6 months post salvage surgery

Steve1961

most of you know my story for those of you that don’t was first diagnosed at age 57 glarson score 7 PSA 8.1 decided to do radiation not a good thing. The cancer was of Cribiform and apparently Cribform is radiation resistant don’t let anybody tell you different, .. 1 year ago PSA creeping up three straight test to 1.7 from 0.9 MRI biopsy confirmed cancer still there but lucky enough to still be in the prostrate didn’t hesitate and ooted for salvage surgery. I am pretty incontinent, but you know what that’s life just had my second PSA test undetectable. I am very grateful and thankful. Hopefully it will stay that way. I don’t think prostrate cancer will kill me. It will be a hard attack because every time I go to check for the results my heart starts pounding something terrible. I feel like I’m gonna have a heart attack lol but that’s OK. I have been thru alot and learned alot and i will always give my solid advice because i have learned you cant TRUST some doctors

Clevelandguy

Hi,

Great news, hope for many more undectables in the future……..👍

Dave 3+4

Steve1961

I must say it’s no walk in the park. I am pretty much incontinent. I don’t think it’s going to get better and I have been having an ongoing UTI now for almost 4 1/2 months and that can’t be good either. I just can’t figure out what’s causing it maybe because I’m not emptying my bladder dully so hopefully I can get this straightened out but as long as I stay undetectable This is all nothing

Buff1977

Hey

Just wondering who and where you got the salvage surgery ? I am good right now with my radiation treatments and ADT completed. Just wondering about your surgery because if it comes back….like to think that could be an option. I had HDR and 25 external treatments along with 3 years of ADT. Handled it with flying colors ! I loved having all my thick hair back on my head ! 31 PSA 9 Gleason …..none outside the prostate 5 years this April 2025

Old Salt

Note to Buff:

You are watching your PSA, I assume.

With respect to a future resurgence, there are many options for treatment nowadays. My own specialist told me just yesterday that there is no 'universal' best option. Much depends on the specifics of the prior treatment.

Marlon

. . . and where the resurgence is.

Steve the way I look at it , we're all living 3 months at time.

Josephg

https://csn.cancer.org/discussion/comment/1718687#Comment_1718687

Absolutely correct!! I look at it exactly the same way.

I just received another 3 month reprieve on Wednesday, when my PSA test showed that the Bandit is still undetectable.

Steve1961

another 3 months cancer free ..just had my 9 month check up and im undetectable…..question is there a more sensitive test i can take this is my result

Value<0.015Minimum detection limit of assay is 0.015 ug/L. Performed using the Abbott Architect i2000 chemiluminescense method. I seen people post results of less than 0.0003 .i am going to UCSF a good cancer institute .shoild i ask i would assume they would just do it if it were available

Clevelandguy

Hi,

If you test is reading .015 that’s very good. As far as a more sensitive test, I don’t think you can get to detection levels much lower. Just look for a flatline trend over several tests with minor variations due to testing process. Your body is still producing a small amount of PSA from your Cowpers gland.

Dave 3+4

Old Salt

That’s a great result; no good reason to go beyond that.

VascodaGama

Steve,

You are in the Zeros.

Isn't it so good when we see the LLD sign (<) in test results? I love it.

Congratulations

Steve1961

i couldnt be any more blessed and happier thank you all for you input and thoughts i pray for wveryone all the time …..keep on trucking