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    Sarcoma

     

    Discussion List

    • User: "Neelanjana"

      Request information on Mohs for DFSP

      Hi All, My 12 year old daughter has been diagnosed with DFSP. She has been advised surgery and from what we have come to know Mohs micrographic surgery is the best option to reduce the risk of recurre…
      5 views
      0 point
      Started by Neelanjana
      Sarcoma
    • User: "Cuban"

      Lartruvo

      Does anyone have any positive and hopeful lartruvo experiences. I have rhabdomyosarcoma, spindle cell variant (either that or PUS/UPS...the doctors really can't wrap their head around it). I did three…
      33 views
      2 comments
      0 point
      Started by Cuban
      Most recent by Cuban
      Sarcoma
    • User: "sholmes"

      Chemo for rhabdomyosarcoma

      I am 26 yrs old and I was diagnosed with Spindle cell/sclerosing rhabdomyosarcoma. The tumor was in my lower left leg and I was amputated after two rounds of chemo. The chemo wasn't effective and the …
      34 views
      3 comments
      0 point
      Started by sholmes
      Most recent by Cuban
      Sarcoma
    • User: "Chartzell"

      Pulmonary Artery Sarcoma

      In Sept of 2012, I was diagnosed after a heart attack that I had a tumor in my pulmonary artery. I had never heard of Sarcoma before that. I've heard it's one of the rarest forms of Sarcoma with only …
      647 views
      27 comments
      0 point
      Started by Chartzell
      Most recent by Pev
      Sarcoma
    • User: "wifeofUPS"

      Undiff Pleomorphic Sarcoma (thigh)

      My husband was recently diagnosed with undifferentiated pleomorphic sarcoma. In brief, he had a tiny hard bump on his outer thigh that he just noticed one day. Then after about 4 months it became more…
      124 views
      9 comments
      0 point
      Started by wifeofUPS
      Most recent by Buddyjkl
      Sarcoma
    • User: "mayasgrandma"

      anyone know of a child with "adult fibrosarcoma"?

      Our granddaughter, Maya Jones, was diagnosed on December 24, 2008 (age 2) with "adult" fibrosarcoma in her upper right arm. Had chemo that did nothing (tumor was 100% alive when taken out April 1st), …
      12 views
      1 comments
      0 point
      Started by mayasgrandma
      Most recent by jjasoliy
      Sarcoma
    • User: "sdwa"

      Stage IV Rhabdomyosarcoma

      Hi all, I'm a 30yo male diagnosed with stage IV Embryonal Rhabdomyosarcoma. I wanted to know if there are any survivors or fighters for stage IV rhabdomyosarcoma. 
      170 views
      3 comments
      0 point
      Started by sdwa
      Most recent by Cuban
      Sarcoma
    • User: "Pattie R"

      Leiomyosarcoma of the Inferior Vena Cava

      I am a 71 yr old female in excellent health, felt good and looked GREAT (so I was told constantly, LOL) until March 2017 when I was diagnosed with Stage 2 Leiomyosarcoma in the retroperitonal area. Th…
      99 views
      2 comments
      0 point
      Started by Pattie R
      Most recent by Pattie R
      Sarcoma
    • User: "Naphtul"

      High Grade Ostesarcoma with metastases on bones & lungs

      My child (13 years old) has metastases osteosarcoma (lungs & bones) and the chemo failed ! He becomes weak and painful. We are using now Rick Simpson Oil (RSO) at home. We are looking for alternative…
      69 views
      0 point
      Started by Naphtul
      Sarcoma
    • User: "AOZ"

      Alveolar Rhabdomyosarcoma Stage IV

      My son was diagnosed with Stage IV Alveolar Rhabdo in June of 2008 when he was 15. It was spread throughout his trunk, and they were never certain of the location of the primary tumor. Had spread to l…
      462 views
      19 comments
      2 points
      Started by AOZ
      Most recent by Cardier
      Sarcoma
    • User: "natmcg"

      DFSP Friends.

      Hi I have started this new heading so that anyone who is dealing with.DFSP at the moment can contact other people in the same position without having to scroll through all the old entries. Please don'…
      1539 views
      171 comments
      0 point
      Started by natmcg
      Most recent by natmcg
      Sarcoma
    • User: "jwfjlf"

      Undifferentiated Sarcoma

      My son (age 25) has been had surgery and is currently undergoing chemo treatment for a high grade, undifferntiated sarcoma that originated in his stomach. By the time the tumor was removed it was the …
      240 views
      16 comments
      0 point
      Started by jwfjlf
      Most recent by blanca5281
      Sarcoma
    • User: "brookslyn"

      cardiac sarcoma

      Help. my 51 yo brother had a tumor removed from his heart in May. after further testing, other tumors were found in his body. after about 10 weeks, the tumor in his heart is back. he had trouble findi…
      32 views
      1 comments
      0 point
      Started by brookslyn
      Most recent by Wendylim
      Sarcoma
    • User: "toninasky"

      angiosarcoma

      Anyone out there who has angiosarcoma caused by radiation from former breast or other cancer. How are you dealing with it medically. 
      58 views
      3 comments
      0 point
      Started by toninasky
      Most recent by ar648489
      Sarcoma
    • User: "Leanne H"

