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Veterans with cancer
I am a veteran of Desert Storm an Iraq, How many vets out there have sarcoma throat cancer. I am a non smoker and drinker
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Chest Sarcoma
Has anyone had a soft tissue sarcoma in sternum?
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RHABDOMYOSARCOMA
HI, I AM LOOKING FOR ADULTS WITH RHABDOMYOSARCOMA. IF YOU WOULD LIKE TO TALK, EMAIL ME AT DPJERSEY@AOL.COM
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Recently diagnosed with GIST and MALTS Lymphoma
I have recently been diagnosed with cancer of two different types. Looking to talk to others with initial issues? I just started Gleevec and would like to know what others have experienced. I'm still in the scared stage.
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Low Grade Fibromyoxiod Sarcomas - Lungs
Hi all - I live in the UK and have recently been diagnosed with a rare form of cancer, a Low Grade Fibromyoxiod Sarcoma on my lungs. Does anyone else on here have this type of cancer, or experience/knowledge of it? I'm keen to hear what other people have been offered in terms of treatment? Thanks in advance
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Sarcomatoid features on Clear Cell Renal Cancer
My son-in-law just had a radical nephrectomy for a 13 cm tumor that took his left kidney. The pathology says 60% sarcomatoid features with extensive necrosis. I am wondering if anyone in this sarcoma forum has had any experience with this? Penitent
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Leiomyosarcoma - choosing hospital and doctor in Toronto, Canada
My sister was diagnosed with uternine leiomyosarcoma. She lives in Toronto Canada. She is in shock and unable to figure things out. Could you help me? 1) Which hospital would you recommend? Mount Sinai or Sunnybrook hospital. 2) She had surgery to remove fibroid and the biopsy came back with leiomyosarcoma. She didnt have…
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possible liposarcoma 6inches above right ankle
Hi all, I just had a lump on lower right leg mri with contrast and it showed small mass 2cm with main blood supply and possible vascularities so oncologist is going to cut it out. I am a little nervous they said it was going into the muscle and im not sure if i will be able to walk again or drive which is fine if they get…
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Spindle Cell Sarcoma of the kidney
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retroperitoneal liposarcoma
My husband is now 47 and was diagnosed 2 yrs ago with what they call "retroperitoneal liposarcoma". At first they thought it was kidney cancer, so they operated quickly, and removed the tumor and the kidney. It took pathology 3 weeks to figure out what kind of cancer it was because we were told they were "baffled." We got…
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Soft Tisue Sarcoma
My sister, who is 38 years old, was recently diagnosed with a spindle cell sclerosing highgrade rhabdomiosarcoma on her cheek. It started as a small lump on her right cheek. She had surgery to remove the sarcoma as well as the surrounding areas. Her doctor told her the tumor was 2.5 cm. Her surgeon and the oncologist both…
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Looking for Spindle Cell Sarcoma Survivors
I see people post about surviving this and about being diagnosed but that's it. 1 or 2 post. The end. I don't know who is alive or what. I'm looking for others still alive. I going to try to post status monthly for as long as I can. This is our history: •My wife was diagnosed with spindile cell sarcoma on 09/25/2010. •22lb…
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Adult High Grade Rhabdomyosarcoma
Our Mom was diagnosed and has received her first round of chemo. She is 68 and chemo has hit hard. We are battling local doctors who say hope is gone but my Mom and our family have not given hope. She is Stage 4, high grade, we are working with MD Anderson but receiving local treatment. We have been told she needs to be…
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Myxoid inflammatory fibroblastic sarcoma
I'm interested in contacting survivors who have had myxoid fibro sarcoma and their treatments, prognoses, etc.
