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Medullary Thyroid Cancer Questions
First, sorry for so many questions but I am curious as to symptoms others have had with this. I am new to this site and at this point there is only a suspicion of this Medullary Thyroid cancer and Pheochromocytoma...I have some questions and would very much appreciate any sharing of knowledge. At time of diagnosis for…
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MEDULLARY THYROID CANCER
I have been enduring this cancer for just over 3 years and two surgeries and yet still have a rise in Casltonin numbers. Anybody else having issues finding out any new stats on MTC and where I am in the process. My doc says he wants to do these tests and a week later no answers or calls. I wonder any other people over 50…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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life after thyroid cancer
Hey all I am sure everyone has talked about this, but i need someone else to talk to besides my family. It was May of 2013 that i went to the doctor because I found a mass in my neck. I was talking to one of my friends about a mass that I found in my neck and asked him if it was normal. He said that is for sure not normal.…
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Papillary thyroid CA. Enlarged tongue
I will have surgery next week because I have thyroid cancer. My tongue feels too large for my mouth. I actually have to curl it behind my lower teeth to avoid protrusion and it causes difficulty swallowing. Is this part of the thyroid cancer or should I be looking into other causes?
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Has anyone had success with weight loss after total Thyroidectomy ?
Hi everyone, I had total thyroid removal and I-131 radioactive iodine 18 months ago (4cm tumor and lymph node removal - stage 4). I have gained 70 pounds in the last 18 months....and still gaining. Endo and Primary dr's say I am hyperthyroid since Tsh (?) levels so low..."should be losing weight". Cardiologist says I have…
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Newly discovered nodules
I had a partial thyroidectomy way back in 1992 at the ripe old age of 28. I was told it was late stage I/early stage II and probably would never have further issues with it, which is pretty much true, I think. I had an MRI on the neck and shoulder two weeks ago at my urging since I've been having a LOT of pain that has…
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Papillary Tyroid Cancer, without any symptoms, must I have surgery?
Hi, I'm 39. I was told that I had Papillary Thyroid Cancer last week. It was found by the examination (X-ray) before my ovarian surgery 3 weeks ago. Strangely I don't feel any pain or something unsual around my neck. The doctor told me I had to get Total Thyroidectomy and I would have to live with breathing tube in my neck…
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Hearing/Vision Loss after I-131 treatment
Almost immediately after radioactive treatment following removal of my thyroid due to malignant tumor, I noticed a marked change for the worse in vision and hearing. During subsequent hearing test ordered by my primary care doc, audiologist mentioned in an off-hand remark that sometimes the kind of medication used for the…
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Late Onset Swallowing Disorder from Radiation
My dear husband (aged 70) was diagnosed with thyroid cancer 9 years ago. Over the next 2 years, had 3 surgeries (kept recurring), then chemo, then external radiation. He had to have a feeding tube put in after external radiation for 6 months because of the burns to his throat. Also had 2 radioactive iodine treatments along…
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One week in.
I had my first opreation last Monday for thyroid nodules and an enlargened ademnoma. I had the right side thyroid lobe removed, and all was well. Tuesday I was home recoering nicely, and the phone rang and it was my surgeon, and he said the labs came back with a small amount of cancer from on of the nodules. The choice was…
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Thyroid Nodule Biopsy today!
So one year and a half ago my doctor noticed my neck was swollen had an ultrasound ordered and noticed tiny nodules just mm in size. I saw a new Endocrinologist who looked over my past Ultrasounds, one taken again in September of 2013 and one prior to that in June 2013. I saw her in December 2013 so she ordered a check-up…
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Pazopanib
Has anyone with thyroid cancer been treated with pazopanib? If so please share your experiences and results. I am also BRAF positive. I will be starting this drug this coming September after my ct scan. Thank you And God Bless Hannah
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Lab Results
Hello, My TSH is 0.30, T-4 is 1.2, and Thyrolglobulin is 0.1. Can someone tell me what they thinks this all mean? Thanks.
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Once TSH levels return to normal, how long do symptoms persist?
Hi All, I don't have thyroid cancer, but have survived stage III melanoma (2003), stage III NSLC lung cancer (2008). Last November I was diagnosed with stage IV esophageal cancer. I am being treated for that now. Initially my oncologist ruled out any radiation for the EC because I had received max doses in the neck and…
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Salivary Gland pain months after RAI
Hi everyone. It's been awhile since I posted anything but now I'm having more issues! I had RAI about 5 1/2 months ago and my salivary glands hurt SO bad! This just started a week ago. My Endo looked surprised and said it couldn't be because of the radiation and to just take some Advil. Of course whenever something is…
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Ultrasound done/now awaiting FNA
I received my ultrasound results and driving myself insane. I am driving myself crazy with research and just wondering if anyone can give me their impression of my test results. I have a FNA scheduled but it's 2 weeks away. Any help and insight would be great to see if this is possibly cancerous or most likely to be…
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Spam Emails
We have been made aware of another round of spam emails being sent to users. While we try to have security in place to handle such emails, we cannot always catch them all. If you have received an email asking for money, please do not respond to the email or the private email address that was given by the sender. Please…
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meds not working
Hello all! I'm hoping someone can give me some advice on this. I have been feeling extremely hypothyroid ever since my RAI over a year ago. I have had my meds increased 4 different times. Now, my doctor says my TSH level is normal....but, I am constantly freezing. I keep a blanket at work to wrap up in. I am always…
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Help please
good day guys ... I've got thyroid cancer ( papillary ) and a total thyroid surgery was done to me on 12-Dec-2013, my thyroif was removed and three lymph tissues were removed ( only one was involved ) and because of the situation of my country is unstable I was given an appointment for RAI ( radioactive iodine ) dose in…
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Alternatives to RAI?
I am a new mom and recently diagnosed with thyroid cancer. I am getting ready to have the left side of thryoid removed, the right side was previously removed before the cancer was confirmed. My baby is only 6 months old and th eonly night I have spent away from her was the night required to stay in the hospital after the…
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Looks like it's back.
So I had a TT and partial neck dissection in May 2008, papilary with a folicular variant, 20 lymph nodes removed, 5 positive for cancer. 7 weeks of ebrt and then RAI 131. Had 2 clean follow up scans and bloodwork twice a year at first then once. Switched to the new blood tests last year that measure a much smaller level of…
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Papillary Carcinoma last year and now Breast Cancer
Has this happened to anyone else? Are the two somehow related? Does this mean chemo and radiation sine is is my second type of cancer? Should I be concerned that there are other types of cancer in my body that are undetected? So many questions and "why me". Other than that I am in the peak of health.... ugh so frustrating…
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Keeping hyperthyroid to avoid cancer
I had both follicular and papillary thryoid cancer about 12 years ago. at that time the frozen section showed no cancer so only the left side removed. The final results showed the cancer .Fast forward to 3 years ago and new nodules were found and the remaining thyroid removed. It was not cancer. I was put on the lowest…
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No Cancer yet, but plenty of questions...
I posted in another forum with the post below and someone referred me to this website. I was wondering if ANYone had any input, personal experiences or just thoughts on what I might expect. I know the statistics of thyroid cancer, I researched them all while waiting for my husbands prostate cancer surgery to finish, I just…
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Anxiety with synthroid
Has anyone experienced high anxiety with synthroid? What did you experience, and at what point were you able to change your dose? My doc wants to keep me hyper 'for as long as [I] can stand it', but I swear that the anxiety just is so weird.
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delayed but finally here
hello everyone.
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Where Is Everybody?
I was wondering why this site has been so dead,where is everybody for some understanding and support?