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Need some support
I have been diagnosed with papillary thyroid cancer. Had surgery for total thyroid removal (March 2003). The doctor took out 10 lymph nodes and 8 were infected with cancer. I have been through 2 radioactive iodine treatments. I am scheduled for my body scan in June. I just found 2 lumps in my neck. I went to go and see the…
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fvptc
I'm 49 just had a Thyroidectomy 3 weeks ago. Pathology was FVPTC .7cm which is good fuly encapsulated excellent prognosis. Anyone else out there? I had a terrific surgeon but my voice is still week, not sure when that will get better. My endo thinks I'm cured and do not need any RAI...Does this sound familiar???
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One Year Body Scan
Does anyone have any advice on how long I should isolate myself? I am having my one year body scan. I am taking thyrogen shots, a capsule and then having the scan two days later and another one two days later.
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i have lost control in my life! I feel alone!
I had my thyroid removed a year ago in Jan. they removed 3 lymph nodes in my neck, so I had to have the radioactive iodine tx. I was in nursing school and scared that I wouldn't make it! Now, I still am in the nursing progam and worried that my cancer will come back. Everyday I am scared to death that I will develop a…
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thyroglobulin levels
Hey everyone.....I have to go see my endo doctor in a few weeks. My thyroglobulin level was elevated...any idea what this means? I heard that if you have your thyroid out and are managed ok with medication that it should be very low.....presence of the hormone indicates malignant tissue. Just wondering what people know.
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thyroid cancer
Hi, I was diagnosed with Pappilary Cancer in may- I have had the surgery, and 1 dose of Radiation so far. I will get a scan in the beginning of 2001, to see if it is all gone. I am 28. I am concerned it may still be there, I have ear pressure, and odd looking things in my throat also sysptoms that made me go to the dr. In…
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Numbness several months after thyroidectomy
Hi, I'm 41 years old and had a total thyroidectomy to remove a 2.5 cm papillary carcinoma in Oct, 2004. I also had an RAI treatment and am now on Levoxyl 150 with no other meds. I recently began to experience occasional numbness near my right eye, around my entire mouth area, and on my right hand up to about my wrist. My…
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Surgery went well, but body crashed
This is my first time posting a message, so it might be long. My name is Barbara and I had a totol thyroid removal on Jan. 6,2004. I was in surgery for 4 hours.The doctor toldem my family that the cancer had spread so the whole thing had to come out plus some lymth nodes. I was released from the hospitalon Jan. 8 and told…
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cancer since 21
battle thyroid cancer for 20yrs and been through 6 surgery and 3 radition. i am still here with 2 children and going strong.
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IS RAI necessary?
Hi. This is all new to me. I am 38 and was diagnosed with papillary and medullary form of thyroid cancer. The cysts were found by accident during a MRI for neck pain. After 2 FNA's and a second opinion, I finally had a right lobectomy. It came back as cancerous (papillary)with two areas, one being small the other a little…
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3 Years later, lymph node involvement
I was diagnosed with Papillary Tyroid cancer in March of 2001, at 22 years old. I am now 25 and have just discovered that I may have lymph node involvement that was not there at the type of my total thyroidectomy in 2001. I am wondering if anyone else has ever experienced this, and how your treatment went? I am waiting to…
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Diagnosed 3 days ago...need advice and positive thoughts!
Hi, everyone! I just found out 3 days ago that I have papillary carcinoma in my thyroid. I am so stressed and upset...and scared. Just wanted to talk to others about their experience and maybe get some positive support. Here's my story... I am 38 years old, mother of four great kids, a wife, and a nurse. I have had an…
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Salivatory gland radiation damage / Anyone
I had a total thyroidectomy & partial neck dissection 2-03, I received 2 large doses of I131 last year, in Oct 03 I was diagnosed cancer free (yea), about 7 months ago I started having problems with constant dry mouth and swelling in the neck when eating, I visited an ENT and he advised me that I probably had radiation…
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I am struggling one year later
Hi, I am new to this site. I was diagnosed with thyroid cancer January 2008. Had surgery, RAI, and now am a year out. I am just so frustrated that I have to go thru more checkups a year later, esp. off thyroid for a month, then RAI, then body scan. I just want to say it's done and be over. I am so frustrated I have to go…
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I'm tired and need to vent!!!
