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Yes, You Can Survive Cancer!
I am the survivor of extraosseous osteosarcoma. Here is the link to my story describing how I defeated Cancer: https://www.linkedin.com/pulse/yes-you-can-defeat-cancer-pundalik-kudapkar The purpose of sharing this story is to: * Share some of the techniques I used to create positivity around and within me influencing the…
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undifferentiated embryonal sarcoma of liver
In 2008 I was diagnosed with undifferentiated embryonal sarcoma of liver. This is a very rare diagnosis in an adult. I was 48 at he time. I underwent a liver resection, removing a 16cm sarcoma. I then had intensive chemotherapy following the ewings protocol. I am here five years later and so far cancer free. I used to have…
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spindle cell sarcoma
I've just been diagnosed with spindle cell sarcoma in my left lung. Its the size of a goofball. This will be my 3rd time. The first was on my face and spread to my left lung. It was a very small nodule and both were fixed with chemotherapy. 2yrs later it came back on my face. Surgery without chemotherapy or radiation. This…
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SARCOMA AND CELLULITIS
Hi, my mother has a sarcoma and a blood clot in her thigh. After her first chemo treatment, she got a bad case of cellulitis, which she had before but not as bad. Thank God, the antibiotics cleared it up, but now we are afraid of getting it again. Has anyone else had cellulitis during chemo treatments? thanks
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Malignant Peripheral Nerve Sheath Tumor
Hello.. My mother was just diagnosed with malignant peripheral nerve sheath tumor. She noticed a lump on her lower abdomen and was was treated with a hernia repair. A month later, another lump returned. This lump was removed and came back as MPNST. This diagnosis was given to us 5 days ago. She had a CT of her abdomen,…
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Dr. Axel Rolle for lung mets
I've been hearing lots about Dr. Axel Rolle in Germany who has resected many lung mets. Has anyone had any experience going there?
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today, and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this. If you received a message, please do not respond or…
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DDCS
90 days ago I suffered a pathological FX to the left distal humerus, and a mass was found that had deteriorated the bone. After electing to biopsy the mass, it was sent all over the country. AFIP (dept of defense), Moffitt Center in Tampa, all confirmed a De-differentiated chondrosarcoma, or DDCS. Pretty damn rare,…
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Cancer in Lungs
I was just informed that I have cancer in my left upper lung. Not for sure the type but almost sure it will be MPNST sarcoma. I was diagnosed with MPNST sarcoma in my sciatic nereve in Dec 2012. Had 25 rounds of radation then in Feb 2013 had operation and they removed my sciatic nerve in the upper right leg. Now where…
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Discussion Board and Chat Spam
Hello everyone, Thank you to those who've alerted us to the spamming from earlier today and we sincerely apologize for the inconvenience. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of discussion board and chat spamming. If you…
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Newly found liposarcoma please help
My name is yollandah I'm 22 and recently found a lump on my back. I went to the doctors when I realized the lump wasn't going away. My mum has schwanoma tumors also on her spine so she pushed that the gp give me an MRI. The results came back this friday that I most likely have a well differentiated liposarcoma located near…
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Large mass on front of thigh
Hi all I'm sorry for the lack of introduction. I think I'm just too frightened to do so! I noticed my right thigh at the front was looking a bit strange about a month ago but brushed it aside. There was no pain it just looked an odd shape. I've looked at it since and it has definitely become more prominent and lump/mass…
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Urgent help needed - large sarcoma in thigh
My girlfriend finally went to have an MRI of a very large lump in her thigh that has been there for 15 years. It is VERY large (about 6 inches). The MRI suggested sarcoma. We went to two orthopedic oncology surgeons at the top of their fields and head of their departments: John Abraham at the Rothman Institute of Jefferson…
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ewing sarcoma in my 11 year old brother left shoulder blade
hello guys my 11 year old brother has been diagnosed with a localized ewing sarcoma in his left shoulder blade how do I describe it it all started back in december when he complained of on n off pain in which we took him to his primary physician who took xrays n didnt see anything just saying its inflamation and prescribed…
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Low Grade Fibromyxoid Sarcoma
My husband, 47 years has been diagnosed with low grade fibromyxoid sarcoma. The doctor has given him 3 to 6 months to live. He had a lump come up on his shoulder back in January and then it started to grow. It did not hurt. He just said it was nothing. Then he started hurting in his lower left back around his kidney area.…
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6 year osteosarcoma surviver, with new lump on breast! Help!
