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cometriq prescription
Hi, I am a MTC (Medullary Thyroid Cancer) patient. I've been on Vandetanib drug for past few years, but since the drug is no longer effective, and as per advise from various doctors abroad in UK and India, we are looking to switch over to Cometriq (Carbozanitinib). However, this drug is only available in U.S.. We have some…
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feeling tired and depressed
hello,I was diagnosed with papillary carcinoma in 1997,but way before that I always felt lethargic and had bone crushing headaches along with depressed feelings.My bones ached, my vision was always fuzzy and i was in my early 30's.I thought I was at the end of the road.My question to anyone listening,is this lethargic…
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post op thyroidectomy
It has been almost 3 weeks after surgery and I've just been wondering if its normal to feel tightness around the incision when I stretch my neck as well as neck pain? It also feels like something is in my throat when I swallow at times? I've also been losing a lot of hair! Every time I run fingers through my hair a good…
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Scared.......How can you tell if cancer is back?
I had TT (+ 2 paratyroids removed) in 2008, and been monitored since. I now found out that I had papillary cancer, and the last few blood tests have shown my thyroglobulin levels slowly going up. I am awaiting tests results of a stimulated thyroglbulin levels. I did have a ultrasound that shows I have two swollen lymph…
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I Had A Benign FNA In June 2008 Of My 3 Small Thyroid Nodules Now 1 Grew 50% Had Indeterminate Folli
On May 6 I got a call from Dr.Caroline Kim at University of Penn who did my FNA on April 18 and she told me my 1.cm which I thought was only 8mm and had grown 50% in size in almost 3 years,is mixed cystic and solidmy right lobe nodule is also mixed cystic and solid and my largest left nodule somewhat over 1cm is almost…
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Can Some Members *PLEASE* Respond To My Weeks Old Topic? I Really Would Appreciate It Thank You
Would some members *PLEASE* respond to my weeks old topic? I really would appreciate it, thank you.
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Cleveland Clinic
I have papillary thyroid cancer (stage IV) that has spread to lymph nodes in the chest and lungs. Thyroid removed 2008 and have had two cancerous lymph nodes removed from my neck in February 2013. I am presently being treated with Nexavar at UPMC Hillman Cancer Center in Pittsburgh. Has anyone been treated at Cleveland…
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prep for radioactive iodine treatment
I'm 4 weeks post op TTE Papillary Carcinoma, saw my Endo today and I'm starting the low iodine diet tomorrow, and getting off the Cytomel in prep for Radioactive Iodine treatment in about 3 weeks. I have 4 children, live in a 4 bedroom house, my parents and sister live with us, so space is tight! Income not so great, so…
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Symptoms of Recurrent Thyroid Cancer
I was diagnosed with Papillary and Follicular thyroid cancer in July of 2010 at the age of 19. After surgery, which I had a total thyroidectomy and 24 lymph nodes taken from my neck (only 7 were cancerous) I was give a smaller dose of RAI. Had the scan, came back normal. Had another scan one year later in 2011 and it also…
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What Does Thyroglobulins In Lymph Nodes Mean? Cancer?
I am schedule to have my TT on this coming Tues. May 28th. Things are happening very quickly I was just diagnoised w/Papilliary Carcinoma 3 wks. ago (from a biospy). Then they found Thyrogolbulins in my left lympy nodes, does that mean possible cancer was detected in my lymph nodes or is it just a precautionary measure…
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Where are all the Follicular Thyroid cancer survivors??
I'm sure you're out there! I've been reading lots of older threads and have even done a search and it seems the majority of survivors here have the Papillary variant of Thyroid cancer (correct me if I'm wrong). I'd really like to hear some personal accounts of FTC.
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Define "fast growing"
I keep finding references to a type of thyroid cancer that is very rare and fast growing. I'm not in the risk group for this cancer, so I'm not that worried about it, but it does have me wondering what determines a "fast growing" nodule? I've tried finding it, and I've not been successful. My appointment with MD Anderson…
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Irregularly Marginated Complex Pre-Dominantly hypoechoic avascular lesion
My ultrasound said that I had a thyroid gland that is homogeneous in echotexture. There is irregularly marginated complex predominantly hypoechoic avascular 1.2 x 0.5 x 0.9 lesion along the posterior margin of the inferior right thyroid lobe. This appears extrathyroidal. The left lobe - there is a 0.7 x 0.5 x 0.6cm only…
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Confused!