I was first diagnosed when I was 13 years old back in 1984. I was the second youngest person in the US to be diagnosed. I had surgery and they could tell I had probably had the cancer for 6 or 7 years because my thyroid felt apart when they tried to remove it as well as 3 lymph glands. I had a week or two of testing at…
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second scan and it came back positive
Ok I need help!!!! lol I had my thyroid taken out last year in Nov. Went through the diet and had my treatment. So now its 6 months and I had my 6 months scan, went back on the diet and had my scan and it came back posative. aaaawwwwww So now I had to start the diet again and off my meds to get my treatment again on the…
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nodule found on thyroid
Hello, Two years ago, I was diagnosed with squamous cell carcinoma in situ on the right vocal chord.I was luck because they caught it early and surgery was all I had to have done. Well, at my two year check-up I told my doctor that I had been having alot of aching in my neck, jaw and ear. I pushed for him to do a CAT-scan…
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Rollercoaster ride
I was diagnosed with toxic multinodular thyroid one and a half years ago, after having a radioactive scan, I was told that I was not a candidate for RAI, nodules would not take up radiation effectively. I had to stop my meds-levoxyl and was told they could not do any needle biopses and cancer was extremely unlikely. I have…
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RadioActive Iodine treatment
I recently had the left side of my thyroid removed, found out it was cancerous, and a week later had the right side taken out. I am planning on doing the radioactive iodine treatment in Februaury '06. Can anyone give me insight as to just how tired/weak I'll be during the 2 weeks prior to treatment when I go off the…
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Surgery scheduled next Thursday...lots of questions!
Hi, everyone. Went to the ENT yesterday, and they got me in for surgery next Thursday. I'm so relieved it's so soon. I have a few questions from all you experienced survivors! The surgeon said that he will take out the right side of my thyroid where the nodule is and confirm if it's cancer or not (the biopsy was positive…
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synthroid--
I posted a "clip" recently regarding being dianosed with thyroid cancer, having a total thyroidectomy, cytomel, and now this is an update. I have seen an endocronolist recently, stopped taking Cytomel, and will have a thyroid scan this week to determine cell activity and have the radioactive process. I will return back to…
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Please Help
I need some advise and help. I am having lung surgery on Jan 5th for a nodule of unknown type as of yet. I am praying it is thyroid! Now my question is does anybody know why I feel so terrible while on my synthroid and feel so wonderful when off of it and just taking cytomil??? Please if anyone can tell me and let me know…
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14 Months After Thyroidectomy
My thyroid was removed due to papillary cancer in April 2008. I am currently taking 275! mcg of synthyroid. When I told my endo 3 weeks ago that I feel cruddy, I had a blood panel done and everything is in the normal range. Reading other posts I feel a little discouraged that this feeling of fatigue is so common amongst…
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Is it ok to wait?
I recieved my biopsy results yesterday. I have papillary cancer in the thyroid. The surgeon who did the biopsy is a general surgeon and I have heard pos and neg about him neither of which involved thyroid surgery. The hospital he is out of really doesn't have an endocrine dept. so I am leery of using him. On the other hand…
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A little discouraged newbie here **Update**
** UPDATE-DECEMBER 4 2009** The final DX- Hurthle Cells Adenoma- all seven lymph nodes and whole thyroid were removed and showed not cancerous. The sonogram originally showed 2 CM mass on right thyroid but after surgery it showed 3 CM. I am now on 137 mg Lev and vitamin D 50,000. Vitamin D works great for me and there are…
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papillary rcurrance
Definately need feedback recently underwent second surgery for recurrant thyroid cancer of the lymphnode. After surgery biopsy said negative for any cancer. Drs are bewilldered as am I. now they want to do a full body scan to find it as they don't really seem to know where it is located this time around. lung nodule showed…
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Curious about Cytomel & RAI
I was recently diagnosed with papillary cancer and have had a total thyroidectomy in 09/04. I am currently taking Cytomel for 3 weeks and then am supposed to go off of it for a week before my RAI. My oncologist did not give me any idea of how I should expect to feel over the next 3 weeks while I am on Cytomel or how I will…
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Trouble with meds
I was diagnosed with papillary carcinoma with follicular variant in Feb. 2004 followed by 150mci I-131 in April 2004. I had my 1st yearly whole body scan in March. Prior to the scan (January) my Free T4 levels had increased from 1.2 to 1.8. My doctor said that after my scan I would go from .175 synthroid to .150. I was a…
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Craving Ckicken Kitchen? Come see
I've been craving lots of foods right.. who does not? with this diet!! I was craving Chicken Kitchen an this how I got as closed as I could and still being faithful to the diet Mexican Chop Chop Yellow Rice, Lettuce, tomatoes, Guacamole, chicken, Sour Cream and cheese of course were avoided. Lettuce and tomatoes you can…
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Radio Active Iodine Treatment
Does anyone know the normal dose of RAI Radio Active Iodine Treatment that is given for thyroid cancer? I was given 153. I'm trying to find out if this dosage is high. It's been less than a year since I had the RAI treatment. Since late March of this year and I have been in a great deal of pain in the jaw area. It all…