Hi guys, I am a 25 year old osteosarcoma surviver. I was diagnosed in 2007 and underwent surgery and chemotherapy. My primary site was in my right mandible, and it never spread. Last night while showering, I felt a large mass in my upper right breast, and I am freaking out! I contacted the hospital and should be able to…
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Votrient drug
Votrient, a relatively new drug, was prescribed for me following surgery for sarcoma of the thigh and subsequent surgery of the lungs to remove sarcoma that spread to the lungs. I had adverse side effects from Votrient and am interested in communicating with anyone who has taken Votirent. It is administered in tablet form.…
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Pleomorphic Spindle Cell Sarcoma
Hi - I am looking for anyone who has had / or does have pleomorphic spindle cell sarcoma. My 26yo brother was diagnosed with 9cm tumor to the thigh (running thru sciatic nerve) he had radio then surgery. It has metasized to his lungs, chemo at the moment. Would like to hear other peoples stories. I have been told it is…
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Fibrosarcoma-looking for doctor/facility recommendations
Hello, I have a sister who has had fibrosarcoma recur 4 times. She has underwent 3 surgeries (knee, ribs and lung) and will have a forth coming up (near ribs again). She has also been treated with chemotherapy. Her doctor has been responsibly consulting with other sarcoma specialists nationwide, but I would like to know if…
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angiosarcoma
Hello,since this is my 1st post here I have to start out with "Hi,this is my 1st post". My 22 year old daughter has been diagnosed with stage 4 angiosarcoma,but I'm going to call it stage 3 and1/2. Sounds better then 4. We found out 11 weeks ago. I'm looking for some feed back from anyone in the same situation or if you…
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cutaneous leiomyosarcoma
Does anyone here have experience with Cutaneous leiomyosarcoma? I was diagnosed 2 weeks ago and was told that it was very rare and there is just not much info on it since it is so rare. Was sent to a dermatologist that did the Mohs procedure to remove it. In office lab reported clear margins. I am going back today to…
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in cathy's memory
I met cathy through this discussion boards almost 2 years ago. She had just been diagnosed with primary angiosarcoma of the breast and was seeking information from anyone who could help her. Answering her post was the best thing I ever did. We became friends by emails and phone calls. Even though we never met in person we…
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Well differentiated liposarcoma...
In February of 2014 I noticed a small lump in the front left thigh right above the knee. It was about the size of a quarter and felt somewhat like part of the muscle. It was fairly hard and did not move. I ignored it thinking it was due to my new workout schedule. In July of 2014 I went on a 8 hour road trip with my…
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Liposarcoma
Liposarcoma... Just common enough to be known by the medical field, but rare enough not to be understood by most in the medical profession. I have been visiting this webiste since 2007, but find CURRENT discussions regarding liposarcoma rare... I am hoping that this discussion will start some information flow. I have…
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Private Message Spam
Hello everyone, Thank you to those who've alerted us to the PM spamming from earlier today. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If you received a message from rita44556 prompting you for money,…
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Neurofibrosarcoma - Long Term Survival
Hope and Faith - SARCOMA ... a diagnosis that has many long names and a wide range of prognosis and outcomes. It's a very scary place to be ... fear and the uncertainty of it all. When our daughter was diagnosed with Neurfibrosarcoma at the age of 21 in 1998, we thought the worst having been given straight up answers ....…
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Endimetrial Sarcoma
1994 Total Hysterectomy,Lymph removal,fatty Pad everything, Radiation 8weeks, Now 20 yrs later it's back, wrapped around my Kidney? Wth? Doctor says it's a rare cancer, & again, rare that it returned? Help! I'm so scared this time....
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life after wipple surgerey
i just finished my whipple surgerey 5 weeks ago and any one done whipple pleae tell me your life after whipple
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Soft Tissue Sarcoma in Leg, Starting Chemo
I'm 23, female, diagnosed with large aggressive soft tissue sarcoma behind knee/upper calf with bony involvement in tibia. About to start chemo regime of Ifosfamide & Mesna and Adria. If anyone has had similar experience please contact.
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Private Message Spam
Hello everyone, Some of you know that we have had previous problems with a particularly tenacious scammer named sarah, and unfortunately she has struck again. While we have security measures in place, we can't prevent all spam. We are currently working on measures to try and block this kind of private message spamming. If…