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Sarcoma

Request information on Mohs for DFSP
Hi All, My 12 year old daughter has been diagnosed with DFSP. She has been advised surgery and from what we have come to know Mohs micrographic surgery is the best option to reduce the risk of recurrence. We stay in Singapore. Can someone please give me some information on whether Mohs for DFSP isperformed anywhere in…
Lartruvo
Does anyone have any positive and hopeful lartruvo experiences. I have rhabdomyosarcoma, spindle cell variant (either that or PUS/UPS...the doctors really can't wrap their head around it). I did three cycles of VAC. When I started I was a stage IIIc, between my dx in August and now, I've developed lung mets...too many too…
Chemo for rhabdomyosarcoma
I am 26 yrs old and I was diagnosed with Spindle cell/sclerosing rhabdomyosarcoma. The tumor was in my lower left leg and I was amputated after two rounds of chemo. The chemo wasn't effective and the tumor size increased during chemo. My oncologist suggested 4 rounds of post-operative chemo but the effectiveness is…
Pulmonary Artery Sarcoma
In Sept of 2012, I was diagnosed after a heart attack that I had a tumor in my pulmonary artery. I had never heard of Sarcoma before that. I've heard it's one of the rarest forms of Sarcoma with only about 200 reported live cases. This is usually found post mortem. At age 35, the wife and mother to two beautiful kids, I…
Undiff Pleomorphic Sarcoma (thigh)
My husband was recently diagnosed with undifferentiated pleomorphic sarcoma. In brief, he had a tiny hard bump on his outer thigh that he just noticed one day. Then after about 4 months it became more noticeable and kind of painful. Within the next two months it really grew fast, was obviously larger, tender to touch and…
anyone know of a child with "adult fibrosarcoma"?
Our granddaughter, Maya Jones, was diagnosed on December 24, 2008 (age 2) with "adult" fibrosarcoma in her upper right arm. Had chemo that did nothing (tumor was 100% alive when taken out April 1st), pre and post-op radiation. Clean but not wide margins. No metastasis at diagnosis, but the tumor was, according to the…
Stage IV Rhabdomyosarcoma
Hi all, I'm a 30yo male diagnosed with stage IV Embryonal Rhabdomyosarcoma. I wanted to know if there are any survivors or fighters for stage IV rhabdomyosarcoma.
Leiomyosarcoma of the Inferior Vena Cava
I am a 71 yr old female in excellent health, felt good and looked GREAT (so I was told constantly, LOL) until March 2017 when I was diagnosed with Stage 2 Leiomyosarcoma in the retroperitonal area. The tumor was 5.5 cm when it was found. The tumor had invaded and blocked the Inferior Vena Cava, which compromised my right…
High Grade Ostesarcoma with metastases on bones & lungs
My child (13 years old) has metastases osteosarcoma (lungs & bones) and the chemo failed ! He becomes weak and painful. We are using now Rick Simpson Oil (RSO) at home. We are looking for alternative promising treatments. Any help will be most appreciate
Alveolar Rhabdomyosarcoma Stage IV
My son was diagnosed with Stage IV Alveolar Rhabdo in June of 2008 when he was 15. It was spread throughout his trunk, and they were never certain of the location of the primary tumor. Had spread to liver, and there were some cells found in the lungs. He underwent 52 weeks of chemo (five or six different chemos, in…
DFSP Friends.
Hi I have started this new heading so that anyone who is dealing with.DFSP at the moment can contact other people in the same position without having to scroll through all the old entries. Please don't get me wrong the older entries have valuable information and are always worth reading if you find out you have this rear…
Undifferentiated Sarcoma
My son (age 25) has been had surgery and is currently undergoing chemo treatment for a high grade, undifferntiated sarcoma that originated in his stomach. By the time the tumor was removed it was the size of a vollyball and had invaded his liver, pancreas, lung, and gallbladder. After surgery the tumor grew back as big as…
cardiac sarcoma
Help. my 51 yo brother had a tumor removed from his heart in May. after further testing, other tumors were found in his body. after about 10 weeks, the tumor in his heart is back. he had trouble finding a dr who would treat him, but finally did. they were to start treatment today (aug 4) but he received a phone call that…
angiosarcoma
Anyone out there who has angiosarcoma caused by radiation from former breast or other cancer. How are you dealing with it medically.
Can you help me find a treatment for metastasised osteosarcoma
Our 18 year old son was diagnosed with osteosarcoma in his leg in late November 2015. After 8 months of chemo and limb-saving surgery to remove the tumour, we were told his chances of survival were very good. Sadly, in July this year a small spot was detected on his lung one week from being 12 months since his last round…
