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new here/tounge cancer
Hi my name is mike I was diagnous with tounnge cance 5-16-12 I have gone thru my treatments and have had 2 neg pet scans. But evere day I live with the after effects of the cancer, have had oral infections from yeast one after another, still have edama in my neck , and trouple swollowing at times. I know that these effects…
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new here/tounge cancer
Hi my name is mike I was diagnous with tounnge cance 5-16-12 I have gone thru my treatments and have had 2 neg pet scans. But evere day I live with the after effects of the cancer, have had oral infections from yeast one after another, still have edama in my neck , and trouple swollowing at times. I know that these effects…
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new here/tounge cancer
Hi my name is mike I was diagnous with tounnge cance 5-16-12 I have gone thru my treatments and have had 2 neg pet scans. But evere day I live with the after effects of the cancer, have had oral infections from yeast one after another, still have edama in my neck , and trouple swollowing at times. I know that these effects…
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High Grade - Malignant Peripheral Nerve Sheath Tumor - Left Arm
Hello :-) I noticed a small painful area on the top of my arm around two weeks before Christmas and by middle of January it was the size of a large grape. I was referred to a Neuro & Plastic Surgeon who quickly wanted to remove the lump. They believed it to be a Schwannoma which could be removed easily and likely to be…
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February 1, 2013 How MFH changed our way of LIFE.
A 7 cm. tumor in the left thigh & 2 Pathology reports from St. Lukes hospital which read in bold and Capital letters, MALIGNANT FIBROUS HISTOCYTOMA.. LEIOMYOSARCOMA with CHONDROID OSTEOID DIFFERENTIATION.. The once ordinary routine of a simple Family with a family run corporation who did everything by the book is now in…
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Clear Cell Sarcoma
A dear friend of ours who is like a brother to us, was just diagnosed with clear cell sarcoma. We have just found out that he has three tumors and one is the size of a tennis ball. The tumors are in his leg. We find out Wednesday the results of his PET scan. He is in his early forties and single. We are like his only…
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Ewing sarcoma insight??please.
Hello my friends!i notice my left leg (femur area) started swelling in the ending of November 2011, I was a high school senior at the time, so I was doing a lot of weight training, so i didn't think to much of it, then the pain started, so i went to the hospital, they did scans and a biopsy and diagnosed me with Ewing…
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peripheral nerve sheath sarcoma
anyone know of it or have it? know of any treatments?
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Son has Ewing's Sarcoma recurrence for the third time
I am a mom that has a son that has cancer for the third time. He was first diagnosed with this type of cancer when he was 17 and then he got it back when he was 20 and now his doctors are telling us that it came back for the third time. The doctors just did a lot of scans and took some bone marrow to see whether the cancer…
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Ewing Sarcoma
I have a Ewing Sarcoma and am on Chemotherapy Treatment since early September 2000. Another 7 cycles of chemo are planned before I have to undergo radiation. I do not know what to expect from the radiation treatment. Does anyone have similar experience? Thanks for dropping me a note.
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Possible Diagnosis of a Spindle Cell Sarcoma, need info and reassurance
My name is Karin and I am 44 years old. 7 years ago I was diagnosed with Hodgkins Lymphoma and underwent 6 months of chemo and have been cancer free since. About a month and a half ago I felt a lump in my right upper arm and the first thought I had was a Hodgkin's relapse. I had an MRI which was suspicious so my Onc sent…
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New to chemo
I was diagnosed with Soft tissue Extraskeletal chondrosarcoma 5 yrs ago. I had a lump on my right thigh and once having it removed, months of physical therapy and 3 months of radiation I thought i was just about done with cancer. Then we found out it had spread to my lungs. It was very slow growing then and since there…
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abdominal liposarcoma
My 78 year old mother has a liposarcoma tumor in her abdomin. She has gone through 5 weeks of radiation and now the Dr.s would like to operate to take the tumor out but, as well, they would take the stomack, spleen, part of the pancreas, 1 kidney and 1 adrenal gland out. Somehow this seems very radical and we're wondering…
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Help - Left Thigh Mass - Need Info/Comments re MRI results
I am a 60 yr F. 6 mo+/-ago noticed random ache in top ctr of left thigh; not constant. In rubbing area I felt a lump. When standing you couldn't feel it. Sitting or bending leg it was noticeable. Was getting bigger then noticed 2nd mass on inside of thigh 4" from 1st. Went to GP. He thought fatty masses. Ref'd to surgeon.…
