Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

Does Blood sugar have any effect on CA 125?
I have read in a couple places that a low glycemic diet will bring down a CA 125 level. Has anyone heard this or any connection with Diabetes, blood sugar an Ca 125?
New here - 19 year survivor and recently dx mother
Hi. I am a 19 year survivor of ovarian cancer - dx in 1993 (I was 25 years old, and i am 45 now) I had and immature terratoma germ cell tumor, stage 1, grade 3, found in an dermoiod cyst. I was pregant at that time, and went through 3 rounds of chemo - cisplatin, bleomycin and etoposide. I tolerated it well, and have been…
Burst bubble
I had my yearly checkup with my surgeon on Thursday. I love him and although he is frank, he is also encouraging. He mentioned that my CA 125 results were trending downward since I began the Tamoxifen in July. I said except for the current one which rose from 24 to 31. He shrugged and said, same thing. I said, you say! I…
The web site keeps kicking me out. Anyone else having that problem?
I was wondering about hot flashes too, I have been getting them since my surgery in Feb, and I think the chemo makes them worse. Do they eventually go away? My dr doesnt want me to take any hormones for them, but it would be nice at least to know they dont last forever.
Waiting for tx to begin
My mom was dx at ER w/ advanced OC last week. She is home now, waiting for final biopsy results to begin tx. She has 20 cm tumor and ascites, and is so uncomfortable. She can't eat much, and it is hard for her to be comfortable. Is this normal for her to have to wait so long to begin tx? Should I be pushing to get in her…
Metformin
Just asked my oncologist to put me on metformin after listening to the CBS morning show yesterday. She said I might experience a few side effects at first, including nausea, loose bowel movements. Has anyone had symptoms like these from metformin? Thanks Shawnna
How important is Optimal Debulking?
I have a quick question. Someone at my support group asked me this and I did not know how to answer. Here is the question. "If your GYN Oncologist tells you that your ovarian cancer (tumor) was encapsulated and he was able to do Optimal Debulking, how important is that in your survival chances?" Does Optimal debulking…
The Naturopathic Approach
Ladies, I've periodically posted information regarding integrative treatments and maintaining NED with diet, supplements, and lifestyle. My story wasn't very earth shattering, it seemed, because I didn't start posting until I was NED. But my prognosis was very poor, my surgery was suboptimal, and my doctor gave me less…
Etopocide
Has anyone been on this chemo? I have just started it in tablet form. I would like to know: ~ How sucessful it is? ~ What the nside effects are? ~ Do you loose your hair? Tina xxx
CA 125 results...not happy.
Had a terrific Thanksgiving and then received my latest results in the mail Friday. I choose not to call in for them because it makes me nervous. For the first time since I started the Tamoxifen in July my count went up. It has gone down steadily each month. Last month it was 24. The current count is 31. Of course I am…
phase 1 and 2 clinical trial patients
Hi, my name is Shannon. I have stage 4 ovc, and just started a clinical trial. It includes recieving a lower dose of taxol once a month for a year to prolong a reocurrance. I was wondering if anyone else has tried a similar trial, and how they are doing?
Stage IV- my fiancé, 22 yrs old
Dear All, My 22yr old fiancé has stage IV OC and will soon have surgery to remove the cancer in her abdomen area. Due to have in Dec this year (2012) or latest Jan 2013. She is the love of my life and I want to be with her regardless of what happens. Is there anyone who can relate to this or advice us on pre- surgery…
Ca 125 rising
Just got ca 125 results; I has risen to 49 from 20. Had ct scan only showed a couple peri-aortic lymph nodes swollen slightly. I don't know what else could be causing this other than a recurrence. Any thoughts?
Lousy. Few Weeks
My condition has not babe good Worsened nueropathy in feet and fingertips ,vertigo.fatuige. We were in Orlando, used wheelchair in airports. My mom palaces while donn there and. Yesterday she was laid to rest. Couldn't make my Live strong at the Y and Thusday I will see mu gyn/onc for maybe diffent chemo. I think I am…
I am a new member I was wanting to know what a normal CA125 is
I was just found out I had breast cancer in Oct.Now I found out I have a ovarian cyst on my ovary . They did a Ca 125 test on my blood . Don't know much about it yet I am in my seventys Hoping the cyst are just that and not cancerous what is normal CA 125?
The Things We Do For Our Caregivers
