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Spindle Cell Sarcoma in my right calf...
Hi... I was just diagnosed with a Grade 3 tumor/stage 3 Spindle cell cancer in my right calf... The tumor is 10X10X20 centimeters and I'm currently about 10 radiation treatments in an expected to do 28 total... After radiation I'm supposed to wait 4-6 weeks of rest followed by surgery... There hasn't been any talk of…
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synovial cell sarcoma
I was diagnosed with synovail cell sarcoma on my upper arm feb 2006. I had surgery then radiation for 40 days and chemo for 5 days a week/month for 6 months after diagnosis. Anybody who have same case like mine?
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Spindle Cell Sarcoma on Right Triceps
Hey all, My father was just diagnosed with spindle cell sacroma on his right triceps. It is quite large (12-13 cm long, 9 cm deep). He waited WAY TOO LONG to address this problem, assuming it was something less harmful (his procrastiation is a different topic that frustrates me profusely, trying to not let it get the best…
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advice needed
Hi there i would be grateful for anyone's advice. I have recently discovered a large lump on my left thigh. My surgeon said the MRI shows its just a fatty lump but needs to come out anyway becasue of its size - it about 12cm long by 6 cm across. I had Breast cancer in 1997 and just feel there may be more to this that meets…
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Seeking clear cell sarcoma patients
My 47 year old husband had a suspicious blockage of his small intestines three and a half years ago that ended up being a small acorn-sized clear cell sarcoma. It was removed, and he was watched for almost two years and then another fist-sized one showed up in its place. Went to IU (Indy) and met with specialist who…
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Should I have chemo for synovial sarcoma?
My name is Daniel, I have a wife and two children, and three months ago I was diagnosed with synovial sarcoma with primary site in my lung. I've had half of my left lung resected and the margins looked clear. Originally my oncologist indicated that other treatments may not be necessary, but after discussing my case with…
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Angiosarcoma
I was diagnoised with angiosarcoma, post radiation in April of 2004 they did a complete mastdectomy and a skin graft, using skin from my leg. I have been cancer free until this month. I found a bruse below the scar tissue from my surgery. This bruse is in the field of radiation from my first breast cancer.in 1997. I have…
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angiosarcoma of the breast
This is a rare cancer. Those that are diagnosed with this cancer often go through the same treatment originally as many breast cancer patients, angiosarcoms is a totally differnt thing however. It is know to spread aggressively to your other organs and travels through the blood. It is a soft tissue cancer. If there is…
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Using Chemotherpay for Synovial Sarcoma Cancer
On Sept 4th, 2013; My wife had surgery removing synovial tumor encasing the aorta and its size is 8 cm. Now, we been asked to start chemotherapy (CTH) to eliminate its cells left or possible been distributed anywhere else and avoid reoccurrences. We need two days to take a decision to accept starting the CTH and kindly I…
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Reoccurring Lipo-Sarcoma
My mother just turned 65, but was very active. 3 mile walks, and weight training 3 times a week. She discovered her Lipo Sarcoma in her left calf. She had surgery in January 2003, followed by radiation. The standard 3 month CT scan found new problems in her hip, a small egg sized bump, and invasion into her lungs. She has…
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Spindle Cell Tumor
On Sept 2 a tumor was found in my abdomen. On the 9th I had surgery and was told that a soccer ball sized tumor was removed from my abdomen. It had been attached to the omentum. They also did a complete hysterectomy - for other reasons. There were carcinoid tumors on my intestine and 6" of it were removed. I don't see the…
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soft tissue sarcoma
just got my dx. dont know what type only that it is low grade and large in my right leg behind the knee .they want me in surgey right away and then raditaion.would like to here from anyone with any info on this treatment. how long was there recovery what was rad. like can you still play basketball is there a lot of pain…
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I HAVE A DREAM...
