-
Salivary Gland pain months after RAI
Hi everyone. It's been awhile since I posted anything but now I'm having more issues! I had RAI about 5 1/2 months ago and my salivary glands hurt SO bad! This just started a week ago. My Endo looked surprised and said it couldn't be because of the radiation and to just take some Advil. Of course whenever something is…
-
Ultrasound done/now awaiting FNA
I received my ultrasound results and driving myself insane. I am driving myself crazy with research and just wondering if anyone can give me their impression of my test results. I have a FNA scheduled but it's 2 weeks away. Any help and insight would be great to see if this is possibly cancerous or most likely to be…
-
Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
-
meds not working
Hello all! I'm hoping someone can give me some advice on this. I have been feeling extremely hypothyroid ever since my RAI over a year ago. I have had my meds increased 4 different times. Now, my doctor says my TSH level is normal....but, I am constantly freezing. I keep a blanket at work to wrap up in. I am always…
-
Help please
good day guys ... I've got thyroid cancer ( papillary ) and a total thyroid surgery was done to me on 12-Dec-2013, my thyroif was removed and three lymph tissues were removed ( only one was involved ) and because of the situation of my country is unstable I was given an appointment for RAI ( radioactive iodine ) dose in…
-
Alternatives to RAI?
I am a new mom and recently diagnosed with thyroid cancer. I am getting ready to have the left side of thryoid removed, the right side was previously removed before the cancer was confirmed. My baby is only 6 months old and th eonly night I have spent away from her was the night required to stay in the hospital after the…
-
Looks like it's back.
So I had a TT and partial neck dissection in May 2008, papilary with a folicular variant, 20 lymph nodes removed, 5 positive for cancer. 7 weeks of ebrt and then RAI 131. Had 2 clean follow up scans and bloodwork twice a year at first then once. Switched to the new blood tests last year that measure a much smaller level of…
-
Papillary Carcinoma last year and now Breast Cancer
Has this happened to anyone else? Are the two somehow related? Does this mean chemo and radiation sine is is my second type of cancer? Should I be concerned that there are other types of cancer in my body that are undetected? So many questions and "why me". Other than that I am in the peak of health.... ugh so frustrating…
-
Keeping hyperthyroid to avoid cancer
I had both follicular and papillary thryoid cancer about 12 years ago. at that time the frozen section showed no cancer so only the left side removed. The final results showed the cancer .Fast forward to 3 years ago and new nodules were found and the remaining thyroid removed. It was not cancer. I was put on the lowest…
-
No Cancer yet, but plenty of questions...
I posted in another forum with the post below and someone referred me to this website. I was wondering if ANYone had any input, personal experiences or just thoughts on what I might expect. I know the statistics of thyroid cancer, I researched them all while waiting for my husbands prostate cancer surgery to finish, I just…
-
Anxiety with synthroid
Has anyone experienced high anxiety with synthroid? What did you experience, and at what point were you able to change your dose? My doc wants to keep me hyper 'for as long as [I] can stand it', but I swear that the anxiety just is so weird.
-
delayed but finally here
hello everyone.
-
Where Is Everybody?
I was wondering why this site has been so dead,where is everybody for some understanding and support?
-
scared for mom
My mother is actually my topic of concern. She was diagnosed a few years ago with thyroid cancer. We took out her thyroid and she underwent the iodine treatment. Cancer markers have been good since, but three months ago, she suffered a bowel perforation as a complication from a spinal fusion surgery. She was septic for two…
-
I HAVE A DREAM...
...that one day we will have a pink heart shaped pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
-
Forming a support network for people with papillary thyroid cancer lung metastases
New I'm a 12+ year survivor (since 2001) of stage IV papillary thyroid cancer with lung metastases, first seen in 2005; and want to be in touch with other thyroid cancer patients with lung metastasis. I feel an uncomfortable level of tightness in my chest with some shoulder and arm pain. My wonderful doctor thinks part of…
-
online support group for Thyroid cancer that want to chat
I have recurrance of palpillary thyroid cancer, radiation therpy etc...just want to get a group chat started to talk to about daily things... I need to get my mind out there and learn about other types of treatment options....love to hear your story....