When we rang in 2012 at our annual New Years Eve Party we never thought for a minute we would have the year we did. A cancer diagnosis,hysterectomy surgery, IP port surgery when it came back cance r, power port installation, 6 rounds of chemo, power port removal and NED status.. Wow... Through it all my husband was my…
New to this site
My mom was recently diagnosed with stage 3 ovarian cancer, she is on this site too and I've read some of the post's and found some of the things you ladies talk about to be really helpful. I am trying to be strong for her, but sometimes its tough and I don't want to share some of my feelings with her becuase I feel like…
Christmas holiday Challenge
Friday morning on my way to work I went through the Tim Hortons drive thru for my coffee and a bagel I was craving. I looked in my rear view me and thought tis the season... When I got up to pay I paid for my order and gabe the girl $2 to by the person behing me their coffee. I told the girl to tell him I said Merry…
1 year later
I dont post alot but I do visit every few days. You ladies have been so instrumental in my journey with ovarian cancer. I have drawn so much strength and hope from this place. It has been a year since I was diagnosed. I finished my chemo in March. It has been a roller coaster for me. Very emotional for me as this was my…
New Drug Looks promising for Ovarian Cancer
There was a story on CBS Morning news today. I was wondering if anyone watched it? A GYN/ONC was talking about a breakthrough on a new drug called Metformin that could help cut down on Ovarian Cancer reoccurance. I copied the link if anyone wants to watch it. If for some reason it does not come up just google CBS Morning…
Dizziness
Hello everyone, I am 35 years old and stage 4 ovc. Had 6 rounds of Taxol with carb. My ca125 was down to 8. Now in a clinical trial and on 3rd round of lower dose taxol. My ca125 up to 14, but my onc just calls it noise for now. I was wondering if anyone else experiences dizziness. It started during my first chemo and…
Thanks to all the wonderful ladies ,I think teal sisters have the biggest hearts..
Well got one under my belt,I was there for 9 hours because they did the normal slow drip.Everything went fine just had a little dull headache and some tummy cramps when i got home.I go back tomorrow for 4 hours just the cis.one i dont know how to spell it but im sure you know.Thanks again you are in my prayers hugs from…
Nothing in my head
Went gor Ct of brain..no tumor..today MTI..no tumor ...yeah. Had appointments with neurolist ant have a few more test for next week. I still walk like a drunken sailor..doctor thinks it may be inner ear problems. Hope it gets better soon. I have a lot to do. I had np chamo last week but ca-125 went up to 24 I go again next…
Another drop!!!!!!
I posted my last CA-125 that was after surgery but BEFORE chemo and it had gone down from 84 to 11. I had another test done after one cycle of 3 weeks. Carbo on the first week with Taxol and the two following week of taxol and it was 5. I am so happy. 5 after one cycle. The Oncologist Office is pleased too.
Mamogram Today
Being that I was told I was BRCA1 positive I was nervous about my mamogram today. Well I was nervous for no reason. All is clear with this one. In June I will have a breast MRI and then my regular mamogram in November. They are watching me close and I am good with that for now. Now for my next follow up and CA 125 check…
Stereotyping OVC cancer
I have been NED for about a year, now. I have been having severe migraines. I had them before the cancer, but the hysterectomy seemed to take care of them. Now they are back in full force and worse. I normally don't think twice about them. The past couple of weeks, my extremities have started shaking. Not a major shake,…
How do you know if your platium sensitive (Carbo)
People on this site talk alot about being platium sensitive. What does that mean? Does that mean you have an alergic reaction or does it mean you don't have an allergic reaction but the drug is not working for you?
transitions
I am an ovarian cancer survivor!!! That is a great statement to make. I am proud to make such a statement...and I do believe it. However, as life reminds us daily...there is always a "however"....Transitions of cancer is what I think of..... I survived....I'm glad for that, but it took a toll. One that I did not think…
zinaida
Yipppppeeeee.... read about your lowering numbers on another post and wanted to say how pleased it made me. ((((HUGS)))) Maria
New Today..not happy
I had an oncology visit today. There were still some questions I had that were not answered. One of them was my Grade. The doc told me I am grade 3. So I am Stage 3c3. I am freeking out. Is this going to change the outcome for me? Is there anyone out there with Grade 3 that have had a long NED?

Ovarian Cancer

Discussion List

Discussion Boards