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Myxofibrosarcoma
Hi, Would like to have conversation with somebody that has been diagnosed with myxofibrosarcoma.
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Ewing's sarcoma
Hello, I was curious if anyone is aware of the clinical trial for TK216 for Ewing's Sarcoma. If there is anyone who is involved or has any information. I have a stepson wwho has been battling for a year and half.I would appreciate any information.
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Lung Ca met suspected but tests say Sarcoma instead
Hello All, I am a newbie here, and hope I'm posting this in the correct location. My hubby was diagnosed with lung cancer in 2016 when a very small 2.2 tumor was found by accident in the lower lobe of his right lung. We attempted to have it sugically removed but the surgeon once he got in there said that there was too much…
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Uterine Leiomyosarcoma ???? Do I have it or not.
Hi, I don't know if I have ULMS or not, but I am so upset I can barely breathe. I have spent months researching only to find old and dismal research. I have read every radiology and medical journal I can get my hands on. There is nothing left on google I haven't seen and I've spent hours in Sloan Kettering's library…
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Liposarcoma on the left thigh
I was diagnosed with liposarcoma on the left thigh when I was 30 years old(1992). My tumor was due to my negligence at the time, left to grow to massive proportions(17cmX12cmX5cm). It was surgically removed at the time by wide local excision and followed by 3 rounds of local chemo and 1 round of general chemo. I remained…
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dedifferentiated liposarcoma in the groin area
Hello all I was diagnosed with this cancer after having a hernia operation. I felt a lump in my groin area at the beginning of the year and call my sister who is a nurse and jokingly said I think I have a tumor. She said is was more likely a hernia. So, I made the appt to see my Dr, and he confirmed it was a hernia, but…
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Spindle cell or Epithelioid sarcoma?
I found out two months ago that I had a tumour in the third toe of my left foot, and that there is some damage to the other toes (except the big toe). I have had surgery on the foot where the middle toe and the third metatarsal bone has been removed and I am currently recovering from the operation. Once the wound is healed…
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Complications following limb salvage surgery
I wanted to post and see if others have the same problems that I experience and also to see if anyone has any advice to provide. I had limb salvage surgery almost a year ago now. The surgeon removed a large part of one of my quad muscles in the right thigh. The surgery was done after radiation treatments, and also after a…
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Core Biopsy
So my problem is, I am a breast cancer survivor,for 3 years. as you guys know once youve had cancer life is just never the same. I had a CT scan that showed a retroperitinium mass. MRI confirmed. suspicious of sarcoma. I have this horribe insurance BAY CARE CIGNA through my employer. My oncologist is againt a biopsy as he…
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Dermatofibrosarcoma protuberance (DFSP) Recurrence
6 years after having DFSP removed surgically with wide excission, my dermotologist biopsied a spot on my scar and found it had returned. I went to the same surgeon and asked about Mohs. He said since the tumor was on my body (upper chest/shoulder) it wasn't necessary. He said Mohs is for areas where there isn't as much…
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Delaying my 6th round of chemo by 2 weeks...advice or unsight please!
I informed my doctor this morning that i would be out of town visiting my family some of whom i havent seen in over 4 years with them being stationed in japan. But the dates i will be out of town would force me to delay one round of my treatment by 2 weeks. We butted heads for a while and then she told me that she…
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Need Help Reading PET Scan
I received my mothers PET Scan results and I need it explained in terms that a non-doctor can understand...My mother had a 7lb sarcoma tumor taken out of her intensinal area on April 1, 2018 and it burst in her system...They did not take any procaution after the surgery just in case it came back. She was not feeling well a…
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Not a limpoma
my husband was diagnosed with a limpoma a couple weeks ago. It is right on his tricep. to be safe and because it is on the larger side (9.5cm x 1.5 x 6) his doctor suggested an ultrasound. the ultrasound told us it is not a limpoma, the tumor has some doppler red indicating blood supply And it is in his muscle. we also…
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Ewing Sarcoma Survivor. Need Advice.
