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I HAVE A DREAM...
...that one day we will have a pink heart shaped pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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Forming a support network for people with papillary thyroid cancer lung metastases
New I'm a 12+ year survivor (since 2001) of stage IV papillary thyroid cancer with lung metastases, first seen in 2005; and want to be in touch with other thyroid cancer patients with lung metastasis. I feel an uncomfortable level of tightness in my chest with some shoulder and arm pain. My wonderful doctor thinks part of…
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online support group for Thyroid cancer that want to chat
I have recurrance of palpillary thyroid cancer, radiation therpy etc...just want to get a group chat started to talk to about daily things... I need to get my mind out there and learn about other types of treatment options....love to hear your story....
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recurrent papillary thyroid cancer
I developed papillary thyroid cancer in November of 1999. Since then, I have undergone 4 surgeries, 2 I131 treatments, 8 weeks of external radiation, and numerous CAT and PET scans. The cancer spread, due to lack of medical supervision and knowledge, to my right lung. This is rare for stage 4 papillary thyroid cancer. I…
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Partial Neck Dissection
A little back story, I was diagnosed with papillary micro-carcinoma in 2010. After I had the left lobe of my thyroid removed. Upon finding the bit of cancer I made the decision to go ahead and remove the right lobe as well. More cancer in the right side. Going on four years. At my last checkup my thyroglobulin levels were…
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CSN study FAQ
Please excuse the long post. A number of members have posed questions on the discussion boards or emailed me for more information about the CSN study that has been underway since November 2013. I thought it might be helpful to post the most common questions and my answers. What is the CSN survey? What is its purpose? The…
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preparation for RAI: total withdrawal from Synthroid..or..Thyrogen
My TT was two months ago. They found cancer in both sides of the thyroid, but none in the lymph nodes. But, to be safe, the Dr has scheduled RAI for me Feb 2. In preparation for the RAI, I am scheduled for a month of low-iodine diet while at the same time going completely off the Synthroid so that I am completely…
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Any advice before RAI treatment???
Hi, I am 3 weeks post completion thyroidectomy for papillary ca. Basically feeling good, I am an athlete.....continuing with my running etc (sometimes feeling like I'm in slow motion . I have been off the Cytomel now for over a week and my RAI is on the 11th of January. I would appreciate any advice from those who have…
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Radiation treatment, what to expect?
Hello, my name is John. This is the first time that I've posted anything on this site but I figured that it might be a good place to seek some input. I imagine that are more than a few here with similar experience. I was was originally diagnosed with medullary thyroid cancer in May 2010. Was treated with surgery at…
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Anaplastic Thyroid Cancer
Anyone have info, more than the on line definitio?. My brother-in-law was recently diagnosed. Donna
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Sonogram
I had my first post-operative sonogram on 12/5/2012 and unfortunately the results aren't as sclean as I would like. Two nodes were found to be abnormally large, both in my right neck. One at level IV which was round and 3mm which doesn't "demonstrate a fatty hilum" and one at level VI which was oblong 4mm x 3mm and does…
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Prognosis with large tumor
I just found out I have a 6.3 cm and 4.4 cm thyroid tumors/nodules. Why are they called nodules not tumors? Meeting with a surgeon tomorrow for the first time. In addition to the size issue the big brother is pushing against the trachea. Also, there is a low density mass attached to the large guy. Wonder what that is all…
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Im a professional singer its all ive ever loved and done post thyroidectomy and i cant sing
I Cant sing I am devastated beyond words, there was no vocal nerve damage I can only figure its due to muscle damage from my muscles being cut to get my thyroid out? I have alot of people depending on me producers,songwriters,musicians and charities I am scheduled to do a huge event in sept for our troops and I dont know…
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Going Hypothyroid for test & I am not sure if these symptoms are common
Hi I was diagnosed with Thyroid cancer last month, had 2 surgeries within 3 weeks and feel not so great. I did have meds that were good and helped but now I am in the process of going Hypo as they say for a test and scan. I went for blood tests for the scan but they said I wasnt HYPO ENOUGH. Go figure. It has been almost a…
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Hypothyroidism
Hello, I am not a thyroid cancer patient, in 2009 I had stage 3 laryngeal cancer. Had chemo and radiation to the head and neck area. Earlier this year I got badly constipated and suffered great fatigue and achy feelings in my legs. My doctor tested my thyroid and it was showing hypothyroidism, I was told after the…
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Connection between TT and neuropathy?
I had a TT in July 2010 and RAI in August 2010. Soon after I started having peripheral neuropathy in feet and more recently in hands. According to doctors and much testing, it is non-diabetic neuropathy without cause. Has anyone else experienced neuropathy following TT. My TSH levels are good, although I also experience…
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Long term survivors after recurrence?