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Help with cancer patient giving up
My 51 year old brother was diagnosed in july 2015 with sarcoma. Multiple tumors throughout his body. Just seemed to happen out of thin air. Took two different rounds of chemo treatments, with unfavorable results. Chemo did not work at all. Had an appt. yesterday to get the results of his scans, and his dr. said his…
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Rare ovarian sarcoma... Am I alone on this
I was diganosed with a type of ovarian sarcoma May 31 of 2008. My doctors have all told me that this is very rare.. I have actually heard that so many times, the word rare has become a trigger to me. I was told my my previous doctors that they honestly did not knwo how to treat this or what the appropriate next step was…
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Planned Outage on 10/9
There will be a planned CSN outage on 10/9/15 from 5am-8am EST while the site undergoes some maintenance. We apologize for the inconvenience. Rowan CSN Support Team
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liposarcoma age 40 in right groin
Hi, I was just diagnosed 3days ago. I had surgery on oct.6 when they removed a lump.my local hospital thought it may be a spindle cell fibrous tumor. but, when they removed it a specialist could not identify it. then it was sent to university of wisconsin and now i am told it was a malignant tumor and i have low grade…
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Possible liposarcoma
Hello, First time poster. I started having horrible tibia pain in October 14. The only time the pain occurred was at night when laying down (deep down, achy). For months I haven't slept well. I also have RA (4 years). I had an apt in Dec with my Rheumatologist who ordered x-ray fory back and knee. She since she couldn't…
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Chemotherapy treatment for metastatic soft tissue sarcoma MPNST
My husband was diagnosed with MPNST of the sciatic nerve in 2009. He had a local recurrance in 2010. He then had surgery, radiation, and chemotherapy. At that time the chemo regimine was ifosfamide, doxorubicin, and mesna. This summer we were told the sarcoma had metastasized to his lungs with appx 10 nodules. We waited…
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Reoccuring Liposarcoma - What #; What Treatment; When...
On April 24th I had my 9th liposarcoma tumor surgically removed after receiving cyberknife radiation 2 weeks prior. All is well and back to normal. Next concern: future radiation to the pelvic area getting more finite. Those out there having had a reoccurance of Lipsarcoma, please add info on your most recent tumor along…
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Liposarcoma Retroperitoneum
On January 8, 2014 I had a 69.5 pound Liposarcoma Retroperitoneum removed from my abdomen. I was very lucky to only lose my appendix. I had nerve damage and my left leg would not support me without a walker. I have been rehabilitating my leg and stopped using the walker in September, it is about 85% to 90%, and I am doing…
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My battle through Ewing Sarcoma
I'm new to the Cancer Survivor board and am a Ewing Sarcoma Fighter/Survivor. I have one month of chemo therapy to go and am hoping to dive into making a short film about my journey. I have recently started a blog and also have begun mentoring some of the newer Sarcoma peers I have met through my hospital and through…
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https://www.reddit.com/39hghs/
Cavaliers vs Warriors Live Stream
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Malignat peripheral nerve sheath tumor, High-grad sacroma
Hi, I was just diagnosed with MPNST in Nov 2012. This is a sarcoma. Mine is in the center of my sciatic nerve in the upper part of my right leg behind the femor. I just started radiation treatment for 5 days a week for 5 weeks. My choises were amutate or take out the sciatic nerve. I decided to go with taking out the…
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Yes, You Can Survive Cancer!
I am the survivor of extraosseous osteosarcoma. Here is the link to my story describing how I defeated Cancer: https://www.linkedin.com/pulse/yes-you-can-defeat-cancer-pundalik-kudapkar The purpose of sharing this story is to: * Share some of the techniques I used to create positivity around and within me influencing the…
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undifferentiated embryonal sarcoma of liver
In 2008 I was diagnosed with undifferentiated embryonal sarcoma of liver. This is a very rare diagnosis in an adult. I was 48 at he time. I underwent a liver resection, removing a 16cm sarcoma. I then had intensive chemotherapy following the ewings protocol. I am here five years later and so far cancer free. I used to have…
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spindle cell sarcoma
I've just been diagnosed with spindle cell sarcoma in my left lung. Its the size of a goofball. This will be my 3rd time. The first was on my face and spread to my left lung. It was a very small nodule and both were fixed with chemotherapy. 2yrs later it came back on my face. Surgery without chemotherapy or radiation. This…
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SARCOMA AND CELLULITIS
Hi, my mother has a sarcoma and a blood clot in her thigh. After her first chemo treatment, she got a bad case of cellulitis, which she had before but not as bad. Thank God, the antibiotics cleared it up, but now we are afraid of getting it again. Has anyone else had cellulitis during chemo treatments? thanks