...that one day we will have a pink heart shape pill that cures all cancers and our biggest complaint will be that it comes only in 6 different flavors. Please, join me in this dream and until then god bless us with nothing but happy hopeful days. Laz
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Adult Rhabdomyosarcoma
My husband, 43, was just diagnosed with Rhabdomyosarcoma yesterday. His mass is in his chest. CT scans have not found it elsewhere. I am having a really hard time finding information on this cancer online. Apparently, this is a rare cancer and exceptionaly rare to be found in adults. I would appreciate hearing from anyone…
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Primary Sarcoma of the Brain
My 25 year old husband was diagnosed with Primary Sarcoma of the Brain in August. He underwent surgery to remove the tumor on August 28, 2004. It took the pathologists three weeks to make the diagnosis at which time the tumor had already came back. They scanned his entire body and didn't find the cancer anywhere else (very…
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Worried
My mother in law has had Papillary thyroid cancer which was first removed in 2000 along with her whole thyroid. Well she had a recurrence in 2010 and the mass was removed from lymph node and she had her radioactive iodine treatment again. Well at that time there was a very tiny mass that was seen but left behind. It stayed…
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Need help with finding a good doctor
Hi All, My mother has just been diagnosed with what is likely retroperitoneal liposarcoma. She is based in Delhi, India and we are looking for best liposarcoma doctors in India. Does anyone know of good liposarcoma doctors in India ? We are primarily looking at Tata Memorial Hospital for Cancer Reaserach in Mumbai/Bombay,…
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Synovial Sarcoma plus metastases in both lungs
I live in the UK. I developed a small lump on the inside of my L foot about 2 years ago. It got larger and so I saw my GP who sent me to a Podiatrist who diagnosed it as a Ganglion. I had an MRI Scan and was put on the urgent waiting list for operation. The lump grew and got considerably larger, in fact it was the size of…
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Stage 3 Sarcoma - Any answers?
My brother-in-law who I love dearly was diagnosed this past week with soft tissue sarcoma which is a stage 3. He is 42 years old and the father of 3 small children. My entire family is devastated with this news. Not only am I scared out of my wits for what he will suffer through in treatment - i just want to know that he…
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DFSP
I was diagnosed last year and had the mohs procedure to excise it. I just found out yesterday that it has come back and need to have it excised again. I have read that there is a new drug therapy being used in conjunction with the mohs procedure for reoccurences. I was wondering if anyone on here has used it and is it…
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Peripheral Nerve Sheath Tumors
My husband was diagnosed in March 2008 with high grade, stage 3, aggressive, Malignant Peripheral Nerve Sheath Tumor/soft tissue sarcoma a month AFTER the grapefruit sized tumor was surgically removed from his sciatic nerve in his pelvis. My husband is now undergoing chemotherapy with plans to have radiation too. I'm…
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Synovial Sarcoma
I was diagnosed in May with synovial sarcoma. I went bowling over spring break with my boyfriend and a few days later my leg had a bulge out the side. a few weeks later i found out that I had a tumor in my right upper leg that was right between my femoral artery and my femoral nerve so it was tucked in a very bad place. I…
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ck anyone?
HI evreyone, although I am not new to sarcoma this is my first post here. My husband (29) is fighting osteosarcoma for seven years now. Recently 3 lessions were found in his lungs and he got ck (cyberknife) which seem to work. Two months after, lessions had been shrinking, Now I am wondering: whats next? My oncolog doesnt…
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Leiomeosarcoma Treatment Thoughts
Finding conflicting info on treatment - surgery... Clear margins dont always mean cancer free. i had surgery, now going through chemo and then radiation 5 days a week for 5 months. Not a lot of info out there on this type of cancer. Would like advise, and to hear from those who have had this cancer and survived and…
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Synovial Sarcoma
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Stage 4 Malignant Fibrohistiocytoma
Hello Everyone, My mother is at Stage 4 Malignant Fibrohistiocytoma with mets and the cancer growth on her stomach is growing where she said it hurts when she wakes up and walking around. She is going in this coming Monday for radiation therapy. I'm just a wreck and would like to talk to someone who knows a loved one that…
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Chondrosarcoma of the lower spine
I have been diagnosed with chondrosarcome of the lower spine. Suggested treatment is 6 weeks of radiation (which I start this week), followed by 2-full days of surgery (with no encouraging results), and more radiation following surgery. I would like to talk with someone who has had this type of cancer and hear the…
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Adult Embryonal Rhabdomyosarcoma
Hello everyone, I was recently (Jun 2012) diagnosed with having EMRS. I am a 42 year old male. I had the primary tumor resected in August 2012 with the CT surgeon stating that there were "Clean Marigins" around the resected area. I then received some chemo. Vincristine, Dactinomyocin and Cyclophosphamide (VDC) for a while.…
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Uterine Adenosarcoma - found during 2nd opinion - Need advice, please!
I wrote about a month ago regarding my mom's chemotherapy treatment for uterine carcinosarcoma (MMMT). Several members replied that carbo/taxol was the standard treatment they were given, and suggested I get a second opinion for my mother when her doctor suggested a different regime. I followed the advice, went for a…
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Uwings Sarcoma
i have Uwings Sacoma. i was diagnosed in aug of 2003. i am 17. im still doing chemo, and i might be starting radiation soon. Anyone have comments on radiation in my case, or any...?