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spindle cell sarcoma

jenredhot
jenredhot CSN Member Posts: 1
edited September 2014 in Sarcoma #1

I've just been diagnosed with spindle cell sarcoma in my left lung. Its the size of a goofball. This will be my 3rd time. The first was on my face and spread to my left lung. It was a very small nodule and both were fixed with chemotherapy. 2yrs later it came back on my face. Surgery without chemotherapy or radiation. This time its in my lung. I have to wait until Oct 13th for my first appointment and I was diagnosed 2wks ago. I don't have ins so I have to go through the hospitals free treatment program. I didn't pay much attention but now I have 2 tender spots on my left leg. They only hurt if bumped. I went to the ER and they think its a nerve. I'm not convinced. The first two bouts with cancer, I never felt sick. This time around I do. I'm tired and constantly feel like a cold is coming on. Has anyone ever dealt with something like this? Everything I read about it on the internet is grim.

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  • PLEOMORPHIC SARCOMA
    PLEOMORPHIC SARCOMA CSN Member Posts: 8
    #2
    More

    Do you have the old Pathology reports?   only a MRI will find deep sarcomas in your thigh.

     

    50 types of sarcoma and they present and respond to treatment 50 ways. :(

     

     

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  • winkfam5358
    winkfam5358 CSN Member Posts: 1
    #3
    spindle cell me to

    i,just found out i have it too  tumer was fairly large  cant seem to find much about it though just started up the path

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