High grade rhabdomyosarcoma
Hello all. I am a male in his 60s that just got diagnosed with high grade rhabdomyosarcoma. It originated in my lower right leg just below my knee. My tumor is greater than five centimeters. There is very little information in regard to this cancer in adults. I start chemo (MAID) soon and the doctors have indicated my leg…
Need advise please
Hello, I had an ultrasound and a ct scan two weeks ago and doctors think I have a fairly large large retroperitoneal liposarcoma and are suggesting a pt scan and biobsy as next steps steps. I then did some reading about this cancer and have some thoughts. If you are familiar with this subject may I have your feedback…
metastatic retroperitoneal liposarcoma
Hi I hope you are doing well, I need your guide. My husband (32 years old) has diagnosed with retroperitoneal liposarcoma on November 2015. It was a 11*8 cm tumor on CT scan imaging. No metastaz to any organ or bone at the time of diagnose. Surgury was done on November 10. The surgon told us thery removed the tumor…
Could this be a sarcoma?
I'm in my late 20s, and have recently found a lump in my inner mid-thigh. It's not painful, and it seems to become more prominent when I contract my thigh muscles. It almost seems to be part of the muscle. It hasn't been there for very long (maybe a week or two) and really seems to have come out of nowhere. My original…
our journey through " synovial sarcoma " !
my sons painful journey through cancers eyes ! * View * Edit Thu, 04/04/2013 - 12:17pm — laurie58 my son is only 37 , his life took a dramatice change on august 17th 2011 when he was in severe pain on his left side and had lost 25 lbs i took him in and they did a chest ex-ray thats when they found a mass in the center of…
Sarcoma of the Inner Ear
Hello! In 2014 I had my first surgery for sarcoma in my inner right ear. I had two surgeries six months apart to remove, repair and rebuild my ear. I have no hearing in the ear now but we are hoping to try bi-cross hearing aids in an effort to give me sounds in that ear. My radiologist indicated that this may be the result…
malignant fibrous histiocytoma (undifferentiated pleomorphic sarcoma)
My mom had a 14x9cm MFH sarcoma removed from her hip in June 2012. After 36 radiation treatments and multiple complications including having to wear a wound vac for over 4 months, then wet-to-dry dressings, last CT in September showed mets to lungs...aggressive mets to lungs. Chemo started same month, last CT showed no…
desmoplastic round cell tumor
Does any one have this particular type of cancer.
undifferentiated embryonal sarcoma of liver
Seven years ago I was diagnosed with undifferentiated embroyonal sarcoma of the liver. This is very rare in adults. I am a survivor and would like to offer this thread as a resource. It has been on the discussion boards for years but has gotten dropped twice. Please join this discussion if you need support, have questions…
Dermatofibrosarcoma Protuberans
I was just diagnosed with DFSP on Monday, 3/15/10. I have a similar story to the few others I've managed to find. I first noticed the lesion when I was about 15 years old but was told by a dermatologist that it was probably just a benign tumor and not to worry about it unless it got bigger. I've shown it to a couple other…
Extraskeletal Ewing's Sarcoma/PNET
I've been putting this off for too long, but I'm really getting curious about my cancer and how many people there are out there who have been through it. I was diagnosed with a PNET/Ewing's tumor around my right lung in August 2005, and I can't seem to find many people who have heard of it, let alone who have survived it.…
New Ewings/PNET diagnosis - adult
Hi, I recently had two small tumors and part of a rib removed at UCSF, with a Ewings/PNET diagnosis. I have met w/ one oncologist and will have a second opinion at Stanford on about two weeks. The chemo regimen planned is tough, with alternating hospitalization for chemo one month and then infusions the next. This is…
65F w/ASSO looking for alternatives to Chemo
I am a 65 year old women, currently with ASSO(adenosarcoma w/sarcomatous overgrowth). I had a hysterectomy in the February of 2016 after tumors were discovered in my uterus. In October of 2016 several new nodules were discovered in my abdomen. They decided against biopsying the cyst in fear of puncturing them and spreading…
Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
Chemotherapy's Role in MFH Sarcoma
I'm posting on behalf of my mother who was diagnosed with high-grade MFH in her left thigh in May. Since that time she's had 5 weeks worth of radio and then had successful surgery to remove the tumor from her thigh. It was the size of a rugby ball. Right now she's recovering from the surgery (clear margins too!). And we've…

Sarcoma

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