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Long term survivors after recurrence?
Anybody out there who is a long time survivor after papillary thyroid recurrence? I had my TT in 2000, over 13 years ago when I was 23. They found 2/3 perithyroid lymph nodes positive and 9/10 left paratracheal/mediastinal lymph nodes positive. Had radioactive iodine and have been good for a long time. I thought I was…
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Difference between Thyrin and Levothyroxine
My endo has recently changed my brand. I am so confused with the one i got from the pharmecy. i need to reduce to .75Mcg. so i need to take one ,50 and another ,25 Mcg pills. the name that my endo gave is Levothyroxine -(thyrin 50) and (thyrin-25). but the one i got from pharmecy saying Euthyrox 50, and 25 (Levothyroxine…
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Thyroglobulin
I had a TT in 2007 . Papillary. Two bouts of RAI. My thyroglobulin has been negative. Now my doctor wants. Me to have an ultrasound and thyrOgen injection blood test. Is this normal . If I'm already negative why should I go through more testing. please advise :) )
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15 lymph nodes removed - tingling in neck and face - HELP
17 years ago I had papillary thyroid cancer. 3 months ago I had a reoccurance and had 15 lymph nodes removed from left side of neck. I have had not only the numbness from check bones down to chest, but also tingling. Tingling like when dentist novicaine wears off, irritating and painful. Every day I wake up to these…
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Is there anything I can do to help my synthroid Rx work better after total thyroidectomy?
I had a total thyroidectomy four years ago. My dosage has been changed from time to time and now my levels show that I may be on the hyper side and my dosage may be too high but my symptoms of fatigue, memory loss, fuzzy thinking and constipation imply that I am hypo. I am going through menopause for the past year and I…
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TT Post Op Surgery Complications - Shortness of Breath/Parathyroid damage Concerns
Diagnoised with Papillary Carcinoma (3wks ago). TT on May 28th along w/removal of some lymph nodes. One of my vocal nerves was damaged (can only talk a lil above a whisper), can this cause shortness of breath (out of breath if I do too much talking or walking)? I was told it was repaired during surgery. I am on 3000mg of…
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have had ultrasound and FNA now doctor wants blood work
I am sure that I am over reacting but doctor found nodule on thyroid then sent me for ultrasound then those test concluded that I needed an FNA with ultrasound well they now have those results but won't give them to me and all they would say is I now have to go for blood work and I can call in a day or so to find out what…
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Anyone with info about DCA in thyroid cancer
Hey there! I was diagnosed with metastatic papillary thyroid cancer 4+ years ago. I have been through many trial drugs, surgeries, and radiations. I was looking for information about the drug DCA. I have read great things about it, but you never know when it's outside of the US and most doctors here won't even acknowledge…
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Possible thyroid cancer or lymphoma :(
Hi everyone- Well, for over a year now I've had a rounded lump on the left side of my neck. I'd always assumed it was a swollen lymph node and didn't really pay any attention to it. About 2 months ago it occured to me just how long I'd had it and went to the Dr and wound up having an ultrasound done, they also looked at my…
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Hurthle Cell Adenoma
My husband was recently diagnoised with Papillary carcinoma with Hurthle Cell adenoma. His right thyroid has been removed and the pathology report came back with the before mentioned diagnoisis. It was also discovered on ultra sound that there is a nodule, about 6mm in his left thyroid, that the endocrinologist wants to…
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Mother in law diagnosed with Anaplastic thyroid cancer
They first thought she had developed a new cancer (sarcoma) but the oncologist had pathology look at it again and it was determined that her papillary thyroid cancer turned into ATC. I'm so upset. I hope she can beat this.
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follow up testing.
Had TT in Feb 2011, followed by RAI .... had one WBS right after RAI treatment. since then, I have had only ultrasounds, and thyroglobulin test. No stimulated thyroglobulin, in other words, I have not gone hypo or had thyrogen shots. Is this the norm with you guys??? I had malignancy in both sides of thyroid, and 4 of 19…
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RAI effect on possible throat cancer?
