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Read any good (cancer) books lately?
I recently read The Red Devil - To Hell With Cancer and Back - by Katherine Russell Rich. Although she had breast cancer, and her diagnosis was about 20 years ago, she has had numerous recurrances and still has a lot in common with all cancer patients. The name of the book, Red Devil, comes from one of her chemo drugs.…
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Caelyx (Liposomal Doxorubicin) and Carboplatin
Has anyone had this combination of chemo before. I will start to have this combo from this Thursday. Please let me know anything I should pay attention to, such as, side effects? Thanks a lot. (I only got to know my chemo treatment last Friday as my PET scan shown multiple mets.)
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Do you know any chemotherapy regimens for recurrence?
When I first diagnosed of OVCA, I had the standard Platinum chemotherapy as well as the debulking surgery. However, my ‘NED’ was only 3-4 months long. Since June last year, my CA-125 has climbed from 8 to 140. My recent CT scans found enlarged lymph nodes and a lesion (2cm x 2cm) in the small bowel mesentery. My oncology…
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Tina Brown
Hello ladies.. you may already know, but one of the other gals posted on the PPC board that Tina Brown has passed.. I knew she hadn't posted much lately and was struggling.. I am sorry to post bad news... She seemed like such a lovely person, her posts always informative and supportive. She will be missed. RIP Dear Tina.
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Chances of recurrence with clear cell
Looking for information on clear cell. I was diagnosed in Aug 2009 with Stage 1A, grade 2 clear cell carcinoma. Had 2 surgeries and the usual 6 rounds of carbo/taxol. Finished chemo in January and my PET/CT scans (2 of them) have been negative so far. CA-125 is down to 7. Things are great, right ? Or are they ? How…
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thank you
I have not been a member of this board for long, but I wanted to stop in and thank you all for the thoughtful responses I rec'd to my posts. My mother (73 yo)was dx on Dec 2nd, had chemo on Dec. 13, and has been steadily declining since. She is too sick to recieve more chemo, and cat-scans showed her tumor grew, not…
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Spread to Brain
Folks, you all need to be aware that ovarian cancer does spread to the brain. My friend is currently dealing with multiple brain tumors from stage 3 ovarian cancer. Please ask for regular brain scans as part of your periodic checks as one tumour can be removed, its a different story with multiple seedings.
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Brain mets or just brain dead?
I caught the stomach flu bug and spent yesterday night on the toilet holding a bucket. Too much information, sorry. It was not fun at all. I lost 8 lbs of water in 1 night, honestly. Slept most of the morning and in the afternoon decided to go downstairs into the kitchen and make some tea. I am home alone during the day.…
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review in 9 months
Below is me when I first was digesting my new cancer diagnosis, and the diagnosis of ovarian cancer....Now is me 11 months later...The thought of cancer is still very overwhelming for me. I've been done with chemotherapy for 3 months. I have had MY FIRST OFFICIAL FOLLOW UP WITH MY ca125 and it was 6 the same as it was at…
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PARP inhibitors , Brac negative
Hello Teal ssisters Considering a trial with PARP inhibitors. Anyone else have experience with this?
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Anne Behymer - how are you?
Does anyone know how Anne Behymer is doing? Kelly
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Veggie burgers?
Hi Ladies, Okay, I confess, one of my very favorite food is a cheeseburger. I try to use low fat ground chuck. Last night I found a company called Morning star. They make frozen veggie patties, etc. (several different products) When I read the ingredients. one was Soy whey (?). What alternatives are there? Anyone know of…
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re: stage 4 cancer metastasised to lungs
Note: I have posted this in the Peritoneal cancer forum but doctors said this is pretty much identical to ovarian cancer so I am also posting it on this forum as well. Hello everybody, My mum, who is 58, was diagnosed with Primary peritoneal carcinoma stage 4 in August 2012. Initially, we took her to the hospital because…
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I still keep up
Hello Everybody, Even though I haven't been posting on this board for a while, I have tried to keep up. I found out about this board after I completed IP treatment for stage 3B in 2008. The support I found was incredible. I will continue to send up prayers for all of us who have become warriors in the fight against this…
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I hope you have a good CA 125, Kikz (Karen)!
