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avastin
I have 1 more chemo to go and then the oncologist suggests I try Avastin. Has anyone tried this?
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Looking for Stage II Ovarian Cancer Survivors
Hello, I was DX on May 2009 with a Stage 2B ovarian cancer. I am looking for anyone else who was a stage 2. I want to see how they are doing and if they have had any re-occurances. Thank-You for any information you can provide me. Paula
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Planned CSN outage
Hello everyone, Between 3:00 and 4:00 Eastern Time this morning, CSN will be taken offline for about 2 hours. Exhaustive efforts were made to find a way to restore all private messaages. I'm not qualified to provide technical details but the bottom line is that all private messages that you sent from September 2009 forward…
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Symptoms
I was wondering if before you got diagnosed with ovarion cancer did your symptoms come and go or were they pretty consistent?
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I am fighting Stromal Cell Ovarian Cancer
I have signed up for this site a long time ago and just realized I never posted - So... Here I am.. This is me. I began my journey of ovarian cancer on 9/4 when I went into the emergency room with what was believed to kidney stones. They performed a cat scan and came back to say “good news no kidney stones” Bad new… “There…
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Itching related to carbo/taxol?
I'm on dense dose carbo/taxol. After my second dose of taxol only, I developed severe itching. No rash though. It feels like it is coming from inside my skin. Nothing relieves it. It is getting worse. I can hardly stand it as I am typing. My hands and arms are itching like crazy. If I scratch, it itches even worse. I…
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Increased pain
Hi Ladies, Lately I have much increased pain. it's not yet six months since I had my debulking surgery. I have had pain since then , but it seemed to be getting less noticable, Now it is becoming all the time. I was thinking that maybe it might be adhesions. I know that when I had the surgery the onc spent many hours just…
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Could someone please tell me....
Why the heck my eyelashes keep falling out?????? It is really starting to piss me off. LOL.Seriously I think I am on my 3rd if not 4th set of eyelashes since they came back the first time. I am never without eyelashes because they are constantly growing but right now they are just really short. It seems like everytime they…
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MIA...but i am back!
I've been away for a little while, things have been kind of hectic around here! Mom has recovered amazingly from her surgery and she's been through three chemo treatments with three more left. She's handling them so well! Barely any side effects, she has lost some of her hair but ended up cutting it really short herself.…
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afraid I have ovarian cancer I am so scared
I have felt run down for awhile now, but lately I am exhausted, I have gained weight without changing eating (I was feeling nauseous and vomiting alot but I haven't for some time, but now I have frequent indigestion) I am peeing every 5 minutes (not an exageration! when someone is in bathtub I have to have them pull the…
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chemo treatments
So I have had 3 chemo treatments and so far no problems. No nausea or vomiting or mouth sores or neuropathy. I have had hair loss and have been taking baby steps and cutting my hair short. I have plenty of scarfs and hats to wear and have found a great wig to wear. The only problem I have really had is the injection of…
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First day of chemo is over!
First day of chemo went very well. Taxol in the chest port. I still feel great. Tomorrow is cisplatin in the IP port, some fluids on Wednesday then I am done until next Monday. So far so good! I drank fluids all day and took a double dose of Miralax. I was even hungry during the infusion. I think it is the steroids that…
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A problem complicating things
Thanks for all your comments. I have not been on in a while becasue i am still at that stage where I get freaked out when I hear of someone getting a reoccurance or worse. I have been seeing a therapist and I think it helps. I am hoping I will be that 30% that do not reoccure or only once. There is a woman, Helen on one of…
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chemo treatments
So I have had 3 chemo treatments and so far no problems. No nausea or vomiting or mouth sores or neuropathy. I have had hair loss and have been taking baby steps and cutting my hair short. I have plenty of scarfs and hats to wear and have found a great wig to wear. The only problem I have really had is the injection of…
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CA125 test
I'd like to set the record straight on the CA125 test from my point of view ... obviously! Some women who are diagnosed with ovarian/primary peritoneal cancer at a late stage have a normal CA125 reading throughout the course of their treatment. This was the case with me and remains the case. However, if the CA125 reading…
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Latest CA 125
I had my blood draw on Wednesday and got an email from my doctor (not a good sign) that my count has more than doubled since last month. I have been on Femara for that time and it obviously didn't help. She wants to set up a petscan. I am so afraid I am getting nearer to chemo. I have been in a funk since my numbers began…
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Read any good (cancer) books lately?
