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Aveolar Rhabdomyosarcoma
I was diagnosed with rhabdo on Nov 30th, 2010. I am being treated at children's hospital in oakland. I am 19 years old, and the cancer showed up on the right side of my face. I am currently in a clinical trail for chemo therapy and I am also doing radiation treatments on my face five days a week. I have responded well to…
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Chemo or no chemo
i was diagnosed with stage 2 LMS 5 weeks ago. Surgery was 4 weeks ago. Large mass was removed. But they also found a small nodule on the stomach wall. It was not connected to the large mass. Both were removed with clean margins. Dilemma is s how did the nodule get there? From touching the large mass or from metastasized…
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Synovial Sarcoma
My husband was diagnosed back in Sept of 2010. Sunday he was fine doing yard work and Monday he came home with a limp. By Thursday we were being turned down by our first surgeon. More would turn us down over the next week and we would end up having to go more then an hour away for treatment. They knew then before they did…
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Ossifying Fibromyxoid Tumor
In Feb. of 2016 I was found to have a ossifying fibromyxoid tumor in my left chest wall. The tumor was removed but they did not get the margins they wanted in order to save my arm. Has anyone out there ever had this type of tumor.
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Nine year old lump in thigh--so scared
Hi all, I'm so frightened and upset: I have had a lump on the front of my left thigh for almost nine years. It was more "fatty" before but I noticed in the past few weeks, it has gotten less superficial and more firm. It's also quite large--I think it is the size of the palm of my hand. I'm also noticing a dull muscle pain…
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Help! Does this sound like a sarcoma, or...?
I'm a 59 year old female, and about 8 months ago I noticed a painless, hard and immobile lump on my inner thigh, about 15 cm above the knee. My GP said it was likely a lipoma, and nothing to be concerned about. I feel fine and am in good health otherwise, but I still kept thinking about it, and last month went for a second…
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Concerned
Hi Everyone. I am writing as I am concerned about my son. He has presented with a lump on his arm that has now after an MRI finally been identified as a soft tissue sarcoma. We have waited weeks, and nothing will move forward until results of a biopsy that is planned for some time next week. I am worried that things are…
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pleomorphic liposarcoma
Hi., im ROGER from philippines.. my Dad was diagnosed with PLEOMORPHIC LIPOSARCOMA last 3 weeks ago, and now the oncologist told us., that the cancer cell, spread in yhr lungs., so, he suggest the best way to treat my dad ia through chemo. however, he added that he is not certain for the assurance of chemo. but he is…
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I lost my wife Aug.19.2016. She was only 26
i lost my wife to cancer a month ago today. She was diagnosed on august 8th and passed 11 days later. It all happened so fast. The doctors believe it was a very rare and aggressive sarcoma and was on her left thigh. she was misdiagnosed by 3 different doctors Over a 4 moth period. We went to a fourth and he knew something…
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HOW and WHY Ozone Therapies work
<Content deleted by CSN Support Team. 10/14/2016.>
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Veterans with cancer
I am a veteran of Desert Storm an Iraq, How many vets out there have sarcoma throat cancer. I am a non smoker and drinker
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Chest Sarcoma
Has anyone had a soft tissue sarcoma in sternum?
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RHABDOMYOSARCOMA
HI, I AM LOOKING FOR ADULTS WITH RHABDOMYOSARCOMA. IF YOU WOULD LIKE TO TALK, EMAIL ME AT DPJERSEY@AOL.COM
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Recently diagnosed with GIST and MALTS Lymphoma
I have recently been diagnosed with cancer of two different types. Looking to talk to others with initial issues? I just started Gleevec and would like to know what others have experienced. I'm still in the scared stage.