Hello everyone. I have been an Ewing Sarcoma survivor for about 13 years now. It was definitely one of the better highlights of my life, beating cancer and all. It's something you can never really get over, and all these little scares sometimes pop up to make you think it will come back again. I had my Ewing Sarcoma on my…
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Leiomyosarcoma
Happy Fourth of July! I have recently been diagnosed with stage four leiomyosarcoma. I have been to two doctors. Both want to start me on chemo. It has been recommended that I seek out therapy at MD Anderson because they have sarcoma specialists. Trying to get into MD Anderson has been similar to trying to jump through…
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Request information on Mohs for DFSP
Hi All, My 12 year old daughter has been diagnosed with DFSP. She has been advised surgery and from what we have come to know Mohs micrographic surgery is the best option to reduce the risk of recurrence. We stay in Singapore. Can someone please give me some information on whether Mohs for DFSP isperformed anywhere in…
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Lartruvo
Does anyone have any positive and hopeful lartruvo experiences. I have rhabdomyosarcoma, spindle cell variant (either that or PUS/UPS...the doctors really can't wrap their head around it). I did three cycles of VAC. When I started I was a stage IIIc, between my dx in August and now, I've developed lung mets...too many too…
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Chemo for rhabdomyosarcoma
I am 26 yrs old and I was diagnosed with Spindle cell/sclerosing rhabdomyosarcoma. The tumor was in my lower left leg and I was amputated after two rounds of chemo. The chemo wasn't effective and the tumor size increased during chemo. My oncologist suggested 4 rounds of post-operative chemo but the effectiveness is…
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Pulmonary Artery Sarcoma
In Sept of 2012, I was diagnosed after a heart attack that I had a tumor in my pulmonary artery. I had never heard of Sarcoma before that. I've heard it's one of the rarest forms of Sarcoma with only about 200 reported live cases. This is usually found post mortem. At age 35, the wife and mother to two beautiful kids, I…
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Undiff Pleomorphic Sarcoma (thigh)
My husband was recently diagnosed with undifferentiated pleomorphic sarcoma. In brief, he had a tiny hard bump on his outer thigh that he just noticed one day. Then after about 4 months it became more noticeable and kind of painful. Within the next two months it really grew fast, was obviously larger, tender to touch and…
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anyone know of a child with "adult fibrosarcoma"?
Our granddaughter, Maya Jones, was diagnosed on December 24, 2008 (age 2) with "adult" fibrosarcoma in her upper right arm. Had chemo that did nothing (tumor was 100% alive when taken out April 1st), pre and post-op radiation. Clean but not wide margins. No metastasis at diagnosis, but the tumor was, according to the…
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Stage IV Rhabdomyosarcoma
Hi all, I'm a 30yo male diagnosed with stage IV Embryonal Rhabdomyosarcoma. I wanted to know if there are any survivors or fighters for stage IV rhabdomyosarcoma.
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Leiomyosarcoma of the Inferior Vena Cava
I am a 71 yr old female in excellent health, felt good and looked GREAT (so I was told constantly, LOL) until March 2017 when I was diagnosed with Stage 2 Leiomyosarcoma in the retroperitonal area. The tumor was 5.5 cm when it was found. The tumor had invaded and blocked the Inferior Vena Cava, which compromised my right…
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High Grade Ostesarcoma with metastases on bones & lungs
My child (13 years old) has metastases osteosarcoma (lungs & bones) and the chemo failed ! He becomes weak and painful. We are using now Rick Simpson Oil (RSO) at home. We are looking for alternative promising treatments. Any help will be most appreciate
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Alveolar Rhabdomyosarcoma Stage IV
My son was diagnosed with Stage IV Alveolar Rhabdo in June of 2008 when he was 15. It was spread throughout his trunk, and they were never certain of the location of the primary tumor. Had spread to liver, and there were some cells found in the lungs. He underwent 52 weeks of chemo (five or six different chemos, in…
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DFSP Friends.
Hi I have started this new heading so that anyone who is dealing with.DFSP at the moment can contact other people in the same position without having to scroll through all the old entries. Please don't get me wrong the older entries have valuable information and are always worth reading if you find out you have this rear…
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Undifferentiated Sarcoma
My son (age 25) has been had surgery and is currently undergoing chemo treatment for a high grade, undifferntiated sarcoma that originated in his stomach. By the time the tumor was removed it was the size of a vollyball and had invaded his liver, pancreas, lung, and gallbladder. After surgery the tumor grew back as big as…
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cardiac sarcoma
Help. my 51 yo brother had a tumor removed from his heart in May. after further testing, other tumors were found in his body. after about 10 weeks, the tumor in his heart is back. he had trouble finding a dr who would treat him, but finally did. they were to start treatment today (aug 4) but he received a phone call that…
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angiosarcoma
Anyone out there who has angiosarcoma caused by radiation from former breast or other cancer. How are you dealing with it medically.
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Can you help me find a treatment for metastasised osteosarcoma
Our 18 year old son was diagnosed with osteosarcoma in his leg in late November 2015. After 8 months of chemo and limb-saving surgery to remove the tumour, we were told his chances of survival were very good. Sadly, in July this year a small spot was detected on his lung one week from being 12 months since his last round…