I read somewhere on one of the posts that tomorrow you have your first CA 125 blood draw after starting your new meds. I tell you, these blood tests don't seem to get any easier with time. Sending lots of good thoughts and prayers your way that your number is good! Kelly
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Life during chemo?
Having my first chemotherapy sessions on Monday and Tuesday. I know everyone is different but how mobile were you all when you were having your treatments. Were you able to work, drive, get out socially? I have this vision of laying around the house all day exhausted but I hope I have the wrong idea!
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Chemo starts tomorrow, just one more question I promise!
Did you all eat before your chemo treatments? I sort of feel it will be my last meal for a while but I would hate to make a mess at the chemo center if I react badly to the drugs!
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Liver mets
Hi everyone, I hav just been told I need chemo for secondary cancers on my liver . I had Ovarian cancer in 2008 and have been in remission until now . anyone out there please ..I am in shock . also I feel abandoned to " just get on with it " On Carboplatin for six sessions I would appreciate any knowledge on this diagnosis…
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Hi, still here
Hi Ladies, Just wanted to stop in and say that I am thinking of you all. I do try and read throught the posts every few days, but finding time and energy to post is so elusive. We are in wedding planning crunch time. The big day for my daughter is March 2. Still lots of final details to sort out. I even hired a wedding…
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New normal?
I finished chemo September 2012 and I am still having a hard time adjusting to what my doc calls my "new normal." I am still having neuropathy and still very fatigued. Is anyone else having the same problems? When will it go away? im so frustrated because my family expects me to be my old self again and I don't feel like…
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Intraperitoneal or IP treatment
I just had a secondary debulking surgery at Sloan Kettering last week and everything went really well. Now I am to start chemo again with two new drugs. I read that the technique employs two generic drugs already in wide use for ovarian cancer, paclitaxel and cisplatin, and involves high doses that can have severe side…
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Anyone have Low grade, but not borderline OC
I had 3 C but it is either Low grade or Grade 2. I hear Low grade is much more resistent to chemo. It is the rarest of the OV, 10% of OC is low grade. The heavy duty chemo really frightens me.
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To Our Teal Sisters on the East Coast of the U.S.
From the TV news reports, I can see that you all are bracing for one heck of a winter blizzard. Praying that everyone stays warm, dry and safe! Hugs from the West Coast, Kelly
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Does Ovarian Cancers metastasize to the Brain?
Hello, I had to post this because as of late, I had a friend and now see a couple of our warriors who it appears their ovca has met to the brain? I was told that ovarian cancers are generally limited to the trunk/torso region that it originated in and that it typically doen't mets to the brain regions. Was I given…
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antioxidents supplements vs no supplements
My Oncologist said to stop taking all of my anti oxidents during chemo. Books I have read say just the opposite. What are your opinions. It makes sense to me to stay healthy during chemo and to lessen the side effects, but I hate to go afainst my doctor. I start on the usual cisplatin/toxol (sp) on Monday.
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Missing a tooth?
University of KY college of dentistry and gyn onc dr are doing a study on women with epithelial OVCA and missing a permanent tooth from birth or have small peg tooth.. Apparently there is some genetic connection possibly. Just wondering if any here are missing a tooth? I'm not but have a daughter who is.
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New Here ovarian 1c & Uterine 1b
am looking for some support I was diagonised with stage 1b uterine & stage 1c ovarian have had one treatment of chemo so far second one is this coming monday and I go for radation constulation friday hair is falling out already ...
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Calling All Prayer Warriors!
Need all heavy duty prayer warriors on all the boards! Anne Bhemeyer is in need of all of our prayers and support. No details as of yet...just need the spiritual help for this special lady and friend. Thanks All, Debrajo(from the Uterine board)
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Thinking of You, Mwee (Maria)
I don't think we've heard from you for a while but I know you're busy dealing with your chemo treatments. Just wanted you to know I'm thinking of you, and I'm sure many others are thinking of you too. Sending prayers and good wishes your way. Kelly
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Kayandok, a member here
Greetings. I'm the husband of Kathleen, known as kayandok here. In case you haven't heard, Kathleen passed away on Jan. 10. She fought an excellent fight and was loved and admired by many people. She underwent 5 major surgeries and countless rounds of chemo. She really hated the hospital toward the end (not the people…