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Sarcoma

16 year rhabdomyosarcoma in arm stage 4
He has been in treatment for two years, today they told us that he has about a year to live
16 year rhabdomyosarcoma in arm stage 4
He has been in treatment for two years, today they told us that he has about a year to live
Leiomyosarcoma
My daughter was diagnosed with Leiomyosarcoma Cancer last week. She is 23. They found it when they removed what they thought was a cyst on her forehead three weeks ago. They ran a test on the cyst and tested positve for Leiomyosarcoma. I have been searcing high & low for anyone who has or had something similar. Everything…
Well Differentiated Liposarcoma of Left Thigh
I was diagnosed with a Well Differentiated Liposarcoma that measured 18 X 10 X 4.5 cm. In September 2011, I noticed a strange lump in my left thigh and went to a doctor, I was told I had a pulled muscle. My leg didn't hurt, it just had this bulge was squishy and moved around in my thigh. Since I was told that the lump was…
DFSP
Hello, I was diagnosed with DSFP Nov 6, 2012. What I thought was a scar turned out to be DSFP. I noticed it 3 years ago and it changed and had another spot beside it so I went to the Dermatologist. I am waiting on a referral to a MOHS surgeon and hope for a good out come. I found a great support group on facebook but all…
LIFE BEYOND ANGIOSARCOMA
I´m an Spanish man living in Spain. So please acept my apologizes if my english is not too good . My father in law, now 85 years old, has suffered a head and neck angiosarcoma, wrongly diagnosed in 2006. Three years later, he was considered inoperable and said, no other treatment was possible, after five surgeries and 32…
I was just diagnosed with Ewings Sarcoma pnet Need some Answers PLEASE!
I just found out in july2010 that I would start my fight with Ewings sarcoma . I am 21 years old the mother of a beautiful 3year old girl named Aubrey. I had my right kidney taken out and im going for my 2end opion on August 5 2010 after that Im due to start my chemo and radtiton anyday.. Latley I have had loss of energy…
ANGIOSARCOMA CANCER
hi i am writing to see if anyone can help me with what has happened to my dad he has been diagnosed with this cancer angiosarcoma. He was admitted to hospital last week after complaining for two whole weeks of lower abdominal pains he went to 3 separate doctors, one his own gp and twice the hospital a and e, and each time…
new short film on cancer - looking for stories for next film
I am from the colon cancer group but want to post this : PSA on Early Detection for colon cancer ... http://www.youtube.com/watch?v=86jEIEBLPNM&feature=player_embedded the next one will be on diet & alternative therapy during remission. If anyone has a story to share, please message me. I want to keep making these…
Need help effectiveness of chemo on sarcomas
Have pleomorphic liposarcoma. Radical resection done, and "showed" no remaining cancer. CT "showed" no cancer in chest, abdoman, pelvic area. Doing 7wks of radiation. Family doctor wants me to do chemo, surgeon and radioloigy oncologist say it doesn't work. University of Michigan sarcoma center says my decision, would…
dermatofibroidsarcoma of the vulva
Recently found out I have dermatofibroidsarcoma of the vulva. Anyone experienced this?
Mother of a teenager diagnosed with Osteosarcoma
WOuld like to talk to others with children who have kids with Osteosarcoma
Meningeal Sarcome
My 17 year old son was was diagnosed Oct 2011 with meningeal sarcoma. I was told it was very rare. I'm looking for someone that has been successful with treating it. My son had the tumor removed from his left frontal lobe 10/2011. In Jan 2012 when he was starting proton beam therapy MRI showed it back in the same spot. He…
Surviving Sarcoma
In July 2011, I was diagnosed with Spindle Cell Sarcoma. It began with a small tumor in my left shin, which was biopsied and returned positive as a Hemangioma. The tumors continued to grown on my leg (going downward) and toes. After having two tumors biopsied, they came back (+) for Spindle Cell Sarcoma. Because there were…
Looking for fibrosarcoma survivors
Hi, my 33 years old boyfriend is fighting fibrosarcoma since two years. He had surgery last year on his pelvis and it is back again plus two spots on lungs. Just wondering what to expect and whats your story.
Spiral Cell Sarcoma
My father (66 year old) was diagnosed with a 10cm sarcoma in his upper left thigh and surrounding lymph nodes last week. Today the radiation oncologist told him it was spiral cell but I can't seem to find any research on this type? Has anyone heard of spiral cell sarcoma? They are doing another CT scan just to confirm that…
Unclassified High Grade Left Iliopsoas Sarcoma
