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Follicular Cancer and Autoimmune disease
I just received my diagnosis of Stage III Follicular Thyroid Cancer in September of 2014. My thyroglobulin is unreadable because of antibodies in my blood which apparently shouldn't be there. I was told that autoimmune disease is a common partner to thyroid cancer by the nurse at my endocronolygist's office. I was…
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I don't know.
I first want to clarify that I do not intend to offend any one in any way, this is solely my own feelings on my own experience and in no way reflects my opinions of others and their experiences. I am in my early twenties and in my senior year of college out of state from my family and doctors. In July a I had a goiter and…
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Scared.. Thyroidectomy scheduled for tomorrow..
Hello, I am a 27 year old male. About a month ago, I was diagnosed with Thyroid cancer, from a large nodule being on my left side neck. I do not remember which type of cancer they said it was, as I was just distrought, but the appointment is tomorrow. They said it did go to my lymphnodes, and all they've told me is I will…
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Aortic aneurysm and synthroid connection
I now have a 4.1 ascending aortic aneurysm. Begin taking synthroid in 2007 after stage 4. Total thyoidectomy. Could there be a connection? My endo thinks I am loco. Thank you.
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Hypothyroid symptoms - but not hypothyroid??
Quick background: I Was diagnosed 10/15/08 and now have 4 years remission I take 200mcg daily, Levothyroxine and endo says all levels remain perfectly where he wants them But my problem is that even though my endo is happy with my test results, I'm continuously battling not so fun symptoms that I have no clue how to make…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Thyroid cancer possiblity
So about two years ago my wife had half of her thyroid removed for Lumps (nodules) I think that's what thier called.She never heard anything fromt he Doctor about the Biopsy. Sorry bad speller. The growth has started coming back she is having neck pains again and other issues from it. My question is what is the likelyhood…
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Typical response for atypia of undetermined significance?
Hello. I'm a 37 year old female who had cervical cancer from 2009 to 2011 and had a radical hysterectomy to remove the cancer with no radiation or chemo after. I have been cancer free since then, but my thyroid is very swollen and has three nodules. Two of the nodules came back benign but the largest nodule (over 2 cm all…
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How long after RAI treatment can I travel in a car with a passenger?
Hi Folks I just joined and wonder if someone might answer this question. I am having the radiation drink in the London Ontario radiation department. I will be on their diet and receive two injections prior to the "drink" I know that I will be a hermit with precautions for a few days after it but we want to travel to…
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No voice after hemithyroidectomy.
Hi fron Lyn44 I am a new member from Australia. I had a Left Hemithyroidectomy performed on Monday 1st December all went very well no complications. I had a very suspicious multi nodule goitre removed. I will know the results of pathology next week. When I see the specialist. I am in very little pain my throat is still…
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Looking for connection
Looking to find someone who is also going through this right now or has recently. Can anyone direct me to a chatroom or somewhere to make this connection? Don't really want to go to a " local support group" just looking to become friends possibly on this site. Last month I was told I had Thyroid cancer, 20 days later it…
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Medullary Thyroid Cancer
Hi! I am 36 and diagnosised with thyroid cancer in July 2003. I am the mother of 3, 7 year old girl, 4 year old boy, and 6 month old baby girl. My father died of pancreatic cancer at age 41, I was 14. His mother died at age 42 of lymphnomia before I was born. I always knew cancer would revisit me and I not as terrified as…
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Medullary Thyroid Cancer Questions
First, sorry for so many questions but I am curious as to symptoms others have had with this. I am new to this site and at this point there is only a suspicion of this Medullary Thyroid cancer and Pheochromocytoma...I have some questions and would very much appreciate any sharing of knowledge. At time of diagnosis for…
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MEDULLARY THYROID CANCER
I have been enduring this cancer for just over 3 years and two surgeries and yet still have a rise in Casltonin numbers. Anybody else having issues finding out any new stats on MTC and where I am in the process. My doc says he wants to do these tests and a week later no answers or calls. I wonder any other people over 50…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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life after thyroid cancer
Hey all I am sure everyone has talked about this, but i need someone else to talk to besides my family. It was May of 2013 that i went to the doctor because I found a mass in my neck. I was talking to one of my friends about a mass that I found in my neck and asked him if it was normal. He said that is for sure not normal.…
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Papillary thyroid CA. Enlarged tongue
I will have surgery next week because I have thyroid cancer. My tongue feels too large for my mouth. I actually have to curl it behind my lower teeth to avoid protrusion and it causes difficulty swallowing. Is this part of the thyroid cancer or should I be looking into other causes?
