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Newly diagnosed
Hi everyone. I am 5 days post total thyroidectomy for papillary thyroid cancer. My right recurrent laryngeal nerve was damaged during surgery. Now I can hardly speak and I am having lots of trouble swallowing. Has anyone else been through this? I'm wondering if this is ever going to improve.
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Radiation in addition to Radioactive Iodine?
A dear friend(70+)with thyroid cancer called and wanted my opinion on radiation(I have rectal cancer). She said her doctor had suggested radiation in addition to radioactive Iodine. I didn't know what to tell her. The neck differs a bit from the pelvic area. She is afraid of radiation and is trying to make a decision on…
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Acute Neuro-endocrine thyroid cancer
Hello, has anyone been diagnosed with or know anyone who has Acute Neuro-endocrine thyroid cancer? My sister-n-law, age 36, is undergoing chemotherapy for this and I'm trying to find out information since it is a rare cancer. Any information would be appreciated. Thanks, Kat
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newly diagnosed needs help
I was diagnose with papillary cancer Dec12. I have to wait for Febuary to have RAI. My surgeon said my tumor was stage 2 but only because i'm 48. My endocrinologist told me that because my tumor was 3.5 cm I am in the High risk group. I couldn't even concentrate at that point but my husband said he asked the prognosis and…
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thyroglobulin
had a thyrogen thyroglobulin in sept 07 was 5.1 previous tg was 0.6 without thyrogen , had repeat tg. 2 months later without thyrogen was 1.1 . Doc is lowering my synthroid to 1.12 from 1.25, because TSH too low. (I forgot #) I dont have an appointment til Feb, guess they are happy with those #'s, but I am still kinda…
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1 year later scan thyrogen or not?
I was diagnosed with papillary/follicular thyroid cancer in Sept of 2006 - total thyroidectomy and it spread to 3 of 6 lymphnodes taken out. Did the whole radioactive iodine nightmare and am due soon for the body scan and am wondering if thyrogen is a good thing to do or should I just go off the Synthroid? I want to make…
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Thyroid stunning in post RA131 treatment in scan
Has anyone heard of or experienced thyroid stunning phenomana after receiving RA123 followed by RA 131? It's on the internet, not common and something my docs did not understand. Please give me insight if anyone knows what it is and how it affects treatemnt. Thanks, dee
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Metastasized Thyroid Cancer
In 1998, I was diagnosed with both papillary and follicular thyroid cancer after a lump was discovered on my neck. My thyroid gland was removed and I was given the follow-up I131 treatment to kill off the remaining tissue. In May 2001, my thyroglobulin was 6.6 and I was given another I131 treatment. Since 2001, my…
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Thyroidectomy or Hemi...best option?
I have 5 nods, two on one side that are ventricular cells and can't be determined as benign until removed. My surgeon recommends that I have at least the left half removed. The right has two nods as well, including the biggest one. It seems to make more sense to have the whole thing removed at once since I have so many…
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increased TSH level and cortisol level 6 years after thyroidectomy
Hi, I am new to the group, but I have a question that I could really use some help with. I had a total thyroidectomy after thyroid cancer 6 years ago. After having normal levels with synthroid for 6 years I had my levels check a week ago because I have been feeling awful. My TSH level was 136 when it is supposed to be…
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To have RAI or not?
I had a Hemi-Thyroidectomy in September and a total thyroidectomy Nov. 21st for Papillary Thyroid Cancer with Follicular cells. The pathology report showed that my lymph nodes were not affected. The original tumor was 3.6 cent. The Oncologist told me it was my decision on whether to receive RAI or not because my tumor was…
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Second Surgery in a week
I am home from my second surgery in a week for thyroid cancer. I have multi-tumor papillary carcinoma with follicular components. The surgeon removed my right lobe containing a 1.8 cm benign tumor and four smaller malignant tumors in the first surgery and then went back to remove the left lobe. I am awaiting the pathology…
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Should I have more testing or wait like the doctors want???
Hey there, I am new to the boards, but unfortunately not to cancer! I lost my mother last year to stomach cancer and my sister is a breast cancer survivor. A body scan recently found a nodule on my thyroid and they did an ultrasound which confirmed that but they still don't know what it is. Because my blood tests (thyroid)…
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alternatives to RAI?