I had a hemithyroidectomy Oct. 2010 w/ papillary microcarcinoma, followed by completion thyroidectomy June 2013. RAI scheduled this month. I have had problems getting a definitive diagnosis of whether my throat/neck problems (which are worsening since Jan. 2012) are due to a) throat cancer, or b) residual thyroid cancer. I…
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Coughing after thyroidectomy
Hello, I just had my thyroid removed last Friday due to Hashimotos & goiter and found out today that there were cancer cells in it. Luckily they were small so I don't need the Chemo or Radiation treatments. I do have one question though. Since the day I woke up I have had this nagging cough that will not go away. Has…
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16th Int'l Thyroid Cancer Survivor's Conference, 9/27-29
Anyone out there planning to attend this year's Thyroid Cancer Survivor's Conference in Philadelphia (Sept 27-29)? I've never been before but have heard it's quite good. I'm planning to be there. Doctors, researchers, and other professionals provide updates and information for thryoid cancer patients and caregivers. For…
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Zelboraf (Vemurafenib)
Has anyone with thyroid cancer that is resistent to RI-131 treatment ever been treated with Zelboraf? If so, please let me know your experience and results. Thanks,Bill
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Synthroid
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1st appointment with Surgeon this Friday
I was recently diagnosed with Thyroid Cancer and see the surgeon this Friday. I have multiple nodules on both sides, some over 1.5cm. The smaller of the large one's was the one with cancer, and I am not sure if they are taking one side or both. I am 32, have a 7 year old, and am a bit nervous about the whole thing. I also…
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Results
Had my thyroid removed in July due to pallimary cancer. I haven't seen a endo yet my appointment is in October. I was prescribed 100 mcg of levothyroxine after surgery. Just got my first blood work back. My Free T4: 1.2 and TSH: 0.065. Doctor thinks that is to low. She changed it 88mcg I only weigh about 118 is this a…
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Newly diagnosed/rai treatment soon
Hi, I was recently diagnosed at the end of july, thyroidectomy 3 weeks ago yesterday. rai treatment next fri. I had some questions if anyone can answer. first, i keep asking my surgeron about the low iodine diet. He keeps shaking his head no. Never tells me why when all I read are people going on this before RAI. I am not…
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What can I do to help?
Hello all, My mom was diagnosed with Papillary Thyroid Cancer and had her thyroid removed 2 weeks ago Tuesday. She got the news today that the cells were indeed cancerous, and is going to have to do the radioactive iodine treatment. I'm just curious as to what i can do to help her through this frightening time in her life.…
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Constantly sick before and after thyrod cancer.
I was diganosed with thyrod cancer when I was 19, before the cancer i was ALWAYS sick, every month twice a month i was in and out of the er. The doctor believed it was because of my cancer. But now being 22 years old. I'm still in and out of the er. twice a month maybe more. I'm always tired and always sick. every time i…
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Someone please help!
I am 5 years post TT, papillary cancer, blood tests early in the year showed a rise in TG and thyroglobulin levels and an ultrasound showed tissue where there wasn't supposed to be any and enlarged lymph nodes. In April of 2013 I went through RAI teatment. I had all the side affects possible. I am currently 6 weeks post…
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I-131 and Getting Pregnant
On Feb 6th, 2013 I had a total Thyroidectomy, and in March I believe I had 132 of the I-131. I stayed in the Hospital for 2 nights and away from everyone for an additional 3 days. Now I'm almost 6 months out, and have been told that I need to do a follow-up treatment which include the Thyrogen injections so I do not have…
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Follicular Annual Testing
Those of you that had follicular Thyroid Cancer, I'm wondering what you do annually to follow up?
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5 months post op (papillary carcinoma)..new nodule appeared. Worried
12/2012 I had robotic surgery to remove a thyroid nodule from the isthmus. The rest of my thyroid looked ok, so the only part that was removed was the nodule on my isthmus. I was told that I was at very little risk of it being cancer; in January at my follow up appointment I was told that I had papillary carcinoma. My doc…
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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New Thyroid Cancer Diagnosis
Hello to all, I have recently been diagnosised with Thyroid Cancer. My surgery will be in two weeks. Could someone that had surgery to remove their thyroid tell me what the recover time line was? How long before you could go back to work comfortably, I have a sit down job. Also how long before they start the radioactive…
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TT Post Op - Tingling in Hands/Arms/Feet
Had TT surgery 5-28-13 (Diag. w/Papillary cancer), exper. many complications (nerve damage, inability to speak above a whisper, and extreme fatigue). My Dr. has checked my calcium levels 3 different times and yet I am still experiencing muscle spasms, tingling of hands/arms/feet/face (was placed on Calcium pills w/Vitamin…
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Hurthle Cell Carcinoma, best Dr.s???
I was diagnosed with stage 3 Hurthle Cell Carcinoma 2 1/2 years ago. I may have recurrence. There is a growth in my thyroid bed that my surgeon is hesitant to remove. I would like a second opinion. MD Anderson and Sloan Kettering are on the top of my list. Any referrals?