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Has anyone had success with weight loss after total Thyroidectomy ?
Hi everyone, I had total thyroid removal and I-131 radioactive iodine 18 months ago (4cm tumor and lymph node removal - stage 4). I have gained 70 pounds in the last 18 months....and still gaining. Endo and Primary dr's say I am hyperthyroid since Tsh (?) levels so low..."should be losing weight". Cardiologist says I have…
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Newly discovered nodules
I had a partial thyroidectomy way back in 1992 at the ripe old age of 28. I was told it was late stage I/early stage II and probably would never have further issues with it, which is pretty much true, I think. I had an MRI on the neck and shoulder two weeks ago at my urging since I've been having a LOT of pain that has…
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Papillary Tyroid Cancer, without any symptoms, must I have surgery?
Hi, I'm 39. I was told that I had Papillary Thyroid Cancer last week. It was found by the examination (X-ray) before my ovarian surgery 3 weeks ago. Strangely I don't feel any pain or something unsual around my neck. The doctor told me I had to get Total Thyroidectomy and I would have to live with breathing tube in my neck…
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Hearing/Vision Loss after I-131 treatment
Almost immediately after radioactive treatment following removal of my thyroid due to malignant tumor, I noticed a marked change for the worse in vision and hearing. During subsequent hearing test ordered by my primary care doc, audiologist mentioned in an off-hand remark that sometimes the kind of medication used for the…
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Late Onset Swallowing Disorder from Radiation
My dear husband (aged 70) was diagnosed with thyroid cancer 9 years ago. Over the next 2 years, had 3 surgeries (kept recurring), then chemo, then external radiation. He had to have a feeding tube put in after external radiation for 6 months because of the burns to his throat. Also had 2 radioactive iodine treatments along…
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One week in.
I had my first opreation last Monday for thyroid nodules and an enlargened ademnoma. I had the right side thyroid lobe removed, and all was well. Tuesday I was home recoering nicely, and the phone rang and it was my surgeon, and he said the labs came back with a small amount of cancer from on of the nodules. The choice was…
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Thyroid Nodule Biopsy today!
So one year and a half ago my doctor noticed my neck was swollen had an ultrasound ordered and noticed tiny nodules just mm in size. I saw a new Endocrinologist who looked over my past Ultrasounds, one taken again in September of 2013 and one prior to that in June 2013. I saw her in December 2013 so she ordered a check-up…
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Pazopanib
Has anyone with thyroid cancer been treated with pazopanib? If so please share your experiences and results. I am also BRAF positive. I will be starting this drug this coming September after my ct scan. Thank you And God Bless Hannah
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…
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Lab Results
Hello, My TSH is 0.30, T-4 is 1.2, and Thyrolglobulin is 0.1. Can someone tell me what they thinks this all mean? Thanks.
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All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
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Once TSH levels return to normal, how long do symptoms persist?
Hi All, I don't have thyroid cancer, but have survived stage III melanoma (2003), stage III NSLC lung cancer (2008). Last November I was diagnosed with stage IV esophageal cancer. I am being treated for that now. Initially my oncologist ruled out any radiation for the EC because I had received max doses in the neck and…
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Salivary Gland pain months after RAI
Hi everyone. It's been awhile since I posted anything but now I'm having more issues! I had RAI about 5 1/2 months ago and my salivary glands hurt SO bad! This just started a week ago. My Endo looked surprised and said it couldn't be because of the radiation and to just take some Advil. Of course whenever something is…