I was recently diagnosis with a 10cm High Grade Unclassified Retroperitoneal Sarcoma. The plan is to do 2 rounds of chemo in hopes that it shrinks down in order to remove it. I have read that chemo does not always work and was wondering, if so, how long does it take to know if it does. I read some post stating the others…
Sarcoma Sucks
I have Osteosarcoma. My surgery was in June of last year. Im 24 and love to surf, my doctor told me i wont be able to anymore but i beg to differ. I recently got me a longboard so im gonna try it out this summer. I was wondering if anyone else was having any problems with there leg since surgery. I have bad numbing pains…
Ewing's Sarcoma and radiotherapy
Hello! I'm now in my 8th year of remission after being diagnosed and treated for Ewing's Sarcoma in my right scapula. I had a year of chemotherapy and some radiation therapy instead of surgery. Somewhat recently I've begun having pain in my shoulder area again which the doctors have assured me was scar tissue pain as a…
Need help in Myxoid Liposarcoma
i need help in my topic my father he was diagnosis to have fat tumors but not carcenic cells in the begining then after the surgery has been made to remove this fat tumors then after the surgery they discover that it was myxoid liposarcoma then they suggest that we have to make another surgery to remove the edges remaining…
splenic angiosarcoma
Very rare. I've passed 5 years in remission and am searching for any other survivors of this cancer. Thus far NO RESPONSES come up when I type it in. Any help in finding other splenic angiosarcoma survivors would be greatly appreciated. Thank you.
adult rhabomyosarcoma
my husband was diagnosed with rhabdomyosarcoma , stage 4, first in the testicle, then it spread to the bones, ribs, lymph, and stomach. After numerous surgeries and years of chemo & radiotherapy , we are happy to say he is now 13 years cancer free. We had many prayers and I believe this is a miracle. So have faith and God…
Proton Beam Therapy-Insurance denying coverage
I was recently diagnosed with Leiomyosarcoma and the only effective lifesaving treatment for my unique case is Proton Beam Therapy. My tumor was attached to the back of my esophagus. Conventional radiation treatment would subject my heart and lungs to a dangerous amount of radiation. We are battling Horizon Blue Cross/Blue…
Rhabdomyosarcoma - Adult
My father was diagnosed with Rhabdomyosarcoma in February 2009 (52 years old). He had a tumor the size of a softball in his upper thigh. A week following his diagnosis, he was started on chemo treatments. The current plan is to continue chemo thru February or March of 2010 (full year). We were told that his particular…
Dermatofibrosarcoma Protuberans ( DFSP ) on Face
I apologize in advance if there is anger in this message, however I am so frustrated. Around 2003 I had MOH's surgery on my right leg, to remove DFSP. Although the tumor wasn't excessively large, the tentacle like projections of the DFSP extended far beyond the actual lump. Since my initial surgery, I moved away from my…
spindel cell sarcoma NOS
I am a 52 year old gal who just joined this group a moment ago...a spindle cell sarcoma (NOS, not otherwise specified)and have been on this trek almost 3 years. The progression of my disease was one tumor removed from the posterior neck...head and neck radiation (IMRT)...one rt.lung surgery for 2 lung mets...then two more…
high grade spindell sarcoma
I had a 5.5 cc tumor removed from my face. I had the left side of my face opened up and my pallete taken out feb. 10th 2012 just finished 7 weeks of radiation ---I have to wait at least 6 weeks before all the scans are taken again to see if this has even worked,,this is a very rare form of this type of cancer just would…
Sarcoma under shoulder muscle?
My brother was recently diagnosed with Sarcoma. He lives in another state so we don't talk much and see each other rarely. He hasn't told me what type of sarcoma it is. All I know is that he had a tennis ball sized tumor under a muscle around his shoulder area. He went to the doctor because of extreme chronic pain in his…
ALVEOLAR RABDOMYOSARCOMA
HI I AM A MOTHER OF A 4 AND HALF LITTLE BOY NAMED DANY , HE WAS DIAGNOSE WHEN HE WAS ONE YEAR, DID SURGERY , RADIATION AND CHEMOTHERAPY, AFTER 2 YEAR CANCER HAD COME BACK,IN THE SAME PLACE (NOSE) I AM VERY SAD, AND DONT KNOW IF SOMEONE HAS PASS THE SAME THING OR CAN GIVE ANY HOPE BRENDA
19 yr survivor and NEED ADVICE! please
I was diagnosed with rhabdomyosarcoma before my 3rd birthday and spent about 2 years in the hospital undergoing chemo and radiation to my head and neck area. The tumor was inside my nasal cavity bulging the soft pallet of my mouth and was centimeters away from my brain. Due to wear the tumor was located they blasted my jaw…

Sarcoma

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