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High grade rhabdomyosarcoma
Hello all. I am a male in his 60s that just got diagnosed with high grade rhabdomyosarcoma. It originated in my lower right leg just below my knee. My tumor is greater than five centimeters. There is very little information in regard to this cancer in adults. I start chemo (MAID) soon and the doctors have indicated my leg…
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Need advise please
Hello, I had an ultrasound and a ct scan two weeks ago and doctors think I have a fairly large large retroperitoneal liposarcoma and are suggesting a pt scan and biobsy as next steps steps. I then did some reading about this cancer and have some thoughts. If you are familiar with this subject may I have your feedback…
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metastatic retroperitoneal liposarcoma
Hi I hope you are doing well, I need your guide. My husband (32 years old) has diagnosed with retroperitoneal liposarcoma on November 2015. It was a 11*8 cm tumor on CT scan imaging. No metastaz to any organ or bone at the time of diagnose. Surgury was done on November 10. The surgon told us thery removed the tumor…
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Could this be a sarcoma?
I'm in my late 20s, and have recently found a lump in my inner mid-thigh. It's not painful, and it seems to become more prominent when I contract my thigh muscles. It almost seems to be part of the muscle. It hasn't been there for very long (maybe a week or two) and really seems to have come out of nowhere. My original…
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our journey through " synovial sarcoma " !
my sons painful journey through cancers eyes ! * View * Edit Thu, 04/04/2013 - 12:17pm — laurie58 my son is only 37 , his life took a dramatice change on august 17th 2011 when he was in severe pain on his left side and had lost 25 lbs i took him in and they did a chest ex-ray thats when they found a mass in the center of…
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Sarcoma of the Inner Ear
Hello! In 2014 I had my first surgery for sarcoma in my inner right ear. I had two surgeries six months apart to remove, repair and rebuild my ear. I have no hearing in the ear now but we are hoping to try bi-cross hearing aids in an effort to give me sounds in that ear. My radiologist indicated that this may be the result…
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malignant fibrous histiocytoma (undifferentiated pleomorphic sarcoma)
My mom had a 14x9cm MFH sarcoma removed from her hip in June 2012. After 36 radiation treatments and multiple complications including having to wear a wound vac for over 4 months, then wet-to-dry dressings, last CT in September showed mets to lungs...aggressive mets to lungs. Chemo started same month, last CT showed no…
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desmoplastic round cell tumor
Does any one have this particular type of cancer.
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undifferentiated embryonal sarcoma of liver
Seven years ago I was diagnosed with undifferentiated embroyonal sarcoma of the liver. This is very rare in adults. I am a survivor and would like to offer this thread as a resource. It has been on the discussion boards for years but has gotten dropped twice. Please join this discussion if you need support, have questions…
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Dermatofibrosarcoma Protuberans
I was just diagnosed with DFSP on Monday, 3/15/10. I have a similar story to the few others I've managed to find. I first noticed the lesion when I was about 15 years old but was told by a dermatologist that it was probably just a benign tumor and not to worry about it unless it got bigger. I've shown it to a couple other…
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Synovial Sarcoma survivors wanted! Would love to hear stories!
Hello Survivors! My name is Scarlett, I am 19 years old and I live in San Diego, California. This is a long one, but I would really appreciate you reading it! Here is some background...last February I was diagnosed with synovial sarcoma. It was in my left forearm. I don't remember the approx. dimensions, but I remember…
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Extraskeletal Ewing's Sarcoma/PNET
I've been putting this off for too long, but I'm really getting curious about my cancer and how many people there are out there who have been through it. I was diagnosed with a PNET/Ewing's tumor around my right lung in August 2005, and I can't seem to find many people who have heard of it, let alone who have survived it.…
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New Ewings/PNET diagnosis - adult
Hi, I recently had two small tumors and part of a rib removed at UCSF, with a Ewings/PNET diagnosis. I have met w/ one oncologist and will have a second opinion at Stanford on about two weeks. The chemo regimen planned is tough, with alternating hospitalization for chemo one month and then infusions the next. This is…
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65F w/ASSO looking for alternatives to Chemo
I am a 65 year old women, currently with ASSO(adenosarcoma w/sarcomatous overgrowth). I had a hysterectomy in the February of 2016 after tumors were discovered in my uterus. In October of 2016 several new nodules were discovered in my abdomen. They decided against biopsying the cyst in fear of puncturing them and spreading…
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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Chemotherapy's Role in MFH Sarcoma
I'm posting on behalf of my mother who was diagnosed with high-grade MFH in her left thigh in May. Since that time she's had 5 weeks worth of radio and then had successful surgery to remove the tumor from her thigh. It was the size of a rugby ball. Right now she's recovering from the surgery (clear margins too!). And we've…
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Undifferentiated polymorphic sarcoma experience?
