The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

anyone taking ativan long time ??? I would like to guit taking it
Just looking for some advice. I have been taking a very low dose of ativan for a year since my surgery etc. I have read about side effects of stopping the medication and plan on doing it slowly, however i just wondered if anyone else took it for a period of time and had any kind of major withdrawal from it? I dont like to…
OVCA Vaccine Trial (FANG™) in Dallas
http://mccrc.clinisite.com/index.php?q=node/693 My wife is looking into this trial after her Taxol maintenance regimen concludes this Summer. I don't know if MD Anderson kept a large enough sample of her tumors. Do any of you know if it is common practice to "ice" the tumor specimens after surgery?
Having a bad day
Ok...I am have 10 treatments under my belt and 8 more to go. Today I am feeling sick to my stomach, no appitite, and extremely tired. Please tell me this is just a bad day and I will have some more good days until the end of treatment? This is terrible.
Could I use your other shoulder?
My onc just called with my latest CA 125 and it went up again from 40 to 72. She is offering me another drug, I can't remember the name right now. I thought she said samara but when I googled I found Synarel. That might be it. She said if the numbers get too uncomfortable for me or if I start to feel anything, I can choose…
caris testing
Has anyone done t he molecular testing by the company Caris, which can assist with the best chemo to use?
Bye-bye portie
My IP port was taken out today. Good riddance to the silly little thing that never worked and only caused pain and frustration. The surgery took about 5 minutes including cutting, pulling the port out, sutures and chit-chat with the ONC. Then I drove myself home. Husband is too busy to come with me; working extra hard…
GOG Meeting
The Gynecologic Oncology Group (GOG) held its 84th Semi-Annual Meeting on Januray 26-29, 2012 in San Diego, CA. http://www.gog.org/meetinginformation.html Presented last summer, in the first head-to-head clinical trial comparing gene expression patterns (molecular profiling) with personalized cancer cytometric testing…
Newbie here..mom diagnosed with stage IV Ovarian Cancer
Hello, I will apologize upfront for the long post, but since I'm new I'll share all that's happened up to now. My mom is 62 years old and was diagnosed with Stage 4 Ovarian cancer 14 days ago. She went in the hospital 12/29 and wasn't diagnosed until 1/4. She's had issues with her breathing since this began, in fact that…
Hair loss question
Hi, Everyone! I have a question about hair loss and regrowth. I have Stage 3 c, high grade and a second, unrelated cancer in uterus, stage 1, discovered in pathology from surgery. Beginning in March 2012, I had 3 rounds of taxol/cisplatin to reduce tumors away from bowel before surgery in June. My hair fell out right on…
Forme (Lisha) - how are you doing?
We haven't heard from you for a while and I was wondering how you are doing? Kelly
My Grammy has stage 4 ovarian Cancer.......
Hello Everyone. I found this page by coincidence and was just coming here for a little support if that is o.k.? I did not know where else to go. My Grammy is 72 and about 2 years ago she was diagnosed with stage 3 or 4 ovarian cancer. Unfortunately it had spread to her colon and bladder as well. When she was younger she…
Low Grade OC, Stage 3 C
I have had surgery for an "endometrioma" which was actually Stage 3 c ovarian CA. There are 2 path reports, one says Grade 2 tumor, other says Low Grade. I am going to have a 3rd one. This has probably been there for 4 years. Had a pap with irregular ovarian cells 4 years ago. I am hoping for low grade, but it is reported…
Need to vent
I am sorry but if I don't get this out I feel like I will explode. I have mentioned that my family consists of my son, my mom; I think I have vented before. My mom is 88 and has her share of health issues. She has rheumatoid arthritis which has crippled her hands and feet but she is still able to do everything for herself.…
chemo
So I had my first treatment on January 7th it wasnt too bad but the neulasta shot that i had the next day kicked my butt. I was in bed for two days. Am i going to have the same reaction every time i have that shot
Good News
Just finished 5 months of Doxil which did not work and then 6 treatments of Carbo for first recurrance. I am happy to report that my ca 125 is 11 and we are calling it a remission. Not doing a CT scan as they hardly ever show my disease. No bloodwork or doctor appts for 4 months! Dr told me to take a long trip and enjoy…
CA 125 Question
Hi, I wonder if anyone has had this happen to them. I have been NED since January, 2010. Had Stage 2C with a hysyterctomy and six months of chemo in August, 2009. Have been doing real well until recently. I went into the hospital with what I thought was a gallbladder attack, however, the Drs. were not sure if it was a…
Muscinious type Ovarian Cancer with 19-9 tumor maker as well as CA 125
