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16th Int'l Thyroid Cancer Survivor's Conference, 9/27-29
Anyone out there planning to attend this year's Thyroid Cancer Survivor's Conference in Philadelphia (Sept 27-29)? I've never been before but have heard it's quite good. I'm planning to be there. Doctors, researchers, and other professionals provide updates and information for thryoid cancer patients and caregivers. For…
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Zelboraf (Vemurafenib)
Has anyone with thyroid cancer that is resistent to RI-131 treatment ever been treated with Zelboraf? If so, please let me know your experience and results. Thanks,Bill
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Synthroid
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1st appointment with Surgeon this Friday
I was recently diagnosed with Thyroid Cancer and see the surgeon this Friday. I have multiple nodules on both sides, some over 1.5cm. The smaller of the large one's was the one with cancer, and I am not sure if they are taking one side or both. I am 32, have a 7 year old, and am a bit nervous about the whole thing. I also…
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Results
Had my thyroid removed in July due to pallimary cancer. I haven't seen a endo yet my appointment is in October. I was prescribed 100 mcg of levothyroxine after surgery. Just got my first blood work back. My Free T4: 1.2 and TSH: 0.065. Doctor thinks that is to low. She changed it 88mcg I only weigh about 118 is this a…
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Newly diagnosed/rai treatment soon
Hi, I was recently diagnosed at the end of july, thyroidectomy 3 weeks ago yesterday. rai treatment next fri. I had some questions if anyone can answer. first, i keep asking my surgeron about the low iodine diet. He keeps shaking his head no. Never tells me why when all I read are people going on this before RAI. I am not…
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What can I do to help?
Hello all, My mom was diagnosed with Papillary Thyroid Cancer and had her thyroid removed 2 weeks ago Tuesday. She got the news today that the cells were indeed cancerous, and is going to have to do the radioactive iodine treatment. I'm just curious as to what i can do to help her through this frightening time in her life.…
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Constantly sick before and after thyrod cancer.
I was diganosed with thyrod cancer when I was 19, before the cancer i was ALWAYS sick, every month twice a month i was in and out of the er. The doctor believed it was because of my cancer. But now being 22 years old. I'm still in and out of the er. twice a month maybe more. I'm always tired and always sick. every time i…
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Someone please help!
I am 5 years post TT, papillary cancer, blood tests early in the year showed a rise in TG and thyroglobulin levels and an ultrasound showed tissue where there wasn't supposed to be any and enlarged lymph nodes. In April of 2013 I went through RAI teatment. I had all the side affects possible. I am currently 6 weeks post…
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I-131 and Getting Pregnant
On Feb 6th, 2013 I had a total Thyroidectomy, and in March I believe I had 132 of the I-131. I stayed in the Hospital for 2 nights and away from everyone for an additional 3 days. Now I'm almost 6 months out, and have been told that I need to do a follow-up treatment which include the Thyrogen injections so I do not have…
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Follicular Annual Testing
Those of you that had follicular Thyroid Cancer, I'm wondering what you do annually to follow up?
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5 months post op (papillary carcinoma)..new nodule appeared. Worried
12/2012 I had robotic surgery to remove a thyroid nodule from the isthmus. The rest of my thyroid looked ok, so the only part that was removed was the nodule on my isthmus. I was told that I was at very little risk of it being cancer; in January at my follow up appointment I was told that I had papillary carcinoma. My doc…
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new discussion board
A new discussion board is available to report and discuss technical problems. Please give it a try. It is the last discussion board listed on the page with all the boards, please bookmark it for future use. The URL is http://csn.cancer.org/forum/200. Best, Greta aka Your CSN staff
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New Thyroid Cancer Diagnosis
Hello to all, I have recently been diagnosised with Thyroid Cancer. My surgery will be in two weeks. Could someone that had surgery to remove their thyroid tell me what the recover time line was? How long before you could go back to work comfortably, I have a sit down job. Also how long before they start the radioactive…
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TT Post Op - Tingling in Hands/Arms/Feet
Had TT surgery 5-28-13 (Diag. w/Papillary cancer), exper. many complications (nerve damage, inability to speak above a whisper, and extreme fatigue). My Dr. has checked my calcium levels 3 different times and yet I am still experiencing muscle spasms, tingling of hands/arms/feet/face (was placed on Calcium pills w/Vitamin…
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Hurthle Cell Carcinoma, best Dr.s???
I was diagnosed with stage 3 Hurthle Cell Carcinoma 2 1/2 years ago. I may have recurrence. There is a growth in my thyroid bed that my surgeon is hesitant to remove. I would like a second opinion. MD Anderson and Sloan Kettering are on the top of my list. Any referrals?