Hi Everyone, I am a bit confused about something..Hoping someone can help. I posted here a while back about having noduels on my thyroid but normal Levels and your responses we're both helpful and very appriciated. I had a biopsy on the largest of my three noduels. That came back "Follicular Neoplasm". The surgeon stated…
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poorly differentiated carcinoma
I recently had my thyroid removed do to a 4CM nodule in my thryoid that was poorly differentiated with Hurthle cell features. Can anyone comment on this,
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newly diagnosed stage 4 m thyroid cancer
I went to the ER for a UTI and they found spots on my lungs,thyroid,and in my bones. All of the tests and biopsies were done in 2 days. Now I await the final diagnosis and recommended treatment plan. I love living am 53 female Floridian who has 3 chidren and a Grandson. please tell me of your successes and recommendation
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New, awaiting FNA
Hello, I'm new here and I am waiting to have an FNA in 3 weeks. I was sent to an endocrinologist because I am a diabetic and my PCP felt he could help me manage my blood sugar. While examining my neck he found a nodule on the left side. He sent me for an ultrasound and then I wasn't due to see him for another 6 weeks. I…
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bad muscle spasms
I had a total thyroidectomy 4 yrs. ago. My meds still are not right. They change almost every time I have blood work. After I had surgery I had a hard time being upright without severe shoulder pain. I also had lymph nodes removed from the side of my neck. I thought maybe all of the trauma to my body was just temporary.…
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Muscle and Joint pain
I had a total thyroidectomy 2 years ago because of Papiloma Cancer. Parathyroid was damaged and never recovered. I did not have RI. I have struggled with spasms the first year. Balancing my calcium levels can be frustrating. Any suggestions for that would be appreciated also. The past 3-4 months I have joint and muscle…
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Advise needed for weight gain after thyroid removal and cancer treatment
I have always been a big girl, but after my thyroid removal(2/2013) and treatment(3/2013) I keep gaining weight. The doctor ran blood work two weeks ago and my thyroid level looks great, and will be running another round in four weeks. I feel horrible, tired, keep gaining weight, and I keep getting these horrible…
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Relay for Life
Hi everybody, So it's time for Relay for Life again, and I'm debating whether to register for the Survivors' Lap. I'm a senior in college, and I haven't told a ton of people at my school (not that I don't want people to know or am uncomfortable talking about it!), and I'm worried that it would be a very rude awakening for…
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thymus gland
I had radiation at 6 weeks old for an overgrown thymus gland in 1946....Now I have hyperparathyroidism tumors......is is safe to have them removed......boomer1946
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thymus gland
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The mask
July 2, 2008 I am 70 years old. I am very hard of hearing and I have papillary thyroid cancer, which a thyroidectomy in November and a double dose of radioactive iodine in December did not totally kill. It was decided that 6 or 7 weeks of radiation should kill the remaining cancerous cells. Let me share with you what…
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symptoms
hey allim new here what symptoms was you having that led you to a doctor for thyroid cancer a few yrs back i was diagnosed with nodules how did you no it was cancer before going to doctor
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Enlarged Lymph nodes after TT
Hello all I need your support. I had a TT July 2011 which showed papillary cancer then I had RAI Oct 2011 and my PET scan came back clear. Then in Sept 2012 my Surgeon saw a spot in the isthmus area and was convinced it was scar tissue as he had removed 6 lymph nodes and they were clear. So of course he said let's watch it…
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life after cancer
Hello Im a 37 year old female. I was diagnosed with Thyroid cancer 3 yr ago. I had my thyroidectomy already, along with my thyroid, I had 18 lymphnodes, a inch diameter of neck tissue and my thymus gland were removed. I was stage 2 papillary. I had the highest dose of Radioactive Iodine and ever since I have been good. No…
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Animal thyroid supplement
Has anyone out there made the switch over to a natural animal thyroid supplement? I am having massive medical problems since having my thyroid removed and going thru RAI. I am thinking maybe having my body process too many chemicals might be the problem. Also my levo seems bo have stopped working.
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New to the Forum and scared
Hello! I just found this site and have so many questions and can not wait to browse through and see what others are saying/feeling etc. I had my thyroid removed last Thursday and was told they did not remove any lymph nodes as they did not think they needed too. Yesterday I missed a call from my Dr and new when I called…
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What Can I expect with Radioactive Iodine Treatment? Actual procedure & Recovery
I recently had a total thyroidectomy and got the news that it was cancer. My doctor told me that I should consider the Radioactive Iodine Treatment. I sad yes, I would like to be aggressive in the treatment. Then he gave me the good news that I need to go to the hospital for the treatment. I could barely handle staying the…