Hi, I was diagnosized with muscinious type carcinoma ovarian cancer when I was 25 in 2009. I have recurrence every yr as well as debulk abdominal surgery. I just had a debulk surgery in Oct 2012 and in Dec, it came back metastasis to the lung(small nodules). Now, I am having oxilaplatin and if it doesn't work, will be on…
Acid Reflux Again...
I know I discussed this about four months ago but still having problems with acid reflux. My chemo ended in August but since then have had every test in the book and have tried about 6 different pills and still having problems. Have put the front of my bed up and tried many other home remedies but nothing has worked. Has…
Afraid for my Mom---she is in ICU and everyday is more bad news
My Mom was dx with Ovarian cancer in June. On July 31, she had her hysterectomy and debulking. She had convinced herself that it would just be the ovary and that would be that---bring on the chemo. It was anything BUT that. They found extensive cancer in her abdominal area. Her spleen was removed, cancer was "caked" on the…
Long road ahead
I am on my second round of Carbo/Taxatore ...md cut it back by ten percent as I was very ill for two weeks. My numbers are way down and my Prt showed signigicant reduction. My balance is much better..don't need walker..use ankle weights. Lost some weight..have thrush every month. Stindoors. Most of time..flu season. My…
Next clinical trial info recieved
I just wanted to share some information on the next clinical trial my Onc is suggesting for me. It is a phase 2 evaluation of a drug called Dalantercept, a novel soluble recominant activin receptor-like kinase1 (alk-1) inhibitor recepter-fusion protein. Thats a mouthfull. It's also known as ACE-041 and was created by…
3 month check up today
I had a 3 month check up today and all went well. Everything is normal... My CA 125 went up a few points but doc is not worried because I was getting over a stomach bug and had a bit of a cold when I had it done so we are going to re do it in a month. She said see you in 3 months... I was a wreck about this appointment. It…
The beginning of my Mum's story.
Hello, I'm new here and like all of you I have found my way here under the most awful of circumstances. My beautiful angel of a mother has been suffering accutely with what she has been told was IBS for some months now. On Monday Nov 26th she was rushed into hospital where she had emergency surgery to deal with a blockage…
To chemo again or wait
Hello everyone just wondering if you gals have had similar experience. My ca 125 is on the rise. 20Aug,49dec,73january. Doc says its up to me when I wanna start chemo. She says a study showed it didn't make much difference if I waited till I had symptoms or start chemo now. Ct scan only showed slightly enlarged periaortic…
ROLL CALL - DECEMBER 2012
Someone suggested roll call to keep track of all teal sisters on this board. I think it's a great idea. Please post a short status report of where you are in your journey. Dear long-term survivors! If you are just lurking please post too to give us newbies some hope and motivation. Thank you ladies,
Can someone please tell me what tests suspected your cancer?
Hi! I've been recently having tests for many symptoms of ovarian cancer and feel as if something is being missed along the way. I don't know if the drs have performed all proper tests or if they just don't do anymore because ovarian cancer is so hard to detect? I amallergic to ct scan dye so I had Pelvic/ abdominal mri Tv…
Hair Loss
How did everybody deal with hair loss(if you even lost your hair at all) when you started chemo did you wait to get wigs, scarves and hats before you started chemo or once you started losing your hair. My NP told me i should get wigs before my first treatment. I mean is it for certain that i will lose my hair. Did you let…
Roll Call - PPC
Following on the roll call of Ovarian Cancer sufferers I am asking if PPC sufferers could do the same please on the Peritoneal Cancer board. So often when I go to find out details of a postee there are no details there. I have started this on the PPC board and ask that as many as possible of you please also give your…
Surgical removal of the lymph node in neck confirms OVCA again...
As I posted last week I had a lymph node in my neck surgically removed last week. It came back OVCA. I will meet with my oncologist Monday as he is working on a treatment plan. I had 9 months of complete remission. I assume he will probably order another PET before I begin treatment. I HATE THIS DISEASE!! I am so thankful…
Next clinical trial
I was wondering if anyone has been put on a clinical trial that includes an injection? My first trial didnt work, and am already having a re-occurance while I was recieving a low dose taxol every month. I didnt get all the information yet, so not sure what its even called. The nurse said its a sub-cutaneous injection and…

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Ovarian Cancer

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