-
recurrent papillary thyroid cancer
I developed papillary thyroid cancer in November of 1999. Since then, I have undergone 4 surgeries, 2 I131 treatments, 8 weeks of external radiation, and numerous CAT and PET scans. The cancer spread, due to lack of medical supervision and knowledge, to my right lung. This is rare for stage 4 papillary thyroid cancer. I…
-
Partial Neck Dissection
A little back story, I was diagnosed with papillary micro-carcinoma in 2010. After I had the left lobe of my thyroid removed. Upon finding the bit of cancer I made the decision to go ahead and remove the right lobe as well. More cancer in the right side. Going on four years. At my last checkup my thyroglobulin levels were…
-
CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
-
preparation for RAI: total withdrawal from Synthroid..or..Thyrogen
My TT was two months ago. They found cancer in both sides of the thyroid, but none in the lymph nodes. But, to be safe, the Dr has scheduled RAI for me Feb 2. In preparation for the RAI, I am scheduled for a month of low-iodine diet while at the same time going completely off the Synthroid so that I am completely…
-
Any advice before RAI treatment???
Hi, I am 3 weeks post completion thyroidectomy for papillary ca. Basically feeling good, I am an athlete.....continuing with my running etc (sometimes feeling like I'm in slow motion . I have been off the Cytomel now for over a week and my RAI is on the 11th of January. I would appreciate any advice from those who have…
-
Radiation treatment, what to expect?
Hello, my name is John. This is the first time that I've posted anything on this site but I figured that it might be a good place to seek some input. I imagine that are more than a few here with similar experience. I was was originally diagnosed with medullary thyroid cancer in May 2010. Was treated with surgery at…
-
Anaplastic Thyroid Cancer
Anyone have info, more than the on line definitio?. My brother-in-law was recently diagnosed. Donna
-
Sonogram
I had my first post-operative sonogram on 12/5/2012 and unfortunately the results aren't as sclean as I would like. Two nodes were found to be abnormally large, both in my right neck. One at level IV which was round and 3mm which doesn't "demonstrate a fatty hilum" and one at level VI which was oblong 4mm x 3mm and does…
-
Prognosis with large tumor
I just found out I have a 6.3 cm and 4.4 cm thyroid tumors/nodules. Why are they called nodules not tumors? Meeting with a surgeon tomorrow for the first time. In addition to the size issue the big brother is pushing against the trachea. Also, there is a low density mass attached to the large guy. Wonder what that is all…
-
Im a professional singer its all ive ever loved and done post thyroidectomy and i cant sing
I Cant sing I am devastated beyond words, there was no vocal nerve damage I can only figure its due to muscle damage from my muscles being cut to get my thyroid out? I have alot of people depending on me producers,songwriters,musicians and charities I am scheduled to do a huge event in sept for our troops and I dont know…
-
Going Hypothyroid for test & I am not sure if these symptoms are common
Hi I was diagnosed with Thyroid cancer last month, had 2 surgeries within 3 weeks and feel not so great. I did have meds that were good and helped but now I am in the process of going Hypo as they say for a test and scan. I went for blood tests for the scan but they said I wasnt HYPO ENOUGH. Go figure. It has been almost a…
-
Hypothyroidism
Hello, I am not a thyroid cancer patient, in 2009 I had stage 3 laryngeal cancer. Had chemo and radiation to the head and neck area. Earlier this year I got badly constipated and suffered great fatigue and achy feelings in my legs. My doctor tested my thyroid and it was showing hypothyroidism, I was told after the…
-
Connection between TT and neuropathy?
I had a TT in July 2010 and RAI in August 2010. Soon after I started having peripheral neuropathy in feet and more recently in hands. According to doctors and much testing, it is non-diabetic neuropathy without cause. Has anyone else experienced neuropathy following TT. My TSH levels are good, although I also experience…