I recently read The Red Devil - To Hell With Cancer and Back - by Katherine Russell Rich. Although she had breast cancer, and her diagnosis was about 20 years ago, she has had numerous recurrances and still has a lot in common with all cancer patients. The name of the book, Red Devil, comes from one of her chemo drugs.…
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Caelyx (Liposomal Doxorubicin) and Carboplatin
Has anyone had this combination of chemo before. I will start to have this combo from this Thursday. Please let me know anything I should pay attention to, such as, side effects? Thanks a lot. (I only got to know my chemo treatment last Friday as my PET scan shown multiple mets.)
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Do you know any chemotherapy regimens for recurrence?
When I first diagnosed of OVCA, I had the standard Platinum chemotherapy as well as the debulking surgery. However, my ‘NED’ was only 3-4 months long. Since June last year, my CA-125 has climbed from 8 to 140. My recent CT scans found enlarged lymph nodes and a lesion (2cm x 2cm) in the small bowel mesentery. My oncology…
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Tina Brown
Hello ladies.. you may already know, but one of the other gals posted on the PPC board that Tina Brown has passed.. I knew she hadn't posted much lately and was struggling.. I am sorry to post bad news... She seemed like such a lovely person, her posts always informative and supportive. She will be missed. RIP Dear Tina.
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Chances of recurrence with clear cell
Looking for information on clear cell. I was diagnosed in Aug 2009 with Stage 1A, grade 2 clear cell carcinoma. Had 2 surgeries and the usual 6 rounds of carbo/taxol. Finished chemo in January and my PET/CT scans (2 of them) have been negative so far. CA-125 is down to 7. Things are great, right ? Or are they ? How…
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thank you
I have not been a member of this board for long, but I wanted to stop in and thank you all for the thoughtful responses I rec'd to my posts. My mother (73 yo)was dx on Dec 2nd, had chemo on Dec. 13, and has been steadily declining since. She is too sick to recieve more chemo, and cat-scans showed her tumor grew, not…
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Spread to Brain
Folks, you all need to be aware that ovarian cancer does spread to the brain. My friend is currently dealing with multiple brain tumors from stage 3 ovarian cancer. Please ask for regular brain scans as part of your periodic checks as one tumour can be removed, its a different story with multiple seedings.
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Brain mets or just brain dead?
I caught the stomach flu bug and spent yesterday night on the toilet holding a bucket. Too much information, sorry. It was not fun at all. I lost 8 lbs of water in 1 night, honestly. Slept most of the morning and in the afternoon decided to go downstairs into the kitchen and make some tea. I am home alone during the day.…
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review in 9 months
Below is me when I first was digesting my new cancer diagnosis, and the diagnosis of ovarian cancer....Now is me 11 months later...The thought of cancer is still very overwhelming for me. I've been done with chemotherapy for 3 months. I have had MY FIRST OFFICIAL FOLLOW UP WITH MY ca125 and it was 6 the same as it was at…
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PARP inhibitors , Brac negative
Hello Teal ssisters Considering a trial with PARP inhibitors. Anyone else have experience with this?
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Anne Behymer - how are you?
Does anyone know how Anne Behymer is doing? Kelly
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Veggie burgers?
Hi Ladies, Okay, I confess, one of my very favorite food is a cheeseburger. I try to use low fat ground chuck. Last night I found a company called Morning star. They make frozen veggie patties, etc. (several different products) When I read the ingredients. one was Soy whey (?). What alternatives are there? Anyone know of…
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re: stage 4 cancer metastasised to lungs
Note: I have posted this in the Peritoneal cancer forum but doctors said this is pretty much identical to ovarian cancer so I am also posting it on this forum as well. Hello everybody, My mum, who is 58, was diagnosed with Primary peritoneal carcinoma stage 4 in August 2012. Initially, we took her to the hospital because…
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I still keep up
Hello Everybody, Even though I haven't been posting on this board for a while, I have tried to keep up. I found out about this board after I completed IP treatment for stage 3B in 2008. The support I found was incredible. I will continue to send up prayers for all of us who have become warriors in the fight against this…