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Low Grade Fibromyoxiod Sarcomas - Lungs
Hi all - I live in the UK and have recently been diagnosed with a rare form of cancer, a Low Grade Fibromyoxiod Sarcoma on my lungs. Does anyone else on here have this type of cancer, or experience/knowledge of it? I'm keen to hear what other people have been offered in terms of treatment? Thanks in advance
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Sarcomatoid features on Clear Cell Renal Cancer
My son-in-law just had a radical nephrectomy for a 13 cm tumor that took his left kidney. The pathology says 60% sarcomatoid features with extensive necrosis. I am wondering if anyone in this sarcoma forum has had any experience with this? Penitent
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Leiomyosarcoma - choosing hospital and doctor in Toronto, Canada
My sister was diagnosed with uternine leiomyosarcoma. She lives in Toronto Canada. She is in shock and unable to figure things out. Could you help me? 1) Which hospital would you recommend? Mount Sinai or Sunnybrook hospital. 2) She had surgery to remove fibroid and the biopsy came back with leiomyosarcoma. She didnt have…
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possible liposarcoma 6inches above right ankle
Hi all, I just had a lump on lower right leg mri with contrast and it showed small mass 2cm with main blood supply and possible vascularities so oncologist is going to cut it out. I am a little nervous they said it was going into the muscle and im not sure if i will be able to walk again or drive which is fine if they get…
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Spindle Cell Sarcoma of the kidney
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retroperitoneal liposarcoma
My husband is now 47 and was diagnosed 2 yrs ago with what they call "retroperitoneal liposarcoma". At first they thought it was kidney cancer, so they operated quickly, and removed the tumor and the kidney. It took pathology 3 weeks to figure out what kind of cancer it was because we were told they were "baffled." We got…
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Soft Tisue Sarcoma
My sister, who is 38 years old, was recently diagnosed with a spindle cell sclerosing highgrade rhabdomiosarcoma on her cheek. It started as a small lump on her right cheek. She had surgery to remove the sarcoma as well as the surrounding areas. Her doctor told her the tumor was 2.5 cm. Her surgeon and the oncologist both…
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Looking for Spindle Cell Sarcoma Survivors
I see people post about surviving this and about being diagnosed but that's it. 1 or 2 post. The end. I don't know who is alive or what. I'm looking for others still alive. I going to try to post status monthly for as long as I can. This is our history: •My wife was diagnosed with spindile cell sarcoma on 09/25/2010. •22lb…
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Adult High Grade Rhabdomyosarcoma
Our Mom was diagnosed and has received her first round of chemo. She is 68 and chemo has hit hard. We are battling local doctors who say hope is gone but my Mom and our family have not given hope. She is Stage 4, high grade, we are working with MD Anderson but receiving local treatment. We have been told she needs to be…
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Myxoid inflammatory fibroblastic sarcoma
I'm interested in contacting survivors who have had myxoid fibro sarcoma and their treatments, prognoses, etc.
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Help with cancer patient giving up
My 51 year old brother was diagnosed in july 2015 with sarcoma. Multiple tumors throughout his body. Just seemed to happen out of thin air. Took two different rounds of chemo treatments, with unfavorable results. Chemo did not work at all. Had an appt. yesterday to get the results of his scans, and his dr. said his…
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Rare ovarian sarcoma... Am I alone on this
I was diganosed with a type of ovarian sarcoma May 31 of 2008. My doctors have all told me that this is very rare.. I have actually heard that so many times, the word rare has become a trigger to me. I was told my my previous doctors that they honestly did not knwo how to treat this or what the appropriate next step was…
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Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
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liposarcoma age 40 in right groin
Hi, I was just diagnosed 3days ago. I had surgery on oct.6 when they removed a lump.my local hospital thought it may be a spindle cell fibrous tumor. but, when they removed it a specialist could not identify it. then it was sent to university of wisconsin and now i am told it was a malignant tumor and i have low grade…
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Possible liposarcoma
Hello, First time poster. I started having horrible tibia pain in October 14. The only time the pain occurred was at night when laying down (deep down, achy). For months I haven't slept well. I also have RA (4 years). I had an apt in Dec with my Rheumatologist who ordered x-ray fory back and knee. She since she couldn't…
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Chemotherapy treatment for metastatic soft tissue sarcoma MPNST
My husband was diagnosed with MPNST of the sciatic nerve in 2009. He had a local recurrance in 2010. He then had surgery, radiation, and chemotherapy. At that time the chemo regimine was ifosfamide, doxorubicin, and mesna. This summer we were told the sarcoma had metastasized to his lungs with appx 10 nodules. We waited…