Anyone else out there with fast growing undifferentiated polymorphic sarcoma? My husband has it in the thigh. He had surgery and is scheduled for radiation. Wondering if anyone with same sarcoma can share any emperor insight. Thanks.
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Sarcoma
My husband was diagnosed with Sarcoma; pleomorphic liposarcoma which is extremely rare. It is difficult to find others that have experienced this type of cancer. If you are a sarcoma patient or survivor please provide any information you can share about the treatment and how you dealt with this on a daily basis.
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Undifferentiated pleomorphic sarcoma
My father (age 76) was recently diagnosed with undifferentiated pleomorphic sarcoma. He had a spot on his forehead where they originally thought it was just a form of skin cancer and cut it out (twice). It has increased in size very rapidly and he had it checked out to find it was cancerous. He went in for a MRI and got…
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Aveolar Rhabdomyosarcoma
I was diagnosed with rhabdo on Nov 30th, 2010. I am being treated at children's hospital in oakland. I am 19 years old, and the cancer showed up on the right side of my face. I am currently in a clinical trail for chemo therapy and I am also doing radiation treatments on my face five days a week. I have responded well to…
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Chemo or no chemo
i was diagnosed with stage 2 LMS 5 weeks ago. Surgery was 4 weeks ago. Large mass was removed. But they also found a small nodule on the stomach wall. It was not connected to the large mass. Both were removed with clean margins. Dilemma is s how did the nodule get there? From touching the large mass or from metastasized…
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Synovial Sarcoma
My husband was diagnosed back in Sept of 2010. Sunday he was fine doing yard work and Monday he came home with a limp. By Thursday we were being turned down by our first surgeon. More would turn us down over the next week and we would end up having to go more then an hour away for treatment. They knew then before they did…
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Ossifying Fibromyxoid Tumor
In Feb. of 2016 I was found to have a ossifying fibromyxoid tumor in my left chest wall. The tumor was removed but they did not get the margins they wanted in order to save my arm. Has anyone out there ever had this type of tumor.
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Nine year old lump in thigh--so scared
Hi all, I'm so frightened and upset: I have had a lump on the front of my left thigh for almost nine years. It was more "fatty" before but I noticed in the past few weeks, it has gotten less superficial and more firm. It's also quite large--I think it is the size of the palm of my hand. I'm also noticing a dull muscle pain…
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Help! Does this sound like a sarcoma, or...?
I'm a 59 year old female, and about 8 months ago I noticed a painless, hard and immobile lump on my inner thigh, about 15 cm above the knee. My GP said it was likely a lipoma, and nothing to be concerned about. I feel fine and am in good health otherwise, but I still kept thinking about it, and last month went for a second…
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Concerned
Hi Everyone. I am writing as I am concerned about my son. He has presented with a lump on his arm that has now after an MRI finally been identified as a soft tissue sarcoma. We have waited weeks, and nothing will move forward until results of a biopsy that is planned for some time next week. I am worried that things are…
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pleomorphic liposarcoma
Hi., im ROGER from philippines.. my Dad was diagnosed with PLEOMORPHIC LIPOSARCOMA last 3 weeks ago, and now the oncologist told us., that the cancer cell, spread in yhr lungs., so, he suggest the best way to treat my dad ia through chemo. however, he added that he is not certain for the assurance of chemo. but he is…
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I lost my wife Aug.19.2016. She was only 26
i lost my wife to cancer a month ago today. She was diagnosed on august 8th and passed 11 days later. It all happened so fast. The doctors believe it was a very rare and aggressive sarcoma and was on her left thigh. she was misdiagnosed by 3 different doctors Over a 4 moth period. We went to a fourth and he knew something…
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HOW and WHY Ozone Therapies work
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Chondro sarcoma
I had a skull based chondrosarcoma surgically removed from behind my right ear in 1990. Another was diagnosed, growing in the same place, in 2000. Surgical removal is not an option second time around. Although only slow growing I have had two bleeds in the last 18 months, one into surrounding brain tissue, the other inside…