Hello! I just had a Total Thyroidectomy done 6 days ago, and 2 days ago I got confirmation that there were many tumors of different sizes (some were too small to catch them in the ultrasound) on both sides of the thyroid. They told me they were all Follicular Variant of Papillary cancer. They are recommending RAI and I've…
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Novocaine with epi
I am trying to find out if a thcan can have novocaine with epineferine (sorry spelling).One support group I went to told me we could not, but Epi helps stop the bleeding and when we are slightly on the hyper side, we tend to bleed more. I am having a tooth extracted this week and not sure what to tell the dentist. Does…
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scan
I forgot to mention, on day of scan, which took at least an hour........ they told me I had lots of uptake in my bowel & to drink Citrate & come back next day for repeat....... Scan turned out OK, but my TG was 5.1 (on thyrogen) so now I am freaking out & we wont do another blood test for 6 more weeks (without Thyrogen).…
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Hand-Foot Syndrome
Does anyone have any hints for dealing with this? I am taking Sunitnib in a clinical trial for metastasized thyroid cancer and am really having trouble with my feet. (Fortunately, my hands are fine.) Thanks for any suggestions. John
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I'm new
Hi my name is Debra and I was initially diagnosed in 1990. Had half out and the other half out in 2002. Can someone tell me when the chat is? Thankyou
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Tg is still 1,6
They took my whole Thyroid out and also on both sides 20 lymph nodes. After three Radio Active treatments my TG was still high (Tg 4,9 with TSH is <0,1). I received a PET scan where they found a last node of approximately 1 cm somewhere close to my lungs but not in my lungs. 2,5 months after the third surgery where they…
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scans
Thank you for your replies. I did GO back to the Dr in Sept. & because of my questions, the Dr ordered a throgen scan & thyroglobulin. Well, surprise, surprise! My thyroglobulin was always around. 0.6 & now is 5.1. UGH! He wants me to come back in 2 months for thyroglobulin without thyrogen. He said under 10 is not…
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Thyroxine (T4)
What are normal levels of Thyroxine (T4). I have been told that mine is 14.6 and that normal is anywhere from 5-12. Is this correct even with thyroid cancer patients? In 2/05 I had a total thryoid removal and later had radioactive iodine treatment. I was going to an endo, but was later told that my family doctor could…
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Thyroidectomy lead to Trachostomy
Has anyone ended up with a Trach due to something that went wrong with their thyroid? I'm new with the Trach and am looking for any body else in the same situation. I've tried searching the net & asking my speech therapist, but the Trach is always tied in with many other problems. So since mine started with a Throidectomy…
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how many times can you recieve RIA ?
I thought there was only so much someone could recieve I'm not sure if it is a measured amount or the number of doses.
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lump in cheek
I found a lump in my cheek in Jan 07 I've seen 3 doctors and gotten 3 different dx. I called my endo and he all of a sudden wants me to see a new doctor at the univ of chic my cheek bone has been hurting and the lump is now visable when looking at me. My thyroglobulin is not at 0 but still very low. Does anyone know if…
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7 years of papulary thyroid cancer
I was first diagnosed 7 years ago with papulary thyroid cancer. I was 12 weeks pregnant. I had a total thyroidectomy. Then when my son was 6 weeks old I had my first dose of radioactive iodine. Since then I've had 2 more surgerys and 1 more dose of radioactive iodine. My last blood test still showed thyroglobulin. My…
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Energy Levels and swallowing problems HELP Me Please..
I have a question and am hoping someone can help. In 2003 I was diagnosed with thyroid cancer. I had complete removal of my thyroid as well as several lymph nodes and neck muscles due to the size of the growth. Also my parathyroid was taken out cut up and put back into my neck in the hopes that it may decide to work again.…
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Interesting transcript and video - Dr. Tuttle
The following information has been shared courtesy of the Canadian Thyroid Cancer Survivors group, Thry'vors: "Members who attended the 2005 University of Toronto Forum on Thyroid Disease at Mount Sinai Hosptial had a lot of positive comments about the presentation made by Dr. Michael Tuttle (Memorial Sloan-Kettering…
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question about 2nd surgery
I am new to this,unfortunately, and I accidentally asked a question on someone's reply. I apologize. I had a thyroid nodule I have been watching for 8 years negative biopsies each time lulled me into a false sense of "no problem". After my last scan showed some things,we decided to go ahead and remove the node. It looked…
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???'s from a NEWBIE
I posted in another group (military) but think I'll have better luck with this more frequented site. I have deleted the VA/MIL specific questions, but if someone is mil. and can go to that post, I had quite a few specific questions. Following are more generalized questions pertinent to my Papillary Cancer and subsequent…
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my dad's cancer
my dad was diagnosed in march with medullary thyroid cancer which spread to lymph nodes, spine, pelvis and skull. he is getting 12 radiation treatments to his back and thyroid. Everything I've read shows surgery to be the first line of defense, but the surgeon said his tumor was wrapped around too many things and would be…