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16 year rhabdomyosarcoma in arm stage 4
He has been in treatment for two years, today they told us that he has about a year to live
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16 year rhabdomyosarcoma in arm stage 4
He has been in treatment for two years, today they told us that he has about a year to live
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Leiomyosarcoma
My daughter was diagnosed with Leiomyosarcoma Cancer last week. She is 23. They found it when they removed what they thought was a cyst on her forehead three weeks ago. They ran a test on the cyst and tested positve for Leiomyosarcoma. I have been searcing high & low for anyone who has or had something similar. Everything…
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Well Differentiated Liposarcoma of Left Thigh
I was diagnosed with a Well Differentiated Liposarcoma that measured 18 X 10 X 4.5 cm. In September 2011, I noticed a strange lump in my left thigh and went to a doctor, I was told I had a pulled muscle. My leg didn't hurt, it just had this bulge was squishy and moved around in my thigh. Since I was told that the lump was…
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DFSP
Hello, I was diagnosed with DSFP Nov 6, 2012. What I thought was a scar turned out to be DSFP. I noticed it 3 years ago and it changed and had another spot beside it so I went to the Dermatologist. I am waiting on a referral to a MOHS surgeon and hope for a good out come. I found a great support group on facebook but all…
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LIFE BEYOND ANGIOSARCOMA
I´m an Spanish man living in Spain. So please acept my apologizes if my english is not too good . My father in law, now 85 years old, has suffered a head and neck angiosarcoma, wrongly diagnosed in 2006. Three years later, he was considered inoperable and said, no other treatment was possible, after five surgeries and 32…
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I was just diagnosed with Ewings Sarcoma pnet Need some Answers PLEASE!
I just found out in july2010 that I would start my fight with Ewings sarcoma . I am 21 years old the mother of a beautiful 3year old girl named Aubrey. I had my right kidney taken out and im going for my 2end opion on August 5 2010 after that Im due to start my chemo and radtiton anyday.. Latley I have had loss of energy…
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ANGIOSARCOMA CANCER
hi i am writing to see if anyone can help me with what has happened to my dad he has been diagnosed with this cancer angiosarcoma. He was admitted to hospital last week after complaining for two whole weeks of lower abdominal pains he went to 3 separate doctors, one his own gp and twice the hospital a and e, and each time…
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new short film on cancer - looking for stories for next film
I am from the colon cancer group but want to post this : PSA on Early Detection for colon cancer ... http://www.youtube.com/watch?v=86jEIEBLPNM&feature=player_embedded the next one will be on diet & alternative therapy during remission. If anyone has a story to share, please message me. I want to keep making these videos…
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Need help effectiveness of chemo on sarcomas
Have pleomorphic liposarcoma. Radical resection done, and "showed" no remaining cancer. CT "showed" no cancer in chest, abdoman, pelvic area. Doing 7wks of radiation. Family doctor wants me to do chemo, surgeon and radioloigy oncologist say it doesn't work. University of Michigan sarcoma center says my decision, would…
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dermatofibroidsarcoma of the vulva
Recently found out I have dermatofibroidsarcoma of the vulva. Anyone experienced this?
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Mother of a teenager diagnosed with Osteosarcoma
WOuld like to talk to others with children who have kids with Osteosarcoma
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Meningeal Sarcome
My 17 year old son was was diagnosed Oct 2011 with meningeal sarcoma. I was told it was very rare. I'm looking for someone that has been successful with treating it. My son had the tumor removed from his left frontal lobe 10/2011. In Jan 2012 when he was starting proton beam therapy MRI showed it back in the same spot. He…
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Surviving Sarcoma
In July 2011, I was diagnosed with Spindle Cell Sarcoma. It began with a small tumor in my left shin, which was biopsied and returned positive as a Hemangioma. The tumors continued to grown on my leg (going downward) and toes. After having two tumors biopsied, they came back (+) for Spindle Cell Sarcoma. Because there were…
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Looking for fibrosarcoma survivors
Hi, my 33 years old boyfriend is fighting fibrosarcoma since two years. He had surgery last year on his pelvis and it is back again plus two spots on lungs. Just wondering what to expect and whats your story.
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Spiral Cell Sarcoma
My father (66 year old) was diagnosed with a 10cm sarcoma in his upper left thigh and surrounding lymph nodes last week. Today the radiation oncologist told him it was spiral cell but I can't seem to find any research on this type? Has anyone heard of spiral cell sarcoma? They are doing another CT scan just to confirm that…