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DDCS

Trimix
Trimix CSN Member Posts: 1
edited March 2014 in Sarcoma #1
90 days ago I suffered a pathological FX to the left distal humerus, and a mass was found that had deteriorated the bone. After electing to biopsy the mass, it was sent all over the country. AFIP (dept of defense), Moffitt Center in Tampa, all confirmed a De-differentiated chondrosarcoma, or DDCS. Pretty damn rare, especially for my age (40), and as a primary site location. All of this in a healthy, well nourished, very active person. Like being struck by lightning really. Since that time, I selected Dr. Letson at Moffitt center to resect the tumor, and rebuild my left arm, in liue of amputation, which was my first recommendation. I'm about to start chemo and radiation. I'm in excellent spirits, and after many adversities in my life consider this my "next challenge". Are their any other rare sarcoma survivors out there, that would care to discuss...anything really? I'm open.
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  • Larry1944
    Larry1944 CSN Member Posts: 1
    #2
    Your Cancer/My cancer
    Your story seeems like mine, however mine is my leg and knee. im 68 and a year ago complained of pain in my leg,no one at that time requested an Xray,they were sure it was
    back problems,after 1 year no Xray until I was walking leg gave out and broke my femour,Emergency room did a xray and discovered tumors, im still so upset thyat they didnt xray my leg a year ago, I went to Moffitt also, what a great place Love those people, Im to start radiation therapy,a rod was put in my leg and had to have the Knee replaced we dont know if the therapy will do any good. God Bless you my Friend, I and wife are raising my Grandson of 8 years,Kind of in a dilema.
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  • DBMcCrocklin
    DBMcCrocklin CSN Member Posts: 2
    #3
    Update on your status
    I see that your post was 4 years ago. I am also 40 with dedifferentiated chondrosarcoma in my ribs. Was wondering about your current situation.
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  • DBMcCrocklin
    DBMcCrocklin CSN Member Posts: 2
    #4
    Update on your status
    I see that your post was 4 years ago. I am also 40 with dedifferentiated chondrosarcoma in my ribs. Was wondering about your current situation.
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  • sasha_hardwick
    sasha_hardwick CSN Member Posts: 3
    #5
    Larry1944 said:

    Your Cancer/My cancer
    Your story seeems like mine, however mine is my leg and knee. im 68 and a year ago complained of pain in my leg,no one at that time requested an Xray,they were sure it was
    back problems,after 1 year no Xray until I was walking leg gave out and broke my femour,Emergency room did a xray and discovered tumors, im still so upset thyat they didnt xray my leg a year ago, I went to Moffitt also, what a great place Love those people, Im to start radiation therapy,a rod was put in my leg and had to have the Knee replaced we dont know if the therapy will do any good. God Bless you my Friend, I and wife are raising my Grandson of 8 years,Kind of in a dilema.

    My husband was just diagnosed

    My husband was just diagnosed with dedifferentiated chondrosarcoma. How are you doing? What percentage was differentiated?

    Hope its good news!

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  • sasha_hardwick
    sasha_hardwick CSN Member Posts: 3
    #6
    DBMcCrocklin said:

    Update on your status
    I see that your post was 4 years ago. I am also 40 with dedifferentiated chondrosarcoma in my ribs. Was wondering about your current situation.

    Wondering if you can give an

    Wondering if you can give an update? My husband was just diagnosed. What percentage was differentiated?

     

     

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