Anybody out there who is a long time survivor after papillary thyroid recurrence? I had my TT in 2000, over 13 years ago when I was 23. They found 2/3 perithyroid lymph nodes positive and 9/10 left paratracheal/mediastinal lymph nodes positive. Had radioactive iodine and have been good for a long time. I thought I was…
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Difference between Thyrin and Levothyroxine
My endo has recently changed my brand. I am so confused with the one i got from the pharmecy. i need to reduce to .75Mcg. so i need to take one ,50 and another ,25 Mcg pills. the name that my endo gave is Levothyroxine -(thyrin 50) and (thyrin-25). but the one i got from pharmecy saying Euthyrox 50, and 25 (Levothyroxine…
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Thyroglobulin
I had a TT in 2007 . Papillary. Two bouts of RAI. My thyroglobulin has been negative. Now my doctor wants. Me to have an ultrasound and thyrOgen injection blood test. Is this normal . If I'm already negative why should I go through more testing. please advise :) )
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15 lymph nodes removed - tingling in neck and face - HELP
17 years ago I had papillary thyroid cancer. 3 months ago I had a reoccurance and had 15 lymph nodes removed from left side of neck. I have had not only the numbness from check bones down to chest, but also tingling. Tingling like when dentist novicaine wears off, irritating and painful. Every day I wake up to these…
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Is there anything I can do to help my synthroid Rx work better after total thyroidectomy?
I had a total thyroidectomy four years ago. My dosage has been changed from time to time and now my levels show that I may be on the hyper side and my dosage may be too high but my symptoms of fatigue, memory loss, fuzzy thinking and constipation imply that I am hypo. I am going through menopause for the past year and I…
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TT Post Op Surgery Complications - Shortness of Breath/Parathyroid damage Concerns
Diagnoised with Papillary Carcinoma (3wks ago). TT on May 28th along w/removal of some lymph nodes. One of my vocal nerves was damaged (can only talk a lil above a whisper), can this cause shortness of breath (out of breath if I do too much talking or walking)? I was told it was repaired during surgery. I am on 3000mg of…
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have had ultrasound and FNA now doctor wants blood work
I am sure that I am over reacting but doctor found nodule on thyroid then sent me for ultrasound then those test concluded that I needed an FNA with ultrasound well they now have those results but won't give them to me and all they would say is I now have to go for blood work and I can call in a day or so to find out what…
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Anyone with info about DCA in thyroid cancer
Hey there! I was diagnosed with metastatic papillary thyroid cancer 4+ years ago. I have been through many trial drugs, surgeries, and radiations. I was looking for information about the drug DCA. I have read great things about it, but you never know when it's outside of the US and most doctors here won't even acknowledge…
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Possible thyroid cancer or lymphoma :(
Hi everyone- Well, for over a year now I've had a rounded lump on the left side of my neck. I'd always assumed it was a swollen lymph node and didn't really pay any attention to it. About 2 months ago it occured to me just how long I'd had it and went to the Dr and wound up having an ultrasound done, they also looked at my…
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Hurthle Cell Adenoma
My husband was recently diagnoised with Papillary carcinoma with Hurthle Cell adenoma. His right thyroid has been removed and the pathology report came back with the before mentioned diagnoisis. It was also discovered on ultra sound that there is a nodule, about 6mm in his left thyroid, that the endocrinologist wants to…
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Mother in law diagnosed with Anaplastic thyroid cancer
They first thought she had developed a new cancer (sarcoma) but the oncologist had pathology look at it again and it was determined that her papillary thyroid cancer turned into ATC. I'm so upset. I hope she can beat this.
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follow up testing.
Had TT in Feb 2011, followed by RAI .... had one WBS right after RAI treatment. since then, I have had only ultrasounds, and thyroglobulin test. No stimulated thyroglobulin, in other words, I have not gone hypo or had thyrogen shots. Is this the norm with you guys??? I had malignancy in both sides of thyroid, and 4 of 19…
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RAI effect on possible throat cancer?
I had a hemithyroidectomy Oct. 2010 w/ papillary microcarcinoma, followed by completion thyroidectomy June 2013. RAI scheduled this month. I have had problems getting a definitive diagnosis of whether my throat/neck problems (which are worsening since Jan. 2012) are due to a) throat cancer, or b) residual thyroid cancer. I…
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Coughing after thyroidectomy
Hello, I just had my thyroid removed last Friday due to Hashimotos & goiter and found out today that there were cancer cells in it. Luckily they were small so I don't need the Chemo or Radiation treatments. I do have one question though. Since the day I woke up I have had this nagging cough that will not go away. Has…