      Can you help me find a treatment for metastasised osteosarcoma

      Our 18 year old son was diagnosed with osteosarcoma in his leg in late November 2015. After 8 months of chemo and limb-saving surgery to remove the tumour, we were told his chances of survival were ve…
      16 views
      0 point
      Started by Leanne H
      Sarcoma
    • User: "Cuban"

      High grade rhabdomyosarcoma

      Hello all. I am a male in his 60s that just got diagnosed with high grade rhabdomyosarcoma. It originated in my lower right leg just below my knee. My tumor is greater than five centimeters. There is …
      45 views
      0 point
      Started by Cuban
      Sarcoma
    • User: "Ellie79"

      Need advise please

      Hello, I had an ultrasound and a ct scan two weeks ago and doctors think I have a fairly large large retroperitoneal liposarcoma and are suggesting a pt scan and biobsy as next steps steps. I then did…
      28 views
      2 comments
      0 point
      Started by Ellie79
      Most recent by Deedee17
      Sarcoma
    • User: "jolia"

      metastatic retroperitoneal liposarcoma

      Hi I hope you are doing well, I need your guide. My husband (32 years old) has diagnosed with retroperitoneal liposarcoma on November 2015. It was a 11*8 cm tumor on CT scan imaging. No metastaz to an…
      47 views
      1 comments
      0 point
      Started by jolia
      Most recent by kazzie
      Sarcoma
    • User: "Scared in the South"

      Could this be a sarcoma?

      I'm in my late 20s, and have recently found a lump in my inner mid-thigh. It's not painful, and it seems to become more prominent when I contract my thigh muscles. It almost seems to be part of the mu…
      844 views
      14 comments
      0 point
      Started by Scared in the South
      Most recent by mama42
      Sarcoma
    • User: "laurie58"

      our journey through " synovial sarcoma " !

      my sons painful journey through cancers eyes ! * View * Edit Thu, 04/04/2013 - 12:17pm — laurie58 my son is only 37 , his life took a dramatice change on august 17th 2011 when he was in severe pain on…
      52 views
      1 comments
      0 point
      Started by laurie58
      Most recent by savedad
      Sarcoma
    • User: "mjkaugust1952"

      Sarcoma of the Inner Ear

      Hello! In 2014 I had my first surgery for sarcoma in my inner right ear. I had two surgeries six months apart to remove, repair and rebuild my ear. I have no hearing in the ear now but we are hoping t…
      30 views
      0 point
      Started by mjkaugust1952
      Sarcoma
    • User: "lmcraig"

      malignant fibrous histiocytoma (undifferentiated pleomorphic sarcoma)

      My mom had a 14x9cm MFH sarcoma removed from her hip in June 2012. After 36 radiation treatments and multiple complications including having to wear a wound vac for over 4 months, then wet-to-dry dres…
      114 views
      5 comments
      0 point
      Started by lmcraig
      Most recent by mrbw
      Sarcoma
    • User: "mb6475"

      desmoplastic round cell tumor

      Does any one have this particular type of cancer.
      28 views
      4 comments
      0 point
      Started by mb6475
      Most recent by mblack95
      Sarcoma
    • User: "LindaDawn"

      undifferentiated embryonal sarcoma of liver

      Seven years ago I was diagnosed with undifferentiated embroyonal sarcoma of the liver. This is very rare in adults. I am a survivor and would like to offer this thread as a resource. It has been on th…
      41 views
      2 comments
      0 point
      Started by LindaDawn
      Most recent by LindaDawn
      Sarcoma
    • User: "mronchi"

      Dermatofibrosarcoma Protuberans

      I was just diagnosed with DFSP on Monday, 3/15/10. I have a similar story to the few others I've managed to find. I first noticed the lesion when I was about 15 years old but was told by a dermatologi…
      181 views
      8 comments
      0 point
      Started by mronchi
      Most recent by natmcg
      Sarcoma
    • User: "amfaile"

      Extraskeletal Ewing's Sarcoma/PNET

      I've been putting this off for too long, but I'm really getting curious about my cancer and how many people there are out there who have been through it. I was diagnosed with a PNET/Ewing's tumor arou…
      147 views
      13 comments
      0 point
      Started by amfaile
      Most recent by Mike92604
      Sarcoma
    • User: "CAMaura"

      New Ewings/PNET diagnosis - adult

      Hi, I recently had two small tumors and part of a rib removed at UCSF, with a Ewings/PNET diagnosis. I have met w/ one oncologist and will have a second opinion at Stanford on about two weeks. The che…
      41 views
      6 comments
      0 point
      Started by CAMaura
      Most recent by Mike92604
      Sarcoma
    • User: "Lynnbear"

      65F w/ASSO looking for alternatives to Chemo

      I am a 65 year old women, currently with ASSO(adenosarcoma w/sarcomatous overgrowth). I had a hysterectomy in the February of 2016 after tumors were discovered in my uterus. In October of 2016 several…
      13 views
      1 comments
      0 point
      Started by Lynnbear
      Most recent by asskicker
      Sarcoma
    • User: "CSN_Anne"

      Private Message Spam

      Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to ca…
      2 views
      0 point
      Started by CSN_Anne
      Sarcoma
    • User: "bletchley"

      Chemotherapy's Role in MFH Sarcoma

      I'm posting on behalf of my mother who was diagnosed with high-grade MFH in her left thigh in May. Since that time she's had 5 weeks worth of radio and then had successful surgery to remove the tumor …
      35 views
      3 comments
      0 point
      Started by bletchley
      Most recent by u4art
      Sarcoma
     

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