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cometriq prescription
Hi, I am a MTC (Medullary Thyroid Cancer) patient. I've been on Vandetanib drug for past few years, but since the drug is no longer effective, and as per advise from various doctors abroad in UK and India, we are looking to switch over to Cometriq (Carbozanitinib). However, this drug is only available in U.S.. We have some…
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feeling tired and depressed
hello,I was diagnosed with papillary carcinoma in 1997,but way before that I always felt lethargic and had bone crushing headaches along with depressed feelings.My bones ached, my vision was always fuzzy and i was in my early 30's.I thought I was at the end of the road.My question to anyone listening,is this lethargic…
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post op thyroidectomy
It has been almost 3 weeks after surgery and I've just been wondering if its normal to feel tightness around the incision when I stretch my neck as well as neck pain? It also feels like something is in my throat when I swallow at times? I've also been losing a lot of hair! Every time I run fingers through my hair a good…
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Scared.......How can you tell if cancer is back?
I had TT (+ 2 paratyroids removed) in 2008, and been monitored since. I now found out that I had papillary cancer, and the last few blood tests have shown my thyroglobulin levels slowly going up. I am awaiting tests results of a stimulated thyroglbulin levels. I did have a ultrasound that shows I have two swollen lymph…
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I Had A Benign FNA In June 2008 Of My 3 Small Thyroid Nodules Now 1 Grew 50% Had Indeterminate Folli
On May 6 I got a call from Dr.Caroline Kim at University of Penn who did my FNA on April 18 and she told me my 1.cm which I thought was only 8mm and had grown 50% in size in almost 3 years,is mixed cystic and solidmy right lobe nodule is also mixed cystic and solid and my largest left nodule somewhat over 1cm is almost…
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Can Some Members *PLEASE* Respond To My Weeks Old Topic? I Really Would Appreciate It Thank You
Would some members *PLEASE* respond to my weeks old topic? I really would appreciate it, thank you.
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Cleveland Clinic
I have papillary thyroid cancer (stage IV) that has spread to lymph nodes in the chest and lungs. Thyroid removed 2008 and have had two cancerous lymph nodes removed from my neck in February 2013. I am presently being treated with Nexavar at UPMC Hillman Cancer Center in Pittsburgh. Has anyone been treated at Cleveland…
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prep for radioactive iodine treatment
I'm 4 weeks post op TTE Papillary Carcinoma, saw my Endo today and I'm starting the low iodine diet tomorrow, and getting off the Cytomel in prep for Radioactive Iodine treatment in about 3 weeks. I have 4 children, live in a 4 bedroom house, my parents and sister live with us, so space is tight! Income not so great, so…
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Symptoms of Recurrent Thyroid Cancer
I was diagnosed with Papillary and Follicular thyroid cancer in July of 2010 at the age of 19. After surgery, which I had a total thyroidectomy and 24 lymph nodes taken from my neck (only 7 were cancerous) I was give a smaller dose of RAI. Had the scan, came back normal. Had another scan one year later in 2011 and it also…
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What Does Thyroglobulins In Lymph Nodes Mean? Cancer?
I am schedule to have my TT on this coming Tues. May 28th. Things are happening very quickly I was just diagnoised w/Papilliary Carcinoma 3 wks. ago (from a biospy). Then they found Thyrogolbulins in my left lympy nodes, does that mean possible cancer was detected in my lymph nodes or is it just a precautionary measure…
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Where are all the Follicular Thyroid cancer survivors??
I'm sure you're out there! I've been reading lots of older threads and have even done a search and it seems the majority of survivors here have the Papillary variant of Thyroid cancer (correct me if I'm wrong). I'd really like to hear some personal accounts of FTC.
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Define "fast growing"
I keep finding references to a type of thyroid cancer that is very rare and fast growing. I'm not in the risk group for this cancer, so I'm not that worried about it, but it does have me wondering what determines a "fast growing" nodule? I've tried finding it, and I've not been successful. My appointment with MD Anderson…
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Irregularly Marginated Complex Pre-Dominantly hypoechoic avascular lesion
My ultrasound said that I had a thyroid gland that is homogeneous in echotexture. There is irregularly marginated complex predominantly hypoechoic avascular 1.2 x 0.5 x 0.9 lesion along the posterior margin of the inferior right thyroid lobe. This appears extrathyroidal. The left lobe - there is a 0.7 x 0.5 x 0.6cm only…
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Confused!
Hi Everyone, I am a bit confused about something..Hoping someone can help. I posted here a while back about having noduels on my thyroid but normal Levels and your responses we're both helpful and very appriciated. I had a biopsy on the largest of my three noduels. That came back "Follicular Neoplasm". The surgeon stated…