perform any tasks at all. Perhaps I'm taking things to quickly though. My neck does not hurt, it was my throat from the tube they…
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Going crazy
Hi, new here. Just found out on 8/6 that I have Papillary thyroid cancer. Several nodules were found 3 1/2 years ago, but the biopsies were inconclusive. I was given I referral to endocronology, but gave up after 3 attempts to get an appointment (2 where the person who schedules was at lunch, and once on vacation. I left a…
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Week of 1yr follow up Whole Body Scan ?
Week of 1yr follow up Whole Body Scan, been doing the LID, THROGEN SHOTS and yesterday morning took my low dose of RAI. Have my WBS tomorrow. Just wondering what to expect. Just would like to know how other's felt while going through this.
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tightness in neck
Has anyone else experienced an extreme tightness in the neck after a thyroidectomy? It's been nearly 8 months since my surgery and I feel worse now than when I was first diagnosed. The doctor basically blows off my concerns by saying there is nothing he can do. Please if anyone has any suggestions I would love to hear them.
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Question about taking cytomel twice a day prior to RAI
I just completed my 2nd surgery less than a week ago. My first was not originally for cancer-it was for Hashimoto's. It was a partial lobectomy in April. This surgery was a total neck dissection and removing the rest of the thyroid. I was put on generic Cytomel to prepare for RAI. I was instructed to sleep sitting up to…
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Palpitations-Thyroid med or something else?
Hello all- It seems that since my thyroidectomy, I've had palpitations and sometimes irregular heartbeats. Does anyone else have this problem? Sometimes it just takes my breath away and comes when I least expect it, I don't even have to be doing anything strenuous. It's gotten a bit worse in the past year or so. The…
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Questions from children...?
I recently had some kids at my son's daycare ask me "What's that? What happened?" ...Pointing of course to my scar.... I said I had surgery.... but the kids are usually no older than 5 years old... Has anyone had to explain to kids before... When adults ask... I just say "I had surgery" Thinking... that an adult... they're…